CFS Superhero - Michael’s Very Severe ME/CFS Recovery Journey
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- Опубліковано 2 лип 2024
- Michael shares his journey from very severe to moderate ME/CFS (chronic fatigue syndrome). Despite not being fully recovered yet, he has made a lot of progress with his health and even wrote a comic book called CFS Superhero!
MENTIONED IN THE VIDEO:
👉 Chronic Fatigue Superhero: The Hero with ME/CFS - POTS - Fibromyalgia etc - amzn.to/3XCcFeA (Amazon affiliate link)
HOW TO CONTACT MICHAEL:
👉 Instagram - / cfssuperhero
👉 Facebook - / cfssuperhero
👉 Twitter - / cfssuperhero
KEY TAKEAWAYS FROM RECOVERY INTERVIEWS ►►
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TIMESTAMPS
00:00 Meet Michael
01:00 Michael’s journey from mild to very severe ME/CFS
04:30 How Michael coped while living with very severe ME/CFS
06:12 Michael’s recovery from very severe to moderate ME/CFS
09:26 The role of movement & exercise in Michael’s recovery
11:18 What inspired Michael to write the comic book: CFS Superhero
13:51 Combatting negativity
15:16 Taking risks and making yourself vulnerable
19:28 The genius advice that Michael got that he’d like to share with others
…
NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue
![Life with ME/CFS | Rugby league captain Richie Barnett [Chronic Fatigue | ME]](/img/n.gif)
I'm really interested in people's ME/CFS stories at all levels of progression rather than all the credit going to a happy ending of full recovery... part of the illness is the element of becoming so isolated and invisible to the greater world while in the thick of it. Showing people like Michael as an active member of society as an author while still making headway on his health feels very nourishing to the spirit of everyone with fatigue working through their process receiving some acknowledgement that the getting there part counts too.
Such helpful feedback, thank you!
Thank you so much. 🤗
I found your channel after developing CFS with long covid. I just want to encourage others (as you did to me) that this is possible to heal from. This week, praise God I was able to travel abroad and climb hills, bike for an hour, walk 15k steps and I was fine after. At the height of my illness, I could barely sit up. I am keeping everyone who is suffering from this in my prayers. Thank you for the encouragement and advice you gave when I really needed it.
That is so wonderful to hear!! 👏👏
For me, this was one of the most relatable interviews you've done. Probably, in part, because it resonates with my own experience. I got ME about 20 years ago, after a virus. I was severe and bedbound for years, and housebound for more years. I was using any energy I had running around from one doctor to another, getting treated pretty badly. I was in a state of desperation, trying one thing after another, and nothing worked. Finally, about 5 years ago, I did a course in mindfulness meditation. For the first time, I developed a sense of acceptance. It created a tiny space in which I began to see improvement. With improvement, I was able to start moving more. I wasn't trying to move more--it just happened organically, as I was feeling better. Gradually, I started being able to get out with my husband. We started going to cafes, then restaurants, then on short vacations. Two years ago, I was able to go to Yosemite for the first time in 20 years, by renting a van so I could rest when needed. For me, acceptance has been a very powerful concept. And, paradoxically, by accepting my current condition, I've been able experience a better condition.
do you mind sharing what the name of the meditation you used that helped?? Thanks!
This is so beautiful to read. So glad you've found improvements. 🤗
I love what he said about having an allowance and acceptance of the bad days it makes it easier to get thru it. I think this can also be applied to grief or anxiety or any upsetting emotion. Instead of fighting or being afraid let these emotions or bodily sensations/symptoms come and they will eventually pass. That is how we heal.
Beautifully expressed. 😌
Raelan another great interview thank you.
Michael, just to say I can empathise with everything you are saying. August 2021 I was in bed, unable to move, apart from blink. I was fed liquids every 2 hours. Sometimes I couldn’t swallow or talk. Couldn’t digest food and felt my heart would give out. I thought I was dying. I couldn’t think, listen to anything, hold a conversation or look at anything, never mind use my hands. I remember the day I managed to cut one finger nail with a pair of scissors! It was the only thing I did that day but it was the start of being able to move my hands! It’s impossible to describe how brutal and unforgiving this condition is. My best wishes for your continued strength and improvement! I’m still housebound but starting to walk round the garden…. 💪
Greetings from the UK 🙂
Hi Tammy I’m in the same situation as you in 2021 but more like Michael hospital ect… can I ask you how did you improve? Do you have POTS ? I hope you keep getting better, I know how it feels… sending love
@@clarissericardo2313 thanks! I’m at about 25-30% so not a complete success story yet. Maybe one day! But yes to go from where I was… I started writing you a reply but then realised it was far too long to put in a comment! I have changed tactics at different stages of recovery. And I don’t think I can summarise because by summarising you miss the detail, which in CFS is critical. So I may start writing things down/documenting! Happy to help if you have any specific questions though? All the best!
Thanks so much lovely. 🤗
I love his honesty and transparency of the healing process, how severe it can be, and the toxicity of a lot of views around recovery (and the fact that it’s possible!) i also dealt with mild for a long time then Covid decided to send me to severe (moderate now).
Raelan, I’m also happy to see someone who hasn’t fully recovered on your channel. I think it’s important to hear from those still in the process as more people may relate based on where they are in their own recovery.
Also, I appreciate his vision and desire to stick to this project, I needed the reassurance that taking a long time to do something we want to do is ok. Definitely getting his book! ❤
I totally agree about seeing someone who hasn't fully recovered on this channel.
Thanks so much for your support. And for getting my book. That means the world to me. 🥰
Michael- so glad to see you here interviewed. Raelan is just such a beautiful soul including many stories and conversations here. Nothing but the best hope for Micheal on your journey and how you continue to
get better- keep writing books!
Thanks so much. 🤗
Raelan
another great interview! not getting really worked up about symptoms and stressing about it has really helped!
😊😊
This is such a profound and unflinching account of Michael's 'dark night of the soul' presented with such authenticity in an unvarnished way that I'm feeling a lot right now. The journey so far sounds frightening but also full of hope, relentless but also driven by meaning and purpose and the book is an incredible accomplishment. Thank you both, Raelan and Michael for presenting this to us with such vulnerability and courage.
Thanks so much, Steven, for your thoughtful reflection. Much appreciated. ❤️
Beautiful person and very brave to share this with people. May you be well and I wish you full recovery
Thank you ☺️
Oh man I can so relate to that panic and fight when the body and brain won't function. I dont know what to do with my thoughts. Thank you. You found a purpose.
Thanks so much. 😌
Thank you so much for using your energy to tell your story! Much appreciated. The book looks awesome, I'm off to buy it now :)
Thank you so much. I hope you liked the book. 🥰
Thanks Raelan and Michael. 😊 Well done on how far you have come, Michael!
What an amazing achievement to have finished writing your comic book!
Your story inspires me to put more movement into my day. I know I can't exercise but I can try a little movement.
Acceptance of the condition sounds very important too. All the best for your continued journey to full recovery. 💫
And I will add: maybe not so much acceptance of the condition but “not resisting” the condition. I neither accept nor reject, I am just not resisting the condition. I try to have this as my moto.
Best if health to you and all of us.
Much love
Thank you so much 🤗
As others have said, its really helpful to hear about the improvements, that are an ongoing. Its great to see people that are now up to hiking up a mountain, but its more helpful to see a process.
Thank you 🤗
Michael shares priceless wisdom and pertinent insights - a must-watch for anyone facing these issues....
Thank you, Bill. ☺️
It's cool to hear more of his story, I knew him from Instagram for a while before deleting my account. I hadn't realised how similar our stories were.
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Hello! 😁
Oh man, you are a hero, I wish you all my good vibes for a continuous recovery and peace and happiness.
Thank you 🤗
Oh wow, thank you so much Michael for your time. You are so inspiring. Wow, I admire you for your book. I am sure you will feel better and better... Thank you again Raelan for this great interview. 🙏♥️
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Thank you so much Carole 🥰
It's a real.problem in the communities with recovered people being gaslit by others who have not. I am in my 28th year and was also bedridden for 8 years...I am a lot better but still in recovery. Ty for sharing
It is definitely a huge issue. 🙏
Well done Michael! You are so well spoken ! Good luck with your recovery!
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Thank you so much. 😊
This was such a useful interview.
„The struggle takes the energy… learn to enjoy the rest“
Loved hearing from someone in the middle of recovery, such a wise man.
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Thank you 🥰🥰
I went through exactly the same thing in the beginning. Mine started suddenly at 29 but gradually got better but never went away. That was 32 years ago.
One of the most relatable interviews for me too - thank you both, for your gentleness and humility.
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Thank you 🤗
Amazing, wishing the best to Michael!
Thank you 😊
Thank you for taking the time to do this interview. If I talk this long I'd be pooped. I'm sure it wasn't easy so thank you.
It wasn't. But well worth the energy. Thank you 🤗
I'm a big fan of humor ... 😛... and an even bigger fan of truly nice people.
Will be checking out your book real soon, Michael.
Mahalo nui loa - to you both.
Thank you so much. I hope you like the book. Sending love. 🤗
This is beautiful. Thank you both xx
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Thank you 😊
So much love Michael 😢❤
Thank you so much.
Watching this helped a lot today...
thanks michael and raelan...😀
Thank you 🤗🥰
Hang in there Michael !!!
Keep going and make that recovery
We all can agree getting in touch with the unconscious can be difficult, I use Faster EFT to help get me there
I really appreciated a video on the fact that he is not recovered yet. Thank you for sharing your experience Michael. I know you spent lots of your precious energy to make it. I am using Gupta and Medical Medium to heal and about half way there.
I am going to check out your book. What a great idea!
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Thank you so much! Hope you love the book. 🥰
Thank you so much Michael, so inspirational. Like others have said it’s great to hear stories from all points in the recovery journey. All the best with your continued recovery and I’ll check out the book soon. 😊
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Thanks so much. Hope you like the book. 🤗
well done
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Thank you 🤗
I really struggle with acceptance. I’ve crashed, and I’m panicky. Here come the holidays. My mother is stage 4 cancer and I’m not there for her… I’m pinned in bed, my husband is doing everything. Feels so fragile.
Go, you Aussie ! Fight ! ( calmly )
Thank you 😊
Yeah that is what is freaking me out - u loose it if u don't use it but I get so fatigued after a short walk.
Definitely a tough balance. 🙏
Hello, what doctor diagnoses you with this syndrome? What specialty is the doctor?
I currently have many symptoms that match CFS and I am going from one doctor to another, neurologist, rheumatologist and they don’t find anything wrong. All end up saying I am anxious and depressed and I should relax and workout out more. I am unable to do any sports, I am exhausted most of the time and it’s frustrating and energy depleting to have to explain this to everyone over and over.
In this way, I am really going to have a mental breakdown.
Maybe you have a video on my question that I didn’t see. Thank you!
It's good to reach out to local support groups and groups on Facebook in your area as they usually have a lost of doctors who understand the condition. 😌
If this is very severe, then what would you call someone who cannot hear any noise or be exposed to any light or move or be touch without significant pain, has never ending chronic pain, cannot move, and must be fed by syringe? Are there any stories of a recovery from this type of ME CFS?
How is ur pots now
God bless. ❤️🩹
Thank you 🤗
i "picked up/conjected" Labarythitis - AND EVErYONE WALKED AWAY -
Micheael, It would be helpful to you to check out Miguel Bautista on youtube. He gets people to full recovery on the lines that you have found.
Thanks for the suggestion. 🤗