Thank you for all your videos. I was diagnosed with rectal cancer about three weeks ago. It’s been stressful to say the least. My pet scan only showed the localized tumor which I am thankful for and I will find out next week what type of chemo I will be on. My radiation chemo treatment will be 6 weeks. I am glad I found your videos. I feel like I am going through everything you went through. Thank you for bringing awareness.
I have just been diagnosed I had Crohn’s for many years. Turn cancerous. I’m scared. I’m trying to keep a positive outlook. It’s hard I’m so happy for you that you’re through this you’re beautiful young woman and got a great great attitude towards that illness. Thank you for all your information. Looking forward to the next video. God bless.
Jelena I’m so sorry you have been through so much, but cancer survivors always are looking over their shoulder it’s just part of it , praying for you !
You’re right - that small fluctuation shouldn’t be a big deal, but after the trauma of a cancer diagnosis and treatment the brain doesn’t always see it that way.
Thanks for sharing this, Jelena. Not many people talk about the mental stress a survivor goes through. A rollercoaster for sure. I'm 4 years NED and my CEA fluctuates between 2.0 and 1.0 I think I was 8 at DX. My Drs feel I'm one of the few that CEA isn't a good indicator for. Which makes me even crazier, lol. Thanks for sharing your story.
I came across to your videos a year ago when I was diagnosed with rectal cancer I am now a person in remission but definitely live under fear of it returning and now I'm struggling with depression as it seems like I didn't deal with any of the emotions while it happened I just got into fight mode now it's all hitting me and I feel like my life has been turned upside down chemotherapy has really trashed my body my family has been affected and my business as well so now I'm struggling with depression caused byThe huge mental turmoil that this disease causes prayers to you that you say cancer free
I'm going in for a colonoscopy 5/26 after all the covid delays. 29 here and experiencing severe symptoms that are now disrupting my entire life. Very worried about everything but your videos have helped me a lot with the anxiety ridden thoughts. Thank you for your vlogs.
Terra Friesen I’m glad that you’re getting a colonoscopy, but so sorry to hear that your symptoms are that severe. In the meantime, hang in there! I’ll keep my fingers crossed for you 🤞🏼💙
Great information. I was diagnosed with same stage cancer as you. My cea level has been .5 for first two test. Last test was .6 and I’ve been NED since June 10th 2022. Thank you for the information.
UA-cam recently sent me to a video by Dr. Katie Deming regarding feelings of depression and other feelings after radiation treatments are completed. She specializes in breast cancer, so radiation treatments seem to be the final treatment for breast cancer. After watching her video I commented on her page that the end of treatment feelings she was describing for breast cancer patients could be had by most cancer patients. Here's a link to her page, it was nice to see a radiation oncologist so in tune with the emotional dimension of cancer treatment. ua-cam.com/video/IOY8Fwg3FTw/v-deo.html
Have you had any issues after chemo with an elevated Alk Phos level? My had gone down after stopping , but a month later started going up. Oncologist is perplexed. Any thoughts?
No, my Alk Phos levels have been fine since finishing treatment, and my ALT/SGPT has been on the low end. It could take a while for your body to readjust to not being in treatment, so just keep an eye on it with your doctor.
Hello!! My name is LaTonya!! I really enjoyed your video!! Thank you for so much information , was needed, even though I’m BC, we still have to get treatments!! How are your sleeping habits. 🙏❤️💕
Hi, thank you for your videos. Did you have to struggle with bowel movements in the following months of your surgery? Did you have LAR syndrome? Could you go out, hike, travel as you used to do before? You never mentioned it in your vidéos.
Frederic Asse I did struggle with them off and on for over 2 years. I was able to travel and hike, but I always came prepared for unexpected bowel movements. I’ll talk more about it in a future video...this is an important part of the after-treatment that you’ve brought up.
If you get anxious remind yourself that different labs measure differently, this rather sounds like a fluctuation in test methods than an actual fluctuation in your CEA levels. Also, the limit is given for a reason :) below that, so many factors could be causing your levels to go a little up or down.
Hi Jelena, I know this video is 2 years old so I'm hoping you are now 5 years NED 🤞 I only recently had my first scan 8 months after LAR surgery and I was so stressed waiting to hear it was clear! I'm having ileostomy reversal surgery Friday 28th October and my next blood test and scan is next April and I know I'll be a nervous wreck waiting on the results! I think everyone that hears those words "you have cancer" will forever more be in dread of hearing them again. Hope you are well and thanks again for the videos 👏😊
I AM still NED 🥳 According to my oncologist I’ve been cancer-free for 6 years now since that’s how long ago my LAR surgery was, but I didn’t consider myself to be cancer-free until my first scan after I finished chemo (post-surgery), which means I’m 5.5 years NED. Once I hit the 3-4 year mark the scans and blood work started to get less nerve-wracking. One day you’ll hopefully get there too 🤞🏼
Jelena, thanks so much for sharing your mental gymnastics with us. I think you are one brave woman and I hope you continue to be cancer free! Wish you the best! Have a wonderful life with your friends and family !👍
I am a 71 year old man who was diagnosed with Stage 1 rectal cancer in September 2022. I had 28 radiation with chemo treatments and 8 FOLFOX treatments finishing April 14,2023. I have not had surgery and am doing Watch and wait. My scans showed me to be cancer free. I am experiencing some good things as a result of my treatment. Number one I am cancer free. I have an enlarged prostate so before treatment I would be up 4 to 5 times per night. Now I get up once. I wear a support hose for varicose veins in my left leg . They have disappeared. Before treatment I had osteoarthritis in my fingers .Now it is mostly gone. Now for the not so good side effects. My GI system is still a mess, sensitive mouth, no appetite, nuclear farts, excess burping, sore anus and rectum and frequent and unpredictable bowel movements. I have sexual issues like ED ,painful ejaculation, hot flashes and lower desire. I have had 2 bouts of hair loss. I lost all the hair in an 8 inch diameter circle where I had radiation. Some of it is coming back now. During FOLFOX My hair started to thin all over . The worst for me was loosing all my nose hairs but happily they are now back. I still have neuropathy in my fingers and feet that is slowly getting better. My CAT scan showed that I had blood clots in my lungs from cancer or chemo. I am on blood thinners to clear them. I have been seeing a psychologist to help me with the mental stress of cancer, its treatment and side effects. Thank Jelena for sharing your experiences. I have found it to be helpful in navigating my own case.
@@rcjs3488 I was diagnosed with the same cancer. My CEA level where always low( 1.2 when it was discovered). CEA alone is not a good indicator that you have cancer. You need more testing
I did some exercises, but not a ton. My muscle must have just remembered how to work. It did work some when I had my ileostomy because when I had mucus occasionally I would be able to hold it in until I got to a toilet.
![[UA] NAVI проти G2 Esports | Blast Premier Fall Final](http://i.ytimg.com/vi/QWlIm4FGESQ/mqdefault.jpg)
Jolene, sending much love and we'll wishes from a daughter who is trying to learn how to support her own mother with colon cancer.
Thank you for all your videos. I was diagnosed with rectal cancer about three weeks ago. It’s been stressful to say the least. My pet scan only showed the localized tumor which I am thankful for and I will find out next week what type of chemo I will be on. My radiation chemo treatment will be 6 weeks. I am glad I found your videos. I feel like I am going through everything you went through. Thank you for bringing awareness.
Best wishes to you as you prepare to start treatment. 💙 Those first few weeks of uncertainty as mentally rough for sure!
I have just been diagnosed I had Crohn’s for many years. Turn cancerous. I’m scared. I’m trying to keep a positive outlook. It’s hard I’m so happy for you that you’re through this you’re beautiful young woman and got a great great attitude towards that illness. Thank you for all your information. Looking forward to the next video. God bless.
Jelena I’m so sorry you have been through so much, but cancer survivors always are looking over their shoulder it’s just part of it , praying for you !
You’re so right. Hoping for the best and bracing for the worst.
Honestly, panic attacks are reasonable in light of repeated procedures and tests.
A CEA fluctuation between
You’re right - that small fluctuation shouldn’t be a big deal, but after the trauma of a cancer diagnosis and treatment the brain doesn’t always see it that way.
Thanks for sharing this, Jelena. Not many people talk about the mental stress a survivor goes through. A rollercoaster for sure. I'm 4 years NED and my CEA fluctuates between 2.0 and 1.0 I think I was 8 at DX. My Drs feel I'm one of the few that CEA isn't a good indicator for. Which makes me even crazier, lol. Thanks for sharing your story.
So happy to help you feel like you aren’t the only one experiencing this. Congrats on being NED 4 years! 🎉
I came across to your videos a year ago when I was diagnosed with rectal cancer I am now a person in remission but definitely live under fear of it returning and now I'm struggling with depression as it seems like I didn't deal with any of the emotions while it happened I just got into fight mode now it's all hitting me and I feel like my life has been turned upside down chemotherapy has really trashed my body my family has been affected and my business as well so now I'm struggling with depression caused byThe huge mental turmoil that this disease causes prayers to you that you say cancer free
It’s wonderful happy for you
I'm going in for a colonoscopy 5/26 after all the covid delays. 29 here and experiencing severe symptoms that are now disrupting my entire life. Very worried about everything but your videos have helped me a lot with the anxiety ridden thoughts. Thank you for your vlogs.
Terra Friesen I’m glad that you’re getting a colonoscopy, but so sorry to hear that your symptoms are that severe. In the meantime, hang in there! I’ll keep my fingers crossed for you 🤞🏼💙
Great information. I was diagnosed with same stage cancer as you. My cea level has been .5 for first two test. Last test was .6 and I’ve been NED since June 10th 2022. Thank you for the information.
UA-cam recently sent me to a video by Dr. Katie Deming regarding feelings of depression and other feelings after radiation treatments are completed. She specializes in breast cancer, so radiation treatments seem to be the final treatment for breast cancer. After watching her video I commented on her page that the end of treatment feelings she was describing for breast cancer patients could be had by most cancer patients. Here's a link to her page, it was nice to see a radiation oncologist so in tune with the emotional dimension of cancer treatment. ua-cam.com/video/IOY8Fwg3FTw/v-deo.html
Have you had any issues after chemo with an elevated Alk Phos level? My had gone down after stopping , but a month later started going up. Oncologist is perplexed. Any thoughts?
No, my Alk Phos levels have been fine since finishing treatment, and my ALT/SGPT has been on the low end. It could take a while for your body to readjust to not being in treatment, so just keep an eye on it with your doctor.
Hello!! My name is LaTonya!! I really enjoyed your video!! Thank you for so much information , was needed, even though I’m BC, we still have to get treatments!! How are your sleeping habits. 🙏❤️💕
Sleep is pretty good most of the time. I listen to a sleep meditation every night when I go to bed and that helps me go to sleep.
Hi, thank you for your videos. Did you have to struggle with bowel movements in the following months of your surgery? Did you have LAR syndrome? Could you go out, hike, travel as you used to do before? You never mentioned it in your vidéos.
Frederic Asse I did struggle with them off and on for over 2 years. I was able to travel and hike, but I always came prepared for unexpected bowel movements. I’ll talk more about it in a future video...this is an important part of the after-treatment that you’ve brought up.
If you get anxious remind yourself that different labs measure differently, this rather sounds like a fluctuation in test methods than an actual fluctuation in your CEA levels. Also, the limit is given for a reason :) below that, so many factors could be causing your levels to go a little up or down.
You’re so right Georgina! That’s what my parents tell me.
Hi Jelena, I know this video is 2 years old so I'm hoping you are now 5 years NED 🤞 I only recently had my first scan 8 months after LAR surgery and I was so stressed waiting to hear it was clear! I'm having ileostomy reversal surgery Friday 28th October and my next blood test and scan is next April and I know I'll be a nervous wreck waiting on the results! I think everyone that hears those words "you have cancer" will forever more be in dread of hearing them again. Hope you are well and thanks again for the videos 👏😊
I AM still NED 🥳 According to my oncologist I’ve been cancer-free for 6 years now since that’s how long ago my LAR surgery was, but I didn’t consider myself to be cancer-free until my first scan after I finished chemo (post-surgery), which means I’m 5.5 years NED. Once I hit the 3-4 year mark the scans and blood work started to get less nerve-wracking. One day you’ll hopefully get there too 🤞🏼
Jelena, thanks so much for sharing your mental gymnastics with us. I think you are one brave woman and I hope you continue to be cancer free! Wish you the best! Have a wonderful life with your friends and family !👍
Another great video thanks lady
Grafen R. Thank you so much!!
Cute shirt
Thanks!
@@SurvivorJelena I mean we gotta forget the cancer and focus on what's important right 😁😝
I am a 71 year old man who was diagnosed with Stage 1 rectal cancer in September 2022. I had 28 radiation with chemo treatments and 8 FOLFOX treatments finishing April 14,2023. I have not had surgery and am doing Watch and wait. My scans showed me to be cancer free.
I am experiencing some good things as a result of my treatment. Number one I am cancer free. I have an enlarged prostate so before treatment I would be up 4 to 5 times per night. Now I get up once. I wear a support hose for varicose veins in my left leg . They have disappeared. Before treatment I had osteoarthritis in my fingers .Now it is mostly gone.
Now for the not so good side effects. My GI system is still a mess, sensitive mouth, no appetite, nuclear farts, excess burping, sore anus and rectum and frequent and unpredictable bowel movements. I have sexual issues like ED ,painful ejaculation, hot flashes and lower desire. I have had 2 bouts of hair loss. I lost all the hair in an 8 inch diameter circle where I had radiation. Some of it is coming back now. During FOLFOX My hair started to thin all over . The worst for me was loosing all my nose hairs but happily they are now back. I still have neuropathy in my fingers and feet that is slowly getting better. My CAT scan showed that I had blood clots in my lungs from cancer or chemo. I am on blood thinners to clear them. I have been seeing a psychologist to help me with the mental stress of cancer, its treatment and side effects.
Thank Jelena for sharing your experiences. I have found it to be helpful in navigating my own case.
I have a result of my Cea test and shows 3.90ng/ml, is this cancer?
Talk to your doctor, but typically a number under 5 in a non-smoker is normal.
@@SurvivorJelena I'm non smoker and my cea test is 3.90, how about you what is your cea result when first diagnost?
@@rcjs3488 I was diagnosed with the same cancer. My CEA level where always low( 1.2 when it was discovered). CEA alone is not a good indicator that you have cancer. You need more testing
Did you do Kegel exercise to improve the control of sphincter muscle?..if not how did you manage...
I did some exercises, but not a ton. My muscle must have just remembered how to work. It did work some when I had my ileostomy because when I had mucus occasionally I would be able to hold it in until I got to a toilet.