@@solutionxero I’ve been doing research online and it says it does go away but it takes years. It said online the median time is 60 months which is 5 years. But it says medication and therapy can help recovery faster.
Ive had these symptoms and been fighting them since 2001. Just received a diagnosis december 2023. I'm a grown ass man of 65 and have shed lots of tears due to the decades of feeling like crap.
I held off from trying medication for a year and a half, and only did the talk therapy (CBT) plus physiotherapy with lots of exercise like Mountain Biking. It worked ok but the 3PD hit me real hard this Christmas while on vacation. I started taking Lexapro (my sister has used it for years and swears by it) on Dec 26th and it’s really starting to make a difference. It made me pretty sleepy for two weeks but I’m turning a corner. Anyone who is holding out on SSRI’s like I was, id encourage you to give them a try.
For those suffering from this, hang in there, it will eventually over time get better even if it seems overwhelming, fight! You can do it stay strong, let out tears if you have to but keep fighting, know there are people out there going through this just like you, and I know it's stressful cause people don't believe you at times, but stay strong ! #1 control the anxiety that comes with it
@@x818xclipsx7 wow im sorry for you … how did you get rid off Symtomes after 6years !! How is it even possible. Why second time … I really hope you will get off the symtomes very soon
@@x818xclipsx7 is there any reason why you have or had pppd? Ear infection or something diagnosed with? My I also ask what symtomes did you have swaying pulling 24/7? By its own wow amazing 🤩 thank you for sharing hope
I’ve spent years visiting doctors and have finally been given This diagnoses. I had to stop working, couldn’t go to school and have been denied disability. It’s a very overlooked illness and I wish more people(even doctors) were aware of this
@@Rose-gc8og hello I feel like I am on a rocking boat most of the time. If not that, it feels like airplane turbulence. As of Feb 2, 2023, I’ve had these symptoms for 5 months without relief. I’ve had the tests listed in this video and all were normal. But I sure as heck don’t feel normal! I’m participating in vestibular therapy 2 to 3 times a week for about 3 weeks and unfortunately it’s not helping. I’m doing my best to cope. If you’ve not already found it, a great UA-cam channel to learn more about dealing with PPPD is The Steady Coach with Dr. Yonit Arthur. Hope you get better soon!
@@mrsweedwalker I've been taking vitamin k, cq10, NAC,and ginko biloba every day, with al.ost no breaks and my symptoms have subsided, and even had a 5 week break from like 90 percent of the symptoms, i had an attack and felt like shit for like a week but i did recover faster, i was anticipating a month of hell.
I watched this a few months ago, found a therapist and started doing VRT. After just two weeks felt remarkably better. Now I had sudden vertigo and back to feeling off balance all the time. But it’s worse now, car travel makes me feel nauseous quickly and I never had that before.
Where were you all 14 years ago when my PPPD started. Why I just found out 2 days ago 😢 all the doctors you mentioned were sending me to a psychiatrist, they called me hypochondriac, they said thing like “I have bad news for you, you’re perfectly fine”, or “when you’ll get married, it will go away” etc. just mocking me. I lost best years of my life to this, went through 3 pregnancies which felt like hell due to this, my youngest is now 2, at least I can hope for recovery since I found the diagnosis. Thank you
I appreciate your explanation. For nearly two decades, I've stressed, struggled and suffered from symptoms after symptoms. I'd be diagnosed with "common" issues and problems, but I would continue experiencing debilitating symptoms even when following healthcare professionals remedies and treatments. I had to stop higher education and work. Disability denied me because I am young and look "normal". All my test results are "normal" as well. Finally, almost twenty years later, I saw a Neurologist and started seeing a Vestibular Rehabilitation Physical Therapist, and was diagnosed with PPPD last week. I do have a plethora of other diagnoses and symptoms that aren't PPPD related, but my inability to enjoy life, focus, function, be productive, etc. is all starting to make sense. I've been warned it will be a rough journey to retrain my systems, but I'm starting to find relief I'm not crazy.
I started Vestibular Rehabilitation Physical Therapy. I'm told multiple of my systems aren't functioning properly -- my body and brain are disconnected (I've told my healthcare providers this for decades!). I need to retrain my systems. Currently, I'm doing optokinetic and physical exercises.
@@poachtalaroc3913 For PPPD specifically? No prescriptions, thankfully. I started Vestibular Rehabilitation Physical Therapy. For the two decades prior to learning of this diagnosis, I was prescribed multiple (!!!) pain killers.
I sooo feel your struggle & frustration. I’m happy for you that you finally got a proper diagnosis & VRT! I was diagnosed w/Migraine & Central Vertigo 30 years ago. After a plethora of tests (all results normal), & trying dozens of meds, with tons of side effects, I gave up on neurologists, meds, & ALL doctors!I’ve lived with disabling dizziness & migraine for half my life & had to adjust the best I could. It makes for a small world & quality of life tho. At 59 yrs old, i just recently learned of PPPD. I have an appt w/a Neurotologist next month & can’t wait! I felt hope for the 1st time learning of PPPD as feel this is more a proper diagnosis along w/migraine. My 1st migraine w/aura is what brought the dizziness/PPPD on which i read is common. Can I ask you, do you have anxiety or migraines? And how was the Vestibular Rehab Therapy? Your post was a year ago but wondering how much VRT helped you & how are you doing now? How long did you get VRT? I’ll prob be told the same as you-that it may be rough to retrain the brain cos have had dizziness so long. But am willing to try it & hoping it doesn’t exacerbate the dizziness for too long.
Im so tired of this. I feel like my coworkers think im crazy or faking. I work in retail and i grab a cart everyday to act as a cane because i feel.dizzy. some days are worse than others. Then its something about the way the light bounces off the floor that makes it Even worse. Not as bad when walking on the carpet part. If i could describe how i feel, it feels like there is an ocean in my head with waves flowing. Even when im standing in one spot its hard
I'm really tired of it too and I've only been aware of what it is for a month or two. The dizziness thing just became a thing after I had an issue with 5G, had a lot of stress, and then had some really nutso panic attack thing where I thought I was for sure going to die. I have never had that before, EVER, That was triggered by traffic lights which put out 5G frequencies as well... BUT looking back I think this may have started almost a decade ago and I didn't know it. I had one of those acid trip looking migraines one night at least 7 years ago I may have had a second one a couple of days later, but I'm not sure... then at one point my legs just weren't working like they should and a lady that ran the local health food store said some of my symptoms sounded like Lyme's disease which her husband had... I've tried everything to get and stay healthy for a long time... At this point I'm just fucking over it. I feel better, and it's great for a bit and then something else happens. I literally don't know what the fuck is going to become of me if I can't sort this shit. I'm angry about it because I don't feel it's naturally occurring, but I'm trying to just move past that and deal... the other day I had to lay down on the floor at work and do these go damned exercises I found on yt just to walk to the bathroom without feeling like I was going to fall in the street. LIke I got fucking bills to pay. I don't have time for this. And it seems I have no choice. I've been checked and they say things are fine neurologically, and with my eyes. I've an extensive history of doctors not finding what is going on with me and honestly, I think the chiropractors help more. But there's still this bizarro feeling of disconnect between things and I don't like it at all. I 've always been able to get through everything and deal with anything and now I don't know what the fuck I'm gonna do. Calmly keep making myself push through hell I suppose. Pray harder for Armageddon prolly too. It horrible. I really think the tech is causing it.
@ECKOArt I hope one day we all will be healed from whatever this is. I just want to live a normal life again. I wanna go to Disney, shopping, beach without worrying about if I will feel like that. I was always used to just going everywhere alone on my own terms. Now it's not many places I will go without my son or boyfriend to hold on to just in case. The few days I don't feel this I'm extremely excited and stay out all day long
I’ve been suffering with this every single waking day for 3 years now and barely got this diagnosis. Every test negative, ent, neurology, no tumors, doctors think I’m crazy or making it up😅.I’m still suffering with it everyday but I feel closer to some relief now. Don’t give up hope.
I would try neurology again. My first neurologist was for my concussion and he couldn’t figure out why it took a year and a half for my concussion to go away. He graduated me July 2023 from concussion but did not know why I was still dizzy, I saw a second neurologist in the same building and as soon as I started describing my symptoms, HE KNEW IT WAS PPPD AUTOMATICALLY!
I have bilateral vestibular hypofunction. I have all these symptoms. The balance exercises with the foam mat corrected this balance problem. So funny I had a physical therapist suggest I might have pppd.
Hi @life I also have been diagnosed with vestibular hypofunction. Is PPPD something different, entirely? Are you all better now, if so what methods did you use, VRTs? Thanks.
Most physical therapist lack knowledge to diagnose vestibular disorders. I have a slight Oscillopsia and light sensitivity, and the physical therapist was suggesting PPPD. I went to test, VNG and vHIT and showed weakness in right ear.
I have had this. Everyone listen up. Do not worry. This disorder is not life threatening, it is only life disabling. Secondly, understand the fact that it is a problem of software. You guys are getting normal tests because tests usually check a patient's hardware and not software. Any software defect in the body is treated in similar way as we treat a bug in computer software. Our bodies work on feedback mechanisms. Now listen carefully, our body has 3 ways of maintaining balance that is eyes, ears and muscles. In this condition, any one of the above is off. To recalibrate the system, get your eyesight checked and wear proper glasses and build strong muscles by working out regularly. Do these two things and you'd be good in a few months. It is advicable to perform VRT exercises along. Disclaimer: It is a treatment I have devised based on my own research, please consult a specialised doctor before doing anything relating to the condition. God bless you all!
yep...6 different ENT doctors ,xrays ,MRI and apparently , nothing is wrong with me. recently i was walking with my dog and all of a sudden the road looked a lot closer and my legs looked shorter and it came with massive dizziness...thought i was going to pass out. this all started with an ear infection in 2020.
After 6 years of really weird symptoms and running through all the tests that he just overviewed, I think I have finally found my diagnosis in PPPD. Ever since my 2016 concussion, walking has never felt the same. Ever step I feel something moving that isn’t normal. Like my brain is bouncing or something. Just very odd and hard to explain. Everything always comes back normal. It has been so hard mentally and emotionally. It’s affected my work and personal life. Hopefully I can work toward a fix for this.
@@moturn8614 Hi , what is "vestibular rehab"? i have the same diagnosis. What kind of SSRI you taking. i tried citalopram it made me even more dizzy :(
@@ingaalaiarees8829 rehabilitates your vestibular system by different head and eye exercises. Right now I’m on sertraline but it’s not working out for me.
There are a lot of exercises out there for this disorder. I have been suffering from this problem for two years now, and trust me, it's going to get better. Just hang in there and keep on fighting.
@@fallblossom5 It will take a lot of time to see the benefits. However, changing your diet and lifestyle is the best way to treat it. Spend most of your time outside with your friends/family. I used to be shaking whenever I went to the mall, as my brain couldn't handle all the images in front of me. My legs got wobbly, and I was in the middle of asking myself why it had to happen to me? Just keep fighting it until you grasp living with it, and by the time it comes, you won't even notice that you have it. Good luck on your journey. PS: I'm still on my way to recovery, but I am 80% better now.
Thank you 🙏…. I have been struggling with what you’ve described for about three years. Doctors that I have seen just tell me I’m fine, that all the test results are fine. How do I go about telling this to a doctor? I don’t want to sound like a crazy lady that had to google her symptoms 😔
Hi! I’m a physician, and suffered 3pd myself for 3 years. I’ll tell you something you will barely find in literature: CHECK YOUR TRIGLYCERIDES LEVELS! I spent like a year going from one doctor to another, with no success on recovering. Took escitalopram for 6 months, which really helped (like an 80% of my dizziness) but as soon as I suspended the drug, 3pd came back like the first day, so i took another round of escitalopram for a year. But there was a moment when the drug was loosing its effect, so i had no choice than start researching about this illness all over again and found the light at the end of the tunnel, when I found my triglycerides levels at 550 mg/dl!! So I started 250 mg of fenofibrate, once a day for 6 months, quit beer, go jogging and tried to eat healthy, and guess what?? … yes, I fully RECOVERED!! So take my advice, go for a blood test, it could be the answer to everything :)
My MRI did come back normal besides the fact I couldn't feel my legs at all during it. With the dizziness I have been feeling fatigue numbness and weakness. I have cerebral palsy in my legs but this dizziness and things have made my balance worse and I feel like I'm falling more often though I have a tendency to try to catch myself
I believe I have this. Nothing has worked to help with it, until I started on AD meds. They stopped working so, I'm back to the start. No other meds helped me personally. No blood tests showed any reason for it happening. I do believe that it is linked to either anxiety or depression (I have both). I just wish I had an answer to fix it for good.
For about 3 years I have not felt normal. Ever since my senior year of high school (2019) I have felt off. That year I took two edibles both adding up to 150 mg of thc, and ever since then I have been feeling different. I had two stoney patch edibles and keep in mind this was the first time I was high in my life. I know you can’t directly overdose on THC or marijuana, but I don’t know if this excessive amount of THC especially for a beginner has something to do with the dizziness and vertigo I still feel today. The months and time that preceded this were some of the lowest points of my life as the dizziness and vertigo was unbearable as I was struggling both in school and while participating in basic activities I love such as working out and playing soccer. I could barely get any sleep as I would feel as if I was constantly rocking when laying down. Whether I was standing up, sitting down, or running I would constantly feel as if I was floating and as if the room and other things around me were constantly moving. In addition, I would have constant headaches and my head would feel like its spinning along with a constant beating heartbeat while I ran and was active in any sort of way. During this time period I had countless visits to the neurologist, ENT, and had done scans in the beginning and nothing unusual had ever seem to show up. Nothing unusual ever came up based off the results and I felt as if there had to be something wrong. Fast forward a year later (2020-2022), my past ENT doctor diagnosed me with vestibular migraines and I took medications like topiramate and other migraine medications. However, none of these medications had produced any significant improvements. However since the start of this all, I have seen some natural improvement as the beginning of this could be described as constant vertigo and dizziness throughout the day. Currently, I am doing better with my dizziness and vertigo, however, it still presents itself often. I play soccer at a competitive level and it has made participating in the sport a bit harder than it was before all of this. For example, when I play and run I begin to feel dizzy, light headed, and my brain feels like it’s bouncing with every step I take, especially when I’m running. I don’t know if this is PPPD or something else. Some mornings my neck even cracks a lot when I look up and I can hear my ears ringing when I flex my jaw. When I flex my jaw in the morning I can also feel it crack in my ears. This is also in addition to cracks I feel in the back of my neck when I move it in the morning. Throughout the day however these problems with my neck seem to go away, but the dizziness and vertigo is always present when I am either working out or playing soccer. Sometimes I do feel weird when I move my head up and down or side to side. I wonder if this event caused PPPD and because of this my brain still feels as if something is wrong and is trying to fix itself, hence why the dizziness and imbalance is present. If any would could help in any way by giving recommendations or advice it would be much appreciated! I am currently taking Neuratec for my dizziness but nothing has seemed to change or help.
Wow same here dude. For me it was 2021 I took a gummy and drank a beer and ever since then I have never felt the same. Although it was a CBD gummy which I’m starting to think it was laced or something. I’ve smoked thc that whole year so I’ve been really high already. But for some reason that day when I ate 1 gummy and 1 beer I felt so high. It was insane i started to panic I had a small panic attack and felt absolutely terrible. I feel like the edible had something to do with it.
MY ENT misdx me. I told him that it felt like the room is spinning. I usually wake up with it and as I walk it gets better. I told him this was not me. If I turn my head it gets worse, if Im standing it gets worse. The testing they did was aweful and they mixed my chart up because they said that I had a fall in 2009. I guess I need a 2nd opinion
Yes I would like to know that too, I have suffered vertigo for nearly 30 years, all tests done were negative but I was told it was basilar miagrains but since my miagrains don't last continuously I can't see how my vertigo can be caused by them
Love your videos. PPPD can often be triggered by an insult to the vestibular system and seems to be a maladaptation involving over-reliance on visual stimulae for balance. It is not uncommon that there IS evidence of vestibular dysfunction which likely served as the "trigger", however it is not a prerequisite for the disorder. Unfortunately this creates confusion as the findings tend to be over-emphasized but really do not explain ongoing PPPD related symptoms.
@@AJ88874 They don't know yet. It is a relatively new diagnoses. I have read papers that have stated vestibular training, lose dose SSRIs and Cognitive Behavioral Therapy.
@@AJ88874 The most effective treatment is VRT alongside a lot of nervous system regulation techniques such as parasympathetic breathing, somatic tracking and resolving emotional conflicts to get the brain out of threat response
Mine started in 1982. I believe I have MDDS but I don’t really understand the difference between the two. MdDS. But my tests were not normal and my right ear was the affected one or however they say it. So I don’t know maybe I have both. I know that I have all the symptoms besides pulling to the left and feeling suddenly like Feeling I am suddenly thrown across the room and like the ground is moving under my feet and all sorts of things since 1982
Bang on. But explain to me why I have symptoms walking through a store or parking lot and driving a car, but not when I ride my bicycle or motorcycle. Also, conversations trigger the symptoms.
I’ve been to every single dr including one at University of Md and nobody has diagnosed me. I’m coming up to a year now. I spent so much money trying to get help. It’s so frustrating. I see these drs on UA-cam who seem to have answers yet in real life there any in my area.
I have had this for years.I was recently diagnosed with IIH. Although some of my symptoms have gotten better.I still can't drive. Therapy hasnt helped.so frustrating
Yes the supermarket did it to me today. It's so unpredictable, comes and goes in waves. My doctor said it's postural and mechanical with me because I have cervical instability with pain in the neck and a slight headache at the base of my skull most days. It feels better when I'm sitting and then the sciatica for an added bonus kicks in!
@@michaels999okay that's good to know. My doctor gave me a script for Endep but I tend to be allergic to a lot of meds and haven't filled it yet. I also have gut issues, maybe IBS and feel too sick and light-headed to go anywhere. It feels never ending lately
I thought this was what I had until you said it's triggered by what I'm currently seeing. But mine is not triggered by what I'm seeing. I could be sitting a computer doimg work and then BOOM!
Same here, seems to come & go but I can't work out what's causing it. I can be sleeping & wake at 3am feeling about to pass out & nausea. Sometimes lasts only few mins & sometimes longer. Usually mild nausea & lightheaded but bad attack can feel like about to pass out. Waiting for blood results but I assume will be negative if I have this condition. Nightmare
@@petepete4402any update on your condition? I’m still trying to figure out mine too it just started 2 months ago. Thanks. I thought I might have this PPPD but I can drive ok no issue at all. But i do struggle in a grocery store they called it “supermarket syndrome”
Once I had BPPV attack and ent doctor conducted epley manoeuvre and after that I am suffering from PPPD, a neurootologist conducted test and it was all normal, they told me to go to a psychiatrist
I had a major brain stem stroke knocked me off balance, can't. Hear out of right ear either eye is seeing double to rightn as welll as face on right is stuck
I'm just seeing this today and I can relate. I have this for 26 years and excited for the first time that what I have has a name. What are the remedies????
@Susan P I’m the same as you. I’m 48. I think I’ve had this condition since I was in elementary school/middle school. I had tests done when I was younger, but no cause could be found for my fainting spells and dizziness/vertigo. When I’m on the BART or MUNI platform, I have to close my eyes or look away/look down when the trains are moving. Seeing the fast motion of the trains would make me feel dizzy, I’d lose my balance. I also have trouble walking down stairs. I always have to hold on to the railings and look down on the ground as I take the steps. Even when I’m holding on, sometimes my brain seems to glitch and I might step down wrong and miss a step. I can see the steps that are left, but my brain gets confused, like it doesn’t know where I’m supposed to step down. I envy the people who can walk down stairs, while looking straight ahead. They obviously do not have balance and perception issues.
This started in 2001 and never left. Still a struggle, it very hard when you have children and work and husband, you can't always perform your roles and many think you are bad and not religiable and lazy or selfish.
@@sepehrfarahzadi5808 the best treatment to date for me , with pppd, is seeing an occipital chiropractor who adjusts my atlas (c1), c2 and c5 every 8 weeks. Results are immediate but don't last longer than 8 weeks for me.
I’ve been out in public and felt like I was in a Hitchcock movie and I would stick my thumb out and focus on my finger nail and that sometimes that helps… god I hate that feeling of feeling my focus and balance is off..
I was just diagnosed with VM and PPPD. The triggers are motion (passenger seat), altitude and pressure. I am so sensitive that the nausea and vomiting quicks in and it’s hours of misery and trying to recover. Anyone else have it this bad?
Hoping to connect face-to-face with individuals currently suffering from this condition and explore potential strategies and solutions. Please respond if you are a resident of Kolkata.
Omg I've been dealing with this for months and I've been told it's everything from anxiety to menieres desease. Im litterally losing my mind from this... Idk what else to do. I'm taking ssri for the panic but I can't find a doc who understands...
Mine did start a couple months after a severe panic attack, haven’t been right since and the anxiety is absolutely horrible, which in turn makes the dizziness 💯 times worse!!😫
Do you guys feel the symptoms even when you're asleep? This is terrible. I've had all of these tests done, with negative results! This is unbelievably horrible!
I have dizziness but not like the vertigo type where the world is spinning, this dizziness dont go away, it sucks because I feel this 24/7, can't even do usual routine because I'm always in bed, when I walk I feel like falling to the side or to the front, my eyes can't last long looking at a certain place or direction I have to close it. Can't go to a specialist because I don't have money and can't go to work because of my condition
Thank you so much for this explanation. These are my symptoms exactly. I was diagnosed with several vestibular conditions (all tests-the ones you listed and probably a few others-were negative) before the final one of Meniere's Disease, but I don't have the classic "drops" that are a feature of MD. So now what? What does a person with PPPD do? Rehab?
I cant handle cars moving like when sitting in my car at the traffic lights and cars travelling fast through traffic lights make me dizzy. I feel like im on a boat when I am sitting. I feel like im going to fall over when i walk. Im pretty sure i have this
@@Rose-gc8og I did get better but it comes back from time to time when im anxious or stressed. I have had the floor feels like its moving a long time ago
@@AL-ru3nk I’m happy to hear that. May I know what did help you to go away ? How long did you have the floor moving symptom? Really appreciate your answer 🙏🏻🙏🏻🙏🏻
@@Rose-gc8og It just got better on its own. I did try some vestibular exercises from a different youtube girl but not long enough for it to have fixed it. I had the floor moving symptom when i was in high school and it lasted for a a few months i think im not sure it was so long ago. Have you had your ears and neck checked out
@@AL-ru3nk so you didn’t have pppd right? For how long you were dizzy? Yes I’ve been diagnosed with vestibular migraine and pppd. But this symptom is so annoying
I have this. But I also think I have lightheadedness. Is that different? Can they coexist together? I have anxiety and high blood pressure too. They all seem to feed on each other
I have cerebral palsy and been recently diagnosed with major depression due to my history. Now dealing with this with numbness and weakness and increased vision and balance issues that are already affected by cp
Ok well I went to a functional neurologist and was diagnosed with 3PD. I have a nystagmus and was given exercises to work the cerebellum. I have improved however it is not gone completely. This may have happened after a bout of bppv. I am just questioning the video because he states there is no nystagmus. I went through all labs and even an mri. Which as he states all came back normal
I've been having severe dizziness for the past 3 years, with rapid heart rate, anxiety, and panic attacks . My dizziness relates more to when I have severe back pains and neck pain. I've done all in the books and my while spine is narrow so meaning no space for the disc. What can be done? I'm tired of living like this.
Covid Booster did this to me. I've had it for 5 months. Seen doctors and they come up with no answers. Everything he said on the video I've been through. When suggesting that the covid booster created this for me, the doctors say NOTHING... why ? Does this ever go away?
I have the exact symptoms for last one year, sometimes it’s less severe but recently I was doing some eye exercise looking at a pencils tip and moving it closer Now pppd symptoms are severe but what do I do to fix this damn thing, I don’t feel normal I was in gym this morning and damn I had to come back
In the same boat as all of you. So many tests done and of course negative. Told me i had somatic symptoms. Put on Effexor but now not sure if its working anymore. Only thing i got dxd for was anxiety which can be a part of it. Going to see my neurologist. Do any of you get any other symptoms?
I went to two doctors & they said I have inner ear fluid & I have an appointment for an ENT but I’ve been feeling off balanced for 3 to 4 months . Do you guys think it’s just the fluid that’s causing the off balanced feeling or is it this ?
Not sure if I have this maybe someone can help, been dealing with this for 5 years now I feel dizzy every day especially at work the florescent lights really set me off I have trouble turning corners when I walk and when I stand still it's when it really attacks me walking is more manageable I also feel alot of head pressure. Was prescribed Zoloft and was manageable for a bit I guess my body got used to it and now it's back worse than ever I get like hot flashes every time I feel like I'm gonna faint. I don't know what to do anymore
I tried vestibular exercises intensively and had to stop after a week cause they made me feel very ill with severe head pressure specially behind one eye, confused, irritable etc. Not sure if other PPPD sufferers experience this?
@Lee Nisan ayından itibaren gözlerim ışığa duyarlı hale geldi ve hareketli nesneleri takip ederken başım dönüyor ve çok gergin hissediyorum.Sende bu semptomlar var mı ?
I wonder if anyone else has tried FL41 lenses? I just did and it felt so nice the first couple of days that I was able to relax my long tensed up stomach but perhaps I relaxed too much too quickly I actually had a moment of what felt like a vertigo onset while I was looking at the computer screen with the FL41. So I am still experimenting and would appreciate hearing others’ experience, thanks!
I have this even when I am sititng down doing nothing. No break in 4 months. Heavy headed, floaty feeling. Vestibular tests, MRI and labs are negative. So is this a constant thing or brought on only by watching motion or walking down grocery isles?
So I’m not sure what I have then. In your video you claimed patients with PPPD get triggered by their environment? My issue is I feel it randomly just feels like the floor is moving up and down. I feel drunk or sleepy all the time. But the floor sensation moving up and down comes and goes. So it’s not a constant thing. I went to an ENT, and they did audio test, caloric test and said my left ear is weaker than my right. That’s all they know. I have an MRI scheduled a month from now, but could I have PPPD? Like I mentioned above my only symptoms are feeling like feeling a little buzzed /sleepy, and every now and then I feel like the floor moves up and down. This floor sensation comes randomly, sometimes it’s just once a week sometimes 2 times a week, or I feel it every two weeks. But the drunk/sleepy feeling I feel It daily.
My dear brothers and sisters, my experience with this disease was at the beginning of Corona. The symptoms were dizziness, imbalance in walking, and anxiety at times. After researching this topic and reviewing doctors from all specialties, I came to the conclusion that masturbation and watching pornographic films were the cause. After thinking, I came to this conclusion. The treatment, the Islamic religion, forbids this thing. The Islamic religion is a great religion that has a cure for everything. The treatment was to stop masturbating for a month, and the symptoms would gradually go away
Thank you for this explanation. I've had this for almost a year now. I've been seeing doctor after doctor after doctor. How do I get them to come up with PPPD? Is there a cure or anything to minimize the symptoms. Thanks!
@@Rose-gc8og that's the feeling I get like walking on a boat! Went away for a long time but then it came back when I was playing cards. Looking down and moving my head from side-to-side maybe triggered it. Hanging in there hoping that playing golf will fix it up
@@Rose-gc8og for about 15 years. Betahistine helps a bit. It seems to get me about this time of year in March because I haven't been active enough maybe. My mom has caused me a lot of stress lately that's probably part of it. She's a 93 years old spoiled little brat
I truly thought it was my tooth causing all these issues and the fluorescent light. I have been monitoring myself for quite some time with this it's been about 3 weeks now that this has been going on very strange I never had issues like this before... Do ear infections have anything to do with this?
usualy creating some routine of physical exercises in the morning and before bed will helps to re-learn balance and it very efficent , also acknowledge to your self that it a condition that you can control helps to a quicker recovery since it also a anxiety associated issue. Improve your life with more positivity. Hitting the gym and some dance sessions at home helps me alot, also some visual repetition in low light exercises (like some disco light in you room) can contribute to recovery making pauses if your feeling tired or dizzy. Yet i cant still aim for the cause that sometimes it coming back . Mostly it about brain relearning signals. .
This guy is on the money about everything being negative, the Neuro thought it could be vestibular mirgaines but the medicine he gave me didn't help either
Is that the case for you? I had a VNG and ENG which showed signs of a central vestibular functional issue. But the doctor said its also a component of PPPD. Eventually central issues have been ruled out with additional tests, so the doctor felt safe with PPPD as diagnosis
Hey, I have the problem of movement of things which we feel in vertigo but it is not vertigo I feel sensation in my head then objects in front of me started moving horizontally like vertigo is happening then it again started to clam down I feel this highly whenever I consume/eat anything I am facing this past 3 years How can this problem be solved?
@Mira Martinez 4 me also same issues my head is swaying inside. 4 u also inside head is swaying,?.and 4 u all the time u have or same time only. Better or same
Can anyone please tell me if ear plugs reduce their symptoms. Within 10 mins neck pain reduced, dizziness reduced. Pls reply and let me know if this works for you too. Thanks 🙏
Hi -I suffer from PPPD and vertigo. Has anyone had success with mindfulness, CBT and vestibular therapy? I’m on able to take any kind of medication. Thanks!
Yes it does. You will feel pushing and pulling, swaying and rocking sensations. I have PPPD and all scan showed normal. There is no treatment for this but just life style changes.
@@shwarnaaluthayashankar6911 Actually, new medical literature as recent as 2020, suggests that a combination of VRT (specifically for PPPD), antidepressants (SSRI or SNRI, if SSRI’s don’t work) and CBT (cognitive-behavioural therapy) is recommended for the treatment of PPPD. This combination treatment leads to good outcomes in the majority of patients, 60-70% or more (especially if treated for at-least a year to prevent relapse).
I've had this since 1999. It sucks...I'm only cleaning houses right now because my brain functioning has decreased. I'm applying for Disability. Has anyone else gotten on Disability because of this?
I’m a grown ass man and I teared up hearing someone describe my symptoms perfectly for the first time.
just got this diagnosis today and god damn it is nice to know, but other than medication when will it go away!? ive had it since september
@@solutionxero how are you now
@@solutionxero I’ve been doing research online and it says it does go away but it takes years. It said online the median time is 60 months which is 5 years. But it says medication and therapy can help recovery faster.
Ive had these symptoms and been fighting them since 2001. Just received a diagnosis december 2023. I'm a grown ass man of 65 and have shed lots of tears due to the decades of feeling like crap.
I held off from trying medication for a year and a half, and only did the talk therapy (CBT) plus physiotherapy with lots of exercise like Mountain Biking. It worked ok but the 3PD hit me real hard this Christmas while on vacation. I started taking Lexapro (my sister has used it for years and swears by it) on Dec 26th and it’s really starting to make a difference. It made me pretty sleepy for two weeks but I’m turning a corner. Anyone who is holding out on SSRI’s like I was, id encourage you to give them a try.
For those suffering from this, hang in there, it will eventually over time get better even if it seems overwhelming, fight! You can do it stay strong, let out tears if you have to but keep fighting, know there are people out there going through this just like you, and I know it's stressful cause people don't believe you at times, but stay strong ! #1 control the anxiety that comes with it
Are you back to normal ? How long did you struggle with this
@@leviackermann188 this is the second time , first time I had it for around 6 years, it last a really long time, stress makes it worse though
@@x818xclipsx7 wow im sorry for you … how did you get rid off Symtomes after 6years !! How is it even possible.
Why second time … I really hope you will get off the symtomes very soon
@@leviackermann188 thanks, just went away on its own, really stressful that it came back but I've learn to just fight
@@x818xclipsx7 is there any reason why you have or had pppd? Ear infection or something diagnosed with? My I also ask what symtomes did you have swaying pulling 24/7? By its own wow amazing 🤩 thank you for sharing hope
I’ve spent years visiting doctors and have finally been given This diagnoses. I had to stop working, couldn’t go to school and have been denied disability. It’s a very overlooked illness and I wish more people(even doctors) were aware of this
I got the 👏
Hi, I have pppd , May I ask did you have the feeling of walking on a mattress or boat? If yes , has it gone away ? Really appreciate your answer
@@Rose-gc8og hello I feel like I am on a rocking boat most of the time. If not that, it feels like airplane turbulence. As of Feb 2, 2023, I’ve had these symptoms for 5 months without relief. I’ve had the tests listed in this video and all were normal. But I sure as heck don’t feel normal! I’m participating in vestibular therapy 2 to 3 times a week for about 3 weeks and unfortunately it’s not helping. I’m doing my best to cope. If you’ve not already found it, a great UA-cam channel to learn more about dealing with PPPD is The Steady Coach with Dr. Yonit Arthur. Hope you get better soon!
@@mrsweedwalker I've been taking vitamin k, cq10, NAC,and ginko biloba every day, with al.ost no breaks and my symptoms have subsided, and even had a 5 week break from like 90 percent of the symptoms, i had an attack and felt like shit for like a week but i did recover faster, i was anticipating a month of hell.
@@gvillarreal79 Wow! That’s great news! Thanks for sharing your regime. So glad you are enjoying some improvement from your efforts.
The steady coach is healing ppl
Wish this good doc lived near me, he’s incredibly clear and easy to understand.
I watched this a few months ago, found a therapist and started doing VRT. After just two weeks felt remarkably better. Now I had sudden vertigo and back to feeling off balance all the time. But it’s worse now, car travel makes me feel nauseous quickly and I never had that before.
Please also treatments for PPPD! 🙏
You are describing early stages. This changes in time and for some like me better with motion
Where were you all 14 years ago when my PPPD started. Why I just found out 2 days ago 😢 all the doctors you mentioned were sending me to a psychiatrist, they called me hypochondriac, they said thing like “I have bad news for you, you’re perfectly fine”, or “when you’ll get married, it will go away” etc. just mocking me. I lost best years of my life to this, went through 3 pregnancies which felt like hell due to this, my youngest is now 2, at least I can hope for recovery since I found the diagnosis. Thank you
All doctors across these specialities should see this video!!!!!
Does anyone feel like an elevator drop sensation in the head when they move their eyes sometimes?
Yep
@@sammcmahon5890 have you had any tests done?
@@nat9844 an mri and some balance tests all come back fine, currently on a diet for vestibular migraine
Yes 😔
@@Cherry-lm9rz it gets better:)
I appreciate your explanation. For nearly two decades, I've stressed, struggled and suffered from symptoms after symptoms. I'd be diagnosed with "common" issues and problems, but I would continue experiencing debilitating symptoms even when following healthcare professionals remedies and treatments. I had to stop higher education and work. Disability denied me because I am young and look "normal". All my test results are "normal" as well. Finally, almost twenty years later, I saw a Neurologist and started seeing a Vestibular Rehabilitation Physical Therapist, and was diagnosed with PPPD last week. I do have a plethora of other diagnoses and symptoms that aren't PPPD related, but my inability to enjoy life, focus, function, be productive, etc. is all starting to make sense. I've been warned it will be a rough journey to retrain my systems, but I'm starting to find relief I'm not crazy.
What meds did the doctor prescribe you?
What treatment did u do
I started Vestibular Rehabilitation Physical Therapy. I'm told multiple of my systems aren't functioning properly -- my body and brain are disconnected (I've told my healthcare providers this for decades!). I need to retrain my systems. Currently, I'm doing optokinetic and physical exercises.
@@poachtalaroc3913 For PPPD specifically? No prescriptions, thankfully. I started Vestibular Rehabilitation Physical Therapy. For the two decades prior to learning of this diagnosis, I was prescribed multiple (!!!) pain killers.
I sooo feel your struggle & frustration. I’m happy for you that you finally got a proper diagnosis & VRT! I was diagnosed w/Migraine & Central Vertigo 30 years ago. After a plethora of tests (all results normal), & trying dozens of meds, with tons of side effects, I gave up on neurologists, meds, & ALL doctors!I’ve lived with disabling dizziness & migraine for half my life & had to adjust the best I could. It makes for a small world & quality of life tho.
At 59 yrs old, i just recently learned of PPPD. I have an appt w/a Neurotologist next month & can’t wait! I felt hope for the 1st time learning of PPPD as feel this is more a proper diagnosis along w/migraine. My 1st migraine w/aura is what brought the dizziness/PPPD on which i read is common.
Can I ask you, do you have anxiety or migraines? And how was the Vestibular Rehab Therapy? Your post was a year ago but wondering how much VRT helped you & how are you doing now? How long did you get VRT? I’ll prob be told the same as you-that it may be rough to retrain the brain cos have had dizziness so long. But am willing to try it & hoping it doesn’t exacerbate the dizziness for too long.
Im so tired of this. I feel like my coworkers think im crazy or faking. I work in retail and i grab a cart everyday to act as a cane because i feel.dizzy. some days are worse than others. Then its something about the way the light bounces off the floor that makes it Even worse. Not as bad when walking on the carpet part. If i could describe how i feel, it feels like there is an ocean in my head with waves flowing. Even when im standing in one spot its hard
I'm really tired of it too and I've only been aware of what it is for a month or two. The dizziness thing just became a thing after I had an issue with 5G, had a lot of stress, and then had some really nutso panic attack thing where I thought I was for sure going to die. I have never had that before, EVER, That was triggered by traffic lights which put out 5G frequencies as well...
BUT looking back I think this may have started almost a decade ago and I didn't know it. I had one of those acid trip looking migraines one night at least 7 years ago I may have had a second one a couple of days later, but I'm not sure... then at one point my legs just weren't working like they should and a lady that ran the local health food store said some of my symptoms sounded like Lyme's disease which her husband had...
I've tried everything to get and stay healthy for a long time... At this point I'm just fucking over it. I feel better, and it's great for a bit and then something else happens. I literally don't know what the fuck is going to become of me if I can't sort this shit. I'm angry about it because I don't feel it's naturally occurring, but I'm trying to just move past that and deal... the other day I had to lay down on the floor at work and do these go damned exercises I found on yt just to walk to the bathroom without feeling like I was going to fall in the street. LIke I got fucking bills to pay. I don't have time for this. And it seems I have no choice.
I've been checked and they say things are fine neurologically, and with my eyes. I've an extensive history of doctors not finding what is going on with me and honestly, I think the chiropractors help more. But there's still this bizarro feeling of disconnect between things and I don't like it at all. I 've always been able to get through everything and deal with anything and now I don't know what the fuck I'm gonna do. Calmly keep making myself push through hell I suppose. Pray harder for Armageddon prolly too. It horrible. I really think the tech is causing it.
@ECKOArt I hope one day we all will be healed from whatever this is. I just want to live a normal life again. I wanna go to Disney, shopping, beach without worrying about if I will feel like that. I was always used to just going everywhere alone on my own terms. Now it's not many places I will go without my son or boyfriend to hold on to just in case. The few days I don't feel this I'm extremely excited and stay out all day long
I feel you, bright lights, bright colors, busy patterns, throws me off, laying down doesn’t help, sometimes it feels worse,
@JonnyQ408 luckily I have got a new job in an office setting. Much better. But I still get dizzy sometimes
@@melani4111have it gone away
Anyone here also get derealization?
I’ve been suffering with this every single waking day for 3 years now and barely got this diagnosis. Every test negative, ent, neurology, no tumors, doctors think I’m crazy or making it up😅.I’m still suffering with it everyday but I feel closer to some relief now. Don’t give up hope.
I would try neurology again. My first neurologist was for my concussion and he couldn’t figure out why it took a year and a half for my concussion to go away. He graduated me July 2023 from concussion but did not know why I was still dizzy, I saw a second neurologist in the same building and as soon as I started describing my symptoms, HE KNEW IT WAS PPPD AUTOMATICALLY!
I have bilateral vestibular hypofunction. I have all these symptoms. The balance exercises with the foam mat corrected this balance problem. So funny I had a physical therapist suggest I might have pppd.
Hi @life
I also have been diagnosed with vestibular hypofunction.
Is PPPD something different, entirely?
Are you all better now, if so what methods did you use, VRTs?
Thanks.
Most physical therapist lack knowledge to diagnose vestibular disorders. I have a slight Oscillopsia and light sensitivity, and the physical therapist was suggesting PPPD. I went to test, VNG and vHIT and showed weakness in right ear.
What brand of form mat? Can you also share balance exercise videos? Thank you
Thank you Dr.Now I know what I have got.This is exactly what I'm feeling for more than a year now. I thought its for my BP meds but its not.
Hi, May I ask are you recovered?
Hi, May I ask are you recovered?
I have to really be super careful and hold on in the shower especially when I wash my hair as the tub gets super slippery. It's scarey.
Hi, I have pppd , May I ask did you have the feeling of walking on a mattress or boat? If yes , has it gone away ? Really appreciate your answer
Bright lights, narrow hallway, seems to make me feel dizzier
I remodeled my house and installed all LEDs so I'm wondering if the brighter lights are making symptoms worse! Thanks for sharing.
Very good explanation , suffering last 2 yrs hope it will heal someday. Thanks for the video Dr
Find your 'safe places'. Your calming routines. Where you can relax. From this base you can build your recovery.
I co-sign!!!! I have suffered for 4 years and finally found a neuro-optometric rehab doctor who put all this together for me. Getting treatment
Have you had any luck with it?
@@AJ88874 have yous had DPDR for four year
@@laurenbaldwin6068 what is DPDR?
@@laurenbaldwin6068 What does DPDR stands for?
@@tainosun7993 depersonalization derealization
I have had this. Everyone listen up. Do not worry. This disorder is not life threatening, it is only life disabling.
Secondly, understand the fact that it is a problem of software. You guys are getting normal tests because tests usually check a patient's hardware and not software.
Any software defect in the body is treated in similar way as we treat a bug in computer software.
Our bodies work on feedback mechanisms.
Now listen carefully, our body has 3 ways of maintaining balance that is eyes, ears and muscles.
In this condition, any one of the above is off. To recalibrate the system, get your eyesight checked and wear proper glasses and build strong muscles by working out regularly. Do these two things and you'd be good in a few months.
It is advicable to perform VRT exercises along.
Disclaimer: It is a treatment I have devised based on my own research, please consult a specialised doctor before doing anything relating to the condition.
God bless you all!
yep...6 different ENT doctors ,xrays ,MRI and apparently , nothing is wrong with me. recently i was walking with my dog and all of a sudden the road looked a lot closer and my legs looked shorter and it came with massive dizziness...thought i was going to pass out. this all started with an ear infection in 2020.
After 6 years of really weird symptoms and running through all the tests that he just overviewed, I think I have finally found my diagnosis in PPPD.
Ever since my 2016 concussion, walking has never felt the same. Ever step I feel something moving that isn’t normal. Like my brain is bouncing or something. Just very odd and hard to explain. Everything always comes back normal. It has been so hard mentally and emotionally. It’s affected my work and personal life. Hopefully I can work toward a fix for this.
Is that walking sensation better compared with years ago ? I feel I’m walking on a mattress or boat. Is it 24/7?
How's re you feeling now?
BRAVO HOMIE.. IVE HAD MINE SINCE 2017 THEN UNABLE TO WORK 2018.
I have finally found a diagnosis after 3 years.... thank you
Same here! OMG finally, I wish he talked about treatment and recovery period tho, he seems to know exactllly what’s going on
@@Ehab-yassin45 treatment includes SSRI’s to control anxiety, vestibular rehab, and CBT.
@@moturn8614 Hi , what is "vestibular rehab"? i have the same diagnosis. What kind of SSRI you taking. i tried citalopram it made me even more dizzy :(
@@ingaalaiarees8829 rehabilitates your vestibular system by different head and eye exercises. Right now I’m on sertraline but it’s not working out for me.
@@moturn8614 thank you for your reply. do exercises help you? i just have started them. seems like they do nothing to me at the moment :(
There are a lot of exercises out there for this disorder. I have been suffering from this problem for two years now, and trust me, it's going to get better. Just hang in there and keep on fighting.
Ty. Do you have any exercises You can tell us for those who don’t have insurance, please
Are you doing the exerices? I was then stopped. I guess I wanted instant gratification. Will have to start again. I am also starting Zoloft (SSRI).
@@fallblossom5 It will take a lot of time to see the benefits. However, changing your diet and lifestyle is the best way to treat it. Spend most of your time outside with your friends/family. I used to be shaking whenever I went to the mall, as my brain couldn't handle all the images in front of me. My legs got wobbly, and I was in the middle of asking myself why it had to happen to me? Just keep fighting it until you grasp living with it, and by the time it comes, you won't even notice that you have it. Good luck on your journey. PS: I'm still on my way to recovery, but I am 80% better now.
Thank you 🙏…. I have been struggling with what you’ve described for about three years. Doctors that I have seen just tell me I’m fine, that all the test results are fine. How do I go about telling this to a doctor? I don’t want to sound like a crazy lady that had to google her symptoms 😔
Hi. Do you have any other account on fb ir Instagram. We can discuss and find reason
Hi! I’m a physician, and suffered 3pd myself for 3 years. I’ll tell you something you will barely find in literature: CHECK YOUR TRIGLYCERIDES LEVELS!
I spent like a year going from one doctor to another, with no success on recovering. Took escitalopram for 6 months, which really helped (like an 80% of my dizziness) but as soon as I suspended the drug, 3pd came back like the first day, so i took another round of escitalopram for a year. But there was a moment when the drug was loosing its effect, so i had no choice than start researching about this illness all over again and found the light at the end of the tunnel, when I found my triglycerides levels at 550 mg/dl!! So I started 250 mg of fenofibrate, once a day for 6 months, quit beer, go jogging and tried to eat healthy, and guess what?? … yes, I fully RECOVERED!! So take my advice, go for a blood test, it could be the answer to everything :)
Brilliant - thank you.
My MRI did come back normal besides the fact I couldn't feel my legs at all during it. With the dizziness I have been feeling fatigue numbness and weakness. I have cerebral palsy in my legs but this dizziness and things have made my balance worse and I feel like I'm falling more often though I have a tendency to try to catch myself
How are u know bro i am having same symptoms from last 2 months
I believe I have this. Nothing has worked to help with it, until I started on AD meds. They stopped working so, I'm back to the start. No other meds helped me personally. No blood tests showed any reason for it happening. I do believe that it is linked to either anxiety or depression (I have both). I just wish I had an answer to fix it for good.
Large crowds don’t help. Never used to be an issue.
For about 3 years I have not felt normal. Ever since my senior year of high school (2019) I have felt off. That year I took two edibles both adding up to 150 mg of thc, and ever since then I have been feeling different. I had two stoney patch edibles and keep in mind this was the first time I was high in my life. I know you can’t directly overdose on THC or marijuana, but I don’t know if this excessive amount of THC especially for a beginner has something to do with the dizziness and vertigo I still feel today. The months and time that preceded this were some of the lowest points of my life as the dizziness and vertigo was unbearable as I was struggling both in school and while participating in basic activities I love such as working out and playing soccer. I could barely get any sleep as I would feel as if I was constantly rocking when laying down. Whether I was standing up, sitting down, or running I would constantly feel as if I was floating and as if the room and other things around me were constantly moving. In addition, I would have constant headaches and my head would feel like its spinning along with a constant beating heartbeat while I ran and was active in any sort of way. During this time period I had countless visits to the neurologist, ENT, and had done scans in the beginning and nothing unusual had ever seem to show up. Nothing unusual ever came up based off the results and I felt as if there had to be something wrong. Fast forward a year later (2020-2022), my past ENT doctor diagnosed me with vestibular migraines and I took medications like topiramate and other migraine medications. However, none of these medications had produced any significant improvements. However since the start of this all, I have seen some natural improvement as the beginning of this could be described as constant vertigo and dizziness throughout the day. Currently, I am doing better with my dizziness and vertigo, however, it still presents itself often. I play soccer at a competitive level and it has made participating in the sport a bit harder than it was before all of this. For example, when I play and run I begin to feel dizzy, light headed, and my brain feels like it’s bouncing with every step I take, especially when I’m running. I don’t know if this is PPPD or something else. Some mornings my neck even cracks a lot when I look up and I can hear my ears ringing when I flex my jaw. When I flex my jaw in the morning I can also feel it crack in my ears. This is also in addition to cracks I feel in the back of my neck when I move it in the morning. Throughout the day however these problems with my neck seem to go away, but the dizziness and vertigo is always present when I am either working out or playing soccer. Sometimes I do feel weird when I move my head up and down or side to side. I wonder if this event caused PPPD and because of this my brain still feels as if something is wrong and is trying to fix itself, hence why the dizziness and imbalance is present. If any would could help in any way by giving recommendations or advice it would be much appreciated! I am currently taking Neuratec for my dizziness but nothing has seemed to change or help.
Did u find any solution?
Wow same here dude. For me it was 2021 I took a gummy and drank a beer and ever since then I have never felt the same. Although it was a CBD gummy which I’m starting to think it was laced or something. I’ve smoked thc that whole year so I’ve been really high already. But for some reason that day when I ate 1 gummy and 1 beer I felt so high. It was insane i started to panic I had a small panic attack and felt absolutely terrible. I feel like the edible had something to do with it.
MY ENT misdx me. I told him that it felt like the room is spinning. I usually wake up with it and as I walk it gets better. I told him this was not me. If I turn my head it gets worse, if Im standing it gets worse. The testing they did was aweful and they mixed my chart up because they said that I had a fall in 2009. I guess I need a 2nd opinion
Hi doctor. Thanks for the explanations. Could you please clarify how to make sure if it’s pppd or vestibular migraines? Thanks!🙏
Yes I would like to know that too, I have suffered vertigo for nearly 30 years, all tests done were negative but I was told it was basilar
miagrains but since my miagrains don't last continuously I can't see how my vertigo can be caused by them
Love your videos. PPPD can often be triggered by an insult to the vestibular system and seems to be a maladaptation involving over-reliance on visual stimulae for balance. It is not uncommon that there IS evidence of vestibular dysfunction which likely served as the "trigger", however it is not a prerequisite for the disorder. Unfortunately this creates confusion as the findings tend to be over-emphasized but really do not explain ongoing PPPD related symptoms.
@@AJ88874 They don't know yet. It is a relatively new diagnoses. I have read papers that have stated vestibular training, lose dose SSRIs and Cognitive Behavioral Therapy.
@@Art-sg5bi Hi, what the name of SSRI you taking. I tried citalopram but it made me even dizzier :)
@@AJ88874 The most effective treatment is VRT alongside a lot of nervous system regulation techniques such as parasympathetic breathing, somatic tracking and resolving emotional conflicts to get the brain out of threat response
@@Megan_Jennifer did you have pppd? You got rid of it without ssri’s?
@@AJ88874 I haven’t fully recovered yet but yes! I got much better without meds
Mine started in 1982. I believe I have MDDS but I don’t really understand the difference between the two. MdDS. But my tests were not normal and my right ear was the affected one or however they say it. So I don’t know maybe I have both. I know that I have all the symptoms besides pulling to the left and feeling suddenly like Feeling I am suddenly thrown across the room and like the ground is moving under my feet and all sorts of things since 1982
Bang on. But explain to me why I have symptoms walking through a store or parking lot and driving a car, but not when I ride my bicycle or motorcycle.
Also, conversations trigger the symptoms.
Yea. It doesn’t happen in the beginning of the convo thought.
I ride my bicycle for therapy it’s very therapeutic , at a slow pace 11mph is my top speed when it’s cold out is the best.
Lights over stimulate your brain. Possibly. For me, it is mainly lights that come from my computer screen or phone screen.
I’ve been to every single dr including one at University of Md and nobody has diagnosed me. I’m coming up to a year now. I spent so much money trying to get help. It’s so frustrating. I see these drs on UA-cam who seem to have answers yet in real life there any in my area.
For to the VEDA website there is a option on there to find a vestibular focused doctor near you.
Try a Neurophysio!
Hi, May I ask are you recovered?
Hi, May I ask are you recovered?
@@rloz2694 Hi, May I ask are you recovered?
I am diagnosed with this, it sucks.
This is what I have !!
How how are you feeling lately?
We’re you diagnosed with pppd ?
I have had dizziness for almost more than 20 years now. Nobody could diagnose it. I am frustrated.
I have had this for years.I was recently diagnosed with IIH. Although some of my symptoms have gotten better.I still can't drive.
Therapy hasnt helped.so frustrating
Yes the supermarket did it to me today. It's so unpredictable, comes and goes in waves.
My doctor said it's postural and mechanical with me because I have cervical instability with pain in the neck and a slight headache at the base of my skull most days. It feels better when I'm sitting and then the sciatica for an added bonus kicks in!
Same thing neck problems occipital pain and sciatica the only thing that helps is lorazepam especially before going to the supermarket
@@michaels999okay that's good to know. My doctor gave me a script for Endep but I tend to be allergic to a lot of meds and haven't filled it yet.
I also have gut issues, maybe IBS and feel too sick and light-headed to go anywhere. It feels never ending lately
I thought this was what I had until you said it's triggered by what I'm currently seeing. But mine is not triggered by what I'm seeing. I could be sitting a computer doimg work and then BOOM!
It may be in your neck. type in (caring medical) on youtube.
Same here, seems to come & go but I can't work out what's causing it. I can be sleeping & wake at 3am feeling about to pass out & nausea. Sometimes lasts only few mins & sometimes longer. Usually mild nausea & lightheaded but bad attack can feel like about to pass out. Waiting for blood results but I assume will be negative if I have this condition. Nightmare
@@petepete4402any update on your condition? I’m still trying to figure out mine too it just started 2 months ago. Thanks. I thought I might have this PPPD but I can drive ok no issue at all. But i do struggle in a grocery store they called it “supermarket syndrome”
I have this and I’m not sure how it started? I think it started by being super anxious. I suffer from anxiety. I wish there was a cure. I need help!!!
Once I had BPPV attack and ent doctor conducted epley manoeuvre and after that I am suffering from PPPD, a neurootologist conducted test and it was all normal, they told me to go to a psychiatrist
Same with me it's all started with bppv
@@ninabdj6832 life has become a living hell, I am only 28 years old, I feel so hopeless.
@@sourishbhattacharyya1779 Same here. It all started with BPPV. Where are you from?
@@parmaliadas India and you ?
@@sourishbhattacharyya1779 Kolkata, India. Is there any way to connect with you on any other social media platform?
Had this as part of Functional Neurological Disorder for 2 years now but the PPPD is by far the worst symptom.
I had a major brain stem stroke knocked me off balance, can't. Hear out of right ear either eye is seeing double to rightn as welll as face on right is stuck
I'm just seeing this today and I can relate. I have this for 26 years and excited for the first time that what I have has a name. What are the remedies????
I have this since 2016
@Susan P I’m the same as you. I’m 48. I think I’ve had this condition since I was in elementary school/middle school. I had tests done when I was younger, but no cause could be found for my fainting spells and dizziness/vertigo. When I’m on the BART or MUNI platform, I have to close my eyes or look away/look down when the trains are moving. Seeing the fast motion of the trains would make me feel dizzy, I’d lose my balance. I also have trouble walking down stairs. I always have to hold on to the railings and look down on the ground as I take the steps. Even when I’m holding on, sometimes my brain seems to glitch and I might step down wrong and miss a step. I can see the steps that are left, but my brain gets confused, like it doesn’t know where I’m supposed to step down. I envy the people who can walk down stairs, while looking straight ahead. They obviously do not have balance and perception issues.
@@ZuhairJumaa Are you better now? Have you done VRT? if yes, what was the result?
This started in 2001 and never left. Still a struggle, it very hard when you have children and work and husband, you can't always perform your roles and many think you are bad and not religiable and lazy or selfish.
@@sepehrfarahzadi5808 the best treatment to date for me , with pppd, is seeing an occipital chiropractor who adjusts my atlas (c1), c2 and c5 every 8 weeks. Results are immediate but don't last longer than 8 weeks for me.
I’ve been out in public and felt like I was in a Hitchcock movie and I would stick my thumb out and focus on my finger nail and that sometimes that helps… god I hate that feeling of feeling my focus and balance is off..
I was just diagnosed with VM and PPPD. The triggers are motion (passenger seat), altitude and pressure. I am so sensitive that the nausea and vomiting quicks in and it’s hours of misery and trying to recover. Anyone else have it this bad?
What is the treatment
Thanks
Hoping to connect face-to-face with individuals currently suffering from this condition and explore potential strategies and solutions. Please respond if you are a resident of Kolkata.
Doctor pls research any breakthrough treatment for this most of them suffer for so long
Omg I've been dealing with this for months and I've been told it's everything from anxiety to menieres desease. Im litterally losing my mind from this... Idk what else to do. I'm taking ssri for the panic but I can't find a doc who understands...
Psychotherapy and vestibular rehab can help this. GPs are bloody rubbish aren't they, ENT or neurologist is your best bet.
@@watermelonineasterhay did u have DPDR if so has it gone were you've returned to normal
Lucy Houghton I’ve been to ent and they didn’t help me either everything is always negative
Mine did start a couple months after a severe panic attack, haven’t been right since and the anxiety is absolutely horrible, which in turn makes the dizziness 💯 times worse!!😫
@@tammybreuker7831 Tammy similar symptoms and onset causes for me... I feel your pain...
I had a major stroke knocked me off. The balance ear don't work other that I could deal much better
My menieres has morphed into this
do you have such a bad balance too? when I close my eyes and stand on one leg, it's really bad
Saaaame! I was told it was vértigo but that's dumb because I don't have the spinning sensation, just straight up loss of balance.
Yes i have same.. how are you now?
Do you guys feel the symptoms even when you're asleep? This is terrible. I've had all of these tests done, with negative results! This is unbelievably horrible!
Same for me.
Has anyone tried Buspirone? I read a google patent from a Russian doctor suggesting the use of Buspirone for PPPD
I have dizziness but not like the vertigo type where the world is spinning, this dizziness dont go away, it sucks because I feel this 24/7, can't even do usual routine because I'm always in bed, when I walk I feel like falling to the side or to the front, my eyes can't last long looking at a certain place or direction I have to close it. Can't go to a specialist because I don't have money and can't go to work because of my condition
How are you now or deal with it?
I am facing same problem
@@dharminderpathak4659how are you now?
Thank you so much for this explanation. These are my symptoms exactly. I was diagnosed with several vestibular conditions (all tests-the ones you listed and probably a few others-were negative) before the final one of Meniere's Disease, but I don't have the classic "drops" that are a feature of MD. So now what? What does a person with PPPD do? Rehab?
Hi, May I ask are you recovered?
@@Rose-gc8og Not really. I still have episodic vertigo and dizziness.
@@janetoliver7510 May I ask what is your underlying condition which led to pppd? Mine is vestibular migraine
@@janetoliver7510 May I ask what is your underlying condition which led to pppd? Mine is vestibular migraine
I cant handle cars moving like when sitting in my car at the traffic lights and cars travelling fast through traffic lights make me dizzy. I feel like im on a boat when I am sitting. I feel like im going to fall over when i walk. Im pretty sure i have this
Hi, May I ask do you feel better? Do you have the feeling of floor shifting under your feet when walking?
@@Rose-gc8og I did get better but it comes back from time to time when im anxious or stressed. I have had the floor feels like its moving a long time ago
@@AL-ru3nk I’m happy to hear that. May I know what did help you to go away ? How long did you have the floor moving symptom? Really appreciate your answer 🙏🏻🙏🏻🙏🏻
@@Rose-gc8og It just got better on its own. I did try some vestibular exercises from a different youtube girl but not long enough for it to have fixed it. I had the floor moving symptom when i was in high school and it lasted for a a few months i think im not sure it was so long ago. Have you had your ears and neck checked out
@@AL-ru3nk so you didn’t have pppd right? For how long you were dizzy? Yes I’ve been diagnosed with vestibular migraine and pppd. But this symptom is so annoying
What if VNG shows nystagmus and rhombergs is positive?
Thanks for this video any suggestions on remedies for this please
Hi, I have pppd , May I ask did you have the feeling of walking on a mattress or boat? If yes , has it gone away ? Really appreciate your answer
Hi Dr. Can you share with us, some treatments for PPPD?
Hi, I have pppd , May I ask did you have the feeling of walking on a mattress or boat? If yes , has it gone away ? Really appreciate your answer
I have this. But I also think I have lightheadedness. Is that different? Can they coexist together? I have anxiety and high blood pressure too. They all seem to feed on each other
It is pppd , try getting treatment
I have cerebral palsy and been recently diagnosed with major depression due to my history. Now dealing with this with numbness and weakness and increased vision and balance issues that are already affected by cp
Is there a secondary video on pppd? What is the treatment?
Ok well I went to a functional neurologist and was diagnosed with 3PD. I have a nystagmus and was given exercises to work the cerebellum. I have improved however it is not gone completely. This may have happened after a bout of bppv. I am just questioning the video because he states there is no nystagmus. I went through all labs and even an mri. Which as he states all came back normal
so is there a cure for this?
NO mention of it being partnered with VM and other vestibular issues?
I've been having severe dizziness for the past 3 years, with rapid heart rate, anxiety, and panic attacks . My dizziness relates more to when I have severe back pains and neck pain. I've done all in the books and my while spine is narrow so meaning no space for the disc. What can be done? I'm tired of living like this.
has anyone else developed these symptoms after having COVID?
I had covid in January 2022 and March 2022 got these symptoms.
@@MsMaryjaneholiday do you still have them?
@@eva8528 yes, daily.
@@MsMaryjaneholiday i wonder if covid caused this for us
Covid Booster did this to me. I've had it for 5 months. Seen doctors and they come up with no answers. Everything he said on the video I've been through. When suggesting that the covid booster created this for me, the doctors say NOTHING... why ? Does this ever go away?
Then what?… can anything be done?
I have the exact symptoms for last one year, sometimes it’s less severe but recently I was doing some eye exercise looking at a pencils tip and moving it closer
Now pppd symptoms are severe but what do I do to fix this damn thing, I don’t feel normal
I was in gym this morning and damn I had to come back
How are you feeling now
In the same boat as all of you. So many tests done and of course negative. Told me i had somatic symptoms. Put on Effexor but now not sure if its working anymore. Only thing i got dxd for was anxiety which can be a part of it. Going to see my neurologist. Do any of you get any other symptoms?
I went to two doctors & they said I have inner ear fluid & I have an appointment for an ENT but I’ve been feeling off balanced for 3 to 4 months . Do you guys think it’s just the fluid that’s causing the off balanced feeling or is it this ?
Not sure if I have this maybe someone can help, been dealing with this for 5 years now I feel dizzy every day especially at work the florescent lights really set me off I have trouble turning corners when I walk and when I stand still it's when it really attacks me walking is more manageable I also feel alot of head pressure. Was prescribed Zoloft and was manageable for a bit I guess my body got used to it and now it's back worse than ever I get like hot flashes every time I feel like I'm gonna faint. I don't know what to do anymore
I tried vestibular exercises intensively and had to stop after a week cause they made me feel very ill with severe head pressure specially behind one eye, confused, irritable etc. Not sure if other PPPD sufferers experience this?
@Lee Nisan ayından itibaren gözlerim ışığa duyarlı hale geldi ve hareketli nesneleri takip ederken başım dönüyor ve çok gergin hissediyorum.Sende bu semptomlar var mı ?
maybe not due to the exercises. I get this eye pressure on one eye when my anxiety is high
I wonder if anyone else has tried FL41 lenses? I just did and it felt so nice the first couple of days that I was able to relax my long tensed up stomach but perhaps I relaxed too much too quickly I actually had a moment of what felt like a vertigo onset while I was looking at the computer screen with the FL41. So I am still experimenting and would appreciate hearing others’ experience, thanks!
I have this even when I am sititng down doing nothing. No break in 4 months. Heavy headed, floaty feeling. Vestibular tests, MRI and labs are negative. So is this a constant thing or brought on only by watching motion or walking down grocery isles?
So I’m not sure what I have then. In your video you claimed patients with PPPD get triggered by their environment? My issue is I feel it randomly just feels like the floor is moving up and down. I feel drunk or sleepy all the time. But the floor sensation moving up and down comes and goes. So it’s not a constant thing. I went to an ENT, and they did audio test, caloric test and said my left ear is weaker than my right. That’s all they know. I have an MRI scheduled a month from now, but could I have PPPD? Like I mentioned above my only symptoms are feeling like feeling a little buzzed /sleepy, and every now and then I feel like the floor moves up and down. This floor sensation comes randomly, sometimes it’s just once a week sometimes 2 times a week, or I feel it every two weeks. But the drunk/sleepy feeling I feel It daily.
PPPD is a Doctor's get out of jail card for anything balance related that they can't diagnose.
Look up derealization.
My dear brothers and sisters, my experience with this disease was at the beginning of Corona. The symptoms were dizziness, imbalance in walking, and anxiety at times. After researching this topic and reviewing doctors from all specialties, I came to the conclusion that masturbation and watching pornographic films were the cause. After thinking, I came to this conclusion. The treatment, the Islamic religion, forbids this thing. The Islamic religion is a great religion that has a cure for everything. The treatment was to stop masturbating for a month, and the symptoms would gradually go away
Appreciate the video, but do you know how to cure it??
Vestibular physical therapy, CBT, and SSRIs can help treat it
Hi, May I ask do you feel better? Do you have the feeling of floor shifting under your feet when walking?
Thank you for this explanation. I've had this for almost a year now. I've been seeing doctor after doctor after doctor. How do I get them to come up with PPPD? Is there a cure or anything to minimize the symptoms. Thanks!
Hi, I have pppd , May I ask did you have the feeling of walking on a mattress or boat? If yes , has it gone away ? Really appreciate your answer
@@Rose-gc8og that's the feeling I get like walking on a boat! Went away for a long time but then it came back when I was playing cards. Looking down and moving my head from side-to-side maybe triggered it. Hanging in there hoping that playing golf will fix it up
@@peterjenner5431 thanks a lot. May I ask how long you’ve had it ? And what has helped you more ?
@@Rose-gc8og for about 15 years. Betahistine helps a bit. It seems to get me about this time of year in March because I haven't been active enough maybe. My mom has caused me a lot of stress lately that's probably part of it. She's a 93 years old spoiled little brat
@@peterjenner5431 you had it for 15 years 24/7??
I truly thought it was my tooth causing all these issues and the fluorescent light. I have been monitoring myself for quite some time with this it's been about 3 weeks now that this has been going on very strange I never had issues like this before... Do ear infections have anything to do with this?
Hi there! Is there a way to recover from pppd? Am I going to fill better?
usualy creating some routine of physical exercises in the morning and before bed will helps to re-learn balance and it very efficent , also acknowledge to your self that it a condition that you can control helps to a quicker recovery since it also a anxiety associated issue. Improve your life with more positivity. Hitting the gym and some dance sessions at home helps me alot, also some visual repetition in low light exercises (like some disco light in you room) can contribute to recovery making pauses if your feeling tired or dizzy. Yet i cant still aim for the cause that sometimes it coming back . Mostly it about brain relearning signals. .
Hi, May I ask do you feel better? Do you have the feeling of floor shifting under your feet when walking?
This guy is on the money about everything being negative, the Neuro thought it could be vestibular mirgaines but the medicine he gave me didn't help either
Did he spell neurology (nerologye) correctly?
But what if pppd is an additional diagnosis in addition to a vng that indicates a central vestibular issue
Is that the case for you? I had a VNG and ENG which showed signs of a central vestibular functional issue. But the doctor said its also a component of PPPD. Eventually central issues have been ruled out with additional tests, so the doctor felt safe with PPPD as diagnosis
Hey,
I have the problem of movement of things which we feel in vertigo but it is not vertigo I feel sensation in my head then objects in front of me started moving horizontally like vertigo is happening then it again started to clam down
I feel this highly whenever I consume/eat anything
I am facing this past 3 years
How can this problem be solved?
This sounds a lot what I have. What do I need to do next to receive treatment?
What about motion in my head like moving my head side to side & down from up causing my dizziness for over a year? What would this be called?
How r u
How is your dizziness. Better or same
@Mira Martinez how months u have
@Mira Martinez r u taking any medicine
It's better or same
@Mira Martinez 4 me also same issues my head is swaying inside. 4 u also inside head is swaying,?.and 4 u all the time u have or same time only. Better or same
What’s the treatment ? Nortriptaline
Did it help?
@@hassant75 yes to a certain point
Can anyone please tell me if ear plugs reduce their symptoms. Within 10 mins neck pain reduced, dizziness reduced. Pls reply and let me know if this works for you too. Thanks 🙏
Hi -I suffer from PPPD and vertigo. Has anyone had success with mindfulness, CBT and vestibular therapy? I’m on able to take any kind of medication. Thanks!
Hi, May I ask are you recovered?
Hi, May I ask are you recovered?
Hey doc. What is the treatment for this? Also does PPPd cause a pushing pulling sensation?
Yes it does. You will feel pushing and pulling, swaying and rocking sensations. I have PPPD and all scan showed normal. There is no treatment for this but just life style changes.
@@shwarnaaluthayashankar6911 Actually, new medical literature as recent as 2020, suggests that a combination of VRT (specifically for PPPD), antidepressants (SSRI or SNRI, if SSRI’s don’t work) and CBT (cognitive-behavioural therapy) is recommended for the treatment of PPPD. This combination treatment leads to good outcomes in the majority of patients, 60-70% or more (especially if treated for at-least a year to prevent relapse).
Vestibular physical therapy, CBT, and SSRIs can help treat it
Hi, May I ask are you recovered?
I've had this since 1999. It sucks...I'm only cleaning houses right now because my brain functioning has decreased. I'm applying for Disability. Has anyone else gotten on Disability because of this?
have you read rock steady? you have to retrain your brain
Hi i have vestibular migraine and PPPD causing depersonalization detachment from my body and brain fog, wil all this go away or not? I need help
@Lee did u have depersonalization? Its this depersonalization which is taking over my life am fed up i want it gone so i can go back too normal
@Lee did yours completely go away were u went fully beck to normal how u were before DPDR
So how to fix this?
Watch the steady coach