How I Lost My Leg Amputee Story and Gratitude 5 Years Later
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- Опубліковано 6 тра 2023
- The story of how I lost my leg to become a CRPS amputee. I also share gratitude for the last 5 years! I talk a bit about my mission with the church of Jesus Christ of Latter-Day Saints. God is Good my Phoenix Family!
Suggested Videos:
• My Amputation Story
#crps #amputee #amputeestory #disability #wheelchairuser
Welcome! One Footed Phoenix is the name I gave myself just before my bellow the knee left side amputation. We talk about mental health, amputation, and faith here. Thanks for coming over to check out my story!
PRODUCT LINKS (Alphabetical)
Tri Crest Publishing: tricrestpublishing.com/
Activity Books
Good Vibes: Stress Relief Activity Book for Women: amzn.to/3GwfkQ4
Journals - Available in Soft and Hardbound
Be Still My Soul - www.amazon.com/dp/B0BRLX5H4D
Climb Every Mountain Journal - www.amazon.com/dp/B0BRQ4NCX5
Complicated Thoughts and Big Feelings Journal - www.amazon.com/dp/B0BSFYR2XR
Dare to Rise (Phoenix) Journal - www.amazon.com/dp/B0BSJLN8RR
Wander More Wander Always - www.amazon.com/dp/B0BSJLSZVG
SUPPORT GROUPS
CRPS Amputee Warriors
/ 499145074155455
Early Return Missionaries - Church of Jesus Christ of Latter Day Saints
/ 451062941762280
Amputee Public Group
/ 530991253597948
SOCIAL MEDIA LINKS
Discord Chat: / discord
Instagram: one_footed_...
Facebook Page (One Footed Phoenix)
profile.php?...
Deviant Art Profile: www.deviantart.com/onefootedp...
Pinterest Profile: / onefootedphoenix
Twitter: / onefoot_phoenix
SUICIDE & SELF HARM HOTLINES:
PLEASE seek help if you are experiencing thoughts of self-harm or suicide. I love you, and you are strong! I believe in your ability to have better days! Please please please just talk to someone if you are experiencing a dark point. I am a part of a couple of support groups I am happy to connect you to. One of them has seriously been a LIFE saver fighting CRPS.
SUICIDE Prevention Hotline:
1-800-273-8255
OR
Text GO to 741741 to reach a trained Crisis Counselor through Crisis Text Line, a global not-for-profit organization. Free, 24/7, confidential.
Feel free to reach out to me with a message that says you have a disability and you are seeking support. Please understand I can't respond to everyone though, and PLEASE if you feel unsafe please call the number listed above. You are a beautiful human!
PRODUCT LINKS (Alphabetical)
Journals - Available in Soft and Hardbound
Be Still My Soul - www.amazon.com/dp/B0BRLX5H4D
Climb Every Mountain Journal - www.amazon.com/dp/B0BRQ4NCX5
Complicated Thoughts and Big Feelings Journal - www.amazon.com/dp/B0BSFYR2XR
Dare to Rise (Phoenix) Journal - www.amazon.com/dp/B0BSJLN8RR
Wander More Wander Always - www.amazon.com/dp/B0BSJLSZVG
The past five years have been crazy! I'm still amazed that the two of us faced the same things at about the same time. I was very glad that I got to have my amputation first to see how it was before you had to decide.
Awesome story. Your faith and great doctors have gotten you this far. You are truly an inspiration. I also had an elective above the knee amputation related to pain and other issues. My situation was "fixed" through osseointegration. My faith played a huge role in how I have handled and continued to handle my situation. Keep strong young lady; your life story is just beginning.
You're doing great. Life can be a struggle sometimes. I admire your faith.
I have crps in my right leg and my foot won’t work. I’m really scared
I know the feeling! But the good news is that you don’t need to make a big decision about it today. What have you tried already for CRPS? If you’re comfortable sharing that with me here or in a message on Instagram (just let me know you’re a fellow CRPS warrior in the first line of the message so I don’t accidentally delete it as a creepy message😉). I’m happy to help in any way I can to ease some of your fears! I started this channel because so many with CRPS are desperate for answers. That and the CRPS diagnosis can be a VERY lonely world!
@@onefootedphoenix I have tried tons of oral meds and tons of pt. I’m about to get a nerve block and ketamine also.
@@onefootedphoenix ya that’s true! I have done a ton of oral meds and a ton of pt. I’m about to get a nerve block. And start ketamine soon! Is your crps pain gone after you chose to amputate?
@@Red-hawk1015 unfortunately no, I still have a lot of sensitivity issues in the residual limb that makes it pretty difficult to wear my prosthetic leg. It’s not an end all solution to amputate. You trade CRPS hell for phantom pain and the risk that it will continue to spread. Bisphosphinate infusions are currently what’s helping the most. I’ve been through A LOT of ketamine treatments. They weren’t covered by insurance, and the side effects were pretty awful. It helped calm down a flare at first, but eventually I built up a resistance to Ketamine and it wasn’t even giving me short lived partial relief. Ketamine saved my knee from needing to be amputated, but it didn’t put me into remission by any means. Right now I’m the closest to CRPS remission as I might ever get. Phantom pain, it sucks, but it’s not quite as intense as CRPS was. That’s saying a lot because the phantom pain I experience still requires me to be taking high powered medications in the afternoon/evening. Yet it is still better than the screaming CRPS that had me crying in the fetal position pretty much all the time. It’s still unknown if the pain will improve from what it is at now or not for me. However, I’m also the CRPS amputee who had the most severe case of CRPS prior to amputation as well with this team of doctors.
Also, this video has a lot of commonly asked questions in it that may be of worth to you as you are learning about CRPS options (not all are amputation) ua-cam.com/video/kU7WNRdTRQs/v-deo.htmlsi=stGOQrkiSIrB7oFE