Відео

Hi Kim would love to connect are you on Instagram?

Hey just checking on you.

I have been taking it for years now don't like it but its truly effective

Is she still making videos? I hope she is doing well.

I'm on the same...

Do you have your dad at lease?

Hey I thought I loved your page just checking on you

Girl I know it's been a long time since you started this video. But I was just like you. I did research on the meds and it took me 3 days to even start on them because the side effects scared me. I began to do research and ran across your video. I was diagnosed with Dermatomyositis and Osteoarthritis. I'm being switched from Prednisone to this. The methotrexate didn't do well with me. I weaned myself off all meds by juicing and taking Dr. Sebi's herbs for 2 years right before the Pandemic. Then I got hit with COVID. After that I struggled again with Dermatomyositis and so much more. I was fine off meds until that crap hit. I wish I could get my willpower back to juice again and just get off all these meds. I also see that like myself you are young. I'm just concerned with being on all these meds and dealing with these sicknesses at this young age. I want my life back. You are beautiful by the way even with the medical changes. I know how you feel. You should start a support group.

I was just put on cellcept for lung involvement...

My 14 year old had a heart transplant and is on cellcept now

There is a great herbal man call Dr okougbo who can cure herpes virus problem and other deadly diseases with the use of natural herbal to cure Herpes virus problem. He is from Africa and he is a great doctor and he can also cure you as well if you are the problem And other deadly disease and here is is email address dr.okougboherbalhome1@gmail.com or Whatsapp +2349032690878 HEPATITIS BCURE, HIV/AIDS CURE,CANCER CURE ,HIGH BLOOD PRESSURE CURE,BAD BREATH CURE,HPV CURE, ALS CURE✅

There is a great herbal man call Dr okougbo who can cure herpes virus problem and other deadly diseases with the use of natural herbal to cure Herpes virus problem. He is from Africa and he is a great doctor and he can also cure you as well if you are the problem And other deadly disease and here is is email address dr.okougboherbalhome1@gmail.com or Whatsapp +2349032690878 HEPATITIS BCURE, HIV/AIDS CURE,CANCER CURE ,HIGH BLOOD PRESSURE CURE,BAD BREATH CURE,HPV CURE, ALS CURE

Your video has meant the world to me. I was just diagnosed and it is comforting to hear from someone that actually has it. I am white and there is not much peer support for us either. We are all in this together. Thanks again. Blessings and love to you

I have scleroderma, lupus, Reynolds, and mixed connective tissue disease NEC. So yeah, you can have all of these. As far as plaquenil...go see an eye doctor every 6 months for testing. Your rheum should let you know what you are deficient in but at least take a multivitamin. But I take folic acid of course, B12 complex, iron because of anemia, vitamin D of course. The vitamins help to avoid unnecessary pain....especially vitamin d.

the derm said i have it. that is all i have been to so far

Hi K. I was hoping to send you a private message but your address isn't listed. Please reach out to me at rainbowinbloom@gmail.com at your convenience. Thanks :)

Btw cute voice

Now there is a new normal the stupid masks

Yes, it would be great to hear you discuss more of all the topics you mention. Having scleroderma I find it a struggle to balance the opposites of trying to stay positive while at the same time staying realistic. For example, wanting to discuss pain and fatigue but being aware that cognitively it might be better to discuss things I can do. Relationships and work are definitely adversely affected but again it seems better to stay 'positive', but is that always honest? I don't know. It would be great to hear your views on how to balance staying positive while being truthful about the changes these types of disease bring about.

Yes, Chadwick Boseman’s passing was so devastating. He was truly a beautiful spirit. It seems as if we have been living in the twilight zone for the past six months. There is such sense of heaviness in our country.

❤❤❤❤❤❤

I just pray and try to go about might, and think positive!!!

Hey Girl!!!👋❤

I also wanted to ask you are what your feelings are about getting the flu shot and or the shot for the covid 19? I personally am not feeling confident with it...my guts are telling me not to but what are you all feeling?

It is good to have you back!!! I am glad that you are doing well.

Hey girl! It is so good to see you back on seriously LOL I have disseminated morphea and it has been very challenging! With this particular morphia not only do I have the plaques on my back the shininess on my thighs I also have big lumps on my butt thighs arms. I look like a Walking cottage cheese poster. Seriously WTF! I have had to file for disability with lawyers a little over a year ago and I am now just going to be talking to the judge in October. The job I had was a make up artist and of course my right side which includes my wrist is where it’s the hardest and most painful 😣 And let’s not even get into the ankles, pins and needles shooting pains girl what! So I have to try to convince a judge that I can’t stand eight hours a day and do make up on numerous women with my current situation which you already know LOL so I have also been keeping it positive through my spirituality meditations , being in nature and of course Music. I’m keeping a dream journal because that’s another passion of mine and trying not to focus on the negative. You and everybody else who is going through a similar diseases keep humor, positivity, music, and hope in your life. I’m sending everyone love and light and hope to see you soon. Your sister in craziness Lisa ❤️

You're so lucid. Thank you.

It's Ok!!! Good to see you!!

Typo: Good to see you!!!

Hey There!!!👋❤ Hood to see you!!!🤗

Thank you for the video. We are on very similar paths. I just took my first dose of Methotrexate today for RA. The injection form. I had a weird taste in my mouth and I feel a bit groggy but I’m ok for now. We will see what tomorrow brings. I am praying for no hair loss or mouth sores.🙏🏿

About to take the methotrexate Monday for rheumatoid arthritis, am already taking planqil. Was very nervous about methotrexate, but this pain of my RA And OA is really bad I can barely walk. Praying that this medicine work

Happy holidays warrior. On prednisolone for 2 years now. Down to 7.5 mg. I want off too. Too much weight.

I appreciate you so much

Thanks for all your advice and inspiration. I really need to clean up my diet and exercise! Have a wonderful holiday and new year !

Happy Holidays and Happy New Year!!! Keep pushing to get Better and stay Bless!!!❤

Hey!👋 The upper body range of motions is affected the most!!!

Happy Thanksgiving!!!!

Yaaay!!! Good for you!!!❤

Hey!👋

Has any one developed tinnitus ringing in the ears from this medication? I started using this 8 moths ago for RA. And start having ringing in my ears about 6 moths ago. I’m not sure if it’s the RA or the meds.

Happy birthday day 🎈🎁🎂🎉 I just saw one of your old videos when searching for scleroderma and I want to say stay strong hope you improve and go to remission for a very long time

Happy Birthday!!🎂🎂🎂 Keep doing what you doing! I had Scleroderma for 20 years!!! Keep pushing to get better!

The Prednisone help! The 5mg helps me!!!

Hey!!!🖐

What an excellent video. I have Lupus and I’m just about to start Methotrexate and you really answered all of my questions! Thank you.

I’ve had RA since a child and I’m currently on the max dose of Methotrexate. I also take mine on Friday night so that I have Saturday and Sunday to recover. It takes my weekends away which sucks but I will say after my 3rd month taking it I’ve noticed significant changes in my hands especially. Prior to taking this medication my hands and feet would be so swollen in the morning I couldn’t even grab my toothbrush. It still takes about 45minutes to get moving in the morning but my hands aren’t nearly as swollen as they usually are. I have experienced some significant hair loss which seems to be the only lasting side affect. Thanks for sharing !

You look like my mom when she was first diagnosed with scleroderma 16/17 years ago. It's nice to see someone talking about it because for her she felt alone because of how rear scleroderma is. I just want to say keep fighting, keep encouraging others and I hope other people with scleroderma find your videos and connect. We live in Trinidad so we may not have as many resources as u do readily available but she has tried to go more along the natural route. Anyway, stay healthy, stay strong and keep that beautiful, positive spirit.

I Just Started it 3 weeks ago I Take 0.6lm on the injections. I went to My RA Yesterday. She told me to take 1 full syringe full and Added another Chemo i take 2 pills RIGHT after the Methotrexate. How Much folic acid do you take? I'm on it for lupus and Vasculitis.

Wow girl, you have a very positive attitude so early on. My first year, well I had been tested for 3 years to find out what was wrong with me. Neurologist after Neurologist, each held a different diagnosis, except the Nurse and Physician Assistant, as well as my Ophthalmologist. I saw regularly for my diabetic and Glaucoma eyes, when my left eye hurt so bad I could stand it, and then partial blindness set in, she diagnosed it right away, and said find a Neurologist. Finally after some really crappy Neurologist's, I ended up in the ICU, unable to move my left side and straight away, 2 Neurologists diagnosed me with MS. They had my records transferred from the University and did their own mri and my brain was flashing like a Christmas tree. So, I was pretty depressed the first year. I'm on my 4th DMT and hopefully the last, Ocrevus, and it's awesome. I wish all MS Warriors could get it right away. It's like a miracle drug. Keep strong Warrior 💪💪🧡🧡🧡🧡🧡🧡🧡