Peripheral Neuropathy: My Side Effect from Cancer Treatment | The Patient Story
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- Опубліковано 27 вер 2024
- Chemotherapy, while an effective treatment for cancer, can sometimes lead to peripheral neuropathy. The nerve damage can result in tingling, numbness, or pain in the hands and feet for some patients.
Megan Claire Chase, a breast cancer survivor, experienced severe reactions during chemotherapy treatment, leading to weakness, numbness, and pain in her hands and feet. Her neuropathy created everyday challenges including walking and buttoning clothes, due to the lack of sensation.
In this cancer vlog, she share how sought help and the different tests and treatments that have helped releive the pain. She highlights the importance of being informed and asking questions during medical appointments, as well as taking breaks and prioritizing one’s quality of life.
Full story & transcript → www.thepatient...
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Thanks for sharing this story. My fingertips were so numb that fussing with buttons and zippers was a bit of a challenge. I had to warn all my friends to be on the lookout for my body parts making a break for it out of improperly fastened garments. Luckily, in the five months since my last dose of Oxaliplatin, my fingers are back to about 95% and my feet are at 80%. Good luck to everyone suffering with this invisible and debilitating side-effect.
Thank you for watching my story. It's so important to share our different experiences to help others know they're not alone.
😢😢😢 I've been through all of this. I am so thankful I came across this video. I'm struggling. Bad. And people do not understand or believe me.
I have peripheral neuropathy to just over the knees along with MGUS. Since it's "just" MGUS, no treatments are offered and the problem is basically dismissed. It is SO NICE to hear someone describe the difficulties of living with "dead" feet and legs. Otherwise, I find it's just dismissed, medically. Like, shrug...
Wow! So inspiring that you are healing and improving, thanks to not giving up but instead finding new therapies that work for you! What a wonderful lesson for us all. Wishing you total recuperation and best of health going forward.
Thank you bunches for watching my story. It has definitely been frustrating having to figure out so much on my own, but I refused to give up. 💗
Yep..this happened to me during my initial treatment. By the fourth treatment I had stroke like symptoms and had to be hospitalized. Today, 7 months after my last treatment I still have severe neuropathy in my feet and fingers. While I'm extremely grateful to be alive the lingering effects of chemo have only marginally improved. You are the first person who comes close to describing what I experience daily.
If you had even one covid vaccine I wouldn't rule out that as the cause of your stroke seeing as it one of the most common side effects.
Thank you for your testimony. I finished my cancer treatment 2 months ago . I don't know of it was the chemo or the immunotherapy that has caused neuropathy but I have it my hands and feet. It's very uncomfortable plus the weaknesses that it feels. I'm taking vitamin B12 supplements and exercising to see if that helps. And of course my faith and prayers to my Lord Jesus Christ 🙏
Thank you for sharing your story,🙏 may God continue to bless you!
That neuropathy is no joke. And it was almost instant for me too during my very first treatment.
71 years old, just finished round three and I’ve noticed I’m looking for words, even simple words and I just can’t seem to find them. Very frustrating!!
My husband had just finished his 8cycles of chemo &28 sessions of radiation.sometimes he felt numbness & itching all over his body but it subsides an hour of flexing &massage.he is 70years old..he do exercise daily...hope you can handle your feelings...Godbless❤❤
Yes, my 1st dose was lowered 10% so I didn't have a reaction. Ijust finished my 4th of 6 treatments and am tolerating them.
I'm So Deeply Sorry. I praise God don't have cancer but I've had Pelvic Neuropathy since 2015. Debilitating Pelvic Neuropathy in which my doctors took me out of work. I'm a Nurse and I became deeply depressed. I've learned to live with the constant continuous daily pain but my life is forever changed. I have pelvic neuropathy because of the Pelvic Mesh Sling I had surgically place years before. They tried removing it but the 4 anchors had nerves grown around them like grape vines. I've had 72 injections but they no longer work. It's also caused Sacralilitis in which my Sciatic Nerve is always inflamed. I can't hike, hardly walk, Have to wear special sneakers and shoes... nothing pretty. I basically stay home unless I have a doctor's appointment because it's just to painful going out. God Bless You 🙏 And All Those Fighting Disease and Chronic Pain. Western Upstate New York here 💕
First, thank you so much for watching my story. Secondly, omg…you have and continue to go through so much. Your pain sounds horrific. Gentle hugs to you.
That is horrific.
Hi
I m also suffering from this type of neuropathy but not due to mash but due to so many abdominal surgeries and adhesion since 2012. And got relief with 1 year vitamin d 3 injections and 1200mg calcium yablets and amitriptalin 25 mg tablets for 3 months with pelvic strenghthning exercise including L shape leg extend upwRd with feet out and in movement. Hopefully it will help you. And also went to chiropractor.
God bless you
@@megsie1497 Thank You So Much And God Bless You 🙏 Always ❤️. Sending Sunshine 🌸 And Hugs ✨🙌. You Are Amazing!!!
@@lubnaashar3615 Thank You ❤️. I do the vitamin D and Calcium. I have done the Antibiotics for several months a few times, it didn't help. The antibiotics caused my stomach Gastritis diagnosed by an Endoscopy because of throwing up and stomach pain. I do need to try a Chiropractor I'm just worried because I have Osteoarthritis. I'm going to look into Ketamine Infusion Therapy because we have a Center here in Rochester. Thank You for reaching out to me, I appreciate You!!! God Bless ❤️🙌✨
I agree they really don’t prepare you
Thanks for watching my story! I just never gave up and wish insurance would provide more coverage for integrative therapies.
I wonder why patients can't just be started on very low doses first and increased gradually to see how their bodies will react since so much is not known .
So true
Thanks for watching my story! And yes, I wish my oncologist had started me at a lower dosage first. It's frustrating to not know if that would've made a difference or not.
THANKYOU! Yes I was given the full dose of Taxol and about 5 minutes in had horrible tingling going down my legs. I literally yelled for the nurse. But by this time the IV is flowing. They didn't try to stop it. They continued to let it run while one of them went to the doctor who told them to give me more steroids, which did not help. Now I'm scared to go into round 2. The dose will NOW be lowered. But I agree with why do they just throw the whole dose at you and hope for the best!
Exactly!!
I'm on round 5 of Taxol and hepacin?? Anyway they started slow and I tolerated it well so it's double time now and hair is coming out and my toes now tingle. I hope elevation and massage will help and getting off my feet. Watching your show. Thanks!❤❤
I forgot they did give me the steroid first and that helped the energy but still tingle toes, time for physical therapist?
My Mom has some of the same issues. She had 6 chemo treatments and is now in remission but she’s having trouble standing up straight, trouble walking and her feet are always cold.
Imbdeeing this with my dad now.He tolerated the infusions pretty well.He' s on pills now and the capecitabine is creting havic with his body.He had really bad mouth ulcers and he lost 4 kgs in 2 weeks( 80 years old and already frail) .Now he has this neuropathy where his feet tingle burn and is in pain and his hands
I record my appointments!! Really helps. And I take photos of any visible Symptoms, and that helps me track them from one phase to another. I get different rashes and they can be bizarre. Doctors don't believe me, but they can't argue with evidence.
I am curious what chemo drug{s} you were taking... There is a wide variety of them. Thanks for posting this video!
I, too, have been suffering with Peripheral Neuropathy due to Taxol chemotherapy. It's very debilitating . I finished my 12 weeks, and on the 1st week after treatments, I developed chronic neuropathy. I decided not to do radiation since that too may cause nerve damage . Conventional treatments can do much better in providing better information and treatments.
Thank you for sharing.
Could you say what kind of treatments these are specifically?
Thanks for sharing your story. You are helping others for sure. It's unfortunate that insurance won't cover the cost (or at least some of the cost) of treatment for a well known side effect of some forms of chemotherapy. Family member going in for 2nd session tomorrow. Has a cooler packed with iced gelpacks for mittens and socks. Hope this helps her avoid a problem
Vitamin A, C, K, D. Daily. Now.
Eat veg, veg, veg.
I lost my toe nails & fingernails! They are so evasive when you ask questions!! Research!!!
I’m a two time cancer survivor and the Chemo caused neuropathy both times first cancer at the are of 36 again at the age of 60 the best therapy for my hands was a orbital sander the vibration from the sander seemed to help this was not a quick fix it took in the order of 10 years to regain the feeling in my finger tips enough to be able to button a dress shirt but the sander and the vibration seemed to help. I’m currently working through a second round on neuropathy and working with the same issues again the I’m using the sander and vibration again I know this is a long process but I believe it helps.
You mentioned you have trouble with falling I’m the same my brain doesn’t know where my feet are located I’m ok on flat ground butt will trip at the siltiest obstacle. I have not found any thing that helps at this stage the depth of numb ness in much greater in the feet.
Thank you. What a great video. Going threw the same thing
Thank you for sharing your story. ❤ I wish you health and happiness.
Thank you so much for watching my story. Cheers
Try exercise and losing some weight and acupuncture or electrotheraphy. Be prepared for a long ride.
U dont know what is it. Really .
@@Streleny I do Leo , at least pain wise , as I've had it for over 2 years since chemo.
@@fraseredk7433 and what u do against? Take vitamins? Eat veg? Salad? Training?
@@Streleny magnesium glycinate once a week, vitamin b12 jab every fortnight, neurobion one tab a day,15 minutes on the stationary bike each evening , 20 minute UA-cam sessions with More Life Seniors ,warm Epsom salts footbath, alternating with frozen gel packs, walking , foot massages , acupuncture, moisturize feet and legs. Cannot take painkillers because I only have one kidney!! Merry Christmas and good luck.
@@fraseredk7433 UA-cam/// chemo induced neuropathy recovery.
Vitamin B komplex. Now. Daily
I had 4 doses of paclitaxel back in 2015 which has caused permanent neuropathy. I wasn’t told anything about the possible potential side effects of the drug, let alone it could be permanent. I have had a gamut of drugs and lotions, acupuncture, massage, even Botox injected into the soles of my feet, which was up there with childbirth pain wise!! Duloxetine lessened the tingling/pins and needles but my feet are constantly painful.