My Daily Battle With a Degenerative Chronic Illness- Charcot Marie Tooth, Ehlers Danlos Syndrome

Поділитися
Вставка
  • Опубліковано 28 гру 2024

КОМЕНТАРІ • 83

  • @simon370
    @simon370 7 років тому +21

    Stay strong Maggie, you have a lot of support out there, and people should never judge a book by its cover. Sending you big hugs from the UK.

    • @MaggieClaydon
      @MaggieClaydon  7 років тому +2

      THANK YOU!

    • @simon370
      @simon370 7 років тому +1

      You are so welcome beautiful 💕❤ X You have a big fan, here in the UK, Hope you are doing well and hope that 2018 brings you lots of happiness X

  • @alanaolivers
    @alanaolivers 8 років тому +6

    hey beautiful. i know probably whatever people say it won't make anything better but i still would like to tell you that i admire you so much for how you handle all of this. you are a wonderful soul. love alana

    • @MaggieClaydon
      @MaggieClaydon  7 років тому +1

      Thank you so much! That honestly means the world :) Love your channel!

  • @christinadoherty3212
    @christinadoherty3212 8 років тому +14

    I love this video! your filming is amazing

    • @MaggieClaydon
      @MaggieClaydon  8 років тому +4

      thank you that seriously means a lot! but It's okay life happens and the universe works in mysterious ways! so I will get through it! xx

    • @GaganBasawaraj
      @GaganBasawaraj 7 років тому +1

      Yeah

  • @yaemikosupremacyy
    @yaemikosupremacyy 7 років тому +18

    What illness are u treating?

  • @philipbanks8425
    @philipbanks8425 5 років тому

    You are a very inspirational girl to your followers, I love watching your videos cause you are very cool and positive chick, stay strong I can just see you are a strong fighter. All the best. From Australia

  • @shanp1864
    @shanp1864 6 років тому

    Stay strong maggie. We’re with you ❤️

  • @glenncampbell839
    @glenncampbell839 7 років тому +2

    Wow very touching. I hope you can enjoy every day. I feel so saddened and sorry you are going through this and I believe you will get through it. Get better beautiful.Love,Glenn

    • @MaggieClaydon
      @MaggieClaydon  7 років тому +1

      Thank you Glenn. Some days are better than others but I'm just happy to be alive.

  • @tanveerbashir3499
    @tanveerbashir3499 6 років тому

    I can understand maggie wht r u going through am really happy dat u hve filmed this am also going through wid lumber spinal dat heart me alot i mean whole day and night everything will be fine i wish u all the best after bad days good days are waiting for us love u so much keep smiling

  • @BrodieBr0
    @BrodieBr0 6 років тому

    Very inspirational vlog! I couldn't have said it better myself when it comes to chronic illness...keep staying positive!

  •  7 років тому +5

    Thank you for sharing your story! I hope you will get better soon

  • @DarkMatter11k
    @DarkMatter11k 7 років тому +1

    Wow.. thank you so much for this message. Sending love, strength and hope for you on days when you need it in return. Thank you so much for this message, it was beautiful ❤️

    • @MaggieClaydon
      @MaggieClaydon  7 років тому

      Thank you !! That honestly means so much :) and I am sending the same to you

  • @howaboutno9573
    @howaboutno9573 7 років тому

    You are amazing Maggie and such a beautiful soul. I'm so happy you and Adrian found each other. You deserve all the love health and happiness in the world. Love ya girl 💖

    • @MaggieClaydon
      @MaggieClaydon  7 років тому

      Thank you so much! You're so sweet :)

  • @chizobauchay2024
    @chizobauchay2024 5 років тому

    Oh sweetheart, keep on fighting,l too continue in my fight if thirteen years,l know exactly how you feel,people like us are able to understand what is most important in life and are way beyond our years because of our illness .Life is not about what you have or don't have, everyone's life is different and should be appreciated no matter what even though sometimes this may be hard to see.we all love you.

  • @Jenicrafton
    @Jenicrafton 6 років тому +2

    Thanks Mags. Today’s my bday and I have been in bed with slipped ribs from my EDS fighting so hard the last 12 years and it’s depressing to be in the same bed 13 bdays in a row. I’m tired. Your video came through right at the right time. You made me feel big so alone. Thank you! Lots of love your way kiddo! You are a light!💕🐝🎶jBee

    • @MaggieClaydon
      @MaggieClaydon  6 років тому +1

      I know how hard it is... I have EDS as well as other things so I get that pain and how hard it can be. but stay strong!

  • @umarchow
    @umarchow 8 років тому +6

    So sad ... to look at people with a more compassionate heart... very true

  • @andrewplaylist2327
    @andrewplaylist2327 4 роки тому

    God bless you maggie....

  • @EFSLifestyle
    @EFSLifestyle 8 років тому +4

    You are awesome..PERIOD.

    • @MaggieClaydon
      @MaggieClaydon  8 років тому +2

      Thank you!! and right back at you!

  • @LupusPositiveLife
    @LupusPositiveLife 7 років тому

    You CAN get through this have faith stay strong there is a beginning a middle and an end soft hugs beautiful

  • @kaceystyles8547
    @kaceystyles8547 8 років тому +2

    I haven't talked to you in what feels like forever, I honestly am proud of you and the courage and strength and outlook on everything in life is honestly so inspiring. I can't imagine what you go through but just know if you ever need someone to talk to that my messenger on fb is always open for you to send me a message. I'm so proud of you. Remember how beautiful, inspiring, amazing, and incredible you are. Sending you so much love. xo -Katie.

  • @kellyvanorden3474
    @kellyvanorden3474 2 роки тому

    You have both my dr test me for eds but my son dr think i may also have choco marie tooth too because my leg are numb my dr say what if it both i say i wouldn't be surprised love your video

  • @sarahlove3733
    @sarahlove3733 7 років тому

    I have had 2 failed back surgeries so far. Chronic pain, degenerative disc disease, degenerative facet joint disorders, arthritis and hip problems, neck problems, scoliosis of the thoracic and lumbar spine so I KNOW what your going through. Make sure you get a good surgeon is #1 most important thing you can do. Take your meds even if you don't feel l like you need them right now take them anyways. Do your physical therapy and it will be okay. For me it was Not okay. Bad surgeon tried to fix HERNIATED DISCS twice and failed. Now they are high intensity zones and yea it's hard and I'm young but walk with a ccane and have a handicap placard, but it's life. Like you said we have to live it. Do Not try to overdo it though. A few days you might HAVE to just lay in bed a while or stay on the couch. The more you heal the better you will feel. We will never really heal, I know. But keeping going too much will hurt you more. Take time to relax

    • @walikhaled7739
      @walikhaled7739 6 років тому +1

      Sarah Love I admire your strength :). Your very beautiful your positivity shows on your face keep trying. I know what you are feeling but miracles do happen and you can be one of those success stories.

    • @chizobauchay2024
      @chizobauchay2024 5 років тому

      Sarah Love,how are you doing now?

  • @shanewatson7498
    @shanewatson7498 7 років тому +3

    Heart touching video 👍👍👍

  • @redbull7462
    @redbull7462 6 років тому

    you in adrian vlog takes me here. i hope he will take good care of you. wish u the best princess

  • @LifewithErin777
    @LifewithErin777 7 років тому +1

    Wow, I’m really having a hard day and you helped so much, how do you find peace on an everyday battle?

    • @MaggieClaydon
      @MaggieClaydon  6 років тому +1

      I am so glad ! I am always here to talk and would love to chat if you want to DM me on instagram @maggieclaydon . Message me so we can talk!

  • @daisiesandazaleas
    @daisiesandazaleas 8 років тому +5

    very inspiring :)

  • @digilines4291
    @digilines4291 6 років тому

    Geez are you ever gorgeous! You're film making skills are amazing, pulled me in from the start, didn't want you to stop your film. Really, you should do a short film, enter it in a contest. Also, I think you should download fl (fruity loops free trial) and make music, you have a great ear. Love and love to you 💖💖💞🌺💫💞🌹💙🌺🦄

  • @OTHERVERSETCG
    @OTHERVERSETCG 8 років тому +2

    what books are you reading right now ??

    • @MaggieClaydon
      @MaggieClaydon  8 років тому +2

      Good question! but i'm reading reading a few Medical journals/Case studies for Uni but I'm loving "reasons to stay alive" By Matt Haig also you have to read "The Alchemist" By: Paulo Coelho!
      What you you all reading?! also if you have instagrams follow me so i can find your accounts!

    • @OTHERVERSETCG
      @OTHERVERSETCG 8 років тому +1

      Maggie Claydon why did you pick reasons to stay alive ??

  • @jackwong9007
    @jackwong9007 6 років тому

    Love your smile.

  • @GhostlyWolf000
    @GhostlyWolf000 6 років тому

    when did your illness start?

    • @MaggieClaydon
      @MaggieClaydon  6 років тому

      I have had it since birth, but it started getting bad around one years old

  • @user-wr4lg2co6z
    @user-wr4lg2co6z 6 років тому

    Look I feel you're pain, I have to wake up & take a handful of pills just to become normal & having to continue doing it all day long.... just realize that you're beautiful & have a ton more opportunities in this world than the average person, TAKE ADVANTAGE OF THEM... I'm talking about the traveling, having friends, and getting to actually live freely..... hope you the best & take advantage of the world, while you're days are not numbered...... :)

  • @daralaujam
    @daralaujam 7 років тому

    You are too awesome.... Keep hard.... Also I have sicklecell Disease.....

    • @BruderSenf
      @BruderSenf 7 років тому

      oh wow that is realy rare and it makes you imun against malaria but sadly comes with a whole tain full of problems stay strong my friend

    • @MaggieClaydon
      @MaggieClaydon  7 років тому

      Thank you ! Keep fighting!

  • @natrylasilimon
    @natrylasilimon 7 років тому +1

    8x a day??

  • @sophieleanna9391
    @sophieleanna9391 7 років тому +1

    I am interested in your illness; what is the name of it?

  • @JahMint
    @JahMint 8 років тому +3

    Hope you get better :)

  • @nicoleisvegan653
    @nicoleisvegan653 8 років тому +3

    thank you for this

    • @MaggieClaydon
      @MaggieClaydon  8 років тому +1

      thank you for watching! i hope you're well

  • @speedydknouri2229
    @speedydknouri2229 7 років тому

    What illness are u treating? :)

    • @williambaker5954
      @williambaker5954 7 років тому +1

      Speedy dk Nouri right? Chronic illness could be any number of things.

    • @denisemanfre9542
      @denisemanfre9542 6 років тому

      You don’t say what illness u are battling??

    • @user-wr4lg2co6z
      @user-wr4lg2co6z 6 років тому

      It's in the title babe...

  • @tomezhao
    @tomezhao 6 років тому +2

    you dropped a pill at 0:22!!!

  • @faredddy4370
    @faredddy4370 7 років тому

    im felt sorry for you 😢

    • @MaggieClaydon
      @MaggieClaydon  7 років тому +1

      No need to feel sorry but thank you ! :)

  • @AndreaE3069
    @AndreaE3069 6 років тому

    AndreaAndLilAjjTv
    Beautiful darling we love you & we have you in our prayers 💞

  • @GaganBasawaraj
    @GaganBasawaraj 7 років тому

    Ooh

  • @teeduck
    @teeduck 5 років тому

    Cancer sucks

  • @toscatattertail9813
    @toscatattertail9813 7 років тому

    there are many degenerative chronic illnesses, be brave enough to share which one with ppl.

    • @MaggieClaydon
      @MaggieClaydon  7 років тому

      Bravery has nothing to do with what you're asking....

    • @denisemanfre9542
      @denisemanfre9542 6 років тому

      Maggie Claydon What chronic illness do u suffer with. I have three but possibly four now 👎😟. I don’t believe anyone asking u what ur illness is means any harm