Yes, it would be great to hear you discuss more of all the topics you mention. Having scleroderma I find it a struggle to balance the opposites of trying to stay positive while at the same time staying realistic. For example, wanting to discuss pain and fatigue but being aware that cognitively it might be better to discuss things I can do. Relationships and work are definitely adversely affected but again it seems better to stay 'positive', but is that always honest? I don't know. It would be great to hear your views on how to balance staying positive while being truthful about the changes these types of disease bring about.
It's important to honor your feelings. It's a jugging act for sure. There are ways to manage what you can and the first thing is to be honest and talk about it with people you come into contact with regularly, like co-workers.
Yes, it would be great to hear you discuss more of all the topics you mention. Having scleroderma I find it a struggle to balance the opposites of trying to stay positive while at the same time staying realistic. For example, wanting to discuss pain and fatigue but being aware that cognitively it might be better to discuss things I can do. Relationships and work are definitely adversely affected but again it seems better to stay 'positive', but is that always honest? I don't know. It would be great to hear your views on how to balance staying positive while being truthful about the changes these types of disease bring about.
It's important to honor your feelings. It's a jugging act for sure. There are ways to manage what you can and the first thing is to be honest and talk about it with people you come into contact with regularly, like co-workers.