I have lived with Stargardt's for many years. I worked in the computer industry for 15 years as a programmer and then moved into higher education and became a Technology Consultant then later a member of Institutional Research. I have used CCTV units and special zooming and narative software. I retired from the University of North Carolina Wilmington in 2018 and only then started using a cane full time. I will be turning 70 this year so believe me when I tell you that you can have a very full, productive, successful life with stargardt's.
I've got diagnosed with Stargard't at 19, after trying and failing to join the Navy. I'd been noticing a slowly worsening central blur since 11th grade, but had just written it off as needing glasses, and figured that they would take care of that upon entry. Here I am at 25, and it just gets worse. And then worse. And then you think "how much central vision is there to lose anyway?", and then it just gets worse. Stoicism is a virtue but sometimes you want to just get mad. Just gotta suck it up. Smile. Could be worse.
M. LeBeau I’ve had Stargardts since as long as I can remember, my folks noticed that I used to look at things in an angular way when I was a kid so they took me to an eye doctor straight away. I’m 24 now and I completed my education (albeit with my share of eyesight troubles at school) and nowadays I work in the textile business. I play football, I drive around the city and live more or less a normal life. It’s tough, but you just have to adapt. I know we may be on different stages of the disease, but don’t ever lose hope. Don’t ever curse your luck. You aren’t alone in this.
Stargardt's disease can be effectively treated by nano-grade eye drops. Please browse www.godforeye.com (Testimonials). All glory belongs to God ! God bless you. 回覆
My sister joined the Navy about 2 years ago. She traveled to many countries while the 3rd graders put them into staring straight at the sun. Now my sister is 20 and with Stargardts. She is no longer in the navy
I’m 32 years old and I’ve had star guards my entire life it is definitely rough trying to keep up with everyone in the world that doesn’t understand uncommon I problems it’s a curse because you’re not blind what you can’t see
I am 37 and detected this last year. Worked as software engineer for 13 years and now face difficulty in my work and hence moved on to become software consultant, handling team if freelancers. With beautiful wife and lovely kids I don't know how would life be. But I want to give my best to them. Only for them. Love from India
I worked as a programmer for 22 years, a DB and Network Admin and a Statistical Analyst for 18; allwith Stargartz. Technology and your avility to adapt is the key.
Here is a video demo showing how those with Stargardt's Disease really see, created by someone with Stargardt's - ua-cam.com/video/FGu7zkI_CKk/v-deo.html
@@VividlyLivid research on the use of stem cell therapy,, many experiments have injected totipotent embryonic stem cells in the eye which attached to the dystrophic retinal cells and caused their regeneration. people regained their vision. if stem cells are given as much importance, this is curable. 100%
I have lived with Stargardt's for many years. I worked in the computer industry for 15 years as a programmer and then moved into higher education and became a Technology Consultant then later a member of Institutional Research. I have used CCTV units and special zooming and narative software. I retired from the University of North Carolina Wilmington in 2018 and only then started using a cane full time. I will be turning 70 this year so believe me when I tell you that you can have a very full, productive, successful life with stargardt's.
Thank you for sharing your experience. In the off chance that you are reading this: what equipment do you use? Asking for my husband ❤
I've got diagnosed with Stargard't at 19, after trying and failing to join the Navy. I'd been noticing a slowly worsening central blur since 11th grade, but had just written it off as needing glasses, and figured that they would take care of that upon entry.
Here I am at 25, and it just gets worse. And then worse. And then you think "how much central vision is there to lose anyway?", and then it just gets worse.
Stoicism is a virtue but sometimes you want to just get mad. Just gotta suck it up. Smile. Could be worse.
M. LeBeau I’ve had Stargardts since as long as I can remember, my folks noticed that I used to look at things in an angular way when I was a kid so they took me to an eye doctor straight away.
I’m 24 now and I completed my education (albeit with my share of eyesight troubles at school) and nowadays I work in the textile business. I play football, I drive around the city and live more or less a normal life. It’s tough, but you just have to adapt. I know we may be on different stages of the disease, but don’t ever lose hope. Don’t ever curse your luck. You aren’t alone in this.
Stargardt's disease can be effectively treated by nano-grade eye drops. Please browse www.godforeye.com (Testimonials). All glory belongs to God ! God bless you.
回覆
My sister joined the Navy about 2 years ago. She traveled to many countries while the 3rd graders put them into staring straight at the sun. Now my sister is 20 and with Stargardts. She is no longer in the navy
I’m 32 years old and I’ve had star guards my entire life it is definitely rough trying to keep up with everyone in the world that doesn’t understand uncommon I problems it’s a curse because you’re not blind what you can’t see
correction: majority of the population can see details on clothes, some can with the assistance of glasses, surgery etc. the minority cannot
I am 37 and detected this last year. Worked as software engineer for 13 years and now face difficulty in my work and hence moved on to become software consultant, handling team if freelancers. With beautiful wife and lovely kids I don't know how would life be. But I want to give my best to them. Only for them. Love from India
I worked as a programmer for 22 years, a DB and Network Admin and a Statistical Analyst for 18; allwith Stargartz. Technology and your avility to adapt is the key.
My daughter is 10years n she is a patient of the same Stargate, any advice for her. She has just started loosing vision- what should I do?
Here is a video demo showing how those with Stargardt's Disease really see, created by someone with Stargardt's - ua-cam.com/video/FGu7zkI_CKk/v-deo.html
Are Meaghan’s other senses amplified?
Is there any treatment for stargardts?
Sadly, there are no treatments but in the near future there will be
😢@@AnimationMaker208
It's no big deal. Stargardt can now be reversed by Lorati's nano-grade eye drops.
This is a scam
There is literally no cure
@@VividlyLivid research on the use of stem cell therapy,, many experiments have injected totipotent embryonic stem cells in the eye which attached to the dystrophic retinal cells and caused their regeneration. people regained their vision. if stem cells are given as much importance, this is curable. 100%
Lies