Living with Macular Degeneration - Liz Tully: Living Alone with Macular Degeneration (patient story)

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  • Опубліковано 22 гру 2024

КОМЕНТАРІ • 33

  • @carolh3360
    @carolh3360 10 місяців тому +8

    I am 80 years young 😊 and I have wet AMD in one eye and dry in the other. Have been getting Eylea injections for the wet AMD for 2+ years. I’m doing very well with the treatments and my dr is wonderful. Thank you for this wonderful video and I agree with everything Liz said. I applaud her positive attitude! She is an inspiration! Liz, I wish you all the best and many more years living your life to the fullest as you bravely have been!

    • @MacularOrg
      @MacularOrg  10 місяців тому

      Thank you for the lovely reply!

  • @taramansion
    @taramansion 9 місяців тому +5

    I want to be as positive as her. I like what she about focusing on what you CAN do.

    • @MacularOrg
      @MacularOrg  9 місяців тому

      It's not always easy to be positive, but we are glad you found some inspiration in Liz's story.

  • @stacyvincent9414
    @stacyvincent9414 День тому

    Thank you for this helpful and hopeful video. I am 50 and have gene variants for age related macular degeneration and this story helps me. I live alone and have never been married and no kids, so will need to figure this out independently -learning how Liz is thriving gives me hope and eases some of concern.

  • @charlottee212
    @charlottee212 8 місяців тому +5

    Oh Liz, thank you for this vid. I am 77 years old and live in NYC alone. No one I know shares my condition therefore it's difficult for them to relate to my situation which adds frustration to my challenges. For someone like me who has led an active, strong, fully functional life, the aging process alone is a hard nut to swallow and vision loss is terrifying. To those in my life who are spared personal experience with this condition and try to be supportive, I will share your vid and hope they will be informed in ways I am unable to communicate. Thank you.

  • @cammywesson-cohen305
    @cammywesson-cohen305 8 місяців тому +4

    Oh my goodness, thank you Liz for this wonderful video. I have wet AMD...my eyes are dry now, after receiving injections, and cataracts. I will be meeting with the cataract doctor soon and I hope that will be of help. I love my ophthalmologist and trust him completely. I too have been really active...will turn 80 in June and have committed to doing one last half marathon in October in Detroit. Thank you thank you, thank you. And, to EVERYONE with AMD who has watched this...I wish you all the very best.

  • @joshuabrande2417
    @joshuabrande2417 4 місяці тому +2

    I live alone also. Completely blind in one eye wet AMD in the other Accep, adapt, adjust and cope has been my motto and philosophy for decades.. We'll continue to have good days and bad.

  • @jeremiahlittlejohn8089
    @jeremiahlittlejohn8089 10 місяців тому +4

    Thank you for sharing this my mother Has wet AMD in both of her eyes as well as glaucoma and has had it for a little over 5 years and is 63 years old. I'm trying to learn as much as possible in order to help her out now and in the future. Thanks for sharing

    • @MacularOrg
      @MacularOrg  10 місяців тому

      What a kindness to your mother!

  • @georgialink2120
    @georgialink2120 10 місяців тому +3

    thank you for this video, I'm sharing it with my low vision group.

  • @shirleymcclintock3056
    @shirleymcclintock3056 Місяць тому +1

    Thank you. You are amazing.

  • @TrombaSolo
    @TrombaSolo 10 місяців тому +4

    Looks like she's doing pretty well. My Mom had dry AMD and could barely function.

    • @MacularOrg
      @MacularOrg  10 місяців тому +2

      Everyone's story and experience is unique! But we are trying to bring awareness to devices and services that can help people live more independently for longer.

  • @lyndagabriel6539
    @lyndagabriel6539 10 місяців тому +6

    Thanks for this! I had commented before on your video(s) not featuring people living alone with AMD and you provided a thoughtful response at the time. I appreciate that you made this. I can relate to a lot that Liz is saying, although I'm in the early days she talks about, doing everything humanly possible to reduce the progress.... in an urban Canadian city, determined to be out and about. It's great to hear her talk about moving forward and dealing with each challenge as it comes up. Thank you for doing this and thank you to Liz for the depth of detail she goes into on different aspects of life. It definitely inspires hope.

    • @MacularOrg
      @MacularOrg  10 місяців тому +1

      You're so welcome! We are glad you found inspiration in Liz's story, and Liz will no doubt be happy to hear as well. There are as many unique stories as there are people with macular degeneration, and we hope to cover enough topics so that everyone has a little bit of hope and inspiration.

  • @jeffestrada6857
    @jeffestrada6857 3 місяці тому +1

    Amazing woman, thank you for sharing your experience. My father has MD and trying to learn and understand it. Thank you again your such an inspiration!!!!
    Hello and well wishes for the future from Australia 🇦🇺

  • @belfastbunny
    @belfastbunny 5 місяців тому +1

    Thank you for sharing. I am trying to understand my mothers experience as she loses her sight due to AMD

  • @BeverlyRyan-j8s
    @BeverlyRyan-j8s Місяць тому +1

    I have been getting injections in both eyes for 4 years every 5 weeks. I drive myself to my appointments an hour away.

  • @LMNevada
    @LMNevada 8 місяців тому +4

    Depth perception is a real problem for me.

  • @peggymaurer4474
    @peggymaurer4474 7 місяців тому

    Hi, Have you tried The Red Light Therapy?

  • @sandrafernandez3839
    @sandrafernandez3839 9 місяців тому +1

    I was diagnosed with macular degeneration but both doctors are baffled with mine, they don't know yet what has caused it at my age. I am 48.

    • @zimjun7
      @zimjun7 7 місяців тому +3

      I am SO sorry, Sandra!!! That is awful! I am 72 and have aggressive AMD. Wet in left and in right. The RIGHT was OK until my 3rd monthly visit. The doctor caught it when it JUST started as a DRY problem. Then both of them ended up wet.by keeping an eye on it while treating my LEFT. Guess I won't be running up stairs anymore.
      The shots were so painful after the numbing drops wore off, but I thought it would be WORTH IT to prevent me from going blind! GAD!!!! I live alone and have no family now. I was the youngest. Thank God for my friends that reassured me that I won't end up in some facility. Almost 2 weeks into it. Still in denial. Have my 2 cats, sweet as can be. June from Maine

    • @sandrafernandez3839
      @sandrafernandez3839 7 місяців тому +2

      @@zimjun7 Thank you for sharing the outcome of your amd. Your words are comforting and realistic. I have to face that nature will take it's course. But I think I have to really cut down the my sugar as I am diabetic and just keep my stress low.

    • @zimjun7
      @zimjun7 7 місяців тому

      @@sandrafernandez3839 There is hope ahead, Sandra. God's Earthly Kingdom...sooner than you think. I had just put the website on here, but it got bumped off, I feel. June

  • @LMNevada
    @LMNevada 8 місяців тому

    Putting on eye makeup is impossible?

  • @myfamilylifeinmalaysiaCanada
    @myfamilylifeinmalaysiaCanada 7 місяців тому

    I m Pakistani woman live in Canada I want to met u.plz reply me

  • @magnus33john
    @magnus33john 6 місяців тому

    Liz story is ohh so familiar. I am am also from Toronto with dry mmd in the left and wet in the right. Different diseases with basically the same results. Sadly with mmd they can only treat the symptoms and the the diseases itself. The irony thanks to DNA testing i found out i have the genes for amd which isn't surprising my father had it. The irony which is almost funny is if i live long enough to develop amd it wont matter as the mmd well have taken that part of my vision already🙄.
    Everything she says is so familiar but she totally correct we adapt and it's all about the attitude. We don't know how many tom we have so why make any of them bad.

  • @dagmarvandoren9364
    @dagmarvandoren9364 Місяць тому

    I have it too....i love woth it 82....lachen....augensport....man wird alt...egal ...i have diaper right eye. Wet nass....sehr interessant......go every three month to eye doktor ...it all will pass ..have a good day .. unser vater, der du bist im himmel! 🎉🎉🎉🎉🎉

  • @jonwright4418
    @jonwright4418 5 місяців тому

    Are you getting injections to ur eyes?