Thanks again for the wonderful advice! We look forward to these videos and always find them so helpful and grounded. Our 2 late talkers continue to bring us lots of joy.
I was worried about my late talker when she was little and I wished I would have known all this information early on so it's wonderful to have your videos for all late talker parents. A lot of my worries came from what the school would say. I came across a few good professionals for sure thank goodness but at the beginning during the initial evals with the school district they worried me. I was told "kids like her", that I did my daughter a "disservice" by not bringing her in earlier, that she'll need "life-long care", it was actually awful the things they said. I also didn't know about "like-behavior" and the school district was allowed to label her autistic because she evaluated with "like-behavior" for autism. I think also what happened was they had a class they were wanting to form in their ABA program and they needed so many girls, they had enough boys, but there were two girls to 100 boys and I think they saw her coming and planned her eval to work around to eventually putting her in a grant program in the ABA program and it didn't take long once she was in the special ed class they pulled her out to go to the ABA class. I had no idea what it was about, they told me it was her "sort of speech therapy". An aide in the ABA class told me my daughter shouldn't be in that program, I also felt it wasn't an appropriate setting for her but I had no clue what she needed at the time so I wanted to believe what the school district evaluators were recommending. I did pull her out of that class and kept her in the special ed preschool class only. When I pulled her out it upset the director of the ABA program and she told me "oh this will change everything" and it had to do with the requirements to administer the particulate study they were doing, I believe it involved a grant so I suspect there were certain requirements to start that particular study in the ABA class. The class she was in was very frustrating for my late talker to the point of clamming her up and she didn't want to try because they wanted certain goals to be met so it wasn't going to help with it being her "sort of speech therapy". I found my late talker did better with being in the flow of a situation because she was absolutely taking things in but the reaction or proof of it wasn't always instant for the teachers to see results and when forced that clammed her up. It was so interesting back in the day dealing with those who just had their own agenda, didn't understand late talkers, classified her where they wanted and not for her needs, I learned a lot. It's wonderful you are doing these videos. I'm learning a lot even though my late talker is older now and I watch your videos and actually get clarity into things I wondered back then in the day but didn't know the answer to but I knew myself. Thank you.
Thank you, another really useful video. It is so challenging to keep the worry from affecting our lives. Late talking would count as SEN? I struggle to feel entitled to support because we don't have a recognised condition and at 6 my son is talking. I find the 'strong-willed' trait challenging. If he does or doesn't want to do something and can't or must do it, it is violent behaviour. It limits childcare options and we often need to cancel plans. Is this a late talker trait or do some strong willed children manage to not scream?
Hi! Dr Camarata Ive read your book and followed this channel for a year. My 3 year old son is a late talker (vocalizes but can say only single words at a time) but communicates in every other way and is bright and curious. The information you provide has been so helpful with navigating this phase in our childs development. Thank you so much! My question is how does one participate in your studies?
Hello, We are so happy that the episodes are proving helpful to you on your journey with your sweet late-talker. It is wonderful that you want to participate in research! Stephen Camarata is currently involved in research looking at music therapy, language and children with cochlear implants, speech and Down Syndrome, and neurological activation of late-talking. The participants in these projects live in the region. But don’t be discouraged! There are high-quality research projects that have competed on a national level and are active across the United States. Below is a link that takes you to the NIH.gov page that presents two ways to find out about potential research opportunities. One is a search engine for currently running projects, and the second (ResearchMatch) is a free research registry that connects people who want to participate in research studies with researchers who are looking for participants. It is a free and secure service. Check it out! And please, do not hesitate to contact the Late Talkers Foundation for additional general information about late talking and your son. Thanks for being part of our channel! Mary Camarata. www.nih.gov/health-information/nih-clinical-research-trials-you/finding-clinical-trial#:~:text=Join%20a%20National%20Registry%20of%20Research%20Volunteers&text=This%20is%20an%20NIH%2Dfunded,improved%20health%20in%20the%20future.
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Thanks again for the wonderful advice! We look forward to these videos and always find them so helpful and grounded. Our 2 late talkers continue to bring us lots of joy.
I was worried about my late talker when she was little and I wished I would have known all this information early on so it's wonderful to have your videos for all late talker parents. A lot of my worries came from what the school would say. I came across a few good professionals for sure thank goodness but at the beginning during the initial evals with the school district they worried me. I was told "kids like her", that I did my daughter a "disservice" by not bringing her in earlier, that she'll need "life-long care", it was actually awful the things they said. I also didn't know about "like-behavior" and the school district was allowed to label her autistic because she evaluated with "like-behavior" for autism. I think also what happened was they had a class they were wanting to form in their ABA program and they needed so many girls, they had enough boys, but there were two girls to 100 boys and I think they saw her coming and planned her eval to work around to eventually putting her in a grant program in the ABA program and it didn't take long once she was in the special ed class they pulled her out to go to the ABA class. I had no idea what it was about, they told me it was her "sort of speech therapy". An aide in the ABA class told me my daughter shouldn't be in that program, I also felt it wasn't an appropriate setting for her but I had no clue what she needed at the time so I wanted to believe what the school district evaluators were recommending. I did pull her out of that class and kept her in the special ed preschool class only. When I pulled her out it upset the director of the ABA program and she told me "oh this will change everything" and it had to do with the requirements to administer the particulate study they were doing, I believe it involved a grant so I suspect there were certain requirements to start that particular study in the ABA class. The class she was in was very frustrating for my late talker to the point of clamming her up and she didn't want to try because they wanted certain goals to be met so it wasn't going to help with it being her "sort of speech therapy". I found my late talker did better with being in the flow of a situation because she was absolutely taking things in but the reaction or proof of it wasn't always instant for the teachers to see results and when forced that clammed her up. It was so interesting back in the day dealing with those who just had their own agenda, didn't understand late talkers, classified her where they wanted and not for her needs, I learned a lot. It's wonderful you are doing these videos. I'm learning a lot even though my late talker is older now and I watch your videos and actually get clarity into things I wondered back then in the day but didn't know the answer to but I knew myself. Thank you.
Thank you, another really useful video. It is so challenging to keep the worry from affecting our lives. Late talking would count as SEN? I struggle to feel entitled to support because we don't have a recognised condition and at 6 my son is talking. I find the 'strong-willed' trait challenging. If he does or doesn't want to do something and can't or must do it, it is violent behaviour. It limits childcare options and we often need to cancel plans. Is this a late talker trait or do some strong willed children manage to not scream?
Hi! Dr Camarata Ive read your book and followed this channel for a year. My 3 year old son is a late talker (vocalizes but can say only single words at a time) but communicates in every other way and is bright and curious. The information you provide has been so helpful with navigating this phase in our childs development. Thank you so much! My question is how does one participate in your studies?
Hello,
We are so happy that the episodes are proving helpful to you on your journey with your sweet late-talker. It is wonderful that you want to participate in research!
Stephen Camarata is currently involved in research looking at music therapy, language and children with cochlear implants, speech and Down Syndrome, and neurological activation of late-talking. The participants in these projects live in the region. But don’t be discouraged! There are high-quality research projects that have competed on a national level and are active across the United States.
Below is a link that takes you to the NIH.gov page that presents two ways to find out about potential research opportunities. One is a search engine for currently running projects, and the second (ResearchMatch) is a free research registry that connects people who want to participate in research studies with researchers who are looking for participants. It is a free and secure service. Check it out!
And please, do not hesitate to contact the Late Talkers Foundation for additional general information about late talking and your son. Thanks for being part of our channel! Mary Camarata.
www.nih.gov/health-information/nih-clinical-research-trials-you/finding-clinical-trial#:~:text=Join%20a%20National%20Registry%20of%20Research%20Volunteers&text=This%20is%20an%20NIH%2Dfunded,improved%20health%20in%20the%20future.