Sean’s story - Family Matters - Huntington’s Disease Awareness Month 2021

Sean lives in Ireland where he grew up spending many years caring for his father who has Huntington’s disease.
With the help of his Auntie Bernie, Sean tells us about the challenges of being a young carer, going through the testing process for Huntington’s, and living within a Huntington’s family unit. Please learn more about the experiences of people within Huntington's families by exploring the Family Matters website here: hdfamilymatters.com/
Please do get in touch with the Huntington's Disease Association of Ireland if this film has raised difficult issues for you and you feel you need to speak to somebody or if you want to help raise awareness for Huntington’s in Ireland. The Huntington's Disease Association of Ireland (part of the Huntington’s Disease Alliance UK and Ireland) does amazing work to promote awareness of Huntington’s disease and improve support for families. Find out more here: www.huntingtons.ie/

[@janemccoy4757]

Sean, the care that you and your family members gave your father is beyond exceptional! You are to be commended for the extent to which you took care of his needs! I was pleased to know that you do not have the gene, but I can understand how knowing this might cause feelings of guilt. God bless you and your family.

[@sadiecali7522]

I’m so glad for you….my grandfather,aunt and father had hd….I (the only child,grandchild) tested negative….

[@katydid1600]

@sadiecalu7522 I'm so happy your test was negative. Thank you, God.

[@bjjTUNA]

He’s a good story teller

[@victorialoveday9998]

Thank you for your story. It encourages me as my children, aged 35, 37 and 41. None have symptoms. I lost my beloved husband June 11, 2022. I am happy to see that you tested negative! God bless your future

[@lizzzzzzzz]

Sean, you're fabulous.

[@ivyleight4986]

Thank you, Sean. Thank you.

[@fernemcallister6774]

So glad you tested negative.

[@marielagalok]

I am so glad you are OK :)

[@stepht7508]

A lot like what I'm going through with my life partner..he was diagnosed with dementia Jan of 2021...Seems like I lose more of him
every week.

[@katydid1600]

Steph T. I'm truly sorry.

[@stepht7508]

@@katydid1600 Thank you💖