Caring for a loved one with Huntington's disease
Вставка
- Опубліковано 29 чер 2024
- In this video, we hear from Steve Duckett as he gives a useful and honest interview about being a full-time carer for a loved one affected by Huntington's disease.
If you are affected by Huntington’s disease and need support or advice, please contact us on 0151 331 5444 or email info@hda.org.uk.
•••••••••••••••••••••••••••••••••••••••••••••••••
Once this video ends, UA-cam will auto-play another video related to the current topic you are watching. If you are not comfortable with this and are worried that UA-cam will suggest a video you don’t want to see, use the scroll bar at the bottom left of the video (desktop) or top right of the video (mobile) to switch auto-play off.
Please note that every Huntington’s disease experience or journey can be different and not all information shared by the Huntington’s Disease Association will be relevant to all. Please discuss with your GP before undertaking any exercises or medical advice given in our videos.
#HuntingtonsDisease #Carers
Steve, thank you for this. My wife is in stage 4. Retrospect is insightful to understand the impact the disease has on us as spouses and care-givers, but the personal aspects are nuanced and hard to make others understand. So, bravo to you for giving us a collective voice. -Scott, co-founder of Team2CureHD, US.
YOU ARE NOT BEING SELFISH. I ALSO CARE FOR A HD MAN....I COMPLETELY UNDERSTAND THAT YOU NEED SOME 'ME TIME' I hope you keep playing golf....sounds like you are doing a great job
My name is Steve Gottlieb, my wife June was just diagnosed with HD. She's good and bad days, last couple of days have been tough. She's become more needy on me more than ever, it's been unbearable. She cannot communicate that well anymore and she walks very unsure 😢of tripping or fall
Hi there Steve! Sending you and June big hugs! So sorry that is her diagnosis! But on the other hand at least your know what she is living with ! I wanna say hang in there! And the more you you fight on her behalf and push people to get help and support! Youll find ways to help her with saftey measures, and spend time to care for you! Also make the most of the time when possible hopefully i make sense.
@@dennaljohnson1951 thanks guys, since that point of time things have turned around 180 degrees
I think I got a handle on I give her her meds religiously and she is a lot more tentative and extremely coherent
My wife judi has HD ALSO GOD BLESS
It's becoming a night mare. Trying my darkest to get her involved with HD trials