@@PARALIFE I'll be glad when that change gets to my area. I thought it had until I was the disabled person and found myself having encounters with people aggressively telling me to go home because seeing me makes them uncomfortable. If I stay it usually escalates to yelling. I had no idea that was a thing disabled people had to put up with. To be clear, most people are great. it's just a few here and there. But outside of one manager at a gas station no one has ever stepped in to back me up and say that I have a right to be there, so those people seem to think it's acceptable behavior. Anymore I go back outside and wait for them to leave. It doesn't take as long and I don't get dirty looks from the staff, wherever I happen to be.
This was so inspiring. I appreciate you being so open about your life and how to do these things. It helps me learn how to do these things. I have a spinal cord injury as well. But I'm paralyzed from the chest down, yet I can still use my arms and hands. I'm still working on being able to sit up by myself, without my blood pressure getting to low. Yet I'm only 14
My blood pressure used to plummet after my injury too, but keep practicing and your body will learn to tolerate it soon. We're glad you found the videos useful, feel free to reach out if you have any questions that aren't covered in the videos! 😀
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
Wow, I have a muscle-wasting disease and have been in a wheelchair for about 15yrs now. I thought I knew all the tips and tricks but after watching this I see what I've been doing is a lot harder. Thanks for being so open about your life mate, you are definitely changing lives in a positive way. Much love and respect to Claire also.
Hi guys! I'm really surprised to watch your videos. I've been trying to learn about daily life of someone with spinal injury for the past four years, and many of my questions has been answered by you, thanks so much. Greetings from Colombia 🙆🏻♀️
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
hello guys...yes the dreaded BP.... I worked the morning duties with a high quad and assisted with doing it...its something we all have.. but with a SCI there are additional steps to follow....thanks for sharing
Very inspiring… I have spinal chord injury waist down below I’m living independently now also. I feel self confidence more when seeing people who have the same as me but I feel sort of shame and lack of confident when I feel like I’m the only one ina wheelchair around my friend and relatives, my community…
Hello! I am not OP, however I have been a wheelchair user due to a SCI since 2000. I am from a relatively small community and also felt alienated being one of very few wheelchair users I knew of. But once I moved away to bigger cities etc, I realized the insecurities I felt (which able bodied folks experience also to varying degrees) had more to do with my level of confidence which I only increased by leaning into my insecurities, addressing the things I was most insecure about head-on, and reshaping how I viewed myself, which led to being more comfortable in public, work, dating, etc. People are curious, and they will always stare, or ask invasive/personal questions at inopportune times. That doesn't change no matter how long you are in a chair. Remember, the wheelchair is only one tiny component of who you are. You have a whole world of interests, skills, ambition, opinions. Those are the things you build relationships from. You can still go experience life, on your own, and you should never let those people in your community, family or not, affect your level of confidence. You are a champion, extremely strong and adapting to some of the harshest changes one can endure. You are amazing, and unique, and you have just as much opportunity as someone able bodied. Begin to live and breathe these ideas and I assure you the lack of confidence will fade. Reach out if you ever need any tips on soft skills, handling tough situations in public, or want examples of best practices in social settings. Best wishes!
@@Anthony-vz8kr have you ever walk again or how long does it take you to feel something changing from ur leg? or anything’s else in ur body… it’s been a year and half for me now and nth has changing for me and idk if I ever gonna walk again
@@Francispyr I had a pretty complicated journey and did get back some functionality (up to the point of walking with forearm crutches and a walker) but currently don't use them much due to additional surgeries etc and getting older and frankly more achy etc. But don't be discouraged, while some spinal cord injuries are definitely more "complete" than others, many, like mine, are of the incomplete nature and our bodies are amazing at adapting. One way they do this is find new routes to get electrical signals down our spine and to our limbs etc. This may be very small improvements and sometimes not incredibly noticeable, but with rehab and patience I was still gaining functionality back years after my initial injury. Keep at it!
@@Anthony-vz8kr I have complete injury and this my first year and half. Idk if I ever gonna walk again or walk with crutches,i don’t even know if I ever gonna gain functionality again. I only have the surgery from my back.
Thank you for your frankness. Over the years I've known two paraplegic acquaintances (one swimming pool dive victim in his late teens (now 55) and the other a motorbike accident in his early 30s, now 40), with very different mobility. The latter has the use of both arms and is able to go to the toilet and "urinate" via a catheter, while the former has very limited movement in one arm only., so must be assisted with all bodily functions.Having known both these people, I understand that it is impossible for my connection with limited mobility to have a "normal" bowel movement, but wondered about the latter, who is a very proud person and would assuredly struggle with the notion of manual stool evacuation. He is still in strong denial about his disability. Forgive my question if it is offensive.
Hi there! We would guess he can still have a similar bowel movement to Craig, since it is controlled by a reflex. Some SCI people do get a stoma fitted though and everyone is different so can't say for sure 👍
Thankyou for posting your journey. I am new to this and everything is such a blurr. My injury is from t7-t11 and Im a incomplete paraplegic. I look to the internet for help and i will be watching your videos.
Great video guys, I have to ask, did you have any issues with mental health after your accident? I suffered from depression and suicidal thoughts after mine, and just wondered if you planned on talking about that in any other videos? Thanks
I've actually been lucky and not really had any mental health issues since my accident. Of course I have down days like everyone else where I get really annoyed/sad and want to give up but luckily that doesn't last too long. We are thinking of doing a video about accepting your injury, it's an important topic but not really sure how to cover it since I haven't really experienced it
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back many nights and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
Wow, your routine is energy reliant. Glad I've got an accessible, single level house (with a shower). With all the transferring, how will your shoulders survive?
Yeah that is something we're concerned about, I try to look after them as much as possible without limiting myself too much with what I'm able to do - honestly not sure how well I'm doing though, do you have any recommendations look after your shoulders for the long run?
Hi. I just want to say I’m very surprised that you used warm tap water and not distilled water. I am also intrigued that you could to that procedure for your bowels while sitting up. Thanks for making the videos, I really like them.
Your willpower is amazing! Just some things i noticed: your breakfast is pretty standard but its better if you eat more nutritious foods that are high in fat protein and low in carbs, after all the spinal cord is made of fat mostly and not carbs it would be better for your healing...Also the other thing which isnt good for the back is the soft squishy mattress you sleep on, the harder the mattress, the better your cerebrospinal fluid can drain and relieve stress off the spine. If you want a strong back youre going to need a hard medicated mattress....All in all youre already doing a great job and bless your partner for helping you...
Whole grains, vegetables and fruits are the main parts of a healthy diet. Carbohydrates are necessary for optimal health. A high fiber diet is important for good bowel health and fiber is made of indigestible carbs. A low carb diet causes severe constipation over time because you're not eating much fiber. Meat does not contain fiber, nor does it have many nutrients. Humans get most of their vitamins/minerals from the veg, whole grains and fruit they eat. When you eliminate or drastically reduce one of the three macronutrients humans need for good health, it throws everything out of balance. Low carb really means high fat, high protein diet. A diet high in fat is a bad diet. It makes heart disease and other illnesses more common. Eating excessive protein is very taxing on the kidneys. Over time you can actually permanently damage your kidneys from a high protein diet. Finally, carbs are the feel good macro. Carbs help the body to release calming and content chemicals in your body. Long term low carb diets are well-known to cause depression. So if you want to be constipated, have high risk of heart and kidney disease, and you like being depressed, a low carb diet is for you. If you'd rather live a healthy balanced life, eat whole grains (complex carbs), many different vegetables, and a serving or two of fruit every day. If you want meat, choose fish, if you like, eat organic turkey/chicken, and if you must eat red meat, try not to eat it more than twice a week. Pork should not be eaten at all for ethical and environmental reasons. We are what we eat. Eat unethically and you will be unethical.
@@mygirldarby youre not wrong in some aspects. But human body is made up of fat and protein mainly. Nobody has ever gotten sick from going KETO. In fact KETO is the cure for the biggest metabolic pandemic of this day and age: insulin resistance. Not to mention the genetic modification of all our grains leading to Gluten insensitivity in more than half the American population. And the over-chemicalization of our soil and produce leading to heavy metal poisoning and hormonal imbalances. Noting the fact that disabled persons lead a more sedentary lifestyle making it harder to break down extra carbohydrates which will most definitely be stored as visceral fat leading to Non alcoholic fatty liver disease. Excess in protein and carb may also lead to weight gain. But its almost impossible to overeat fat and protein. Whereas Carbs are ALWAYS overeaten. Think about it, who has ever stopped at one chocolate chip cookie?
Quick, speed read 😂. I learned from Wheels2walking, you should ALWAYS make your bed, so I do my favourite stretch by flipping over to my stomach to get the part of the bed up against the wall. I think it was Craig that taught me how to flip over easier by crossing my legs. I don't like the world today...it's too crazy, complicated and rushed and I do get upset waking up in the mornings, but I do like the sounds of Alexa...it reminds me of Star Trek and I'm a Trekkie. I LOVE that bath tub with the rails on each side...but does it make it hard to transfer in and out? I am currently redoing mine to make it more accessible...and have extra grab bars. Cab you put those in yourself?
Haha kinda see what you mean about Alexa and Star Trek! I find it makes no difference for the transfer since there's still plenty of space behind the rail but they definitely make it easier to move around when I'm in the bath. Not sure about whether you can put them in yourself as they came already installed in this bath, I would assume there's a way to add something similar though
@@PARALIFE OK, I am definitely going to look for a bath of that style. Craig and Claire...no sooner that we discussed this, my beau put a bar on the tub...lol. I didn't even tell him. I was one you clamp on...like this one...only a good solid one. www.walmart.ca/en/ip/tub-grab-bars/6000200856473?cmpid=sem_google_en_pla_none_868545289_76686332525_None&gclsrc=aw.ds&&gclid=EAIaIQobChMIt8Dbgvav6gIVConICh1fFAMrEAQYASABEgIac_D_BwE&gclsrc=aw.ds Wally World has cheap crap.
PARALIFE I wanted to become more informed on this topic, and it provided me with some insight, as I’m interested in a man who is now a paraplegic, due to a football injury. These videos help me gain insight on the daily needs, as I really like him.
Very helpful and informative video! Thank you so much, quick question, have you ever tried using a fleet's enema for bowel instead? I noticed you said it takes about 30-40 mins for your current method to show results, fleet normally only takes 3-10 mins, no messy clean up, or need to wash a catheter afterwards either, I'm not sure of the cost difference though, cheers
Hi, I've never tried using any kind of enema. The Peristeen starts showing results immediately, it just takes 30-40 mins for everything to flush through. The catheter part of the peristeen is disposable and the pump is reusable so there is not a huge cleanup afterwards 😀 Thanks for the tip!
6:00 The whole bag? Are you really using the whole bag (as in the full litre of water) when irrigating? I'm paraplegic too and my bowel expert told me to only use between 300ml to 400ml so I'm a bit curious.
It's a hybrid mattress, mostly springs with a memory foam layer on top. It's a very firm mattress, we prefer that and find it very comfortable but some people say it's not soft enough
I'm t7 para for 8 months now & my spasms make everything soo hard. Plus I'm really tight in the back I can't get to my feet very well to feed them in any suggestions
How long have you been injured dude? I'm 9 years in and, for the last 6 years, I do my bowels at night and it's made life a lot easier and more flexible.
I've been injured for about 2 years now. I have considered it. I've always preferred to go in the morning since I don't have to worry as much about accidents and after I've been I have the rest of the day to do other stuff. At the moment we have more free time in the mornings than in the evenings, so it's quite convenient. But I do see the benefits of going in the evening and might change it if things change 👍
How do you manage if have somewhere to go? I have carers come in in morning and I'm worried how I'm going to go university as classes start at 9 but earliest carers will come is 9. 😂😂
We just get up super early if we need to be anywhere early. If it was going to be a daily thing, might move it to the evening instead. Oh dear, that sounds like a tricky predicament! Surprised to hear you can't get carers before 9, would've thought that would be a popular need
Your routine looks like it takes a long time. Have u ever used magic bullet suppositories? Don't ones from the store!! Magic bullet are made from water, not oil like regular ones so they don't work. What your doing is an enema basically. If it works for you great but more time consuming an more clean up. Why don't you have a shower chair?
@@PARALIFE you could get a bidet. They aren't expensive and they're very easy to install onto your existing toilet. It will make things much easier for you.
PARALIFE I don’t know what it’s called. It’s been made by a pharmacist on the spot. All I know that it’s white and very heavy moisturizing. Not sure what the ingredients are. At least you are using something. Maybe ask for an ointment for bed sores. I think that’s what I use.
Did I miss that 🤔? Oh yeah, around 7:44. I thought that was a birthmark or something. Craig, NEVER ignore a bruise on your spine. The way I broke my neck is my vertebrate dislocated, the bone chipped in the corner and the spinal cord injury came when the spinal cord itself slammed on to the ground (a rock) and bruised really bad. It wasn't the vertebrate cutting it.
My friend! I too was like this for a good time.. now I kick my bag and run and ride my bike.. I speak Jesus upon you! May the holy... Worthy... And anointed one work wonders through your life! May he perish and banish these corrupt ways and make his creation whole again! I ask this all on thy name of the King Jesus, Amen!!!
Ahaha come on, surely in 1920 they'd have been doing manual, this is what we do in 2020! Bizarre comment ua-cam.com/video/cyn_clzxDEw/v-deo.html - it's explained in this video if you're genuinely interested
@@PARALIFE I'm C6 quad since 87. Never have I seen anything like that. I do M.E takes 2 mins. 1st thing in the morning and last thing at night. Id be pissed off doing that every other day. 3 hrs to get sorted? That's ridiculous
@@martinball54 you are lucky then, everyones bowel program is different and glad it works for you but it doesn't for me. I tried manual evacuation for months, it was a nightmare, had countless accidents and it definitely didn't take 2 minutes. Loads of other people were using anal irrigation and it raving about it and it was a complete game changer for me. Yes it's annoying that it takes a long time but I'd rather have that every other day than manual twice a day with the risk of accidents. Plus the peristeen itself doesn't take 3 hours, it's everything all together (eating, washing, dressing etc) so most of that would need doing with manual evac too. You can also do irrigation quicker if you use a lower volume and do it everyday or twice a day, I just prefer not having to do it everyday. I definitely spend less time on the toilet overall now than I did when I did manual.
@@PARALIFE 30 years M.E. never had 1 accident. Im incomplete and have a vague idea when I need to go. As a quad I am truly blessed to be honest. I consider myself very lucky, and have been very lucky too. But yes, each to their own, that method though, would depress me. I can nip for a No.2 whilst the adverts are on, and very back in time
I grew up in a time and place where disabled people were hidden, sort of a shame, I am SO glad that it has changed.
Thanks for posting, sir.
It's good that people's perceptions are (slowly) changing. Hopefully it keeps going this way!
@@PARALIFE I'll be glad when that change gets to my area. I thought it had until I was the disabled person and found myself having encounters with people aggressively telling me to go home because seeing me makes them uncomfortable. If I stay it usually escalates to yelling. I had no idea that was a thing disabled people had to put up with.
To be clear, most people are great. it's just a few here and there. But outside of one manager at a gas station no one has ever stepped in to back me up and say that I have a right to be there, so those people seem to think it's acceptable behavior. Anymore I go back outside and wait for them to leave. It doesn't take as long and I don't get dirty looks from the staff, wherever I happen to be.
This was so inspiring. I appreciate you being so open about your life and how to do these things. It helps me learn how to do these things. I have a spinal cord injury as well. But I'm paralyzed from the chest down, yet I can still use my arms and hands. I'm still working on being able to sit up by myself, without my blood pressure getting to low. Yet I'm only 14
My blood pressure used to plummet after my injury too, but keep practicing and your body will learn to tolerate it soon. We're glad you found the videos useful, feel free to reach out if you have any questions that aren't covered in the videos! 😀
Only 14 so sad. I’m 41 I’ve been paralyzed almost 5 years now. It can get rough. But we got this. ❤❤
Wow this is the most informative and detailed bowel program video I've ever seen. And I've seen lots of them
Haha thanks, I hope it was helpful!
Thanks so much for inviting us in. Been using a wheelchair for 14 yrs and appreciate all your routines. Wishing you two the best.♥️
You're welcome, thanks for the comment 😃
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
Amen praise God
You are an inspiration.......I hope to become as much physically independent as you one day.
Wow, I have a muscle-wasting disease and have been in a wheelchair for about 15yrs now. I thought I knew all the tips and tricks but after watching this I see what I've been doing is a lot harder. Thanks for being so open about your life mate, you are definitely changing lives in a positive way. Much love and respect to Claire also.
Respect - Great how you show your personal live. Thank you. Be blessed.
Your so independent it's amazing, thanks for the info!!!
Hi guys! I'm really surprised to watch your videos. I've been trying to learn about daily life of someone with spinal injury for the past four years, and many of my questions has been answered by you, thanks so much. Greetings from Colombia 🙆🏻♀️
We're glad you find the videos useful! Thanks for watching 😃
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
Great insight.. Certainly wasn’t aware bowl routines.
hello guys...yes the dreaded BP.... I worked the morning duties with a high quad and assisted with doing it...its something we all have.. but with a SCI there are additional steps to follow....thanks for sharing
We wonder why some people are embarrassed to talk about it, everyone has to poo!
@@PARALIFE not sure why..
Thanks for setting my alexa for a 30 minute timer. :P
Haha sorry about that! Can't count the number of times we accidentally set a timer on ours while editing the video 😂
Very inspiring… I have spinal chord injury waist down below I’m living independently now also. I feel self confidence more when seeing people who have the same as me but I feel sort of shame and lack of confident when I feel like I’m the only one ina wheelchair around my friend and relatives, my community…
Hello! I am not OP, however I have been a wheelchair user due to a SCI since 2000. I am from a relatively small community and also felt alienated being one of very few wheelchair users I knew of. But once I moved away to bigger cities etc, I realized the insecurities I felt (which able bodied folks experience also to varying degrees) had more to do with my level of confidence which I only increased by leaning into my insecurities, addressing the things I was most insecure about head-on, and reshaping how I viewed myself, which led to being more comfortable in public, work, dating, etc. People are curious, and they will always stare, or ask invasive/personal questions at inopportune times. That doesn't change no matter how long you are in a chair. Remember, the wheelchair is only one tiny component of who you are. You have a whole world of interests, skills, ambition, opinions. Those are the things you build relationships from. You can still go experience life, on your own, and you should never let those people in your community, family or not, affect your level of confidence. You are a champion, extremely strong and adapting to some of the harshest changes one can endure. You are amazing, and unique, and you have just as much opportunity as someone able bodied. Begin to live and breathe these ideas and I assure you the lack of confidence will fade. Reach out if you ever need any tips on soft skills, handling tough situations in public, or want examples of best practices in social settings. Best wishes!
@@Anthony-vz8kr have you ever walk again or how long does it take you to feel something changing from ur leg? or anything’s else in ur body… it’s been a year and half for me now and nth has changing for me and idk if I ever gonna walk again
@@Francispyr I had a pretty complicated journey and did get back some functionality (up to the point of walking with forearm crutches and a walker) but currently don't use them much due to additional surgeries etc and getting older and frankly more achy etc. But don't be discouraged, while some spinal cord injuries are definitely more "complete" than others, many, like mine, are of the incomplete nature and our bodies are amazing at adapting. One way they do this is find new routes to get electrical signals down our spine and to our limbs etc. This may be very small improvements and sometimes not incredibly noticeable, but with rehab and patience I was still gaining functionality back years after my initial injury. Keep at it!
@@Anthony-vz8kr I have complete injury and this my first year and half. Idk if I ever gonna walk again or walk with crutches,i don’t even know if I ever gonna gain functionality again. I only have the surgery from my back.
Thank you for your frankness. Over the years I've known two paraplegic acquaintances (one swimming pool dive victim in his late teens (now 55) and the other a motorbike accident in his early 30s, now 40), with very different mobility. The latter has the use of both arms and is able to go to the toilet and "urinate" via a catheter, while the former has very limited movement in one arm only., so must be assisted with all bodily functions.Having known both these people, I understand that it is impossible for my connection with limited mobility to have a "normal" bowel movement, but wondered about the latter, who is a very proud person and would assuredly struggle with the notion of manual stool evacuation. He is still in strong denial about his disability. Forgive my question if it is offensive.
Hi there! We would guess he can still have a similar bowel movement to Craig, since it is controlled by a reflex. Some SCI people do get a stoma fitted though and everyone is different so can't say for sure 👍
Thankyou for posting your journey. I am new to this and everything is such a blurr. My injury is from t7-t11 and Im a incomplete paraplegic. I look to the internet for help and i will be watching your videos.
We hope that you find them useful 😀 Thanks for watching 👍
Oh wow never new great video
Great video guys, I have to ask, did you have any issues with mental health after your accident? I suffered from depression and suicidal thoughts after mine, and just wondered if you planned on talking about that in any other videos? Thanks
I've actually been lucky and not really had any mental health issues since my accident. Of course I have down days like everyone else where I get really annoyed/sad and want to give up but luckily that doesn't last too long. We are thinking of doing a video about accepting your injury, it's an important topic but not really sure how to cover it since I haven't really experienced it
Ive heard of and experienced healing while reading the Bible out loud so definately do that every day. I had neck pain so bad I could only sleep on my back many nights and it vanished while I was reading the Bible out loud. I felt so much stronger my bones , joints and every thing. You can look up healing scriptures on utube or maybe all the Bible is healing I don't know. 🤗
Wow, your routine is energy reliant. Glad I've got an accessible, single level house (with a shower). With all the transferring, how will your shoulders survive?
Yeah that is something we're concerned about, I try to look after them as much as possible without limiting myself too much with what I'm able to do - honestly not sure how well I'm doing though, do you have any recommendations look after your shoulders for the long run?
Hi. I just want to say I’m very surprised that you used warm tap water and not distilled water. I am also intrigued that you could to that procedure for your bowels while sitting up. Thanks for making the videos, I really like them.
Your willpower is amazing! Just some things i noticed: your breakfast is pretty standard but its better if you eat more nutritious foods that are high in fat protein and low in carbs, after all the spinal cord is made of fat mostly and not carbs it would be better for your healing...Also the other thing which isnt good for the back is the soft squishy mattress you sleep on, the harder the mattress, the better your cerebrospinal fluid can drain and relieve stress off the spine. If you want a strong back youre going to need a hard medicated mattress....All in all youre already doing a great job and bless your partner for helping you...
Whole grains, vegetables and fruits are the main parts of a healthy diet. Carbohydrates are necessary for optimal health. A high fiber diet is important for good bowel health and fiber is made of indigestible carbs. A low carb diet causes severe constipation over time because you're not eating much fiber. Meat does not contain fiber, nor does it have many nutrients. Humans get most of their vitamins/minerals from the veg, whole grains and fruit they eat.
When you eliminate or drastically reduce one of the three macronutrients humans need for good health, it throws everything out of balance. Low carb really means high fat, high protein diet. A diet high in fat is a bad diet. It makes heart disease and other illnesses more common. Eating excessive protein is very taxing on the kidneys. Over time you can actually permanently damage your kidneys from a high protein diet. Finally, carbs are the feel good macro. Carbs help the body to release calming and content chemicals in your body. Long term low carb diets are well-known to cause depression. So if you want to be constipated, have high risk of heart and kidney disease, and you like being depressed, a low carb diet is for you.
If you'd rather live a healthy balanced life, eat whole grains (complex carbs), many different vegetables, and a serving or two of fruit every day. If you want meat, choose fish, if you like, eat organic turkey/chicken, and if you must eat red meat, try not to eat it more than twice a week. Pork should not be eaten at all for ethical and environmental reasons. We are what we eat. Eat unethically and you will be unethical.
@@mygirldarby youre not wrong in some aspects. But human body is made up of fat and protein mainly. Nobody has ever gotten sick from going KETO. In fact KETO is the cure for the biggest metabolic pandemic of this day and age: insulin resistance. Not to mention the genetic modification of all our grains leading to Gluten insensitivity in more than half the American population. And the over-chemicalization of our soil and produce leading to heavy metal poisoning and hormonal imbalances. Noting the fact that disabled persons lead a more sedentary lifestyle making it harder to break down extra carbohydrates which will most definitely be stored as visceral fat leading to Non alcoholic fatty liver disease. Excess in protein and carb may also lead to weight gain. But its almost impossible to overeat fat and protein. Whereas Carbs are ALWAYS overeaten. Think about it, who has ever stopped at one chocolate chip cookie?
Thank You
it just made my alexa goes off when it stay in the video
Quick, speed read 😂.
I learned from Wheels2walking, you should ALWAYS make your bed, so I do my favourite stretch by flipping over to my stomach to get the part of the bed up against the wall. I think it was Craig that taught me how to flip over easier by crossing my legs.
I don't like the world today...it's too crazy, complicated and rushed and I do get upset waking up in the mornings, but I do like the sounds of Alexa...it reminds me of Star Trek and I'm a Trekkie.
I LOVE that bath tub with the rails on each side...but does it make it hard to transfer in and out? I am currently redoing mine to make it more accessible...and have extra grab bars. Cab you put those in yourself?
Haha kinda see what you mean about Alexa and Star Trek!
I find it makes no difference for the transfer since there's still plenty of space behind the rail but they definitely make it easier to move around when I'm in the bath.
Not sure about whether you can put them in yourself as they came already installed in this bath, I would assume there's a way to add something similar though
@@PARALIFE OK, I am definitely going to look for a bath of that style. Craig and Claire...no sooner that we discussed this, my beau put a bar on the tub...lol. I didn't even tell him. I was one you clamp on...like this one...only a good solid one. www.walmart.ca/en/ip/tub-grab-bars/6000200856473?cmpid=sem_google_en_pla_none_868545289_76686332525_None&gclsrc=aw.ds&&gclid=EAIaIQobChMIt8Dbgvav6gIVConICh1fFAMrEAQYASABEgIac_D_BwE&gclsrc=aw.ds Wally World has cheap crap.
Thank you for sharing this video.
We're glad you enjoyed it 👍
PARALIFE I wanted to become more informed on this topic, and it provided me with some insight, as I’m interested in a man who is now a paraplegic, due to a football injury. These videos help me gain insight on the daily needs, as I really like him.
Glad we could give you some insight. Hope you get together!
Very inspiring
Hahahahaha you set off a 30 minute timer On my Alexa 😂
Sorry about that 😅😅😅
Is good that you are independent.
What is the name of the medication(s) you mentioned?
Very helpful and informative video! Thank you so much, quick question, have you ever tried using a fleet's enema for bowel instead? I noticed you said it takes about 30-40 mins for your current method to show results, fleet normally only takes 3-10 mins, no messy clean up, or need to wash a catheter afterwards either, I'm not sure of the cost difference though, cheers
Hi, I've never tried using any kind of enema. The Peristeen starts showing results immediately, it just takes 30-40 mins for everything to flush through. The catheter part of the peristeen is disposable and the pump is reusable so there is not a huge cleanup afterwards 😀 Thanks for the tip!
6:00
The whole bag?
Are you really using the whole bag (as in the full litre of water) when irrigating?
I'm paraplegic too and my bowel expert told me to only use between 300ml to 400ml so I'm a bit curious.
Your mattress looks so comfortable. What kind of mattress is that?
It's a hybrid mattress, mostly springs with a memory foam layer on top. It's a very firm mattress, we prefer that and find it very comfortable but some people say it's not soft enough
σας αγαπω!!
No entendemos nada
I'm t7 para for 8 months now & my spasms make everything soo hard. Plus I'm really tight in the back I can't get to my feet very well to feed them in any suggestions
How long have you been injured dude? I'm 9 years in and, for the last 6 years, I do my bowels at night and it's made life a lot easier and more flexible.
I've been injured for about 2 years now. I have considered it. I've always preferred to go in the morning since I don't have to worry as much about accidents and after I've been I have the rest of the day to do other stuff. At the moment we have more free time in the mornings than in the evenings, so it's quite convenient. But I do see the benefits of going in the evening and might change it if things change 👍
Hi guys! Have you thought about a gofundme for an accessible bathroom?
Solifenacin& mirabegron
woww you are the best bro ..
What about urethra stricture? Do you get one? And how you treat?
Do you ever get AD using that bowel routine method? I'm interested in trying it. Thanks!
I've not had any AD from this yet! Definitely worth a try
How do you manage if have somewhere to go? I have carers come in in morning and I'm worried how I'm going to go university as classes start at 9 but earliest carers will come is 9. 😂😂
We just get up super early if we need to be anywhere early. If it was going to be a daily thing, might move it to the evening instead. Oh dear, that sounds like a tricky predicament! Surprised to hear you can't get carers before 9, would've thought that would be a popular need
You've got a great girl friend
Your routine looks like it takes a long time. Have u ever used magic bullet suppositories? Don't ones from the store!! Magic bullet are made from water, not oil like regular ones so they don't work. What your doing is an enema basically. If it works for you great but more time consuming an more clean up. Why don't you have a shower chair?
He's just lucky doesn't live alone it would Take 5 hours to get ready
How can you wipe if your a paraplegic?
Either round the side if I'm using a shower chair/commode or through the legs if I'm sat directly on the toilet 👍
@@PARALIFE you could get a bidet. They aren't expensive and they're very easy to install onto your existing toilet. It will make things much easier for you.
He’s living as a jojo reference, that is cool but still take care
7:50 get on that bruise on your spine some ointment before it becomes a problem. I use one prescribed by a dermatologist.
What's the ointment you're using called? I have been using one I got prescribed previously but not sure if there's a better one
PARALIFE I don’t know what it’s called. It’s been made by a pharmacist on the spot. All I know that it’s white and very heavy moisturizing. Not sure what the ingredients are. At least you are using something. Maybe ask for an ointment for bed sores. I think that’s what I use.
Did I miss that 🤔? Oh yeah, around 7:44. I thought that was a birthmark or something. Craig, NEVER ignore a bruise on your spine. The way I broke my neck is my vertebrate dislocated, the bone chipped in the corner and the spinal cord injury came when the spinal cord itself slammed on to the ground (a rock) and bruised really bad. It wasn't the vertebrate cutting it.
@@Luke-qj5jn Sounds fairly similar to what we use, also a white, heavily moisturising cream, but we'll have another look.
@@morgancalvi6675 Don't worry, we aren't ignoring it, but maybe there is more we can do to help it. Thanks for the advice!
My friend! I too was like this for a good time.. now I kick my bag and run and ride my bike.. I speak Jesus upon you! May the holy... Worthy... And anointed one work wonders through your life! May he perish and banish these corrupt ways and make his creation whole again! I ask this all on thy name of the King Jesus, Amen!!!
Helo LEGEND IN PORTUGUÊS BRASIL NOS TEUS VIDEOS PLIS
🙏
Where did you learn your bowel routine? 1920? Why are you not just doing manual? Bizarre set up
Ahaha come on, surely in 1920 they'd have been doing manual, this is what we do in 2020! Bizarre comment
ua-cam.com/video/cyn_clzxDEw/v-deo.html - it's explained in this video if you're genuinely interested
@@PARALIFE I'm C6 quad since 87. Never have I seen anything like that. I do M.E takes 2 mins. 1st thing in the morning and last thing at night. Id be pissed off doing that every other day. 3 hrs to get sorted? That's ridiculous
@@martinball54 you are lucky then, everyones bowel program is different and glad it works for you but it doesn't for me. I tried manual evacuation for months, it was a nightmare, had countless accidents and it definitely didn't take 2 minutes. Loads of other people were using anal irrigation and it raving about it and it was a complete game changer for me. Yes it's annoying that it takes a long time but I'd rather have that every other day than manual twice a day with the risk of accidents. Plus the peristeen itself doesn't take 3 hours, it's everything all together (eating, washing, dressing etc) so most of that would need doing with manual evac too. You can also do irrigation quicker if you use a lower volume and do it everyday or twice a day, I just prefer not having to do it everyday. I definitely spend less time on the toilet overall now than I did when I did manual.
@@PARALIFE 30 years M.E. never had 1 accident. Im incomplete and have a vague idea when I need to go. As a quad I am truly blessed to be honest. I consider myself very lucky, and have been very lucky too. But yes, each to their own, that method though, would depress me. I can nip for a No.2 whilst the adverts are on, and very back in time
I want to be your personal assistant in free
Please...doing Praying from Jesus Christ ....you are finally healed
:)
OHHHT J
Please flash 😝😝😝🤪🤪🤪🤪