My journey started at Stage 3B, surgery and lymph node removal followed by Ipi 3x before extreme reaction. Scans clear for 3 years, nodule on lung removed - Stage 4. Treated with Pembro. Clear for 3 years until Dec 2023 - numerous lesions on liver and lungs. Being treated with Opduolag. This time I'm feeling most 'mortal'. I am humbled and grateful to be living in a time when so much emphasis is being place on Melanoma. I remain optimistic. Never give up...keep pushing - YOU are you're own advocate.
My husband has melignant melanoma at ano rectal, dr is suggesting surgical operation first line treatment but if we choose immunotherapy should be first and than other treatment along with it which one better for him, please suggest us.
Tara I hope you don't mind me commenting to you? My Melanoma was stage 2 when I got the host one removed on my back. So I didn't get any treatment for it. Unfortunately it mastsised ( spelt wrong) to my lymph nodes under my left arm. I went for surgery quickly and my surgeon removed 13 and 9 were positive. I was then 3d. I couldn't get Immunotherapy, for some reason. They gave me 2 types of tablets. I am so,so sorry I can't remember the names of them. I was on and off them because they made me so sick. But they kept tweaking the dose. My last MRI Scan, my Cancer went into remission. Covid has held things up so much. You are supposed to be seen for 3 monthly for 5 year's. This has never happened for me. I know how busy they are. But yes I am so afraid to. Please let me know how you are Tara. Take care. 💗🕊
I am doing ok. I had to stop the targeted therapy because I had too many side effects from the drugs they were giving me. I've been on immunotherapy for about 5 months now. They had to put a port in my chest because my veins were too small for the nurses to put a line in me. My skin on my face (I have seborrheic dermatitis) from before this happened and it's gone crazy. Very frustrating for me because it's so bad that I have to wear make up all the time even when I don't want to. My oncologist figures it's from the immunotherapy. I go once a month and the day before I get bloodwork done ( 7-10 vials). So far it hasn't spread to my lungs, I just had another CT scan and it's clear. They want to do an MRI on my brain in January. I feel fine but I've been coughing a lot, another side effect. My GP got me on a puffer so will see how that goes. All in all I feel ok. How is your husband doing?@@jjm4341
90-95% of melanoma patients recover in 2023. That is a miracle.
My journey started at Stage 3B, surgery and lymph node removal followed by Ipi 3x before extreme reaction. Scans clear for 3 years, nodule on lung removed - Stage 4. Treated with Pembro. Clear for 3 years until Dec 2023 - numerous lesions on liver and lungs. Being treated with Opduolag. This time I'm feeling most 'mortal'. I am humbled and grateful to be living in a time when so much emphasis is being place on Melanoma. I remain optimistic. Never give up...keep pushing - YOU are you're own advocate.
Have you tried turkey tail mushroom or dandelion root tincture?
My husband has melignant melanoma at ano rectal, dr is suggesting surgical operation first line treatment but if we choose immunotherapy should be first and than other treatment along with it which one better for him, please suggest us.
Immunotherapy plus get into nutrition for helping the body heal
Do surgery and immunotherapy
Volume is too low. Can’t hear it
Once you showed all the big pharma logos...I am out
I have stage 3b melanoma and BRAF so it doesn't look good because I'm on targeted.
Tara I hope you don't mind me commenting to you?
My Melanoma was stage 2 when I got the host one removed on my back. So I didn't get any treatment for it. Unfortunately it mastsised ( spelt wrong) to my lymph nodes under my left arm. I went for surgery quickly and my surgeon removed 13 and 9 were positive. I was then 3d.
I couldn't get Immunotherapy, for some reason.
They gave me 2 types of tablets. I am so,so sorry I can't remember the names of them. I was on and off them because they made me so sick. But they kept tweaking the dose. My last MRI Scan, my Cancer went into remission.
Covid has held things up so much.
You are supposed to be seen for 3 monthly for 5 year's. This has never happened for me. I know how busy they are.
But yes I am so afraid to.
Please let me know how you are Tara. Take care. 💗🕊
How are you doing, Tara? My husband has the same diagnosis with a rare BRAF mutation.
I am doing ok. I had to stop the targeted therapy because I had too many side effects from the drugs they were giving me. I've been on immunotherapy for about 5 months now. They had to put a port in my chest because my veins were too small for the nurses to put a line in me. My skin on my face (I have seborrheic dermatitis) from before this happened and it's gone crazy. Very frustrating for me because it's so bad that I have to wear make up all the time even when I don't want to. My oncologist figures it's from the immunotherapy. I go once a month and the day before I get bloodwork done ( 7-10 vials). So far it hasn't spread to my lungs, I just had another CT scan and it's clear. They want to do an MRI on my brain in January. I feel fine but I've been coughing a lot, another side effect. My GP got me on a puffer so will see how that goes. All in all I feel ok. How is your husband doing?@@jjm4341
Ivermectin look it up
I have. Have you taken it yourself?@@gerryschweppe7014