Living with ALS 4/22/12

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  • Опубліковано 15 лис 2024

КОМЕНТАРІ • 47

  • @DJ-bj8ku
    @DJ-bj8ku 10 місяців тому +8

    To be robbed of life at the height of his powers is certainly cruel. The other tragedy is off-screen but felt just as much-his wife’s grief. He was a smart, dignified man. RIP.

  • @PeterPhinney-p8n
    @PeterPhinney-p8n 9 місяців тому +5

    What a terrific guy to share all this do openly. Thank you.

  • @wandalester8624
    @wandalester8624 4 місяці тому +2

    Kevin Strong!!! God knew every tear. Kevin's body is not hear, but his spirit is still inspiring!

  • @ihatesandybeaches
    @ihatesandybeaches 10 років тому +43

    when he cries it just tears at my heart strings RIP Kevin, God bless your soul

  • @burned_pancakes
    @burned_pancakes 5 років тому +28

    This series is heart wrenching. R.I.P. Kevin thank you for sharing such a personal story.

  • @takamex
    @takamex 7 місяців тому +3

    He contributed enormously as to what this cruel illness does to an otherwise healthy man. The pain comes from the thoughts of his family and the time they wont spent together. He did his best with valor. RIP

  • @mackster6198
    @mackster6198 Рік тому +4

    I will be praying for this good man.

  • @God.Almighty
    @God.Almighty 5 років тому +19

    every now and then over the years i think about this nice man and come for a visit. one thing i'd never noticed until now is how awesome his hair is for his age. at every visit i am closer to death than my last visit. there's no cheating death, the greatest equalizer. we're all headed to where this man went.

    • @killuminatikilla3235
      @killuminatikilla3235 2 роки тому +3

      For real brother ethier way we are going to die. Bless him

    • @robertwilliams5618
      @robertwilliams5618 Рік тому +2

      You still alive?

    • @God.Almighty
      @God.Almighty Рік тому +2

      yeah, still kicking and back to see kevin. weird how he just randomly pops into my mind.

    • @amberlynn8591
      @amberlynn8591 Місяць тому

      ​@@God.AlmightySame with me, sometimes Kevin will pop into my mind randomly and so I come here to see him😊

  • @Lexyvil
    @Lexyvil 9 років тому +26

    May you rest in peace Kevin. You fought hard as it went on and we'll keep your effort as an ambition for us to find the truth behind what's causing such a illness.

  • @naomideziel
    @naomideziel 3 роки тому +12

    You can see how much he loves his family by how he is hurting when he talks about them. Nothing more cruel than taking a healthy happy family man away from his family that he holds so dearly. I can't imagine his fear or being in his position, I don't know how I came across your channel but in a way im happy I did. I was absolutely gutted to hear that you passed. Wish I could have endured this for you. Rest peacefully, Kevin. I won't forget you.

  • @valeriegriner5644
    @valeriegriner5644 3 роки тому +8

    RIP, brave and beautiful soul.

  • @denisemontgomery5600
    @denisemontgomery5600 5 років тому +13

    I just want to reach out and comfort you but as I've just read other comments, you have already passed. What a brave soul you were. God bless🙏🏻🙏🏻🙏🏻🙏🏻❤️❤️❤️

  • @halgordonmdfacp3246
    @halgordonmdfacp3246 2 роки тому +15

    He was my BEST friend at USC .
    Fraternity brother, hell raiser with me. A physical specimen !
    OD went home on June 9th, 2013.
    He was 56 . I miss him every single day.

    • @parthianwarrior1901
      @parthianwarrior1901 7 місяців тому +1

      How come he had no grey hair at 56?

    • @amberlynn8591
      @amberlynn8591 Місяць тому +1

      ​@@parthianwarrior1901I know right?! But I will say that my dad is 65 and he just started getting a few gray hairs but you can barely tell. He has never dyed it or anything. That has always baffled me. On the other hand some people start going grey in their 30s🤷🏼‍♀️😊

    • @parthianwarrior1901
      @parthianwarrior1901 Місяць тому +1

      @@amberlynn8591 Wow he had some good hair genetics

    • @parthianwarrior1901
      @parthianwarrior1901 Місяць тому

      @@amberlynn8591 how he would feed himself?

  • @ajimenez1719ify
    @ajimenez1719ify 6 років тому +16

    My God, when he cries it makes me cry. I'm so sorry this happened. I'm sorry this disease even exists. I, myself, am dealing with something very similar and my doctors cant figure out what's the matter. It's very discouraging and scary.

  • @patrickpatel5527
    @patrickpatel5527 5 років тому +15

    You're a hero :'( ❤ I love you man :'(

  • @star.cat.
    @star.cat. Рік тому +2

    This man was so lovely. A very handsome chap too. Love to his family x

  • @karthikperavelli1735
    @karthikperavelli1735 3 роки тому +6

    13:01 Got me deep 😢😭....such a strong man he was...RIP

  • @rnt77
    @rnt77 3 роки тому +6

    There must be no worse hell on earth than ALS

  • @Lennonlashe
    @Lennonlashe 3 роки тому +3

    This video series he made hurts me to watch him suffer, terrifies me that this could potentially happen to me, but most importantly motivates me. Currently in medical school, going into my final year and this reminds me of why I went into the field of medicine. Not only to diagnose and treat, but to keep up the field of research and to never quit, or lose my sense of wonder. We owe it to people like Kevin to keep that sense of curiosity and to search for answers to bigger things that have yet to have an answer or solution. R.I.P Kevin....

  • @davidkellar6732
    @davidkellar6732 6 років тому +12

    He's a Good guy

    • @fourshore502
      @fourshore502 3 роки тому +4

      ALS seems to like to go for the nicest people. perhaps there is even some sort of causality there.

  • @ThomasArcher
    @ThomasArcher 3 роки тому +4

    Beautiful soul, RIP.

  • @skywatcher4420
    @skywatcher4420 6 років тому +13

    Hope Kevin is at peace ? ALS makes you more emotional at times with splutterings, laughing or crying. Bloody disease ! I hope they can find a cure.. I have had it for the last year with slightly different progression. Tick Tock down at a steady pace.
    I started with leg muscle twitchings 6/17 then not until 11/17 any physical signs. First R foot slowed then leg then legs and voice started slurring in Jan of 2018. Arms weak and struggle to wobble indoors now confined . It takes no prisoners for sure.
    Hey Ho TIANDB.. I am a Kevin also.. ( Is Autophagy the key ? ) Best luck all..

    • @doomnipple9846
      @doomnipple9846 2 роки тому

      You're a hero for fighting this disease. These videos and comments make me want to stop wasting my life and make a difference in the world

  • @Gandalf17
    @Gandalf17 10 років тому +12

    you have done such a great contribution by letting us know how the disease progress.
    I not sure but i think most ppl with ALS die during their sleep, not exactly a painful death. I think at that point you can also ask for morphine.

  • @seandoyle3091
    @seandoyle3091 10 років тому +9

    Heartbreaking!

  • @lisacrouch8726
    @lisacrouch8726 7 років тому +10

    all is understood now your in the loving arms of our Lord Jesus Christ, thank you for taking your precious time to make these videos , that is Love for others , its getting very rare ***** :)

  • @scotties.3414
    @scotties.3414 3 роки тому +2

    I wish I could hold you til you got better. 😔❤🙏

  • @merson812
    @merson812 4 роки тому +3

    RIP Kevin.

  • @WECOOK1969
    @WECOOK1969 3 роки тому +3

    🌹

  • @barbarajasek6019
    @barbarajasek6019 5 років тому +3

    Dzielny Czlowiek

  • @Sukijopa
    @Sukijopa Рік тому +4

    My brother got ALS in 2009. He got it from a TDaP.

    • @danacaro-herman3530
      @danacaro-herman3530 10 місяців тому

      @Sukijopa. Sadly the Covid vaccines are causing this as well

    • @danacaro-herman3530
      @danacaro-herman3530 5 місяців тому

      @Sukjopa. It seems this disease of Kevin's is being manifested aster the Covid shots.

  • @iamessence6268
    @iamessence6268 5 років тому +3

    RIP 😳

  • @carolsmith282
    @carolsmith282 5 років тому +1

    Try taking your gabapentin at night then you won’t be so tired during the day