Nick's ME/CFS Recovery Story - The 3 Things He Needed
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- Опубліковано 10 чер 2024
- Nick shares his journey of living with chronic illness and pain for many years and how he finally recovered. In his recovery story, there were two phases: the first was healing the pain and in the second he found the three things that were missing that allowed him to heal from the rest of his remaining symptoms.
AS MENTIONED IN THE VIDEO:
👉 Nick's website - www.safecornerstone.com
👉 Rebecca Tolin coaching - www.rebeccatolin.com
👉 Rebecca Tolin 'Be Your Own Medicine' course - www.rebeccatolin.com/course
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TIMESTAMPS
00:00 Meet Nick
01:20 Nick’s health journey
04:32 Some of the crazy things Nick tried for recovery
07:27 How Nick got rid of 100% of the crippling pain he’d been living with for years
12:39 The three things that got Nick past all his remaining symptoms
17:44 Why alcohol might temporarily ‘erase’ ME/CFS in some people
19:58 Being at war with yourself vs loving yourself
21:10 How this experience has dramatically changed Nick from being a “Blokey- bloke”
23:55 Nick’s message to others facing chronic health challenges
…
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue
Raelan and Nick you are l i t e r a l lifesaviours. I have been doing the somatic tracking for a week now. I have gone from 10 to 20 percent health. In a WEEK I have gone from bedbound to house bound. After 2 years of only getting worse. This is pure GOLD. Thank you so much for doing this, you have no idea how you have given me hope and life. ❤❤❤❤
Hey, how are you now 5 days further? :)
@@santeenl good! On 25% or so! The initial boost has worn off a bit but now slowly but steadily progressing and experimenting with new ways to make myself feel safe 😊
@@hannavandenheuvel6963 great! But no running and shopping wood I expect?
@@santeenl hahhaha not yet! But give it a few months ;)
That’s awesome!
Thank you for this fantastic conversation Nick and Raelan! Nick is one of the most inspirational humans I've been blessed to know. Only he could bring laughter to the agony of the healing journey (another one of his superpowers).🤣Even with crushing symptoms, Nick KNEW he could recover and was determined to find the missing pieces. As he says, those were somatic tracking. (which turns down the amygdala and ANS response), self-compassion (which makes our brain feel safe and allows us to hold our suffering with love) and being present (which is the "being" part of this human experience). Well said and done, Nick! And Raelan, I am in gratitude for your compassionate heart and invaluable content that guides so many people back to hope and health.🥰
For anyone watching, know that you too can find your missing pieces and reclaim your wellbeing!!! Nick, and so many others on this channel, are living proof. Follow whatever gives you just a little more energy and optimism one step at a time.❤
I’ve always wanted super powers!!! To be able play guitar at the speed of light to help save the world from pending doom😂 sounds like some cheap, corny B grade 80’s movie, I love it!!
@@Mozzos You'll have to teach me your superpowers one day Nick! Like running 6 miles every morning at 5am, playing songs from your heart and reminding people they can heal. Sounds like a superhero movie plot to me! 🦸
@@rebeccatolinmind-bodycoach forever grateful dear Rebecca
@@Mozzos Ahh shucks. You and your healing are a gift to me and now so many others! I'm grateful for you too dear Nick.
@More Lime both great tools for healing. Rebecca's free somatic tracking is what really started to shift my last few symptoms which I still do daily.
I just want to say that I will be forever grateful that y'all faced your fears and did these videos! I feel like this information saved my 20 year old son.
Wow that’s FANTASTIC
What a lovely interview, thank you.
Many (most?) people with ME/CFS have their four Fs permanently switched on, for whatever reason. The trick is in finding the switch so that we can start to regulate our emotions and identify real danger from perceived danger. When it was suggested by my therapist a few years ago that I had symptoms of (childhood) C-PTSD the penny started to drop. The pain was often a way of dealing with huge emotional fears arising from childhood trauma that I had never even acknowledged. Since then I embrace the triggered perceived ‘fear’ and grief with self compassion, have daily walks, including slow meditative walking, wild swimming in cold water, cold plunges, and I journal and do something creative, drawing or painting every day. I have recently reached that awareness of needing to ‘ignore’ these perceived ‘danger’ signals, by pushing through with compassion, reminding myself that the danger is no longer there, that I am safe.
Thank you Nick, everything you said makes sense and is timely as for me. ❤
thanks Jan, your message completely resonates with me, so many truths, thank you
Thank you for this great video! Nick is an amazing "blokey bloke" & has such an encouraging story. So many of us, especially empaths, show compassion to others, but struggle to show that same compassion to ourselves. I can relate to the wine shutting off all the pain & stress, but it also comes with a myriad of other issues, physically & mentally. You are both beautiful people, inside & out! May the Lord bless you both & all those suffering with chronic pain 🙏
I love his honest and laid back approach to describing his experience. Also lovely to hear more humour here! Thanks to both of you. 😀 I resonate with so much of this in my own healing journey, including not knowing what emotions were (a long time ago, which lead to other health issues). Agreed about the brain - tremendous science behind it at this point and the Western medical system needs to become aware of it.
It’s amazing how we could go about our lives not knowing what emotions are and how to feel them. Thanks for your message.
Nick is absolutely awesome.
Rebecca is amazing - she has been by far one of the most helpful people in my healing journey!!!✨️✨️✨️
she truly is amazing - thanks for watching
Aww, Poppy, you are pure love and you are loved! I so appreciate your open mind and heart + your devotion to deep healing. I'm rooting for you! 💖
Another beautiful interview! I think that is the piece that I haven’t done yet: being gentle to myself and accepting of my perceived deficiencies. Thank you for doing this, Raelan!
Oh yes acceptance was very important for me. Thanks for your message
Thank you. Apparently the human experience is hard in many ways we just don’t consider. I desperately needed this. Not because it is brand new to me, but because I slipped back to my old ways without realizing it. Thank you so much.
Oh wow Raelan, thank you so much for continuing through the uncomfortable feelings and sharing your content. It has been so helpful to me personally and I am so grateful to you for these videos and also for sharing your own story ❤ thank you!
Completely vibe with this recovery story! Always felt its been me vs me and I am getting there by practising presence and safety in my body. Great story and congrats on your recovery!
Thank you! That was a big thing I had to learn, that my body/brain was just trying to protect me and it wasn’t me vs me.
This video brought me to tears. It was a huge release. Thank you, thank you, thank you for all that you and others do
Dear Ingrid, thank you for watching and commenting. I’m super happy it helped you in someway.
@@Mozzos I'm curious, when did you realize you were ready to push through the pain and push for 9 days of running? I'm able to hike for an hour for consecutive days. I can bike at a moderate pace for 1 1/2hr every fourth day. I'm super tempted to do what you did but I'm a bit nervous. Any suggestions would be much appreciated. Thank you again for the interview, what you said just clicked, especially the somatic tracking. I googled it, took a book out of library yesterday and it makes alot of sense.
@@Ingridh98 I worked with Rebecca Tolin who lead me through a practice graded exposure. If you watch my video with Rebecca or Dan I go into the running in a lot more detail. Videos can be found on my website which is in this video description.
Back in 2013 when I learned about Sarno and mind body approach I tried running, squats and push ups but it would cause flair ups. Using graded exposure and self compassion is what worked compared to trying to bullying myself to recover.
Such a typical “ Aussie sense of humour” and laid back attitude. Thanks for your honesty Nick, can’t imagine the average Aussie guy being as open as you! 🤣🤣 Such a great interview Raelan. With many thanks. From an “ Aussie girl” 🥰
Thanks Aussie girl! Yeah me mates at the pub wouldn’t like this fella, he’s a bit of a ….. hahahaha
@@Mozzos 16:13
I am so thankful for this and all the other videos. That‘s what I needed for decades. Thank you!! ❤
Glad it was helpful! ❤️❤️
what a motivational video. thank you thank you to both of you ♥️and I am sooo happy for you!! there is hope. we must all never give up and never ever give up this wonderful gift called life.
Thanks for sharing this Nick and for your positive happy outlook! Its reminded me I'm on the right path as I'm doing the Gupta program and alot of what you've explained is what I am practicing. I can't wait to run again one day! You did so amazing after being in this since pre dr Google days! After 4 years I feel lucky to Have the access to all this. I will remind my brain all day every day that I'm safe and well! Thanks Raelan for another great interview! Loving the brain retraining theme
My pleasure, can’t wait to hear that your running again!
What a wonderful , loving open , heart warming interview .
So pleased you've recovered, Nick. Sounds like an amazing journey! 💫
I'll have to look into TMS and see Rebecca's resources.
Thanks again Raelan, for all the effort you put into doing these interviews. 💛
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Thank you so much Nick and Raelan for providing recovery stories and hope 🙏🏽
💖💖💖
I love this video so much been listening on repeat as I find it highly resonating and easy to understand. Thank you for making this video.
Wonderful and inspiring video with helpful information. Thanks both of you for being brave and doing this video.
brilliant, thanks Nick and Raelyn for sharing this excellent angle! love it 😊✌️
💖💖💖
I love this, very easy to understand
Raelan
This was a great video! Made so much sense to me! I am so driven and not compassionate to myself! I feel this will help a lot thank you!
That self compassion is was crucial in my recovery and I wish we talked about it more in this western society. Thanks for your message!
Amazing!
Thanks Nick and Raelan for this encouraging and empowering interview! It's highly relatable for me in different aspects...especially the brain science and the importance of self-love on our healing journey.
I feel like CFS symptoms as being a 'perceived danger response' of the limbic brain (Sarno) fits well into the approach of Dan Neuffer that it's a dysfunction of the Autonomic Nervous System. In my experience these are only two sides of the same coin.
I'm glad that Nick speaks out so clearly what he said to himself when using f.e. the 'somatic tracking'. That makes it much more practable than only talking about 'brain retraining' in general. 🙂
I suppose the indifference towards CFS symptoms doesn't mean ignoring or pushing through the symptoms at all. It's just about removing the judgement and the worry/fear aspect and so the potentially adding stress part of it, otherwise I would behave the same way like I did before CFS, which gets me nowhere..
Your interview has reaffirmed me that it's conducive if the 'consistent messages of safety' implement physical strategies like pacing/baseline work just like the mental and emotional aspects like 'somatic tracking'...all channeled and supported through self-love.
The brain wants to feel safe on all levels. A step-by-step process in which body and mind wants to go hand in hand into a healthy living.
I'm happy for Nick that he has solved his puzzle and is back to full health.
For me Nick reflects beautifully that compassion and self-love in the way we treat ourselves in everyday life is the major contributor to a sustainable and lasting recovery.
I'm going to incorporate these exercises in my journey. ❤️
The way you worded this was so helpful! You clarified why I felt such intense anxiety at the indifference aspect.
When this first started happening, I didn’t let pain or fatigue stop me and it got me sicker and sicker. And it took me a long time to stop optimistically trying to live the same way and exercise the same way. And I really hurt myself.
The script was so loving and beautiful, but caused instant anxiety because it felt like I was invalidating my body’s message to me.
I tweaked it a bit to take out the anxiety (for me).. “Love you _____. You are feeling pain/fatigue right now, but I want you to know that you are safe. You’ve come so far already in learning to live a new way and should be very proud of yourself. Your body is not broken and one day soon you will move forward better than ever before. You are doing great and are right where you need to be on the path to recovery!”
I may change it as I learn before. But as of today, it’s a message I fully believe and support.
@@francinesanchez5402 Thanks Francine. What a thoughtful reflection..yes I believe we have to understand the message which our body gives us which of course is not always easy but I think our body guides us with its ebb and flow of symptoms.. Love the message you developed for yourself. ❤️
Wish you all the best.
So glad to see you have recovered.
Thank you for sharing ❤❤❤ I really appreciate it !
Your welcome and thanks for watching!
Raelan says it so well @ 22:52 ! :
"I spent my whole life beating myself up, being hard,
driving myself harder, thinking that
my value came from how productive I was,
how skinny I was, how many achievements I had,
andconstantly comparing myself against
everyone around me.
[...] I think that's such an important message
about that compassion and just to really
look at how you're treating yourself.
This life is meant to be lived and enjoyed,
and how much of our life do we want to go
through being that asshole to ourselves?
Is that the life that we want?
I think we think it's temporary and
once I get this or once I get that then
I can ease up. But it's a forever moving
target; we can always add one [thing].
It's never enough, once we get there
maybe you're happy for five minutes,
like 'oh but now I need that' or you know
'now I could do twice as much', so I think
that's such a valuable message."
This is very emotional, esp Nick talking about the pain/symptoms being a manifestation of our body loving us/ warning us. Re googling terms : I had to lookup what 'self soothing' was after my therapist for ME/CFS told me to it. I had no idea what it was or how to do it.
Thanks for your comment. I was the same with self soothe!
Loved this. Thanks for sharing.
Thank you 🙏
I love this! Thanks for sharing your story Nick. I'm using the Curable app at the moment, which has all of the techniques you mentioned, so this interview will help me to stay on track.
That’s great!
Nice to hear a fellow Aussie! Onya!
Actually, listening to this, i suspect that extra hunger is the same as the pain. Wow.
Love this!
Thank you!
Amazing video and very funny as well, thank you!
Thank you, I love to laugh, beats sticking my head in the sand and saying woe is me.
Amazing interview! Also LOVE 😍your cute dog all dressed up at the end!!! 💕
Hahaha that’s Lucy, she’s like hurry up I want to go for walk but I had Covid at that and she didn’t really care!!
Soooo great thanks
I hope I could help in someway!
great video!!!
Fantastic story! Loved the aspect of self love and identity as a part of the puzzle 💖 So happy for you, Nick xx
Thank you Lian. Self love is massive!
Great episode. Thanks to both of you!! This gives me hope❤🔥
So glad!
I am bed bound, Crying. I'm at my end. I need HELP. Onto this video!!
Sending you strength.🙏🏻
@@lauraz.1610 thank you so much Laura❤️
So so sorry you’re having such a tough time. Happy to have a chat if that would help. Reach me through my website.
@@Mozzos hi Nicholas thank you so much for the very thoughtful reply you left me I appreciate it more than you know. What is your website?
@@kavitadeva safe cornerstone I don’t think can post it her but it’s in the video description. Happy to help out anyway I can.
Can relate to this so much! I'm finally starting to slowly recover after doing 6 months of EMDR, reading The Way Out by Alan Gordon, (Sarno too), and starting Somatic Tracking Meditations. And yes, learning self-compassion & boundaries have been critical, too.
Thank you as always 💛🙏
I love this comment! Alan Gordon is a rock star in this Mind-Body field, learnt much from him through the TMS wiki. Looking forward to your recover video soon!
@@Mozzos Thanks, Nick! 🇦🇺
I’m going to start practicing the self compassion with the script asap.
Thank you so so much for getting out of your comfort zone and putting yourself out here.
I’m curious how to figure out the balance between between not overdoing it/pushing through and being indifferent to the pain.
I started out trying to push through everything. Feeling the the pain, feeling the fatigue, but trying to do everything anyways. (Like you spoke about)
I didn’t get significantly better until I gave myself permission to rest when needed and to stop exercising and cancel work without shame. When I do more, I seem to crash.
So, I guess I need to learn more. Because, whenever I pushed in the beginning, I was so optimistic and I crashed so hard.
Feel on the right track. Again, thank you!!!!!
Brilliant interview thank you so much Nick and Raelan PS Raelan Im the same with alcohol and socialising! That is actually what made me realise it is my nervous system. Loved this interview thank you again. I am recovering from LC and can’t wait to run again.
you will run again! check out Rebecca Tolin UA-cam channel, her latest video is with a fella who recovered from LC using TMS/mind body approach. Rebecca coached me to a life without pain! wishing you much healing.
@@Mozzos thanks Nick, I will!
I am also from Sydney living in Brussels, Belgium with Hubby and two kids. xxx
Thanks raelan ❤
Remove the fear and attention and move into doing life 🙂 when the symptoms come up, ask what is going on psychologically not physically. Helps me realise I normally have something I’m worrying about when a symptom comes up
❤🙏🏼❤️
I do understand that this was a healing story and a great story. But, I didn't hear the ME/CFS part.
Same. It’s a bit confusing.
Thanks. I'll just cut out then...
@Kathy Mc
Hi Kathy Mc, I just wanted to let you know that I’ve had ME/CFS for years and the principles/strategies he’s referring to briefly here have helped me SO so so much in my recovery. Somatic tracking has been a game changer for me, as well as self-compassion, mindfulness, body awareness, a true felt sense of safety, etc. So I think there’s a lot to potentially learn from his story that could maybe help. I wish you the best!
I am in this situation... did yall experience any vision changes and brain fog? This is by far the most awful experience ive ever had and im so young... this is a very nice interview 😔
yes and yes. Many vision problems, not fun BUT healing is possible
Yes - I had light sensitivity and vision changes whenever I had a flare in symptoms.
Yes, my vision is so bad since i got CFS. Blurred vision and eye floaters
we can do it guys
Also with the ANS gone haywire, I've had strange symptoms to do with memory, eg, now I'm having copycat IBS, it remembers IBS from years ago - (onions), last year I had copycat menopause, copycat premenstrual tension, look out for these things and don't be fooled, my copycat symptoms are a smaller version thank god, I often talk to my brain like its a child and I'm explaining it
Hello Raelan : can help me to stop my moving pain . I could not understand how TMS can do that
Try checking out Dan Pain Free You UA-cam channel, many videos that explain it all
Fab interview x is Nicks website still current? Server is saying that it can’t find it.
Where can we find Nick? His website isn’t working
💛
Thank you so much, Matt!
Alcoh makes mine worse especially next day
In this video he didn’t talk about cfs it was about pain ?
Hi Ezza123,
I think he’s using the term “pain” to refer to all the different symptoms he had, which included fatigue. Although it does sound like various pains were some of his predominant symptoms.But the principles he discusses here have helped me majorly further my own recovery from ME/CFS! 👏🏼👏🏼 It’s all about bringing safety to our mind & body in ways that work for us and help us get into a healing state. Self-compassion is huge for helping us get into a healing state so our body can find balance. I wish you all the best!!
@@lorierosseau8908 yeah thank you 🙏
Long covid same thing, I have to do what you said and like he saidn
O dont got fever since 13 yrs ! Have blister in my throat
It’s thinking disgusting that people suffered from this years ago. Yet noththink in all the years has been done to help people.
🙏🙏🙏
I’ve fallen in love
💖💖💖
Really would have been helpful to explain more of his symptoms since the treatment was psychosomatic
Were they constant or fluctuating? & what caused worsening etc.
Yeah I hear ya but so so many recovery interviews focus on that and it’s so depressing and triggering for some. Check out my interview with Dan from Pain Free You first 16 minutes all symptoms discussed. It’s on my website which is in this video description.
For me, TMS work has become a daily,must-do practice, for nearly a month now.
And even though difficult emotions and symptoms and fatigue have shot through the roof of late, I believe it is due to an 'opening of the floodgates' affect - so I'm viewing this as a DIFFICULT but necessary step toward recovery.
Mind-body practices are, in my opinion, the foundation to true healing.
Thanks for the message. What your experiencing is very common, that happened to me a lot. I would smile and laugh when the sensations would moving around the body because it proved 100% it was TMS. So so excited for you because I know you are in the process of recovering!!
So this sounds like back pain not cfs/me?
yes cfs/me, I had every symptom, syndrome and condition under the sun. I discovered Dr Sarno TMS approach worked for everything because it's all coming from the brains perception of danger which turns on the pain danger signal. My symptoms would switch from cfs/me to burning, to migraines, back pain so on.
@@Mozzos ME is a condition, not a symptom. I find it unlikely that you met the diagnostic criteria for it.
@@2hff728 stop now
@@Mozzos prove me wrong.
Hi Lu Baker Art,
I just wanted to share that I’ve had ME/CFS for a number of years and using somatic tracking on the sensations of fatigue in my body has been a game changer for me in helping with my recovery! Also I am learning to be more compassionate with myself with helps put my body in a healing state! So I think these principles he shares in this video can be super helpful with ME/CFS! Blessings on your journey; I wish you the best!
Did You have pain all over ..anixty ?
Honestly I never understood this approach. Even with the education and trying to ignore the danger signals of the body. The body doesn't allow me to just get up, do shit and ignore all of that without deep consequences.
So either this interview misses some points or he's just "lucky" that his issues have been resolved with this approach.
Don't give up! You can still remind yourself you are safe and well without physically getting up like he did. That work will be powerful enough. Persistence and repetition is important. Keep going :)
A lot of people who have recovered have been bed bound, so you’re not alone. I know there can be resistance when you first learn about this approach to healing, but please be open. There are different ways to heal the nervous system, and you have to find what’s right for you. You also have to be gentle with yourself. Don’t be a perfectionist when it comes to healing and please be patient! I recommend checking out CFS Recovery on UA-cam. Miguel has very helpful videos!
Happy to have a chat, can contact me through my website.
It's not gonna happen right away.
The key is to not freak out when you get symptoms and know they are just from your brain. Staying calm and believing you are fine is what is going to train your brain to chill and not send you symptoms in the future. It's a brain rewiring and it takes repetition
@@miamia2365 well said, constant messages of safety and becoming indifferent to the sensations/symptoms. I found "so what, go on living" worked very well and treating sensations like clouds, let them float pass without engagement.
Please dont laugh, some of us are in hell. A year and a half and things barely got better. Im running oug ofoptions