I had this surgery done in 1988.. i consider myself lucky as my acromegaly was caught very early… now i am 61 living a healthy life with a half a pituitary gland that quit working and thanks to the great doctors and endocrinologist who care for me today.. i am grateful for the technology and all the health professionals.. you doctors are amazing and always in my prayers…
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
Pituitary Macroadenoma survivor - just a week ago. Gone thru this procedure. Still havent got my left eye cure. Will take months to recover BUT thankful to my Neuro Surgeon, ENT, Anesthesiologist, nurses, GOD!!! 🙏🏻🙏🏻🙏🏻
Thank God your doing well. I have a Giant Plactinoma and go in for surgery Sept. 7th. Mine was discovered after having a seizure June 2022. I've been on heavy meds since then and the tumor has only shrunk .02 centim. Mine 3cm x 4cm How are you doing with the Nasal recover? My neurosurgeon says I can't blow my nose for 6 weeks. Hope your back to normal.
@@michaelchilvers just got home yesterday from a 7 day hospital stay for a Prolactinoma removal. Loma Linda CA has a wonderful team for this. Thsnks Dr. Lopez Gonzalez! I still must get radiation for an area in the brain but my Giant Classed tumor is gone, God Bless😇
Hello, my Plactinoma tumor is 4cm x 3cm. I have surgery scheduled Sept 7th for partial removal. It's very unforseen and I am told I must continue my medications including anti seizure meds, Im highly disappointed on the seizure news. How was your surgery? God Bless
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
My surgery went great I was in the hospital from Friday to Monday. During my stay they took blood daily to check my levels I had no pain never needed any pain meds they gave me some the first day immediately after the surgery I awesome it was protocol. When I got home I was on leave from work for 6 week. I did get some headaches if I moved my head to fast or bend over to tie my shoe. You will get tired and experience dizziness but it will go away. I had my MRI in November everything look good still I go back next for another to make sure I'm still good. The surgeon did leave some of the mass because it wasn't safe to remove with damaging my vision.
Hi i am from South Africa at the time of diagnoses i was 52. Underwent transnasal surgery in July 2022. Tumour was drained but no removed. Went through radiation from Aug till October 2022. They managed to shrink the tumor but it is still there. I am still experiencing low vision and headaches . Thank God for life.
Problem is that after surgery you must b looked after by endocrinologist and neuroligist.and they just live you along to cope with trauma. neurologist can prescribe meds for brain blood flow improvmnt. My mum is given alpfa cholin supplement to keep memory sharp. All B vitamin group. And peptide ingections to build damaged by surgeon brain cells. We did our own search on peptides not one doctor suggested it, they r not trained or knowlwdhebl on post surgery recovery steps enought.
I had a macro pituitary tumor removed in 2011 and ended up with epilepsy. It's under control, but the neurosurgeon denied that it had anything to do with his work, whereas two neurologists says it was likely do to the tumor removal. Which is it? I don't see epilepsy as a side effect online, but I distinctly remember seeing "blindness, epilepsy, stroke, and death" listed as side effects when I was signing my life away at the hospital. I have it under control, but had a small seizure, for the first time, in 8 years today due to me forgetting to take my meds. It just got me thinking...
I had had a pituitary tumor since May of 2003, here in Vermont. I realize that it may be dangerous to do transphenoidal, surgery, but when I begged for non invasive surgery at UVM medical center, while it was growing to huge now, they said be lucky it has not killed you, or live with any mental problems. The last one was a couple of months ago with June Gleobus at Community Health Center where she says ignore it and treat the symptoms. Since 2020 it has been larger than a cm. I feel hot feelings in my head, dizziness, and closed in vision. Or else doctors say, be lucky it has not killed you yet, or wont do pills because of sugar level risks. This is very stupid. They billed my insurance at UVM medical center in Burlington Vermont telling me they will not do anything. I FEEL LIKE I HAVE A TIME BOMB IN MY HAND. I also feel weak alot. Can anyone help. Not even medicaid in Vermont cares less. Sueellen Bottligi ask her. Patient advocates SUCK here.
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
UVM meidcal center here inBurlington Vermont will not do anything to treat it at all. Begged for five years. Mine was a cm three years ago.@@AdrializLopez
@@krissiaalfaro Nothing told live with it, or be lucky it has not killed it. NO LUCK with hospitals outside of Vermont to treat it. PCs wont do anything with referals.
I had surgery 3.5 years ago but they didn't manage to get it all out and it is growing again and im on list for more surgery. I had double vision and tunnel vision. Next day after surgery i had perfect vision again. Don't be scared of surgery. You won't know a thing. The head pain for a week or so after can be annoying but hey ur alive. The blocked nose gets better and after a few months u be fine. Your nose is inflated during surgery to allow tools to pass through and it can cause snoring later. The worst bit is trying to sleep sitting up for a week and not being able to breath through the nose. They mostly only do surgery to large tumors.
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
I am glad to hear that you gained your vision back after your surgery. It’s the same problem I am facing currently, waiting on the specific date I will have my surgery, to remove the macro adenoma currently affecting me. The neuro surgeon said there is a likelihood that some residues of the tumour will have to be left behind, as well as that the pituitary gland might need to be removed and I would then have to take hormone replacements. Other than that she’s positive that I should potentially regain part of the field vision and stop further deterioration of the optic nerves.
@@DanieleManca1983 every case is different due to anatomy and tumor type. i hope they won't have to remove the gland as that would mean you take drugs 4 d rest of your life.
@@DanieleManca1983 i had repeat surgery 7 weeks ago because they didn't remove everything 1st time. the 2nd surgery was quite easy to recover from because i guess the drilling wasn't as much as 1st time. the surgeon did 4 people on the same day. you tumor seems to be active as in its producing to much cortisol which can be difficult to live with. i had no issues like that. mine was just causing sight issues because it was 2.3 cm. they said they got everything this time but only time will tell. don't be afraid if surgery. you will be asleep and you won't feel a thing.
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
Why do people take Cabergoline for so long and with side effects if this surgery for prolactinoma is "minimally invasive?" I'm supposed to start cabergoline soon and I'm worried about the side effects. I know no one will answer this questions, but I thought I'd try.
I also using cabergoline 1 mg twice a week, it is helo for very effective for pittutary tumor minimize as well reduce the prolactin growth harmone lavel , no side effect, right now I am completely well! no residual tumor , my MRI is clean, still i am using caberlin but 0.5 mg twice a week, take care. 4:09
I had transsphenoidal giant rathke cleft cyst surgery but I was only given a ct scan after surgery, which did not show any line of the cyst. Then I had almost total reoccurance of cyst size after 12 weeks (mri scan). Anyone got any suggestions what has happened? why was I not given a post operative mri instead of ct scan ?
@DanieleManca1983 already have multiple in fact. They just shrug their shoulders and say not that they know of. Two were pituitary tumor specialists neurosurgeons.
Hello, I was diagnosed last June ( 43 year old father). I was found having a seizure and have been on seizure meds- I still have had 10 seizures since then. My Plactinoma is 3.5cm x 4cm originally. The medications were increased over the last 12 mos. Tumor- I take 4 pumps testosterone daily/ Cabergoline 4 pills twice a week. Seizures- 1600 mg Cabermazapine / 200mg Locasamide , 100mg Vocasalide? or ..something, can't remember it's new at night. Keppra was not working originally. I now know I need the surgery and have it scheduled early September. I can't legally drive, and truly sick of these meds. Neurosurgeon informed me due to some brain scarring on MRI. I will still be on meds and not seizure free unfortunately. I don't want the tumor growing and affecting my vision. God Bless
Keep me informed guys/ gals. Worst part is you cannot drive due to seizures. I only discovered my Plactinoma because a family member ( shitzu dog) heard he at 3am having a seizure and there ya go, my family woke up and called 911. One indicator for seizures in your sleep- You will bite your tongue and cause damage. I previously thought I was sick and had some tongue infection on one side...I had seizures not unknowingly and thought tongue damage was something else.
Sir mujhe microandenoma brain tumor hai... And meri breast me bahut pain hota hai... Sir phle nipple me se bhi discharge ho raha tha... Ab discharge to nahi hota but breast me pain bahut jyada hota jab tak menstrual cycle period na aajaye.. sir I'm unmarried girl 38 years old... Sir I also used medicine for depression in the tension of corona...
I had this surgery done in 1988.. i consider myself lucky as my acromegaly was caught very early… now i am 61 living a healthy life with a half a pituitary gland that quit working and thanks to the great doctors and endocrinologist who care for me today.. i am grateful for the technology and all the health professionals.. you doctors are amazing and always in my prayers…
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
Are you taking hormone replacement to function properly, given you said your pituitary gland stopped working?
Testosterone, Desmopressin for water control, hydrocortisone tablets, and levothyroxine daily..
@@tommytommy7096 you have to take them all daily?
what was your symptoms and what was size of your tumor
I had this surgery 5 days ago... I hope everything will go back to normal...
What are your post surgery symptoms?? I have to get the procedure soon. What can I expect? Hope your recovery is comfortable and speedy. ❤❤❤❤❤❤❤❤❤
I hope you’re staying strong. You will get better. Steady recovery just be patient.
@@stevecastellon1094 she will be a patient lol
Pituitary Macroadenoma survivor - just a week ago. Gone thru this procedure. Still havent got my left eye cure. Will take months to recover BUT thankful to my Neuro Surgeon, ENT, Anesthesiologist, nurses, GOD!!! 🙏🏻🙏🏻🙏🏻
Thank God your doing well. I have a Giant Plactinoma and go in for surgery Sept. 7th. Mine was discovered after having a seizure June 2022. I've been on heavy meds since then and the tumor has only shrunk .02 centim.
Mine 3cm x 4cm
How are you doing with the Nasal recover? My neurosurgeon says I can't blow my nose for 6 weeks.
Hope your back to normal.
Thank you for acknowledging the anaesthesiologist. More than than Dr Omay managed sadly
@@michaelchilvers just got home yesterday from a 7 day hospital stay for a Prolactinoma removal. Loma Linda CA has a wonderful team for this. Thsnks Dr. Lopez Gonzalez!
I still must get radiation for an area in the brain but my Giant Classed tumor is gone, God Bless😇
@@asmrbynature3057whose your loma Linda Dr?
@@LivingSouthernCalifornia-714
Dr. Lopez Gonzalez is my Neurosurgeon.
I'm having this surgery tomorrow morning this is great information.
I hope all is well! How'd your surgery go?
Hello, my Plactinoma tumor is 4cm x 3cm. I have surgery scheduled Sept 7th for partial removal. It's very unforseen and I am told I must continue my medications including anti seizure meds, Im highly disappointed on the seizure news.
How was your surgery?
God Bless
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
My surgery went great I was in the hospital from Friday to Monday. During my stay they took blood daily to check my levels I had no pain never needed any pain meds they gave me some the first day immediately after the surgery I awesome it was protocol. When I got home I was on leave from work for 6 week. I did get some headaches if I moved my head to fast or bend over to tie my shoe. You will get tired and experience dizziness but it will go away. I had my MRI in November everything look good still I go back next for another to make sure I'm still good. The surgeon did leave some of the mass because it wasn't safe to remove with damaging my vision.
It went great thanks...my vision is back in my left eye...still need to wear glasses for distance @@cccccccccccc242
Hi i am from South Africa at the time of diagnoses i was 52. Underwent transnasal surgery in July 2022. Tumour was drained but no removed. Went through radiation from Aug till October 2022. They managed to shrink the tumor but it is still there. I am still experiencing low vision and headaches . Thank God for life.
Also having lots short term memory loss..
Problem is that after surgery you must b looked after by endocrinologist and neuroligist.and they just live you along to cope with trauma. neurologist can prescribe meds for brain blood flow improvmnt. My mum is given alpfa cholin supplement to keep memory sharp. All B vitamin group. And peptide ingections to build damaged by surgeon brain cells. We did our own search on peptides not one doctor suggested it, they r not trained or knowlwdhebl on post surgery recovery steps enought.
@@kalychetty how r u feeling rn?
I had a macro pituitary tumor removed in 2011 and ended up with epilepsy. It's under control, but the neurosurgeon denied that it had anything to do with his work, whereas two neurologists says it was likely do to the tumor removal. Which is it? I don't see epilepsy as a side effect online, but I distinctly remember seeing "blindness, epilepsy, stroke, and death" listed as side effects when I was signing my life away at the hospital. I have it under control, but had a small seizure, for the first time, in 8 years today due to me forgetting to take my meds. It just got me thinking...
I had had a pituitary tumor since May of 2003, here in Vermont. I realize that it may be dangerous to do transphenoidal, surgery, but when I begged for non invasive surgery at UVM medical center, while it was growing to huge now, they said be lucky it has not killed you, or live with any mental problems. The last one was a couple of months ago with June Gleobus at Community Health Center where she says ignore it and treat the symptoms. Since 2020 it has been larger than a cm. I feel hot feelings in my head, dizziness, and closed in vision. Or else doctors say, be lucky it has not killed you yet, or wont do pills because of sugar level risks. This is very stupid. They billed my insurance at UVM medical center in Burlington Vermont telling me they will not do anything. I FEEL LIKE I HAVE A TIME BOMB IN MY HAND. I also feel weak alot. Can anyone help. Not even medicaid in Vermont cares less. Sueellen Bottligi ask her. Patient advocates SUCK here.
Whatttt thats absolutely crazy how they have not helped you in any way !!!
1 cm. Mine was 3 cm
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
UVM meidcal center here inBurlington Vermont will not do anything to treat it at all. Begged for five years. Mine was a cm three years ago.@@AdrializLopez
@@krissiaalfaro Nothing told live with it, or be lucky it has not killed it. NO LUCK with hospitals outside of Vermont to treat it. PCs wont do anything with referals.
Is there any condition that doctors say we will not do this operation? It’s very important for me to know because one of my relative says so.
I had surgery 3.5 years ago but they didn't manage to get it all out and it is growing again and im on list for more surgery. I had double vision and tunnel vision. Next day after surgery i had perfect vision again. Don't be scared of surgery. You won't know a thing. The head pain for a week or so after can be annoying but hey ur alive. The blocked nose gets better and after a few months u be fine. Your nose is inflated during surgery to allow tools to pass through and it can cause snoring later. The worst bit is trying to sleep sitting up for a week and not being able to breath through the nose. They mostly only do surgery to large tumors.
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
I am glad to hear that you gained your vision back after your surgery. It’s the same problem I am facing currently, waiting on the specific date I will have my surgery, to remove the macro adenoma currently affecting me. The neuro surgeon said there is a likelihood that some residues of the tumour will have to be left behind, as well as that the pituitary gland might need to be removed and I would then have to take hormone replacements. Other than that she’s positive that I should potentially regain part of the field vision and stop further deterioration of the optic nerves.
@@DanieleManca1983 every case is different due to anatomy and tumor type. i hope they won't have to remove the gland as that would mean you take drugs 4 d rest of your life.
@@mikewatt8706 thanks for your comment, I hope so too. I’m scheduled for the surgery on June 3rd, just over a week left.
@@DanieleManca1983 i had repeat surgery 7 weeks ago because they didn't remove everything 1st time. the 2nd surgery was quite easy to recover from because i guess the drilling wasn't as much as 1st time. the surgeon did 4 people on the same day. you tumor seems to be active as in its producing to much cortisol which can be difficult to live with. i had no issues like that. mine was just causing sight issues because it was 2.3 cm. they said they got everything this time but only time will tell. don't be afraid if surgery. you will be asleep and you won't feel a thing.
My sister just had an operation in pituitary glad posterior
Hello I am currently taking Cabergoline 0.5mg twice a week to lower my cortisol level due to my cushing syndrome I had 3 months I already with these medication. After a MRI brain scan they found a pituitary tumor the size 1cm they schedule me a pituitary tumor surgery . if you already have type of surgery in the USA please let me know the proceduce and the recovery after the surgery I ma little scared. thanks
What is the average cost of having a pituitary macroadenoma surgery...
in Ireland 16000 euros
What time frame should a person have the surgery?
I have just been told I have a mass on my pituitary gland I am scared and terrified idk what’s going on I have been watching video sounds very scary
Don't be afraid.... Everything will be fine.. just face it and be strong... ‼️💪👩🏻⚕️
Why do people take Cabergoline for so long and with side effects if this surgery for prolactinoma is "minimally invasive?"
I'm supposed to start cabergoline soon and I'm worried about the side effects. I know no one will answer this questions, but I thought I'd try.
I also using cabergoline 1 mg twice a week, it is helo for very effective for pittutary tumor minimize as well reduce the prolactin growth harmone lavel , no side effect, right now I am completely well! no residual tumor , my MRI is clean, still i am using caberlin but 0.5 mg twice a week, take care. 4:09
How big is your tumor
sir aapka kaise khtam huaa?? Aur kab se tha aur kya mm ka tha??
@@lisad82 1.6 x 1.9 mm
I had transsphenoidal giant rathke cleft cyst surgery but I was only given a ct scan after surgery, which did not show any line of the cyst. Then I had almost total reoccurance of cyst size after 12 weeks (mri scan). Anyone got any suggestions what has happened? why was I not given a post operative mri instead of ct scan ?
I have a rare spindle cell oncocytoma of the pituitary gland. Is there any research into these rare tumors?
I have not heard of that before, but the best person to ask would be a neuro surgeon.
@DanieleManca1983 already have multiple in fact. They just shrug their shoulders and say not that they know of. Two were pituitary tumor specialists neurosurgeons.
Image guided surgery
My doctor thinks this is what I have. I go for the MRI in a week.
Same
I have one 4mm low testosterone, and they told me last week
Hello, I was diagnosed last June ( 43 year old father). I was found having a seizure and have been on seizure meds- I still have had 10 seizures since then. My Plactinoma is 3.5cm x 4cm originally. The medications were increased over the last 12 mos. Tumor- I take 4 pumps testosterone daily/ Cabergoline 4 pills twice a week. Seizures- 1600 mg Cabermazapine / 200mg Locasamide , 100mg Vocasalide? or ..something, can't remember it's new at night. Keppra was not working originally. I now know I need the surgery and have it scheduled early September. I can't legally drive, and truly sick of these meds. Neurosurgeon informed me due to some brain scarring on MRI. I will still be on meds and not seizure free unfortunately. I don't want the tumor growing and affecting my vision. God Bless
How did it go Joe, hopefully was not a tumor😇
Keep me informed guys/ gals. Worst part is you cannot drive due to seizures. I only discovered my Plactinoma because a family member ( shitzu dog) heard he at 3am having a seizure and there ya go, my family woke up and called 911. One indicator for seizures in your sleep- You will bite your tongue and cause damage. I previously thought I was sick and had some tongue infection on one side...I had seizures not unknowingly and thought tongue damage was something else.
Sir mujhe microandenoma brain tumor hai... And meri breast me bahut pain hota hai... Sir phle nipple me se bhi discharge ho raha tha... Ab discharge to nahi hota but breast me pain bahut jyada hota jab tak menstrual cycle period na aajaye.. sir I'm unmarried girl 38 years old... Sir I also used medicine for depression in the tension of corona...
Abhi aap kaise ho.... Doctors kya bolthe hai
😢😢😢😢😢😢😢😢
Amém
Permanency awareness for lgbt family therapy