I've been in remission for five years . My treatment was a shock to the system but I'm so grateful I was able to get through it . Life is for living dont dwell on the past . Most of all be happy & smile .xxxx
This makes me feel less alone. I have fatigue from B cell non hodgkin lymphoma and felt angry with myself because I felt like I was being lazy. I am trying to be less harsh with myself.
Hello Mee Moy, we're sorry to hear you are experiencing fatigue. If you feel it may be helpful to read more about fatigue, along with tips to help manage the fatigue, you may wish to read our information here lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue We send our best wishes to you.
How you feel now? My husband lately is real tired his wbc still low 2.9. He got blood transfusion and it didn't work. He feel so sad...he want to do things for me but he can't. We suppose to go on vacation. But he got this cancer and cough all the time that we can't go no where. We worked so hard for this retirement and look. I'm so depressed😢
Just listened to your story Martin, we could be twins, my fatigue is awful. Was awful even before I started chemo and is still bad. Thank you for being so forthright, its helped me a lot knowing what lies ahead. You read things and think "Probably not happen to me" somehow we think we'll be different. My husband watched it with me and its given him an insight to Lymphoma. Thank you from the bottom of my heart, its really helped me come to terms with my diagnosis.
Thank you. I am going through chemo for NHL. i appreciate your telling it like it is. Psychologically speaking, facing this life altering event plus the physical trauma is tough stuff. I am a small framed 69 year old lady. I have taken good care of myself, luckily, because it has hit me hard. I hope I can survive this.I have a lot to live for.Going on Rchop #4. Previous to chemo my body is so sensitive that I could not drink one cup of coffee or one glass of wine without getting really sick. Wishing you the best of health and happiness.
So glad to hear you are in remission, I am 3 months into remission from the same diagnosis. It’s so good to hear you talk about the fatigue and share your story, I have been very impatient with myself so this is very reassuring. Thank you.
Hi Kevin Anthony, I hope you are doing well, I will pray for you, I know what it is like to live with an illness that overtakes your life, but Jesus gave me a miracle and healed me, if your ever feeling down call on Him, Jesus loves you, It is as simple as asking Jesus into your heart to be your personal Lord and Saviour, God bless
Thanks! I was diagnosed with Non-Hodgkin's lymphoma stage 4b in 2018 and was in remission until this month. But the tiredness never wore off. It may be that I also have COPD, but not bad. Just wish people could understand that cancer wipes out your energy.
thank you for sharing your situation, fatigue can be so debilitating, and very difficult to manage, and as you mention, it can help if people are aware and can perhaps offer understanding. We send you our best wishes to you.
Thanks for sharing! Nice to know others out there are having similar experiences. I am 18 months in remission and still struggle with the fatigue side of things
This is what I am worried about. I am always tired. Have been on antibiotics five times between October and April. Now I have fungus on my toes. I rely on my faith to get through the day. Will be seeing a new doctor soon. Terrible headaches that out me in the Emerg often.
it might be a bacterial infection hope it's not cancer for you I've never heard of fungus on toes for any cancer so I think it's really some infection/bug/maybe even a parasite.
Thank you, I have just been diagnosed with Non Hodgkin’s lymphoma, and the fatigue is kicking my butt. I have tried fighting it, and have feel guilty about it. I feel better knowing that this is common. Thank you again.
Hello How you feeling now? My husband feel tired, coughing nauseated, he always feel bad. I don't know what to do..I will retire soon..I want to be with him..
In November 2023 I was diagnosed with stage 3 extra nodal marginal zone lymphoma, I had a mass on my tongue and a lump in my neck, I had just given birth, I had some radiotherapy in February 2024 to try shrink the tumour in my mouth as it was starting to obstruct my airway, I am awaiting a PET scan in two weeks to see if the radiotherapy has worked, and to see if I need more treatments for the other areas affected. The fatigue is unreal and with a baby it’s just so hard. I’m happy you are in remission, it gives me hope ❤
Hello, thank you for sharing. We're sorry to hear you have been diagnosed with lymphoma, and needed to have treatment. We can appreciate this has likely been a difficult time. We send our best wishes to you, and for your upcoming scan.
Hi Martin your story is very interesting and helpful for me, I was diagnosed with low grade non hodgkin lymphoma in December 2018 I started my chemo January 2019 and I was getting it every 3 weeks I've had 8 lots of chemo which finished in August and now I'm getting maintenance treatment every 8 weeks for next 2 years and I've had 4 lots maintenance treatment, the fatigue is my biggest problem and sometimes I can't even make the effort to get dressed or even go out, I've definitely got the chemo legs and chemo brain as I can go into the kitchen and forget what I went in for,
Sorry to hear you're experiencing fatigue, Keith, we have some information that may be helpful, which includes tips you may like to consider: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/fatigue We send our best wishes to you.
I had the same treatment , it was scary when the rituximab finished . I gave myself a good talking to & my medical team where an amazing support to me . Take your time dont put yourself under any pressure . Take care .
It's alittle like your safety net is taken away to begin with , but you stay strong some times not the easiest of things to do . Don't worry about the small stuff . Do what you enjoy in life .
I found a lump years ago in my cheek. Dad took me to doctors and they said it was mumps. My dad didn’t accept it so took me for second opinion. Still didn’t know what it was. Over the following years I found more lumps in my face and neck. Doctors were still confused and sent me to dentist to see if it’s my teeth. Dentist said everything was okay. Fast forward to October just gone and I fell ill and couldn’t seem to shift it. Went back to doctors and sent me for urgent blood tests. They came back with high levels of CRP and now been referred to ENT and have an appointment on Tuesday. Feel like a frog most of the day where my nodes are swollen :/
I completed my chemotherapy last April 12. Did my first post PETScan 45 days later. Doctors say Its neither good nor bad ; but I fall in the middle which is fine ! I’ll have another PETScan 3 months from now in August to see if I’ve improved or not. I’m always fatigued Martin ! I can’t do much . I do yard work and after 5 minutes I’m spent …. Wobbly legs, and shortness of breath.
We wish you well for your next scan, and you may find our information on fatigue helpful: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue We send our best wishes to you, and hope you start to have more energy soon.
I'm in the diagnosing stage, and the fatigue and weakness are horrendous! At times I don't even have the energy to lift my arms, and there are days I can't get out of bed. It's a very nasty feeling....
Hello Angela, I am really sorry to hear you are struggling with fatigue and weakness so much. You can find out more and read some tips that might be helpful on our website - lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/fatigue -You can also live chat to us here, or call us on 0808 808 5555 (mon-fri 10-3) - if you need someone to talk to about how you are feeling. Best Wishes, Kitt
Nikki, same thing for me. I saw the doctor on Friday. He is concerned. The symptoms really are terrible. I found out today that I am scheduled for body scan on Monday, along with blood work. He said something about a bone marrow test. I know that is miserable. Not looking forward to it. Bless you. I comment here because you have the same name as my niece.
Hello, we're sorry to hear you have been diagnosed with this, and can apprecaite this has likely been a difficult time. If you are in the UK, please do remember we're here for you, if you would like to chat to us lymphoma-action.org.uk/support-you/helpline-services We send our best wishes to you
@@CarmenGarcia-bu3so I am currently in remission at least thats what the doctors say, I got lucky as we found out really soon thanks to my mom as she noticed lumps on my neck :)
Hi Belle, My bloods never really showed anything too strange but I had lumps in my neck. I then had a biopsy on these and thats when I got my diognosis.
Martin Cooke hi martin, based on ur story, ur major first symtomps was fatique, I want to ask, when the first day u got that fatique, did the the lump showed up? when ur lump showed after the fatique hits u for over monthss
Blood work doesn't usually show anything with NHFL. It's usually the symptoms. Either finding a questionable lump, drenching night sweats, unexplained weight loss, weakness and/or crushing fatigue, fever, possibly anemia, which vary for each person. I found a lump in my face in late 2018, before I had any other noticeable symptoms. CTs showed about 7-8 other affected nodes in my body, but so far indolent, not yet needing treatment, because other than the crushing fatigue, I don't have enough other symptoms yet.
Hello Amy - it is not immediately clear the question that you are asking. Our suggestion would that if you have a question about the size of your spleen that you raise it with your mecial team - we send you our best wishes.
My husband has bcell lymphioma in remmision nearly 1year now and his fatiuge comes every month and last 3 /4 mybe 5days but its got a bit worse and hes off to bed my bed would this be right
We are sorry to hear of your husband's B Cell lymphoma but glad to note that he is currently in remission. You have mentioned that he is suffering badly from fatigue at the monent and the information we have on fatigue is here, lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue. It is difficult to say for certain what the cause of cancer-related fatigue is. This is because there are many factors that could affect whether you experience it. Our suggestion is for your husband to speak to his team about the impact that this is having on his every day life. If you or he would like to talk this through you are welcome to contact our free and confidential helpline 0808-808-5555 which is open Monday-Friday from 10am-3pm. We send you both our best eishes.
Carmen, we are sorry to hear of your husband’s lymphoma diagnosis and on-going symptoms and tests and that this is likely to be a difficult and worrying time for you both. It seems as if his medical team are closely involved. If you live in the United Kingdom, we are able to offer the following support: lymphoma-action.org.uk/support-you. If you live abroad, you can visit the lymphoma coalition website lymphomacoalition.org/ We send our best wishes to you both.
We would always suggest that everyone seeks medical advice from their own doctor if they need help with any symptoms, diagnosis, treatment, and after care.
I watched this when I had symptoms and now am officially diagnosed. These videos really help. Thank you. 🙏🏻
Hey can you help me
Did you have the same symptoms?
Just diagnosed with hodgkin's lymphoma. I'm ok but my family is freaking out .
@@charleschidester6767 what kind? I’m non with DLCBL. I’m doing RCHOP chemotherapy.
@@metallady73 I hope you are okay by now.
I've been in remission for five years . My treatment was a shock to the system but I'm so grateful I was able to get through it . Life is for living dont dwell on the past . Most of all be happy & smile .xxxx
1yr myself 💪🙏
This makes me feel less alone. I have fatigue from B cell non hodgkin lymphoma and felt angry with myself because I felt like I was being lazy. I am trying to be less harsh with myself.
Hello Mee Moy, we're sorry to hear you are experiencing fatigue. If you feel it may be helpful to read more about fatigue, along with tips to help manage the fatigue, you may wish to read our information here lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue We send our best wishes to you.
how much leukocytes you had when you had lymphoma
How you feel now? My husband lately is real tired his wbc still low 2.9. He got blood transfusion and it didn't work. He feel so sad...he want to do things for me but he can't. We suppose to go on vacation. But he got this cancer and cough all the time that we can't go no where. We worked so hard for this retirement and look. I'm so depressed😢
I'm glad i came accross this video. The fatigue is so taxing, head wants to do things but body doesn't.
Great attitude Martin. You are an inspiration for others and so happy you are doing well. God Bless
Just listened to your story Martin, we could be twins, my fatigue is awful. Was awful even before I started chemo and is still bad. Thank you for being so forthright, its helped me a lot knowing what lies ahead. You read things and think "Probably not happen to me" somehow we think we'll be different. My husband watched it with me and its given him an insight to Lymphoma. Thank you from the bottom of my heart, its really helped me come to terms with my diagnosis.
Thank you. Glad it helped. All the best x
Thank you. I am going through chemo for NHL. i appreciate your telling it like it is. Psychologically speaking, facing this life altering event plus the physical trauma is tough stuff. I am a small framed 69 year old lady. I have taken good care of myself, luckily, because it has hit me hard. I hope I can survive this.I have a lot to live for.Going on Rchop #4. Previous to chemo my body is so sensitive that I could not drink one cup of coffee or one glass of wine without getting really sick. Wishing you the best of health and happiness.
So glad to hear you are in remission, I am 3 months into remission from the same diagnosis. It’s so good to hear you talk about the fatigue and share your story, I have been very impatient with myself so this is very reassuring. Thank you.
Hi Kevin Anthony, I hope you are doing well, I will pray for you, I know what it is like to live with an illness that overtakes your life, but Jesus gave me a miracle and healed me, if your ever feeling down call on Him, Jesus loves you, It is as simple as asking Jesus into your heart to be your personal Lord and Saviour, God bless
Thanks! I was diagnosed with Non-Hodgkin's lymphoma stage 4b in 2018 and was in remission until this month. But the tiredness never wore off. It may be that I also have COPD, but not bad. Just wish people could understand that cancer wipes out your energy.
thank you for sharing your situation, fatigue can be so debilitating, and very difficult to manage, and as you mention, it can help if people are aware and can perhaps offer understanding. We send you our best wishes to you.
how much leukocytes you had when you had lymphoma
How you doing now? My husband feel horrible..
Thanks for sharing! Nice to know others out there are having similar experiences. I am 18 months in remission and still struggle with the fatigue side of things
how much leukocytes you had when you had lymphoma
This is what I am worried about. I am always tired. Have been on antibiotics five times between October and April. Now I have fungus on my toes. I rely on my faith to get through the day. Will be seeing a new doctor soon. Terrible headaches that out me in the Emerg often.
it might be a bacterial infection hope it's not cancer for you I've never heard of fungus on toes for any cancer so I think it's really some infection/bug/maybe even a parasite.
Thank you, I have just been diagnosed with Non Hodgkin’s lymphoma, and the fatigue is kicking my butt. I have tried fighting it, and have feel guilty about it. I feel better knowing that this is common. Thank you again.
how r u
Hello How you feeling now? My husband feel tired, coughing nauseated, he always feel bad. I don't know what to do..I will retire soon..I want to be with him..
In November 2023 I was diagnosed with stage 3 extra nodal marginal zone lymphoma, I had a mass on my tongue and a lump in my neck, I had just given birth, I had some radiotherapy in February 2024 to try shrink the tumour in my mouth as it was starting to obstruct my airway, I am awaiting a PET scan in two weeks to see if the radiotherapy has worked, and to see if I need more treatments for the other areas affected. The fatigue is unreal and with a baby it’s just so hard. I’m happy you are in remission, it gives me hope ❤
Hello, thank you for sharing. We're sorry to hear you have been diagnosed with lymphoma, and needed to have treatment. We can appreciate this has likely been a difficult time. We send our best wishes to you, and for your upcoming scan.
Hi Martin your story is very interesting and helpful for me, I was diagnosed with low grade non hodgkin lymphoma in December 2018 I started my chemo January 2019 and I was getting it every 3 weeks I've had 8 lots of chemo which finished in August and now I'm getting maintenance treatment every 8 weeks for next 2 years and I've had 4 lots maintenance treatment, the fatigue is my biggest problem and sometimes I can't even make the effort to get dressed or even go out, I've definitely got the chemo legs and chemo brain as I can go into the kitchen and forget what I went in for,
Sorry to hear you're experiencing fatigue, Keith, we have some information that may be helpful, which includes tips you may like to consider: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/fatigue We send our best wishes to you.
I had the same treatment , it was scary when the rituximab finished . I gave myself a good talking to & my medical team where an amazing support to me . Take your time dont put yourself under any pressure . Take care .
@@denisebaines9816 I've got another year of rituximab treatment to get
It's alittle like your safety net is taken away to begin with , but you stay strong some times not the easiest of things to do . Don't worry about the small stuff . Do what you enjoy in life .
@@denisebaines9816 thanks for such kind words
I found a lump years ago in my cheek. Dad took me to doctors and they said it was mumps. My dad didn’t accept it so took me for second opinion. Still didn’t know what it was. Over the following years I found more lumps in my face and neck. Doctors were still confused and sent me to dentist to see if it’s my teeth. Dentist said everything was okay. Fast forward to October just gone and I fell ill and couldn’t seem to shift it. Went back to doctors and sent me for urgent blood tests. They came back with high levels of CRP and now been referred to ENT and have an appointment on Tuesday. Feel like a frog most of the day where my nodes are swollen :/
I completed my chemotherapy last April 12. Did my first post PETScan 45 days later. Doctors say Its neither good nor bad ; but I fall in the middle which is fine ! I’ll have another PETScan 3 months from now in August to see if I’ve improved or not. I’m always fatigued Martin ! I can’t do much . I do yard work and after 5 minutes I’m spent …. Wobbly legs, and shortness of breath.
We wish you well for your next scan, and you may find our information on fatigue helpful: lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue We send our best wishes to you, and hope you start to have more energy soon.
I'm in the diagnosing stage, and the fatigue and weakness are horrendous! At times I don't even have the energy to lift my arms, and there are days I can't get out of bed. It's a very nasty feeling....
Hello Angela, I am really sorry to hear you are struggling with fatigue and weakness so much. You can find out more and read some tips that might be helpful on our website - lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/fatigue -You can also live chat to us here, or call us on 0808 808 5555 (mon-fri 10-3) - if you need someone to talk to about how you are feeling.
Best Wishes, Kitt
How's ur diagnosis, is it lyhmpoma ?
Thank you for sharing.
No problem. Hope it helps a few people. Who are you ?
我奶奶75岁了，被诊断出了DLBCL，她经历了三次化疗，最近一次化疗后，她非常虚弱，非常疲惫，站立都很困难了。也不想吃东西，我希望她能熬过去，能好起来，你的视频很有用，谢谢。
I'm very fatigued. Found a lump in my armpit. Going to the Dr
Hiii mam
Nikki, same thing for me. I saw the doctor on Friday. He is concerned. The symptoms really are terrible. I found out today that I am scheduled for body scan on Monday, along with blood work. He said something about a bone marrow test. I know that is miserable. Not looking forward to it. Bless you. I comment here because you have the same name as my niece.
am so glad u doing good take care
Hi! I have plasmoblastic lymphoma.
Martin are still in this earth??
Im 15 and today I have been diagnosed with this
Hello, we're sorry to hear you have been diagnosed with this, and can apprecaite this has likely been a difficult time. If you are in the UK, please do remember we're here for you, if you would like to chat to us lymphoma-action.org.uk/support-you/helpline-services We send our best wishes to you
how much leukocytes you had when you had lymphoma
Good bless you and give lot years to live..be strong
@@CarmenGarcia-bu3so I am currently in remission at least thats what the doctors say, I got lucky as we found out really soon thanks to my mom as she noticed lumps on my neck :)
How are doing now?
How was it diagnosed in the end? Did something show in your blood? You don't mention any biopsies. Thank you kindly.
Hi Belle,
My bloods never really showed anything too strange but I had lumps in my neck. I then had a biopsy on these and thats when I got my diognosis.
Martin Cooke hi martin, based on ur story, ur major first symtomps was fatique, I want to ask, when the first day u got that fatique, did the the lump showed up? when ur lump showed after the fatique hits u for over monthss
@@dicephalous9076 I found a lump in my face before I had noticeable fatigue. It's different for everyone.
Blood work doesn't usually show anything with NHFL. It's usually the symptoms. Either finding a questionable lump, drenching night sweats, unexplained weight loss, weakness and/or crushing fatigue, fever, possibly anemia, which vary for each person. I found a lump in my face in late 2018, before I had any other noticeable symptoms. CTs showed about 7-8 other affected nodes in my body, but so far indolent, not yet needing treatment, because other than the crushing fatigue, I don't have enough other symptoms yet.
@@gmariel2624 Hi. so that means you don't need radiotherapy or chemo?
WAS YOUR SPLEEN HUGE MINE IS THERE GOING TO REMOVE IT?
Hello Amy - it is not immediately clear the question that you are asking. Our suggestion would that if you have a question about the size of your spleen that you raise it with your mecial team - we send you our best wishes.
My husband has bcell lymphioma in remmision nearly 1year now and his fatiuge comes every month and last 3 /4 mybe 5days but its got a bit worse and hes off to bed my bed would this be right
We are sorry to hear of your husband's B Cell lymphoma but glad to note that he is currently in remission. You have mentioned that he is suffering badly from fatigue at the monent and the information we have on fatigue is here, lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/cancer-related-fatigue. It is difficult to say for certain what the cause of cancer-related fatigue is. This is because there are many factors that could affect whether you experience it. Our suggestion is for your husband to speak to his team about the impact that this is having on his every day life. If you or he would like to talk this through you are welcome to contact our free and confidential helpline 0808-808-5555 which is open Monday-Friday from 10am-3pm. We send you both our best eishes.
My hubby had lyphoma for 1 year. He is doing bad..fatigue, ect ect.. wbc real low. Gave them blood transfusion Not working. Sucks.cancer
Carmen, we are sorry to hear of your husband’s lymphoma diagnosis and on-going symptoms and tests and that this is likely to be a difficult and worrying time for you both. It seems as if his medical team are closely involved. If you live in the United Kingdom, we are able to offer the following support: lymphoma-action.org.uk/support-you. If you live abroad, you can visit the lymphoma coalition website lymphomacoalition.org/ We send our best wishes to you both.
Ear pain was your symptom along with fatigue. I didn’t know ear pain could do this
💜
Get HRT because you are probably lacking afterwards. And probably before as well.
We would always suggest that everyone seeks medical advice from their own doctor if they need help with any symptoms, diagnosis, treatment, and after care.