Відео

I’d like to buy her art… wish that was possible

🎉

I've just tested negative for huntington's disease. I'm currently training to take part I'm a charity boxing match to raise funds for HD awareness

What a lovely beautiful family. I wish many happy healthy days for Anna.

Bless beautiful Anna and her loving family X

❤

A video about this disease showed up in my UA-cam suggestions and I clicked because I’d vaguely heard of HD, but didn’t know anything about it. Oh my goodness, what a heartbreaking thing for families to go through. After watching quite a few videos, I’ve noticed that there seems to be a pattern of the people with this disease being quite artistically gifted until they cannot be anymore. God bless the people these days who don’t abandon their family members as the disease progresses. I say that because I’ve learned that just a handful of decades ago they might have abandoned them because they believed they were severely mentally ill or alcoholics, drug addicts, etc. This actually makes me wonder if some of the homeless people we are seeing in our large cities (I’m in the US) who twitch and flex and who we are attributing drug addictions to, might actually end up homeless because they have HD. I can imagine that in a less educated and enpoverished environment (which you can understand why that would come about), they just say something like it’s the family curse of addiction, get out. I wish someone could do a study. This is truly heartbreaking.

Rip❤🌹🙏

How can I put this, it must be somewhat reassuring knowing that you did not give her this cruel disease. As much as I love my daughter and would love her just as much unconditionally, I’d rather remain childless than risk passing it onto my offspring. It’s painful for everybody involved, people can do genetic testing combined with IVF to avoid your child inheriting the HD gene, but I don’t even think I could do that. Your daughter is lovely and endearing, it’s amazing that she has two healthy parents to love and support her on this life journey.

I wish Jesus would take this away form everyone

What a lovely young lady and family. Sending love and positive thoughts.

It is great that she has such wonderful parents but I cant understand that social services did not do due diligence and find this out. If you take on a child with Huntingdons that is great but not to know is appauling.

Because it can vary person to person, not all people with are severely disabled by it. Those who have it think of as living with diabetes.

ALMIGHTY GOD BLESS AND HAVE MERCY ON YOU AND YOURS, ALWAYS, IN THE PRECIOUS NAME OF JESUS CHRIST, OUR LORD AND SAVIOUR, AMEN

Such a loving family. May The All Mighty give you all strength, patience and good health Ameen . Pray and have hope .

I feel the same for people who have M.S. It's just as devastating.

I hope that the current genetic diagnostics and hopefully a cure can lift this curse off people in genetic lines with this disease. The implications of being in a family with this disease are really horrifying especially imagining all the shame and secrecy and uncertainty before the disease was more understood. I admire people that keep a positive outlook with that cloud over their head, that takes faith.

I’m so glad for you….my grandfather,aunt and father had hd….I (the only child,grandchild) tested negative….

She is so loved❤❤❤

I am in Invernessand I have found a treatment as I have a young man who I visit because he has been like a brother to my sons since his mother was diagnosed with HD 30 years ago and now he is quite bad himself and in care. The trouble is that although I got a copy of a mouse's brain free almost except one black spot of the tangles of protein, they have taken it off the net. Does anyone want to try cat's claw a rain forest bark as it seemed to help but they just suggested it might help with Alzheimer's and of course the drug companies want to make it into a drug to justify the high charges. God always provides a solution in the flowers of the field as it says in the bible. The patient has rejected it perhaps because his mind is already affected according to the medical people and I can't force him to try it.

I found a treatment as I have a young man who I visit because he has been like a brother to my sons since his mother was diagnosed with HD 30 years ago and now he is quite bad himself and in care. The trouble is that although I got a copy of a mouse's brain free almost except one black spot of the tangles of protein, they have taken it off the net. Does anyone want to try cat's claw a rain forest bark as it seemed to help but they just suggested it might help with Alzheimer's and of course the drug companies want to make it into a drug to justify the high charges. God always provides a solution in the flowers of the field as it says in the bible. The patient has rejected it perhaps because his mind is already affected according to the medical people and I can't force him to try it.

Why would anyone bring a child into the world to suffer even if its 50 50 chance

Sean, you're fabulous.

Anna you are beautiful and you have wonderful parents. You are strong and give me strength too. Thankyou

What wonderful parents Anna has.

Look close the bank

Nurture wins … wonderful young lady, wonderful parents. A beautiful thing.

Why would her husband wait to get tested if his mother had it ?? They just buried their heads in the sand and had kids anyway knowing how high the risk is. And now they are encouraging their adult son to bury his head in the sand? Selfish and irresponsible.

I'm 25 and I also have juvenile Huntingtons Disease. I can barely move anymore and I've nearly died a few times from chocking on food and drink. I inherited this from my mum who died in 2018. She was only 44. I miss her so much.

So glad you tested negative.

Thank you for Sharing Your story. You are part of a beautiful family. God bless you.

Lots of love and courage to this little angel. ❤️ ❤️❤️❤️

Why do people with inherited genetic diseases procreate? It's cruel to subject other humans to this as they have no say it in. Please start adopting - its more sustainable and friendly to the environment too!!

It would be so simple to eradicate this horrid disease.

What a lovely, loving family. May God bless you all.

Anna is beautiful and loving. The kind of daughter any parent would want to have. Gorgeous little Ginger, and her personality seems so much like her parents. Sweet, gentle, positive, and content. She has a wonderful family.

😢❤❤❤❤

😢❤❤❤❤❤

I fail to understand why some people are willing to have child after child hoping that one of them hasn't inherited a deadly disease. I'm not saying this is the case here, but I know it happens. I can understand why these kids wouldn't want to know if they carried the gene as there currently is no cure. However, I'd want to know at some point so I could decide whether or not to have children or have my embryos genetically screened before implantation. Bearing in mind, the child I brought into this world would likely have to care for me at some point; a heavy responsibility for any young person to deal with where the child could also have inherited the disease and now sees their future staring back in the face of their sickly parent. Genetic and family counselling is so important in these situations.

Thank you for your story. It encourages me as my children, aged 35, 37 and 41. None have symptoms. I lost my beloved husband June 11, 2022. I am happy to see that you tested negative! God bless your future

Did they say the younger child is Anna's biological sister? If so I wonder if she too has been tested?

What an amazing family ❤ Loving and supporting each other one day at a time ❤

What a dear angel that girl, what a big kind sincere smile, just melted my heart. She will have the best place in heaven of all of us.

Anna is not remarkable BECAUSE she has Huntingdons, Anna is remarkable because of her outlook and character, passion for life and her solution-focused attitude. And though she has this terrible illness, she is not defined by it. Thank you for sharing your story Anna.

Anna my daughter is 13 and captivated by diamond art. She is so chuffed to hear of your works and making Disney brillant for her. Thank you Anna :) x

My mum died of this in 95 she was only 58 all we were told was that it was hereditary but to this day neither myself or any of my siblings have been tested or counselling given so we're no further forward than we were nearly 30 years ago shocking really

Fab family

Anna is a lovely young lady. I wish her and her family all the best. It’s so important to have loving and supporting parents, which she definitely does. Miracles do happen. I hope they either find a cure or better therapies to help stave off the effects of Huntington’s. Much love to Anna and her family 💕

May god be with Anna and god bless her family.

My uncle cand his two sons had HD. Noone else except one cousins son have had it. It is devastating to watch.