Prolia Denosumab, The Long Term Answer for Osteoporosis or Recipe for Disaster?
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- Опубліковано 18 тра 2024
- Prolia Denosumab, The Long Term Answer for Osteoporosis or Recipe for Disaster? In this video we will delve into the controversy surrounding Prolia, examining whether it is a calculated approach to managing osteoporosis or something to steer far away from .Watch this video to learn more on improving your bone health and lifespan.
Watch and Enjoy! Dr. Doug Lucas Key Moments in this Episode
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00:00 Intro and summary
0:44 Background
3:45 First Study
11:50 Masterclass Registration Link
12:00 Program Details Link
12:27 Can I take this drug forever? And what happens when I go off of it?
14:33 Fourth Study
16:38 Overview
20:18 Closing Summary
21:02 Masterclass Registration Link
21:20 Program Details Link
Study 1
pubmed.ncbi.nlm.nih.gov/19671...
Study 2
pubmed.ncbi.nlm.nih.gov/28546...
Study 3
pubmed.ncbi.nlm.nih.gov/28789...
Study 4
pubmed.ncbi.nlm.nih.gov/36088...
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ABOUT DR. DOUG LUCAS
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Dr. Doug Lucas: Owner/founder of Optimal Bone Health and Optimal Human Health. My team and I work together to create custom bone optimization plans for individuals based around supplements, hormone optimization, peptides and more in order to increase bone health and longevity!
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#osteoporosis
#hormones
#bones
I was prescribed Prolia for Osteoporosis and was not told about side effects. When my teeth starting breaking without cavities I started asking all the doctors and dentists if it could be a medication and they said no. Finally, after asking a lot and having most of my teeth broken and Oral Surgeon told me that it was Prolia. My jaws and gums are so damaged that I can do anything about it and now all I have in my mouth are broken teeth. Please do not use Prolia
Wow, thank you for sharing your story.
All drugs are toxic to us! If doc prescribed, they don't cure you from anything. Doctors are not taught to cure diseases! They only prolong agony in the best case scenario. You are their cash cow.....wake up.
Does a consultation covered by Medicare and secondary insurance,?
Post and I will contact you
My secondary insurance will cover any thing does that medicare covers. Thank you.
Thank you for explaining the risks of Prolia. I was 59 when I started Forsamax after minor fractures from a 1m fall. After 4 years, my DEXA scan showed no improvement. The Endocrine specialist insisted that Prolia was my only option.She claimed that the benefits outweigh the risks. However after some research I decided against it. It's been 3 years and my DEXA scan has not improved or worsened. Your video has further convinced me that my decision was correct.
Thats great, thank you so much for sharing this!
I had severe bone pain in various parts of my body after one Prolia injection. It easily lasted six months and negatively impacted every day (I normally feel excellent). I've also suffered numerous broken teeth and significant dental problems since that injection. I've sworn off all osteoporosis drugs since.
Thank you for sharing this!
I had one shot too and every bone/muscle in my body hurt for six months.
Thank you for your experience. I am afraid to try these drugs
Took 4 injections and felt like I was on chemo getting sicker. I stopped, but told it would affect my bones worse now. I now need a knee replacement, neck surgery and recently broke an ankle. Don’t do it. By the way, always athletic, small frame with scoliosis’ Harrington rods. This disease sucks and being almost 70 and atrophy has set in. 😩
I took two Envinity shots. It’s ruined my life I have RA it’s like being in the worst flare ever all the time I can’t get rid of it. On a Monday I got the infinity shot and my jaw hurt at night. The doctor told me this was not possible I said OK well I’m not doing any more shots. He talked me into one more just one more, now my neck is killing me and my left thigh. I’m going back to my neck surgeon who did surgery on my neck last year to see what’s wrong because after he fixed my neck, nothing hurt and now the pain just won’t leave me alone and I’m on pain meds.
So glad I found your helpful channel
Thank you!
This is really great…. Breaks it down to the absolute risk that is critical , the best !
Glad it was helpful for you!
Very helpful, thanks Dr Lucas for your caring videos.
Glad they are helpful. Thank you for watching!
You are a god send To have this data and the trial explained it monumental. Thank you Dr Doug
Thank you for watching!
Geez, this is so depressing.....I see that many questions weren't answered so I will check out more videos. Thanks so much for this information.
Thank you for listening! Yes, we are slowly but surely getting to everyones questions :)
So glad I discovered these videos. Lots of questions I have are getting answered. Typically, doctors and specialists don't have the time (or perhaps even the knowledge?) to provide important information like this. Thanks you so much!
Thank you for watching!
Thanks so much. I really appreciate this information as a springboard for finding out how best to help myself.
Glad it was helpful! Thank you for watching
Thank you so much for such a clear, concise explanation. It is so helpful.
Glad it was helpful!
I took one injection of Prolia back in 2017. I had a severe adverse reaction to it. Extremely sore and stiff joints and bone pain in my thighs and shoulders. Hands were stiff every morning. Took approximately 18 months to get out of my system. My doctor as well as myself attempted to contact the drug company, and bottom line they really did not care about the adverse effects. I absolutely refuse to put any of those medications in my body. Since then, I have only used natural calcium supplements, Vitamin D3, Vitamin K2 mk7. From one of your videos, I did order a supplement that has the calcium hydroxyapatite in it. I make every effort to eat a lot of greens and watch my diet. I walk every day along with some light weight bearing exercises. This past Dex scan showed a slight improvement. Thank you for the information on your site, I am finding it very helpful.
Sorry to hear about your reaction! Side effect reporting is an issue with our system….
Keep reviewing the material we put out! You could also join our free masterclass, HealthSpan Nation or consider working with us directly.
I began to feel a loss of balance & confidence after beginning Prolia, until I added daily doses of collagen peptides. In my second year now ( age 83) I feel renewed confidence, balance, and perhaps even strength. Reportedly Collagen supplementation is considered ill advised, however, I am experiencing far more beneficial results than before. This discussion is informative, and I’d like to continue following. BTW, my daily exercise includes daily “ doggie walks” of 20-40 minutes whenever possible ( in Maine), some yoga, and doing my own housekeeping.
@@gourlief Who said you shouldn't take collagen? Humans slow production of collagen as we age and research supports supplementation. Take a look at our videos on training and consider some updates to your program :)
@@gourlief
You may Physionic’s video Witt review of the scientific studies on collagen helpful too. He’s a biology researcher.
Do as heavy exercise as you can. Light exercise do little for the skeleton and muscles. Lots of studies on that. Better heavier with fewer repetitions.
Yes I will recommend this to my Dr who wants me to consider drugs for my bones! Thanks, have subbed and look forward to expanding my knowledge.
Thats great! I appreciate your support
Thank you for your honest analysis of this drug. Patients have a right to know.
Thank you for watching!
I was mortified to learn her Dr put her on this. She doesn't have osteoporosis, just mild osteopenia! They used fear porn every year to get another dose into her. After a little education and a trip to the dentist, which raised that concern, she was convinced to take no more and told the drs to take another look at her test results. They very reluctantly agreed. She now takes boron and other multi minerals and does resistance training at Kieser 3x/week. She turns 86 this year and has some falls without any breakages. These industries need independent regulation. Enough of big (p)Harma
Glad to hear she is on a better path. Thank you for sharing this!
Thank you…it WAS HELPFUL. !
Glad it helped! Thanks for watching
Great info. Thank you.
Glad it was helpful!
These videos are so awesome! Thank you for these and I'm buying your new book!😊❤
Thank you for watching, I appreciate your support!
Thank you so much for the simple to understand explanations of pros & cons of Prolia. Since there appears to be more new drugs being generated & the actual pharmaceutical companies funding the research “white paper” that there should be some form of punishment for now non- responsibility of drug companies .
Thanks again for explaining all alternatives
You're welcome.
Liability for drug companies? What a concept...
Thank you for facts. I am so glad I am not taking meds for my bone density. I prefer organic, non-gmo food, natural vitimins and minerals, and of course I am physically active. I am glad your channel showed up on UA-cam. Good information. THANK YOU!!!!!!
Thank you for watching!
How did you know you have osteoporosis?
Take Dexa is a machine that see your bones
9@@marillaclopez2948
Thank you so much for these videos! Your knowledge is so appreciated! I was put on Tymlos and after 2 injections I quit because of awful side effects. I'm 56 with -4
Thank you for sharing this!
So helpful!
Glad it was helpful! Thanks for watching
Just 3 days ago and intern and my GP suggested I begin Prolia or Fosamax for my recent dexa that since 2010 shows Tscores of -2.6 and -2.8. I chose the second recommendation of 1200 mg Calcium and 2000 IU of D3, continue my 2 mile walks, incorporate weights and resistance training. I started Collagen peptide powder and may not include as per this video. I have maintained a 50 lb. loss since 2018. We will check the dexa in a year and I hope to see mo loss and maybe grow. Guess it's time to watch the masterclass! So glad y'all are here!
Thank you for your support, I appreciate you sharing this!
Thanks. I am 76 and I have osteoporosis and I’m not fond of taking one of those drugs. But this video you just did helps me understand better. So I’m hanging on a little longer before I take a drug. I have rheumatoid arthritis and I also have LEMS so my C-spine is the question in the future. But I’m not thinking of that only. I’m trying to stay alive as long as possible of course. I have only limited control of that one. Ha ha anyway thank you I am giving more info now to think about.
You are welcome. Wishing you the best on your journey.
Three years now and it’s been helpful blood work up before I get the injection I feel it’s working and I’m happy too be in good health and my bones are in good shape according to the dexa scan and what my Rheumatologist tells me .
There's a time and place!
Thanks for sharing
I simply went on the website and read peoples comments taking the drug. So many people were very upset they ever started the drug, a huge number of complaints about side effects. That was enough to convince me to steer clear of it. I was on Fosamax then Boniva and after 10 years I went off completely. Since then I broke my humerus but only because I fell off a motorcycle. I also took a fall off a bench and broke two toes because my foot hit the wall on the way down BUT no vertebral FX’s or hop FX’s. It is SO important to do your own research people, do not do something because it is recommended. Some Doctors do not research anything they just follow protocols period.
Thank you for sharing this!
AGREED! I wish I had done my research before going on it 4.5 years ago. Now I'm scared to death about going off, and another serious adverse effect of all this, including after the COVID experience, is that I don't trust doctors, not even "good" ones. I do trust Lucas more than any other, but he's an anomaly in the medical profession.
Thank you for your honest evaluation of this drug.
I am cramming to be prepared for an appointment to test my hormones and to discuss my osteoporosis diagnosis.
This NP tried to push prolia on my elderly mother and she said absolutely not.
From all the videos I’ve watched recently I’m inclined to agree w my wise momma.
I have started paying more attention to getting the 1200 mg of calcium w my food, was already taking Vit D but now combined w K2, walking on treadmill 30 minutes and doing other exercises for osteoporosis too.
Otherwise I do lots of outside yard & gardening work also.
Hopefully I can improve my bone strength naturally 🙂. 2:34
Good start! Keep watching for more tips and consider our master class!
@@Dr_DougLucas I’m already registered for it and looking forward to it.
That is great. We look forward to seeing you! Thank you for your support!@@cindypatrick785
Very good video again. Thanks. Someone I know came off Prolia and was put on a Biphosphonate. So the period for the follow-up biphosphonate is determined by the length of time you took Prolia or by the data that is available for biphosphonates in general?
The outlook is generally that patients would remain on the bisphosphonate for as long as they can. Not a good long term plan in my opinion but sometimes it's the only option.
Thank you so much for the information
Thank you for watching!
@@Dr_DougLucas
Actually, I'm pretty healthy🥰 Unfortunately, four health concerns hit at the same time. Of all people, my wonderful dentist told to keep asking questions. In this case, My very good Dr just wants to give me a pill. Not happening. Your videos gives me LOTS of questions material- and solid direction. Thank you and keep talking. My best to you and your staff
Thank you! @@paulamiller65
I am so glad I came across these video’s. I’ve been one 2 years of annual Aclasta drips. At 43, I was diagnose with osteoporosis and my first two vertebrae fractures (T6 & T11). As a result of the Aclasta, I had a retinal tear just to name one adverse effect. In Febr we repeated the Dexa scan. At the moment I have a fracture at levels T7, T8,T9,T11 &T12. In 2022, I had a vertobroplasty for T6 and T10. My endocrinologist wanted to put me on Forteo, which my medical aid declined. Now she wants to start me on Prolia. I also have 2 stable meningioma’s ( I had a craniotomy in Nov 2020), I am on Topamax for seizure management after that. After my resent Dexa scan my dr has admitted me to hospital for tests regarding these multiple fractures. She discovert distal RTMA. I’v been in menopause for the past 2 years. They don’t want to put me on HRT because of the meningioma, although I think something like Menostar that is estrogen will be fine.
The more I hear about Prolia the more I want to run. I am still young(45).
Thank you so much for sharing this. It sounds like you could benefit from the next free Bone Foundations Masterclass we have coming up if you have not attended one before. You can find more information here --> www.optimalbonehealth.com/build-bone
Excellent review of this controversial drug! I appreciate the description of the scenarios where Prolia, or bisphosphonates for that matter, might be appropriate.
However, knowing how frequently PCPs prescibe these meds I can't help but think of the saying "When the only tool you have is a hammer everything looks like a nail."
Your absolutely right. As a surgeon I fell into this same trap. Everyone has a surgical problem. It's what I do. The expectation when going to a traditional doctor should be a pharmaceutical. It's what they do.
Love that saying. I've never heard it before but it's brilliant 😂
I’m someone who has to take a hormone inhibitor because of estrogen positive breast cancer and will not take those drugs. I have taken garden of life bone growth system instead and last dexa, a few days ago, in 6 months an increase in my spine of bone density, 8%, hip basically stayed the same, so I am pleased with the results and will continue since I did no exercise during that time to increase the density, so the system was the reason for the increase in my opinion. I’m 72 years young.
Congrats on the spine improvement! The Garden of Life system includes strontium which is known to increase bone density on DEXA scans. Dr. Lucas has a video on it, "Strontium: Missing Secret Ingredient to Reversing Osteoporosis or a Supplement Avoid at All Costs?" After watching the video, I elected to take it, but I also have upped my exercise regiment to include resistance training.
What is it grow bone?
Would like to know more of what exactly you are taking…as I too are on estrogen blocker for my cancer. Thank you
Hello,
I congratulate you on your success and your willingness to retest and verify improvement! This is a challenging area that is all too common.
I have very bad Osteoporosis diagnosed at 30, 32 years ago. I have not been able to start the exercise program because of other health issues like Epilepsy. I have refused all the drugs after trying one for 1yr, then read the s/e so chose never to take any again. These vitamins sound like they could be worth starting, I will look into The Garden of Life bone growth system, thank you for sharing.
Great video! So informative.
Thank you for watching!
I'm convinced. I don't want Prolia. I am an active 71-year-old who still wants to cycle the Pacific Coast trail and Lake Huron. I did all my long-distance cycling after my second hip fracture at age 45. I think I will work on building bone density the natural way, through weights, skiing, hiking etc., as well as supplementation. I am also not as fearful of fractures as others. I've had great surgeons who have put me back together.
Thank you for sharing this!
If you still do all those things, you are lucky. Ex athlete at 70 and my bones are failing me quickly. Losing muscle as even with exercise no build up. I was on Prolio 10 yrs. ago and discontinued. That may be the issue.
This seemed to be a very balanced professional overview of Prolia. I appreciate the unbiased review
Thank you for watching!
Thank you. I took it for only a year but additional pain I experienced made me stop ( 3 mo now).
By the way I was on Fosavance for 10 years.
Bummer. If you need help with a comprehensive plan consider our masterclass or a consult to see if our programs are a good fit for you.
Thank you for such important infoemation 😊
Thank you for watching!
I had a diagnosis of osteopenia via DEXA 8 or 9 years ago. Prescribed fosamax but did not take it. Recently with diagnosis of PMR and on low dose prednisone for 2 months, planning to stop at 3. I have bone pathology on MRI of spine, but the spinal doctor is not worried. No surgery required and not experiencing pain. My dilemma. I’ve been encouraged (strongly) to go on either fosamax or prolia which I am resistant to doing. I’m in the medical profession and researching everthing on this subject. I’d no idea of of CTX and P1NP. I like what I am hearing. I live both in Ireland (domiciled) and USA. I would love to chat with your team. Thank you for your dedicated research and information.
Thank you so much for sharing this, I am glad you have enjoyed these videos. We would love to speak with you, you may schedule a discovery call at this link --> www.optimalbonehealth.com/schedule
So glad I am taking it.
I’m happy you are happy.
Thanks for another excellent video Dr Lucas. Do you have any advice on the effectiveness of Evenity (Romosozamab). I started this drug 2 months ago. Thank you.
Evenity drug video coming soon.
Prolia was so expensive even with insurance. Doctor said I had to take 2000 mgof calcium a day with it. Took it for three years then he tells me he doesn’t understand but results were worse. Ordered X-rays and with cat scan they see calcium was going to my main aorta and caused an anorism. I immediately came off it and of course he was not happy. Been off it and on vitamins. Staying mainly the same. Of course I still have to worry about my anorism. That’s my story. It’s all poison .
Thank you for sharing. You're correct. It's all poison, but hopefully with a desired side effect. Sounds like your experience was not so. Sorry to hear but know you are not alone...
I hated it too. Never taking any of these again.
Thank you for this great info.. I really am afraid of these drugs.
Thank you for watching!
I’ve been on Prolia for 2 years (4 shots) My bone density before starting was 3 standard deviations below the norm. It was a tough decision but even those opposed to any meds said it would be beneficial. I’ve had no known side effects and I’m in excellent health. My bone density is now characterized as osteopenia. I very glad with the results however I was not told about effects after going off. I will certainly be looking into that!
Thank you for sharing this!
Thanks for sharing..comments are often weighted by people who have extreme side effects.
Is it the outer bone that improved or the inner part. A Dexa scan does not tell you anything about the inner part.
@@lindakautzman7388 Side effects while taking a drug are one thing. Rebound effect that affects everyone who comes off of it is another.
Recently, diagnosed with severe osteoporosis and encouraged to go on Prolea, pending approval from kidney specialist, I was super happy to hear this. I know I will find it helpful and will listen to it multiple times.Thank you!
Thanks for sharing!
😂
Is the book you mentioned available yet? I went to Amazon and didn’t see it. Thank you for the video, but I wish I could find a local doctor to discuss this all with.
It will be available very soon! Be on the lookout in the descriptions for a link to purchase.
Dr. Lucas, I was wondering about the drug Forteo. Could you please advise on that drug. Thank you for all your videos, they’re great.
Hello,
Search dr Doug Forteo to find a video on this topic.
I took it, never again.
Please give me a straight honest answer. I find you are more reliable, and trustworthy to ask this question. Reclast and Prolia which is ideal for persons who have to take medications for osteoporosis (Bone test show -3.8)
It depends on the situation! Straight and honest.
I have had in the past stem cell infusion. You mentioned stem cells. Would having stem cell infusion be a good thing for me. I am high risk and do not want to go on drugs. I am a Canadian and would love to sign up with your team. Thank you for all your videos they have helped me greatly in that I do not feel alone and do not have to depend on drugs.
Hi there. We currently can’t directly with Canadians but we are looking into international licensure so stay tuned. As for stem cells. I am not convinced of the benefits yet and there are risks which are not often discussed!
I've been on it for several years, with GOOD results, with NO PROBLEMS so far!!!!
I'd LOVE YOUR NATURAL health e- book for bone health!!!!
THANK YOU for EVERYTHING!!!!
Thank you for watching! You can download the free e-book here --> www.optimalbonehealth.com/ebook
So how do you know you have good results? What sort of proof? I’m asking and all curiosity and sincerity..
Thank you very much. Grateful.
Thank you for watching!
This was extremely helpful. I've recently been diagnosed with Osteoporsis and have been recommended to start prolia injections. I am 56 years old. Menopause happened at 45. L1-L4 T is -2.9. Z-score is -2.0., BMD 0.721. Hip T is -1.7, Z is -1.2. BMD is 0.783. Femoral Neck is -2.0, Z is -0.9. BMD 0.695. Don't know if you can make a recommendation. Should I start Prolia or can I increase weight bearing exercise and take supplements?? I really don't want to take Prolia. I am healthy but I haven't been exercising regularly for about 2 years. Would prefer to treat this naturally if I can and am committed to do so. I have never had a fracture. The report also stated that there was a significant decrease in the total hip and femoral neck since the last report 3 years ago which is why the prolia is recommended. Hope all of this information is okay. Thank you.
We help people reverse osteoporosis without drugs regularly. It is possible but requires a comprehensive program. Consider joining our masterclass to learn more or chat with our team about our programs.
I stopped my proliaa after about 2 years to get dental work done. This is where I am now. I had zero side effect to the drug and zero when I stopped. Now I am at the crossroad of what I do for bone next. My GP is also an advocate for nutrition and exercise. As I am in the age groups mentioned I am going to discuss in depth now the best way to manage my bone health moving forward.
That's great you have a supportive MD! Consider yourself lucky. If you are searching for options, consider our master class. Link in video description.
9
I’ve talked to you before about options. I had adrenal cancer 20 years ago, and hip replacements last year. I also lost 3 1/2 inches in my hight over the years with severe compression fractures and have a curved spine. Steroids did a number on my bones.
Now, i finally understand. Doctors don’t explain anything to you. I guess i will be on it forever and hope for the best.
Your videos are so helpful, thank you.
Hello,
Thank you for your kind words. There is a time and place for drugs. I wish you well on your journey.
Hi! Am on prolia. Some time back read fm the leaflet must use it n not stop but doctor no say abt this. Thks to you You confirm this the case. True do not know what to do. Either continue what doctor say or stop totally. The dentist consultant says good because it helps the bone to be anti- cancer. Hv breast cancer 2016. Thanks😊
Thank you for sharing! I am glad you enjoyed this video.
I would really like you to check out the research being done, including many UA-cam videos by Dr. Clayton Rubins on the Low Intensity Vibration plate, particularly the Marodyne brand, that has shown very good results in reversing bone loss. I look forward to a review of this type of treatment for Osteo. Thanks.
Hello,
Try searching UA-cam for Dr Doug Whole Body Vibration. I mention his research and products.
Thank you. Been on Prolia for 7 yrs. Discontinued Sep of 2023. Did not take another osteoporosis drug. The side effects I endured were so horrific! This video is so helpful. Thank u
Thank you for watching!
You need to get on a bisphosphonate NOW. Check your markers. The rebound is quick and ferocious. My wife is off it now too after 5 years. It’s worse the longer you are on it.
I really need to know what the impact if you stop?
😊 I did stop and all help broke lose, I have 5 compression now in my vertebrae. I had one that was address will bone cement. This could have been prevented if I would have know.
I am still dealing with neuro surgeons planned more bone cement
Very helpful. I am 64 on prolia for 2nd yr.
Sorry 4get to said. So far i have no side effects on prolia.
Thank you for sharing, I am glad you enjoyed this video!
I wish to go for bone density check up to see prolia has improved my bone but machine broke down got to wait till next yr. Am i right to say that it is better to take te test 6 months after the prolia jab where te jab med has go down? And Not soon after jab? Pls replu
@@Dr_DougLucas how would i know when te book is released? At amazon?
@@hovicky1381 Hello, I don't prescribe Prolia and am not familiar when the recommendations are to screen after treatment. Generally it's yearly or every two years despite when the injection has been given but please refer to your own team.
I need to call you!! For years, all I've been told is that I have osteopenia. The scan I had just this week said the same. I did get a couple of msgs from the pcp saying my spine looked better, but my femur was worse. To me, that implies that my bones have not been great and have only been told that I have osteopenia. The pcp asked if I wanted to take medication. For the last 8-9 years, I've tried to have conversations with this Dr about muscle and bone pain.
I am SO Frustrated!!!
You are not alone! We would be more than happy to speak with you and discuss this further. You may schedule a discovery call at the following link -->www.optimalbonehealth.com/membership
I lost 2.5 inches, had rib fractures and was in osteoporosis in hip and spine. I took 19 months of timlos and went to osteopina. Now I am on prolia. I now see that all this was a good choice because for the time I have left, I will not have the same fear of severe breaks and I can enjoy my time. A 10 year plan is great for me.
There is a time and a place! Glad you are having a good experience.
Do not take Prolia, it will damage your teeth, your gums and your jaw.
same here. after my first 6 months on prolia: after 6 years of ibandronate and 2 years tymlos, I am finally improving and preserving bone. As a 'geriatric dentist' many of my patients are in misery with bone pain and I am glad I am on this med now. My doctor said the only drawback is that if I come off the prolia we may see decrease.
Seriously?
Should be off the market...not worth the risk fractures tooth loss no thanks
Thank you so much for this information. I was really one of those who are looking for a decision. I have had 3 doses of prolia. Now desperately trying a way out. Doctors don't support it. They want me to be on this drug for ever. I am 53, don't want to live on this. I am active, do Yoga, exercise, eat healthy.
Now, I will not take prolia. But still afraid of after effects of stopping it.
Thank you for sharing this. Checkout our free Bone Foundations Masterclass if you have not. This could be beneficial to you, you can find further information here ---> www.optimalbonehealth.com/build-bone
Would your program help patients who are on immune suppressant medication and prednisone? Also please do a video on Forteo.
Hello,
Yes, we help people who are in unique circumstances like immuno, suppressive therapy, and chronic steroid use. Obviously, results are different in these groups, but arguably the need is much greater.
Forteo video should be published next week.
Thank you
@@Dr_DougLucas
Just (finally) saw endocrinologist. He's doing a bunch more tests--yay! Said because my case is severe and I am younger (62) I needed a stronger drug than fosamax. (Also, he said any "pill stuck" feeling was not good, with this drug, so don't take it, (PCP said, "Take TUMS, extra calcium is a bonus," when I told him about it.) But after the year of evenity, he said most likely reclast, then Prolia. He said that would get us out...7-10 years? (Can't remember exactly.) I wasn't surprised, but guess I'd hoped we could do the one year of evenity and see--if addressing other issues helped, etc.? But I guess (heard it through grapevine?) you don't just stop evenity either? You have to be on a relay drug?
Well, one year at a time, I guess. (If my insurance will cover evenity...he said he didn't think there'd be an issue since I can document fractures. 😮)
Common challenge!
"Take TUMS" is advice from 1970s. TUMS are poorly absorbed and not ideal in my eyes.
Evenity is a powerful tool. I have a video pending on this topic. Just like Prolia there is a recommendation to go on a second drug after Evenity. I do work with people trying to avoid the second drug option. It's reasonable to do but only with a solid plan and close monitoring. We do the same with Prolia.
I have had 7 broken bones in 4 years. My dexa scan says osteopenia, but Dr. Says because of the breaks he classes me at osteoporosis.
I am a carrier of Liden Factor 5.
Due to risks if myocardial infarction from Forteo I can't take it. Dr. States I will be of Prolia the rest of my life. Last year I just stood up and my left metatarsal broke on the outside edge of the foot. It twisted my foot at that time and I had 2 torn ligaments and 1 22cm tear in a tendon. I will turn 78 this summer. I am concernef that I will die if I ever fall again. I take collagen peptides every day with type I,
II,III,IV, and V in the kind I take.
Can you suggest to me other things I should do to help mtself?
@@vickireynolds7824I feel for you. I am suffering with some of these issues too. I have had osteoarthritis and osteoporosis for years. Just broke an ankle and don’t even know how as woke up that way. WTH!
My endocrinologist told me that it was simple to transition off orolia by taking bisphosphonates. I was skeptical. Is that a bonafide, research based transition plan? Can you comment please? I insisted with my doc that I need a 20 year plan at least at age 70 and not to talk about Prolia until after 80. Already experienced the devastating effects of my mom going off Prolia suddenly. I wish I knew more then so I could have intervened!
Hello,
There are multiple studies that recommend switching from Prolia to bisphosphonates after 5 to 10 years.
The challenge that I see with this is that this is still not a 20 year plan. This is a maximum 15 year plan and you’re right, what is the solution at 70, 80 or 90?
So, whenever possible, we try to find a comprehensive solution that will delay or eliminate the need for osteoporosis drugs.
Im a 63 yr old cancer survivor. My oncologist has threatened to take me off my hormone therapy (Anastrozole, that they put me on after chemo ) bc I’m refusing this shot for my Osteopenia. I’ve had no bone fractures and both my general practitioner and Chiropractor are against this shot as well.
Ugh, I hate doctor bullying. It’s annoying. If possible I’d get a second opinion but I know that’s not always an option.
@@Dr_DougLucas oh I am, I’m the queen of second opinions. Especially when what I’m being told isn’t really clicking with me. What you’ve been saying makes sense. Thanks for being here.
Thank you for your support!@@melissasmith8110
I'd be finding a different oncologist. Mine always says "your body, your choice."
So, I’m 58, diagnosed at 47( didn’t go on ANY MEDS!) my scores( 2 yrs ago) were -4.3 of my spine, I started fracturing( T-8 and T-10) I’m afraid to do ANYTHING!!!
I may have to go on medication 😞
That is severe disease. A comprehensive plan is in order. That could include medications in my hands.
I am on the generic Prolia study trial. (South Africa). So far i had 2 jnjections, Prolia or the new generic. I have fatigue and a bit of light headedness soon after the injection, lasting about 12 hours.
Since then my spine reading has improved. I am supplementing with cslcium and vit d3. I feel great! Best decision ever. I will continue after the medical trial. 🎉🎉🎉🎉
Glad to hear this, thank you for sharing!
Thanks for sharing your positive experience..How bone density improves with drug medication is seldom addressed.
can I ask your age?
Hope you never have to go off of it...
Would like to sign up but will be teaching a class at the same time (noon Pacific). Will it be possible to view a recording?
Absolutely, just sign up for the masterclass and after it's over you will get an email with the recording.
Watching this video gives me concerns about the negative effects of Prolia ( on it 3yrs now). So what kind of tests do i need to take in order to assess whether it has improved or made my condition worse. And whether i can stop taking it & switch back to “safer” alternatives. Pls tell me what steps i need to take. I am 74yo & looking forward to many more years of active exercise. I stopped walking & zumba due to a mild meniscal tear but am getting better. Would like to return to more active exercise. Thank you
Thank you for sharing this! Check out my video called "The Best Tests for Osteoporosis NOT DEXA".
Thanks for this explanation. I knew coming off the drug was a very serious issue but I did not realise that the bone turnover was suppressed in this way. I was 65 when I was diagnosed with osteoporosis of the spine and the doctor said to go on Prolia and I’d have to take if for the rest of my life. I said to her if I lived till 85 that would be 20 years on this drug. Is that safe? What are the longer term risks? She said they didn’t have any data on that period of use but it is a safe drug. That’s when I started doing some research and was horrified about the bone loss rebound effects. I stopped trusting my doctor given her cavalier attitude. I think the evidence does clearly show increased bone density achieved with it but at the back of my head I just thought this was somehow interfering too much with what should be a natural and necessary body function - break down and build up bone and you have clarified that in your video.
You nailed it. There is no 20 year approach with the current drug options available. I fear the impact of 15-20 years of bone metabolism suppression too.
I stopped after 4 injections. It was awful. I will just take my chances.
@@terrifiorelli9819 Please consider seeing your doctor. The risk of rebound bone loss is high and the doctor may offer an alternative for a period of time until it’s clear what your bone density is. Best woishes. None of these options and decisions are easy.
Thank you for this honest, informative video. My Endocrinologist said the only reaction he had known was a rash at the injection site otherwise no side effects so I was scheduled for first Prolia infusion 3 months ago but cancelled it after reading bad patient reviews. My husband read them too and said "You are not taking that". Taking all recommended supplements and exercise. Hoping to see improvement in next year's DEXA.
Let us know how it goes!
Ever since I got the one and only injection, it seemed like everything started hurting. I stopped after one shot and now my legs, back, hips, ribs and feet hurt still. It's been over a year and I am miserable! I didn't even have full blown osteoporosis and am not at all happy that my doctor never told me of possible side effects! I wish I never took this awful drug!
I am so sorry to hear that, thank you for sharing your story on this!
I was dumb enough to have two shots even after feeling "not right ”. after taking the first one. Since then I have never been the same. My whole body is falling apart and I really believe it's because of this drug! Have told my doctors that I'll never do another.
How old? I ask because I'm 44 & trying to figure long-term :(,,, I DISLIKE pharmaceuticals, but I'm terrified of fracturing my osteoporotic spine. :(
I have sjogrens and osteoporosis doctors want me on Prolia. I find it very interesting that you said long term side effect neocrosis...this is what I am concerned about especially with the sjogrens. No doctor or dentist have studied both and Prolia. So, now I am not sure what to do. I really struggle with this. I can't take Fosamax. I am already 75.
Thank you for sharing this. Checkout our masterclass or healthspan nation if you have not. We are able answer more specific questions like this through those platforms. Links for both of those are in the video description :)
Thank you for doing this video, i have been on prolia for years and actually my next injection is next week. I also have a rare bone disease called Olliers Disease with Madelungs Deformaty.
Thank you for sharing. That is rare! Something we all learn about but rarely see. Wishing you the best on your journey.
@@Dr_DougLucas Thank you
Thanks!
Thank you for watching!
Yep. 15 years ago i had a severe reaction to a biphosphanate infusion...i was told i could have no more. End of story until 15 years later when an endodontist asked me had i had this drug previously. There was no hand out, no discussion about risks when i had the infusions. now, i have been identified as having necrosis of the jaw. No i'm sorry, no help, just more medical bills. Doctors take an oath of " do no harm!" What happened?
I’m sorry you had that reaction. Your doctor was likely doing what they thought was best for you. Consent should be obtained before an infusion but it would have stated that is a low risk of that kind of complication and you would have likely had the infusion anyway. Hindsight can be frustrating with procedures even when consent is appropriately obtained. True informed consent is not really possible.
Thank you for your program on Prolia. It's so hard to know what's true and what's not true about it. I can't seem to find your ebook or anything about your book I don't know if you'll be able to send me the information somehow .Thanks !
Sue
Hi! Yes, you can download the e-book at this link --> www.optimalbonehealth.com/ebook
Thanks for this. I would like to get some idea of what a soid plan consists of when one comes off these drugs. I have increased my weight-bearing exercises; I am eating prunes daily, I have increasingly become more vigilant about my intake of vitamins and minerals that support bone density, I have increased my magnesium intake, I take vitamins D & K as well as other vitamins, both in term of diet and supplementation and lastly, I have a very strong positive mental attitude. I have done all this through my own research as my doctors do not provide any other information apart from that relating to the drugs.
Hello,
Consider our master class for more info. The link is in the video description. You are definitely on the right track!
Same here..Even the bone specialist had nothing to offer except a choice of drug.
@@lindakautzman7388 I am going to a bone specialist tomorrow at a university health center. I do know that they do ultrasound bone scanning and they use the LIFTMOR resistance training program. I am hoping that I can do that program because the drug side effects are even more frightening than osteoporosis itself.
Whenever I buy anything anymore I don't read the "5 star" reviews, I, instead go straight to the lowest rated & take them all in.
I try to ferret out the frivilous, too.
On Prolia, one doesn't have far to go to read some REAL ASS nightmares from this drug.
If even 1 in a million woman had the same nightmare side effects, I wouldn't take it.
Pain that lasts even if you stop taking the damn medicine is a flaming red flag, to me.
Thank you for sharing this!
Excellent
Thank you for watching!
I was 48 when I was put in prolia. After 2 shots I decided to stop. Well, 5 weeks later I had a fracture in L5. It was excruciating so I took the third shot.
I’m so concerned about this medication and was wondering if you would suggest taking it longer to rebuild bone and then switching to reclast it switching to reclast right away.
Now 50 year old male with idiopathic osteoporosis severe -4 in spine
Thank you very much
Markus,
Step 1 is always Recognizing Why you are losing bone. Idiopathic is an idiotic term (usually) that I wouldn't use unless we had truly exhausted the search on why bone loss had occurred. Sounds like you need help. Consider joining out master class, or reaching out to our team at www.optimalbonehealth.com/schedule
You should either continue to take Prolia or start a new medicine right away because Prolia is only effective as long as you take it. Once you get off it, your bones will get weak very quickly and fractures are expected. So please talk to your doctor about your options.
@@truending I think that’s a little dramatic to say fractures are expected. Statistically the incidence is a little higher. I’m not saying I like the drug but for those that are on it switching to another drug is it always the answer in our world!
@@Dr_DougLucas Sorry, I may have used the wrong word, but the fracture risk is increased and this person already had a fracture.
I had Prolia injection for 2 years after i was diagnosed with severe osteoporosis, an incidental finding after a freak accident that fractured my T12. I stopped having the injection because of muscle spasms. Now I am being referred to an endocrinologist by my primary care physician to resume my prolia injection after my bone density exams which revealed that my osteoporosis is severe. I don't feel comfortable having these injections. I rather do my exercises and managed my osteoporosis with healthy bone building foods. I am 74 years old and very active. Any recommendations is greatly appreciated. I would like to buy that book too!
The book and our masterclass is a great starting point.
What are your thoughts on Evenity? my husband has been prescribed this as he has severe Osteoporosis already has a fracture in the lower back has just turned 60.
We are releasing on Friday! My short summary is, it’s better than drugs, but has some negative as wells. It’s a shorter term solution than other anabolics.
thank you, will look out for that one. Appreciate your vids.@@Dr_DougLucas
Dr. Lucas, thanks for the very informative and interesting video on Prolia. I have been on this drug for about 5 years now, and have recently been advised my liver enzymes are elevated. I don't use alcohol and had normal liver enzymes in late 2021, which was the last we checked them, until Sept. 2023. Do you know of any examples of elevated liver enzymes in Prolia patients where the drug might have been a factor in causing the elevation? I am due for my next injection now and am concerned about whether I should get the injection or look for another option and come off of it. Thank you!
Thank you for sharing this, unfortunately I cannot provide specific recommendations through this platform, I would need to know a little bit more about you as well. Checkout our health span nation if you have not yet, you get exclusive access to me and a community of people pursuing health and longevity. You can find more information here --> www.drdouglucas.com/healthspan
So what is a solid plan after quitting Prolia? Thank you
A comprehensive plan based on a framework like our 4R method and Optimization Pyramid. Consider our free master class for more info on those approaches.
I was on reclast and wasn’t working. I was then switched to Prolia again not working. I was told that my bones are very brittle and be careful with ant falls.. In Nov. I’m to start another injectable medication that is giving in the office. I need to find out the name of the new drug. I’m always hesitant on new drugs because I’ve had cancer and I don’t want it again.
Thank you for sharing your story. You are not alone, many people do not improve on these drugs, because they are not the right approach. If someone is not rapidly losing bone, then an anti-resorptive drug will not have affect. The injection you were likely going to receive is Evinity which we have a video coming out on on Friday. Take a look at that video for more information.
Hi Can you advise on ibandronic acid once a month drug.. This has been prescribed for me I am 60 not taken it yet but struggling to get information on long term side effects.. Many thanks M
Take a look at our video on bisphosphonates! Search Dr Doug Bisphosphonates and you'll find it.
great information ..what are your thought about hormo suppressing due to homo positive stage 1 breast cancer in situ with osteoporosis. I said NO to Prolia
Challenging situation for sure. If required for BC treatment it will likely cause bone loss. Questions are, what is the bone starting point and how much is someone willing to lose. Prolia and bisphosphonates have risks but will slow down bone loss and can be used temporarily for this purpose.
Does your master class give information for people who have metastatic breast cancer and taking medication such as letrazole?
We touch on it, yes.
Hi. At age 62 after a significant ankle break it was determined that I had Osteoperos. I was prescribed Prolia for 5 years. My specialist then changed me to Alcasta Intravenous once yearly for the last 3 years. I take all the suppliments that Dr Lucas recommends. I am a fit 70 years old and would like to know if I can go off the yearly intravenous and was wondering how to do this and what to expect if I did. I am in Melbourne, Australia. Thanks in advance 😊
Hi Susan, Coming off of bisophosphonate is possible but without a comprehensive plan in place to support bone, bone loss is expected.
Thank you
Would you recommend this for someone with an organ transplant and already immunosuppressed?
Possibly but it depends on the patient.
Thank you so much for this. I met with my OP endocrinologist yesterday at Columbia Presbyterian. I just turned 69. Went from osteopenia to osteoporosis within the last 2 years, due mainly to major weight loss from malabsorption due to IBD and low calcium intake according to my dr. My T score is -2.7 in hip. Had REMS done last September which was actually worse but fragility score was about 30%. I’ve lost more weight though. To my doctor’s credit she said no Prolia for me. However she wants me to start Fosamax. I have multiple drug allergies and am terrified of starting new drugs. Im taking D3, K2/MK7, boron, magnesium glycinate, some calcium citrate, high omega 3, vitamin C. I can’t digest most leafy greens but do eat a lot of salmon and sardines. I’ve refused treatment at this point but am terrified either way. My Vit D level is 55. She wants it at 30!!! Which I think is ridiculous. No Dr has ever recommended that.
I appreciate all your videos and the clarity, especially given my very complicated health history. Thank you.
Hello,
Thank you for sharing your story. A comprehensive plan and some functional advice may go a long way for you. IBD is something we often treat in our OHH side. We see great success with alternative treatment options. Improving your ability to absorb nutrients would be part of a comprehensive plan to improve bone and muscle health. If you'd like to reach out to my team you can schedule with them at the link below.
www.optimalbonehealth.com/schedule
@@Dr_DougLucas working with a functional dr and nutritionist.
@@kakilong great. That’s a good starting point but results will depend on their approach!
@@Dr_DougLucas I totally agree. Thank you for your input. We’re trying to get malabsorption, weight loss, inflammation under control naturally. It’s a complicated mess, but I’m not jumping into bisphosphonates and adding more gasoline to the fire. Of course it comes down to $$$ I’ve spent a fortune on functional tests and practitioners so it makes it difficult. Doing the best I can do. Thank you.
I've never heard of a doctor wanting a vitamin D level decrease to 30. That is very strange. I have heard of doctors recommending levels of 80-100.
Great video! Why cant you take forteo or Evenity and increase your overall plan?
Evenity I don’t like because it is a very short term solution. Forteo can be used for longer and we do use it rarely but overall we are using more natural solutions.
Thank you for this video. But it give me more desperation, because I am 59, on Prolia 10 years, since I was diagnosed severe osteoporosis at 49, after menopause. No other issues. I stopped after 5years but my numbers went down and doctor didn't mention anything else, believing to doctor I started another 5 years. But now I gona stop.
According this video I have another 5 years of other meds after prolia then what??? I gona be disabled at 64 or there are other solutions????
Any thoughts???
As I said in the video. There is a time and a place for drugs like Prolia. Every case is unique and some people benefit from the drugs because they are unable to maintain bone health on their own!
Dr Doug
What are your thoughts on Strontium citrate along with Boron and Silica? My mom has been on Prolia for 10 years and is 63 now. According to her scan she is losing calcium and her doctor is recommending absolutely nothing. Also her chances of finding another bone specialist are small due to where she lives. I am desperately trying to help her. Being on Prolia too long and not getting any benefits but is experiencing vertigo, hip pain and lower calcium in her bone. She was also told that if she breaks her hip they couldn't even operate her due to low bone density. Thank you so much for the information you share.
Great question! Checkout our health span nation if you have not yet, you get exclusive access to me and a community of people pursuing health and longevity. These are things that we discuss in there and it allows us to go into detail rather than doing short chats through this platform. You can find more information here --> www.drdouglucas.com/healthspan
I'm 77 now and have been on Prolia for ar least 8 years. Amazingly, I have had no side effects. Thank you so much!! I moved pcp's this year, and have missed a dose. I am toying w whether or not to go back on it. I can make a more informed decision, having seen this video.
Glad you enjoyed it.
I’ve had prolia for 6 yrs every 6 mths, I’m 77 now, after major knee and tibia fracture, no side affects at all.
Thank you for sharing this!
Thanks for sharing g
I'm so confused! I;m 71, slim and have exercised most of my life since about age 27 - gym, cardo, lightish weights, walking, horse riding. I had the test for Osteoporosis and my doc told me I had it. She then suggested Prolia. I'm due for my 3rd one in a couple of days. She gave me the option of the some other drugs but thought the side effects of Prolia weren't as bad so I agred to have the injections. Now I'm reading all this stuff about it and getting so worried. I've never had a fracture even after falling off my bike and horse a few years ago. This was before taking Prolia of course. At the moment I don't seem to have any problems with my jaw/teeth although I did have a crown on one of me teeth after my first injection with Prolia. I had a crack in an old filling so I don't think it was anything to do with the Prolia. It worries me now that I could get fractures if I go off it in 10 years. I'll then be 81 and will anyone even care.....should I get re-tested and after how long taking Prolia?
Hi. Tough predicament. We recommend testing every 1-2 years with imaging to verify improvement with programs and drugs. The risk of rebound fracture is real with Prolia discontinuation and is something that will need to be addressed. It's likely easier to come off it now than in 10 years but that will depend on each unique scenario.
Are there any comparisons of people taking the medication, vs people on calcium and vitamin D? Would the reduction of osteoblasts also make calcium less effective? Also would the reduction in osteoblasts make recovery for fractures and breaks more difficult?
I am troubled the study didn't do some comparisons I would think would be very important.
Often the placebo group is calcium and vitamin D alone and often the drug group is on them as well. Short answer is yes, osteoclasts and osteoblasts are not functioning so calcium is not adequately incorporated.
@@Dr_DougLucas Good to know. Do we know anything about fractures and breaks having more trouble healing, due to osteoclasts and osteoblasts not functioning?
@@BronzeOrwin for sure. When bone metabolism is suppressed fractures are going to heal more slowly. This occurs with most drugs except the anabolics Forteo and Tymlos.
A random message was sent to me regarding this & an appointment made for me without telling me what it was & why I'm being approached. I cancelled the appointment & came here to find out what this is. OMG I'm glad I did! I'm in my late 50s with no prior complaints about bone issues.How dare my doctor ATTEMPT to try out a relatively new drug on me without discussion & assuming I would take medication with such terrible sode effects.
Welcome to our community!
I am 78 and have just been prescribed Prolia..
There’s a time and a place! May be right for you.