Everything you say I can relate to you Chris. Even if some of the symptoms can be short, the after effects are longer term especially cognitive issues. FND really is a frustrating and unpredictable condition leaving sufferers feeling vulnerable, embarrassed, and isolated. Wished there was more support and understanding from health professionals so we can be informed on more ways to cope. I am so sorry for the other conditions you have. I hope that you are going to feel alot better. I'd like to thankyou for sharing your story. I have learned more about FND from watching your channel than any health professional. Youre a brave, inspring young man. Take care and hope you are well for your baptism 😊😢 I find it a struggle to say the right things to comment because of the cognitive issues, so hope this makes sense.
That is terrible 😞 I don't have seizures but do struggle with everything else. The only thing that helps is reducing everything on my life. Good luck and congrats on your big day 🙏🙌
Congratulations on your baptism my friend I feel for you me personally I think there is a lot more going on with you and I think they are using FND as a way out I will never accept my FND diagnosis I am still fighting it But the way I feel I hope my number gets called soon Keep going Chris you are amazing
Big congratulations on your baptism Chris the power of prayer is a real thing. Sorry to hear you have not been well! I am still waiting for a diagnosis but now have a mobility scooter which has improved my life. Take care Chris and trust in the lord jesus Christ there is power in the name praying for you my friend 🙏
So sorry to hear this, I have all the Same atm, I was ready to go to hospital. It's such a hard condition to live with. I also have fibromyalgia, lupus and osteoarthritis. Sounds like everything is having a party inside us atm. Can I ask, have your joints seized up too? Hope your baptism goes ahead. Good luck.
I’m sorry this is happening to you.. it feels relentless sometimes I know. The only thing I’ve found to be of any help when my symptoms are stronger is total enforced rest. It’s hard to pace when kids and a home to run are involved. I know my problems lie in a lack of support so I’m glad to hear you have your mum and son around you to help. X
Hey Chris, I was diagnosed with Fibro in 2014 and FND in April 24. It's so hard. Does it affect your digestive system and bowel? My flares are horrific and have really affected my quality of life. I now use a wheelchair because of the paralysis, weakness and seizures. I have no care Plan in place the neuro just dismissed me after giving my symptoms a name. Has anyone else experienced this, is that the norm? Thanks. Congrats on your big event Chris.
Yes from 17 as after a fall ime now 44 diagnosed fybromyalgia CFS element s fnd no help but found out I have autism ADHD heds genes for it father has CFS ti
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Sorry your feeling this way, I’ve only been newly diagnosed and this is very severe.
Everything you say I can relate to you Chris. Even if some of the symptoms can be short, the after effects are longer term especially cognitive issues. FND really is a frustrating and unpredictable condition leaving sufferers feeling vulnerable, embarrassed, and isolated. Wished there was more support and understanding from health professionals so we can be informed on more ways to cope. I am so sorry for the other conditions you have. I hope that you are going to feel alot better. I'd like to thankyou for sharing your story. I have learned more about FND from watching your channel than any health professional. Youre a brave, inspring young man. Take care and hope you are well for your baptism 😊😢
I find it a struggle to say the right things to comment because of the cognitive issues, so hope this makes sense.
This is exactly what happens to me as well .The pain is horrendous. Do you meditate ?Fnd is a horrible illness .Its absolutely wrecked my life
That is terrible 😞 I don't have seizures but do struggle with everything else. The only thing that helps is reducing everything on my life. Good luck and congrats on your big day 🙏🙌
Congratulations on your baptism my friend
I feel for you me personally I think there is a lot more going on with you and I think they are using FND as a way out
I will never accept my FND diagnosis I am still fighting it
But the way I feel I hope my number gets called soon
Keep going Chris you are amazing
Sorry to hear how tough it's been for you. Sending you warm wishes for tomorrow. I hope it's a really meaningful experience for you. ❤
Spiritual cleansing is the way forward congratulations and wish you well 🙏
Big congratulations on your baptism Chris the power of prayer is a real thing. Sorry to hear you have not been well! I am still waiting for a diagnosis but now have a mobility scooter which has improved my life. Take care Chris and trust in the lord jesus Christ there is power in the name praying for you my friend 🙏
So sorry to hear this, I have all the Same atm, I was ready to go to hospital. It's such a hard condition to live with. I also have fibromyalgia, lupus and osteoarthritis. Sounds like everything is having a party inside us atm. Can I ask, have your joints seized up too? Hope your baptism goes ahead. Good luck.
Best wishes you feel better soon Chris.
I’m sorry this is happening to you.. it feels relentless sometimes I know. The only thing I’ve found to be of any help when my symptoms are stronger is total enforced rest. It’s hard to pace when kids and a home to run are involved. I know my problems lie in a lack of support so I’m glad to hear you have your mum and son around you to help. X
Had fybromyalgia CFS years do you have hypomobility? It's linked
@ yes! Adhd too
@ yep
Originally i was diagnosed neurosthenia have thry checked you for hypomobility yet chris
Hey Chris, I was diagnosed with Fibro in 2014 and FND in April 24. It's so hard. Does it affect your digestive system and bowel? My flares are horrific and have really affected my quality of life. I now use a wheelchair because of the paralysis, weakness and seizures. I have no care Plan in place the neuro just dismissed me after giving my symptoms a name. Has anyone else experienced this, is that the norm? Thanks.
Congrats on your big event Chris.
Yes from 17 as after a fall ime now 44 diagnosed fybromyalgia CFS element s fnd no help but found out I have autism ADHD heds genes for it father has CFS ti
It's horrible Chris truly horrible 🫂 I'm still battling just like you and you are not alone