Autism and Our Experience with Toddler Regression
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- Опубліковано 15 жов 2024
- We have two girls, ages 8 and 2, who are on the autism spectrum, and today I address a question I've been asked frequently over the years, both on social media and by doctors and therapists: did we have ever see any sort of regression with either of our girls? The answer might surprise you!
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Welcome to Someday I'll Sleep, formerly Coffee and Cupcakes! We post family vlogs daily, about our lives and because we have two daughters on the spectrum we post quite a bit about autism! You'll get glimpses of what's going on at the moment in our lives, usually in a little town in Michigan, or in the city that Paul works in and where we have about a million therapy sessions each week.
Paul and Cammie (the dad and mom at Coffee and Cupcakes) have 5 children. Sadie is 10, Maggie is 8, Patrick is 5, James is 3, and Tessie is now 2!
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If you'd like to help us translate and transcribe our videos we would appreciate it so very much! With 5 kids and lots of therapy appointments Cammie doesn't have very much time left over after she finishes editing videos so transcribing is slow going around here! www.youtube.com...
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You are so wonderfully honest, self aware, and in tune with your children. I’m sure your videos, and this one in particular, will help so many parents who are just going through the diagnostic phase and for those who are trying to figure out what to do next😊
Thank you so much for leaving this comment (it totally made my day). ❤️ That is definitely at my list of goals, because I remember those early days, and it was so helpful to hear from moms who were even just a little further down the road. ❤️ Even now I'm always watching videos from parents and from people on the spectrum who are older than Maggie and it is so helpful to have the perspective.
Your story is exactly like ours. To a tee. It was a new doctor we saw due to diarrhea and he sat with my son for over an hour. That's when he referred us to the center for autism.
I’m always so thankful when doctors are able to take time like that. It can be so life changing! ❤️
That was my experience. My dd was hitting her milestones (barely sometimes) and then she wasn't. I also get the communication thing. And later when she started talking she would talk about things that happened to her when she couldn't talk. Yesterday she made a joke about the advantages of not being to social in high school (ie avoiding drama) and I thought that kind of insight was big progress. (at age 23)
That insight does sound like really big progress. I wonder sometimes if that will be how Maggie will be (if she becomes more verbal), talking about things that happened a long time ago, because her memory seems to be so, so good, remembering people she hasn't seen in five years and being excited to see them. Of course that's also me being like super, super wishful that we can talk about those things someday!
God bless I have HD a genetic brain disease and PTSD OCD and diagnosing with pszyzooheia and my deseasedg uncle died was navy and pzyziphenia and ministry of God
I was considered a good kid because I was very quiet while unknowingly autistic.
HB was a screamer and not much of a sleeper. There wasn’t any physical reason behind it. He was that way in the hospital. He constantly needed sensory stuff. He was swaddled day and night or he’d scream. And sometimes I’d run the vacuum to get him to fall asleep. He also was failure to thrive so basically I was his human pacifier because he wasn’t actively eating just sucking passively if that makes sense. The first 3 months were awful and slowly got better from there. When his brother was born I finally learned what baby books meant when they said babies have periods of quiet alertness.
I completely thought of you and HB when I got to that part about the variety of babies on the spectrum, because I remembered you guys were on the other end of things. And I can relate so much to that human pacifier part. When S was a month old she once nursed for 7 hours and ever time I tried to detach her screamed like she was going to die. And I was in so much pain. I really think my experience with her was part of why I was so "this is perfect" with Maggie.
There's a book I love called Neurotribes, and the thing I love about it is that it has a huge history of autism in it (although parts are very dark, because the history was often so hard), but there's a little boy in that book too, that very much reminds me of what you describe.
And I remember one of Tessie's therapists when she was small talking about how either under responsiveness or over responsiveness to their surroundings when their tiny can be a cause for concern.
Someday I'll Sleep Autism Vlogs I read in a book about ADHD the doctor saying anecdotally there’s a strong correlation between very fussy babies and ADHD. He said every one of his ADHD patients were criers as infants. Makes me think there should be a way to detect neurological differences early.
Autism looks so different in different people. My oldest was a really colicky baby and the one with ASD.
It's so interesting to see all the different ways that our kids start out. One of Tessie's therapists said once that it's usually the extremes, the really easy (under responsive) and hard (over responsive) babies that they end up being concerned about, and I totally see that.
And having a colicky baby is so hard. After our first I was always nervous each time we had another that it would happen again. But she was our only one that had it.
You are lucky that she slept well! I am on the milder end of the Spectrum, and I have had problems falling asleep ever since I can remember. However, I met most of my early language milestones either early or within the normal timeframes. It didn't become apparent that I might have something until right around the time my brother was born, which was around the age of 2 or so. Before that, my parents just thought I was simply a genius (although, now it's pretty clear that they were wrong).
I got advice like that too about my sons speech but i pushed and got him in therapy by the time he was 3. Now im pushing for testing to see if theres more. Hoping to put his story on my channel soon. Though i suspected a little autism he did get 2 diagnosises i wasnt ready for lol im still in shock. Ive noticed things since he was 9 months but idk if its cuz im autistic or what but i seen things. But im still trying to wrap my head around his microcephaly diagnosis and because of that one idk what to expect as he ages. I love ur vids and i love that there are other ppl bringing awareness to autism. Especially for autistic girls. We are a little different so its harder to diagnose. 😊😊😊😊 my son was real colicky and didnt sleep much neither until about 2 but he is still not easy. He also got tubes in his ears. He even went temp deaf from all the wax build up from ear infections.
It's so hard when there are other diagnoses going on too, especially when it's something less common so you aren't sure what it's going to be like going forward. And because it can be so hard with less common things to find the right doctors. You should definitely put his story on his channel when you get a chance because it sounds so interesting, and because I bet there are at least some other moms out there going through the same thing. I would definitely love to watch it (and I just checked out and subscribed to your channel, although I have promised myself that I need to clean the downstairs before I'm allowed to sit down and watch UA-cam today!).
And it's awesome you got tubes in his ears and that it's helped. I really wish we had done that with Sadie when she was small (what I mentioned in the video). When Sadie went for all her evals, her speech was in the 2 year range at 6 years old, they went over her health records and said that they suspected she had been deaf or nearly when she was younger (from those 18+ ear infections) and that was probably why her pronunciation was so different, because it was like she'd heard everything underwater for two years. And I was so upset, because we'd taken her to our family doctor for every ear infection and talked about tubes and he kept putting them off, and ultimately around her second birthday we fired him (and that was around when she finally outgrew them and a year later began to speak). But I kicked myself for such a long time... although that experience made me into a different more proactive parent down the road. I was definitely way more laid back/trusting in the beginning.
@@Autmazing thats why they found out my son was temp deaf later then they should. He was also close to 2 by the time i fired his old one. Love the new one and since then hes been getting the help he needs. Some doctors just dont listen to the parents :( my son always had weird breathing attacks and his old doctor pretty much put that off too. Hes on a steroid now so he can breathe but when hes off of it he has the prob again. And thanks for the sub 😊😊😊
Examples of the things she did once she turn 2, would have been very helpful.👍
Similar story with my ds HD has constipation issues and takes medication for it .he's been going to birth to three for a year now for speech and is looking to transfer over to the school system.thank God his pediatrician picked up on it from early and we got the help he needed.keep up the good work your a great mom
Thank you so much for sharing part of you story and commenting. Constipation issues were a big part of the GI issues that took us in for that initial appointment where Maggie's doctor first identified her as being on the spectrum. It's such a blessing when it's picked up on so early so that therapy can start early! ❤️
Do you still give vaccinations? Genuinely curious
Definitely. Vaccines absolutely don’t cause autism. We just got our flu shots last week.
I see. My understanding of the number of unvaccinated children on the spectrum is one in 544, but fully vaccinated is one in 59. But I digress. Bless you and your family!
I don’t think those statistics are correct at all.
Where did u get the subscribe pillow lol
I actually found it over on Amazon, when I was looking for something that said subscribe that I could sit back in the background. This is my link (it is an affiliate link): amzn.to/2IYHen2