Hi, Darra. One of your videos came up in my "recommended videos" to watch. I am a single, 65 year old woman. I have 2 daughters; they're both cats, Noel and Mamma Kitty! :) Anyway, You have been through hell. I will pray for you (there's power in prayer!) I watch another person's channel who also has CF. It's called the "Frey Life." This woman is 30 years old and was born with CF. She and her husband are getting ready to move to Durham, NC, because she needs a double lung AND a liver transplant. They needed to move because they currently live in the Boston area and the hospital that would be willing to do double transplants is in North Carolina. Anyway, this woman started taking a new drug called VERTEX. I don't know if you have heard of it. The way that this medication works is that it changes the "CELL" structure. So, she has been taking it for a little over a month and her PFT number has already increased 14%. Now, I am not a doctor, but I was just wondering if you had heard of this new drug. I hope this helps you. Take good care of yourself and, as I said before, I will keep you in my prayers. Arlene in California
Sorry for the late response, I have been gone for a while. Yes, I am currently on Trikafta. It has made such a difference on my breathing and functionality in my body's day to day work. I highly recommend this new drug, however, I will be making a video talking about it soon AND the side effects it caused me in the beginning to now.
I have MAC. Your CF is a kicker. Think good thoughts. Your a fighter. 🙏🏼
Great video! I'm so glad the rehabilitation is helping you and it's awesome you got to work with a dog!
I am sending prayers your way. Our journey is not an easy one for sure. Be strong woman. 😇
Hi, Darra. One of your videos came up in my "recommended videos" to watch. I am a single, 65 year old woman. I have 2 daughters;
they're both cats, Noel and Mamma Kitty! :) Anyway, You have been through hell. I will pray for you (there's power in prayer!) I watch
another person's channel who also has CF. It's called the "Frey Life." This woman is 30 years old and was born with CF. She and her husband are getting ready to move to Durham, NC, because she needs a double lung AND a liver transplant. They needed to move because they
currently live in the Boston area and the hospital that would be willing to do double transplants is in North Carolina. Anyway, this woman
started taking a new drug called VERTEX. I don't know if you have heard of it. The way that this medication works is that it changes the
"CELL" structure. So, she has been taking it for a little over a month and her PFT number has already increased 14%. Now, I am not a
doctor, but I was just wondering if you had heard of this new drug. I hope this helps you. Take good care of yourself and, as I said before,
I will keep you in my prayers.
Arlene in California
Sorry for the late response, I have been gone for a while. Yes, I am currently on Trikafta. It has made such a difference on my breathing and functionality in my body's day to day work. I highly recommend this new drug, however, I will be making a video talking about it soon AND the side effects it caused me in the beginning to now.
So I will...💐💐💐💐🌷🌹🌺
I can send you some 💐