I have not and will not have surgery. I have small kids and it’s not possible to be laid up now. I see my Dr the minimum time required to keep my disability insurance (annually) and our health insurance. Thankfully my insurance covers everything but I always feel like the appointments are pointless and I never learn anything new. For now I’m dealing with more frequent appointments because it’s the only way to get them to pay for my new wheelchair but I definitely won’t do it forever. Good luck. I can’t say I disagree with you.
I think the thing many don't understand is that going to the doctor won't automatically cure you or even lead to something making your life easier. I've fallen into that trap myself of thinking a doctor can come up with a magical cure, but they can't. Sometimes they can help, sometimes they can't, and as long as your condition is stable andthings don't suddenly get a whole lot worse, the degeneration follows an expected curve, going to the doctor won't be much use. A yearly check-up might be good just so the health system has some relatively new data on you in case something happens, but even that is up to you and if the stress is worth it for you.
Believe it or not, even though I’m from London,,I spent the early 90s in Dounby, Orkney. I went to Stromness Academy. Back in England now. I wasn’t called Sammi Raven then. I’m trans. 😂
Hi fellow CMTER here. I’ve been having a lot more nerve pain in my arms and hands lately, I didn’t think anything of it till I woke up this time last week and my hands where complete numb, tingling and I have shocking sensations in my hands. I’ve had a look online and it’s all pointing to carpel tunnel but I don’t know if with CMT this is ‘normal’ and I will have it forever now? I see my consultant on Friday which is why I haven’t rang him and my doctors are shocking and have no clue about CMT.
CMT 1A Can you believe i did 10 years in the Army,did not know I had this shite until I fell 18ft off my garage
I have not and will not have surgery. I have small kids and it’s not possible to be laid up now. I see my Dr the minimum time required to keep my disability insurance (annually) and our health insurance. Thankfully my insurance covers everything but I always feel like the appointments are pointless and I never learn anything new. For now I’m dealing with more frequent appointments because it’s the only way to get them to pay for my new wheelchair but I definitely won’t do it forever.
Good luck. I can’t say I disagree with you.
I think the thing many don't understand is that going to the doctor won't automatically cure you or even lead to something making your life easier. I've fallen into that trap myself of thinking a doctor can come up with a magical cure, but they can't. Sometimes they can help, sometimes they can't, and as long as your condition is stable andthings don't suddenly get a whole lot worse, the degeneration follows an expected curve, going to the doctor won't be much use. A yearly check-up might be good just so the health system has some relatively new data on you in case something happens, but even that is up to you and if the stress is worth it for you.
Believe it or not, even though I’m from London,,I spent the early 90s in Dounby, Orkney. I went to Stromness Academy. Back in England now.
I wasn’t called Sammi Raven then. I’m trans. 😂
I have the same problems, I saw a hope in the carbon fiber AFOs. I still don't have. but it is my goal. Did you see the Dynamic Brace Solutions?
Hi fellow CMTER here. I’ve been having a lot more nerve pain in my arms and hands lately, I didn’t think anything of it till I woke up this time last week and my hands where complete numb, tingling and I have shocking sensations in my hands. I’ve had a look online and it’s all pointing to carpel tunnel but I don’t know if with CMT this is ‘normal’ and I will have it forever now? I see my consultant on Friday which is why I haven’t rang him and my doctors are shocking and have no clue about CMT.
I understand why you need a break from doctors.