I’ve been fighting for a diagnosis for the last year with a new endocrinologist. She keeps telling me to lose weight, eat less carbs, see a nutritionist. Which I’ve done. Along with taking weight loss injections. I haven’t lost any weight. It took me seeing a neurologist for migraines to do an MRI and that neurologist to have me see an ENT for sinus cysts, for that ENT to say hey you have something on your pituitary gland that needs to be addressed. This just happened Friday. I left crying more out of relief because I felt that my feelings were validated and these issues weren’t all in my head. Now I’m in the process of getting a new endocrinologist to have the tumor removed. Don’t give up getting answers if your gut is telling you something is wrong!
PROACTIVE! People forget that our doctors work for US! I've had 4serious diagnosis come to light by persistence, & 2nd-4th opinions! Don't give up on you, & the quality of life you desire..😊
Emory University has one of the best pituitary programs!!! Do your research and find the best pituitary neurosurgeon!!! Keep in touch with me, please☺️
So happy for u, my son has been suffering, since age 10, he is now 21, Rage, anxiety, depression, mood swings that resembles bipolar, he has seen over 20 drs, diagnosis or should I say misdiagnosis over & over, I had to quit my job, to try tc of him , then recently he came to me crying asking why he couldn't grow a beard & other concerns, i had him do a testosterone test ,got the results today, his testosterone is lower than the norm by over 100 pts, I immediately contacted one of his Drs who indicated that we must find an endocrinologist asap, and I then found this VIDEO, I haven't told him anything yet ,I feel overjoyed but scared, hoping this is not a dream,I have to pinch myself, I hope I find a good endocrinologist, spent out my life savings trying to get him help, ty 4 sharing ur story, God Bless u .
my son has been suffering, since age 10, he is now 21, Rage, anxiety, depression, mood swings that resembles bipolar, no medicines have worked to date he has seen over 20 drs, diagnosis or should I say misdiagnosis over & over, I had to quit my job, to try tc of him , then recently he came to me crying asking why he couldn't grow a beard & other concerns, i had him do a testosterone test ,got the results today, his testosterone is lower than the norm by over 100 pts, I immediately contacted one of his Drs who indicated that we must find an endocrinologist asap, and I then found this VIDEO, I haven't told him anything yet ,I feel overjoyed but scared, hoping this is not a dream,I have to pinch myself, I hope I find a good endocrinologist, spent out my life savings trying to get him help, ty 4 sharing ur stories ,and God Bless u all .🙏🏽
Have you tried to see a Tmj speaclist too try to look at it from all angles Tmj is not very well recognized and doctors don’t look at it. Does he grind and clench his teeth does he jaws click when he opens his mouth Tmj is nasty can affect eyes, balance , and nervous e system
Start looking into natural treatments thr doctors won't do anything for you I've had my diagnoses since 2018 haven't had a doctor hekp me yet but I've been to several and spent 1000's
I had a prolactin secreting tumor and I was a psychological mess, I had gained a ton of weight but thanks to the doctors at the University of Virginia, they removed the tumor. I lost the weight and regained my memory and did so much better. a few years ago I started having headaches again and They found a tumor on the left side of my pituitary, this time however they used a gamma knife, it was a lot similar than having your face peeled back like the first surgery I had.
ReviewCam I get my MRI results tomorrow, am hoping if it's prolactinoma as Dr expects that it's micro and I can just take the drugs lol! Fingers crossed!
I had one too :( they removed it two years but the psychological issues it started causing remain. I have constant anxiety, it's crazy. Don't know what to do.
I am diagnosed with empty sella syndrome on post pregnancy. But it took 4.5yrs to find out the problem. I went thru so much of weight loss, mental stress, physical weakness, heavy menses bleeding, I couldn't take care of my baby too. Even my family didn't understand my problem. Worst part of life. Finally I end up with flatteren pituitary gland and live with it.
This condition ...disease ... its horrible ... I really hate my life. The emotional and social problems it has caused me makes me want to die. I finally told my ex... He treated me more like a piece of shit and was verbally and emotionally abusive. I feel all alone. I just want to be happy I want to feel normal. and I want the love of my life back.
I tried to live normal but I gave up and hooping my medicine and results be always okay so I can work or do something minimize my depression and tension
Doctors are seriously evil and negligent. I have had ALL of these symptoms for more than ten years. Yet because my tumor is a benign MICROadenoma they wont remove it,diagnose me with Cushing's Disease even though my bmi is over 35. My bmi used to be higher. Then I received bariatric surgery,but still am technically"obese". I have had many blood tests with cortisol higher than normal by two points. Yet No neurologist referral,Cushing's diagnosis,more future testing. I am allergic to cadmium and thimerisol so getting an MRI to "monitor" the tumor is out of the question. I have very little if no libido,severe migraines especially right before my periods which are at times an absolute nightmare.
+Lana Howard Have you been to a pituitary specialist? If you haven't I would highly recommend it. You can find a list of pituitary specialists on our website at www.pituitary.org. They are listed under the Resources tab along with other helpful resources.
I similar to you re weight issues and migraines , topamax for my migraines helped migraines and with weight loss, miracle, google it, ask for it, some small side effects like bit of faint nausea but they disappear after a few months. Only thing after many tires of others that helped me. Goouck all the best xxx
Lana Howard your not going to believe this, I had my MRI here in Australia yesterday and they Had to go ahead and do it without contrast dye because they couldn't find a vein to insert the IV!!! I have notoriously difficult veins and I purposely didn't drink much of anything so I wouldn't be busting for a wee stuck in that machine lol! They went ahead with the MRI anyway cos they said they got good clear images cos I was so still. But with pituitary stuff they really wished they could have had the dye. I get my results tomorrow. So I guess I'll find out if I have to do it again or not! Isn't that ironic!? Anyway all the best to you :)
I have had a pituitary adenoma of which I was required to undergo for rain surgeries. Those did save my life. However, I have had depression, anxiety, irritability, etc. etc. for many years, and I have to find it every single day. I see a psychiatrist, a psychotherapist, and I take plenty of medication’s for it. It’s what keeps me alive. I also have a very strong faith in God and a great family. I do go to church, and that is definitely helping me. However, sometimes I don’t know if I want to cry, scream, or if I’m overly happy. I can’t work because of this thing so I do get benefits from the government. That has been a lifesaver. Even though this is not a malignant tumor, it can still cause hell in one’s life. There have been days where I have had so much anxiety that I can’t function. Like I said earlier, I have to fight through this every single day. I know what you guys are going through. This tumor has also caused a lot of other medical issues. Luckily, most of the tumor was removed through surgery but I still have remnants left. I have to go for an MRI tomorrow morning. I am a little bit apprehensive about that so we’ll see how it goes. I love y’all! Take it one day at a time.
pituitary tumour it can turn life upside down, it’s so painful I kept passing out, now I can’t ever remember having it at all, it was not pulled out of my head, it just gone
I have a pituitary tumor I was diagnose at 8 my 1st Doctor wanted to operate but once they stared to discuss the risk and possible blindness my father backed out and got a second opinion my mother was all for it because she knew the pain I was going through and the erratic behavior. my father wasn't really around but still had equal rights to me so the doctors didn't operate well , 11 years later I'm lashing out more acne worse weight gain. low sex drive and most scary of it all I'm getting more violent towards my family and harmful to myself. And when I'm angry I told my girlfriend to "get away just run if you have or even call the cops just plz get away. because I don't recognize myself when I'm angry just go somewhere safe" Knowing her she will try to stay by my side and reason But there no reasoning. With this hurricane of anger. This tumor is the worst thing that ruin my life since a young age and only making it worst And the anxiety it bring on top of the depression trust me the list goes on I have no Medicare or insurance hard times for me to get help. I'm Grown now and I'm pushed into the world at 19 with this monster hunting me.
I am so sorry for what you are going through. Please try to find some help, there are treatments available. Try the National Institutes of Health or look for a pituitary center near you, they may have programs available for the uninsured.
king Jones the Spurs fan!!!! I totally know how you feel! I remember being bullied at 8 years because I started developing into a young woman before everyone else, they started calling me a nasty name and the boys in my grade must have been told too. It was horrible. Never though growing up would be that pailful, then having to be teased for my acne a few years later, then going through severe depression etc. Now I'm on a cocktail of meds just to make me feel happy each day. Now I feel I may have crushings disease as I have had many of the symptoms for years but suddenly in the last month i have had some more come up. I never get hungry and have struggled to actually eat food and in the last 2 weeks am constantly hungry every couple hours especially at night. Mine is only a small tumour and my old endo has told me nothing has changed but things don't feel right to me, I'm seeking another opinion but have to wait 6 weeks. I hope they can fine something, I'm in pain from headaches and muscles, I'm tired all the time I could nap every day i just want to be a normal young woman even if just for a few years.
I was born with my tumor. I didn’t know this at the time though. At age 11 the doctor told my mom I was obese and put me on a diet. Spent a lifetime of this with doctors until I started to go blind in 2016. I was 56. My tumor was 1.7 CM. Had 3 surgeries in 18 months. The last one they removed my pituitary gland.
i had to go to NORTHWESTERN hospital and get my very large achranoid cyst drained , my headaches were massive & super severe for many years.. called crazy in my home town.. misdiagnosed in my home town ,so CHICAGO's NORTHWESTERN saved my life... I went to Chicago NORTHWESTERN.. Dr James Chandler saved my life. anonymous..
Wow! Similar I had a cyst ovary right after it was removed I haven't had a migraine! they said there is no why or reason! but thank god! Since I got my period migraines they are in my mom's family.. but we thought my mom just had migraines.. no idea she had a tumor.. grapefruit sized biggest they ever saw.. just no idea why the MRI didn't see it.. :( hope ur feeling better
She called me paranoid. The only thing that bothers me is the truth that people make remarks about my fair skin and my light hair. No one listens to me. I am fifty-two. It’s been a problem that the doctors refuse to help me out with. I don’t know how to convince them that they are wrong? They think they know so much.
My endocrinologist didn’t speak to me for 4 days because I proved her wrong that I had something wrong with my glands… that’s why you gotta demand for tests to be done. Just make sure to research first, educate urself and make it happen
My endocrinologist suggested I seek psychiatric help…. I was like are you serious right now…??? So I demanded a test for fsh and lh levels to be done. And sure enough my levels came back abnormal. She had no choice but to send me on my way to get an mri
@rn5992 HI, how am I? Well I'm thankful I'm still here but since the infection life has been a bit more difficult than before. I could write a few pages on this but the latest symptom of having a challenging immune system is neuropathy in both feet and its creeping up my legs. It's getting harder to walk but I keep pushing through. Plus it's like always having the feeling that im coming down with covid or a bad flu. If you want to ever k own more just leave a message. Take care and thank you.
I have a pituitary tumor is not big but I having a lot of side effects from it. I can’t sleep well I have uncontrolled anxiety I feel that I’m going crazy plus my depression is making it worse. I never suffered from anxiety or depression, I don’t feel like myself I’m always tired I feel like I have no life. My doctor give me cabergoline but that medication is to strong for me. Now my doctor told me to not take it anymore but I’m concerned because the tumor is still there and I feel like my anxiety is getting really bad, Plus I have mood swing I can’t concentrate is like I’m losing my mind 😭 and the sad thing is that my doctor told me that pituitary tumors have nothing to do with anxiety or depression 😞 please if someone is going through the same as me please tell me. I really want to feel better thank you.
It really does affect you mentally. I feel like they tell you this so you don’t make an even bigger deal about it but yes these things do make you think you’re losing your mind. Lots of cases are like you. You need to see an endocrinologist and get an mri of your pituitary gland. I’m currently going thru the same thing. It sucks i know but you have to tell yourself it’s not you causing anxiety but the tumor or mass that is sitting on your gland is. You’re not crazy. You are being driven crazy because of this mass. I’m going for my second mri next week and god knows if I find a mass there I will have so much relief in a good way
@@adolfoonly thank you so much I really need it to hear that. I’m go to look for another doctor. Because this is kind of scary!! Hope that everything goes well with you 🙏🏽
@@yolandabatistamendez7680 I appreciate it. Take care of yourself and yes you absolutely need a second opinion and a third if need be… your health comes first. Educate and inform yourself. God bless
@@adolfoonly thank you same to you 🤗 right now I’m in the emergency room because the tumor for some reason is putting my sodium low 😞 I feel like crap.
5 years ago they found a micro tumor and a cyst. It was producing too much prolactin. I waited to see a doctor after a year without a period. I only took medication for it for a few months which regulated my prolactin and now I've had consistent period cycles for years without medication. But I've been facing mood irregularities since i was an early teen and recently was given medication to treat bipolar disorder. I do have family history with it, my grandmother. Her sister with depression. I'm trying to now understand if it's really a mood disorder or my pituitary tumor. It's very confusing and seems like a hopeless journey to figure out..
Find a pituitary specialist to help you sort it all out. Pituitary endocrinologists can test your other hormones and find out if there is something else going on. Here is a link to a list of pituitary specialists who can help you. pituitary.org/medical-resources/physicians
Hey girl, I dk if you’ll see this comment. I also didn’t have my period for almost a year. What medication did you go for ? I know they usually give you 2 options to treat pituitary tumor for high prolactin levels which cause missed periods. I haven’t been officially diagnosed bc I don’t wanna do an MRI with contrast. The thing is that it’s crazy all the symptoms that ppl mention. But I literally don’t have any ! other than my missed periods. I don’t have depression, no headaches, only one person gets me angry lol (but he gets everyone angry so that’s not just me). I have a lot of energy, haven’t gained weight/loss weight, no anxiety unless I have to do a presentation for class. Literally no symptoms other than not getting my period.
3:22 is literally me. It's what made me get an MRI. I started having constant anxiety and panic attacks from little things. I had my prolactin secreting pituitary tumor removed, but 2 years later, I'm still a mess! Don't know what to do :(
Awe ... So sorry that you were struggling ... Hope things have improved for you 1 year later !.... my daughter had been suffering with undiagnosed weight gain after her son was born she’s continually gaining weight ... extreme relentless fatigue ... she’s had bad facial pimples for many years ... not acne per se’ but always 3..4..or 5 big pimples irritating her trying to cover them up !... she has no appetite at all and when she does eat she feels nauseated ! ... I’m really concerned about her ... I keep thinking she’s too young to have anything too serious but unfortunately people are getting serious illnesses younger and younger nowadays ... I’m not sure how old you are and at 26 I’m sure this kind of thing isn’t common but probably possible ? ... If you have anything to contribute to my post that you think might be pertinent would love to hear from you 😊 ... Thanks
angela gouldsborough hi! I am pretty much recovered now! No panic attacks or depression, anxiety here and there but nothing serious :) I was 19 when diagnosed, 20 when the tumor was removed, now I am 24.
I have one too Im a 63 yo male.. It has been a problem for about 15 years but my previous doc was incompetent . My prolactine is 83 ish and they put me on Bromocriptine.The treatment makes me nautilus (sucks) and I have a compulsive action too. . It also crushed my testosterone (which left me too weak to do anything but sleep18 hrs a day) sweating. vision issues, ED, headaches and dizziness, trouble concentrating. Lazy docs are a bitch.. My diabetic doc said "I DONT CARE ABOUT THAT" She is gone too. If that little voice says something is WRONG find a new doc. Your life depends on it. For me only time will tell early days.
have had panhypopituitarism most of my life and the facial roundness/size has affected my social life. not many decent looking women want to date a guy with a round face and thin arms
My mom sadly was never diagnosed even after she survived both her lungs collapsing.. weight gain.. thinking her menapuase was close! that was not it.. her symptoms.. were crazy.. hot n cold.. hot n cold.. sleep n than couldn't sleep.. her head always hurting.. until she pressed on it... that should of been a bazooka moment! but even her MRI.. months before didn't show anything.. one morning May 21. 2010 she passed.. and they found a grapefruit sized tumor and her heart was three times too big.. why? oh why? did they not know.. I cant fathom it..
My heart is crying when o read your comment 😕its sooooo sad May her soul rest in peace Why the tumor couldn't be. Shown in mri wasn't there something else they could do to diagnose her...its heartbreaking does your mom had symptoms of sleeplessness??You are brave May god bless you in every step of your life Ameen stay blessed
@@markkarlatec3176 don't worry take black seeds empty stomach think less stay positive May God heal and cure you completely Ameen stay safe stay blessed
My wife has a childhood third ventricle tumor since about 7yrs old. Now 41, migraines, body and spine/neck pain, sometimes knife in temple pain, very anxious type, stays away from people like a wild rabbit. Very distrusting. Night terrors, yet goes right back to sleep not remebering them.
Im beg for surgery, i have this tumor for years, in 4/2023 ...my eyes was watering,painful,first eye doctor "pink eye" started worsted headaches, nausea,another eye doctor sendme E.R they find a pituitary tumor, after i loss my job of 28 years,im in medicaid,now my regular doctor referred me to different doctors, my hormones are normal...but loss sometimes my vision, headaches, nausea, i fall 5 times,i live in Nevada...no sympathy from my symptoms, waiting to grows!! Give medicine for migraine 😫 dosent work 😢
Thankyou for this video. Any Pituitary disease/Adrenal Glands. I was wasting away to 89 pounds until they finally diagnosed me with Hypopituitarism and Pologlandular Addisons. The mood swings cannot be blamed on mental when it's physical. Take Care everyone who has this and similar. I've been on 30mgs of Cortef for 17 years now..I'm 45 years old and the cortisteriods are life saving, but cause alot of side effects and damage. Stress....
The left side of my body went numb back in October suffering from Long Covid come to find out in the ER getting an MRI they saw something odd about my pituitary gland and had me see my PCP who sent out another MRI Stat! Then I was told the other day one side of my Pituitary Gland is bigger than the other and I have consultation with a Neurosurgeon on the 13th of December.
And all my doctor tells me to do is lose weight which I can’t because of my genetics, PCOS, pituitary tumour, Cushing syndrome and early menopause (I’m 23)
I think that I have something wrong with my pituitary gland. I mentioned this, but the stupid therapist who seems to have a love for indigenous Americans
I had my first one 8 yrs ago. I had one a few wks ago. I’m having my 3rd one this wk! The last one showed my pituitary was enlarged I had pituitary tissue on the floor of my sella also going into my right sinus cavity. Wish me luck 🍀 I hope you both live a long healthy life z Thank God for his Grace and healing ❤️🩹
@@mrs.Italy.D let me know if you will be going through surgery. I have experience with that. I am now taking a monthly injection called Somulatine Depot. Let’s keep in touch!
I’ve been fighting for a diagnosis for the last year with a new endocrinologist. She keeps telling me to lose weight, eat less carbs, see a nutritionist. Which I’ve done. Along with taking weight loss injections. I haven’t lost any weight. It took me seeing a neurologist for migraines to do an MRI and that neurologist to have me see an ENT for sinus cysts, for that ENT to say hey you have something on your pituitary gland that needs to be addressed. This just happened Friday. I left crying more out of relief because I felt that my feelings were validated and these issues weren’t all in my head. Now I’m in the process of getting a new endocrinologist to have the tumor removed. Don’t give up getting answers if your gut is telling you something is wrong!
PROACTIVE!
People forget that our doctors work for US!
I've had 4serious diagnosis come to light by persistence, & 2nd-4th opinions!
Don't give up on you, & the quality of life you desire..😊
Note, It's taken me, a painful 5 years to do so..
Yes s
Emory University has one of the best pituitary programs!!! Do your research and find the best pituitary neurosurgeon!!! Keep in touch with me, please☺️
So happy for u, my son has been suffering, since age 10, he is now 21, Rage, anxiety, depression, mood swings that resembles bipolar, he has seen over 20 drs, diagnosis or should I say misdiagnosis over & over, I had to quit my job, to try tc of him , then recently he came to me crying asking why he couldn't grow a beard & other concerns, i had him do a testosterone test ,got the results today, his testosterone is lower than the norm by over 100 pts, I immediately contacted one of his Drs who indicated that we must find an endocrinologist asap, and I then found this VIDEO, I haven't told him anything yet ,I feel overjoyed but scared, hoping this is not a dream,I have to pinch myself, I hope I find a good endocrinologist, spent out my life savings trying to get him help, ty 4 sharing ur story, God Bless u .
Anxiety, depression, especially rage, whew!!!! The rage is like a fire burning inside of me
my son has been suffering, since age 10, he is now 21, Rage, anxiety, depression, mood swings that resembles bipolar, no medicines have worked to date he has seen over 20 drs, diagnosis or should I say misdiagnosis over & over, I had to quit my job, to try tc of him , then recently he came to me crying asking why he couldn't grow a beard & other concerns, i had him do a testosterone test ,got the results today, his testosterone is lower than the norm by over 100 pts, I immediately contacted one of his Drs who indicated that we must find an endocrinologist asap, and I then found this VIDEO, I haven't told him anything yet ,I feel overjoyed but scared, hoping this is not a dream,I have to pinch myself, I hope I find a good endocrinologist, spent out my life savings trying to get him help, ty 4 sharing ur stories ,and God Bless u all .🙏🏽
Hello Contact Dr Ebosele Herbal home on UA-cam for urgent help and treatment
Have you tried to see a Tmj speaclist too try to look at it from all angles Tmj is not very well recognized and doctors don’t look at it. Does he grind and clench his teeth does he jaws click when he opens his mouth Tmj is nasty can affect eyes, balance , and nervous e system
@@tigereyes8396 can it cause emotional problems too?
I had Cushing's Disease 13 years ago, and it really messed with my emotions. I remember crying a lot from feeling so bad
Did you have the tumor removed?
what helped you?
I have a pituitary tumor causing me hell on earth. Extreme anxiety and vomiting and no doctor will treat it
You need to deal with it
Your symptoms are part of my life
Since childhood due to pituitary gland
So do u hv vision issues?
Start looking into natural treatments thr doctors won't do anything for you I've had my diagnoses since 2018 haven't had a doctor hekp me yet but I've been to several and spent 1000's
🤑🤑🤑
They should've given you cabergoline smh
I had a prolactin secreting tumor and I was a psychological mess, I had gained a ton of weight but thanks to the doctors at the University of Virginia, they removed the tumor. I lost the weight and regained my memory and did so much better. a few years ago I started having headaches again and They found a tumor on the left side of my pituitary, this time however they used a gamma knife, it was a lot similar than having your face peeled back like the first surgery I had.
Glad they got it! Its better them finding it than not.. like my mother
Was so happy reading this till you said face peeled back 😨
ReviewCam I get my MRI results tomorrow, am hoping if it's prolactinoma as Dr expects that it's micro and I can just take the drugs lol! Fingers crossed!
I had one too :( they removed it two years but the psychological issues it started causing remain. I have constant anxiety, it's crazy. Don't know what to do.
@@Jtv612 hey, any update on the anxiety? Did you ever find out a way to deal with that?
I am diagnosed with empty sella syndrome on post pregnancy. But it took 4.5yrs to find out the problem. I went thru so much of weight loss, mental stress, physical weakness, heavy menses bleeding, I couldn't take care of my baby too. Even my family didn't understand my problem. Worst part of life.
Finally I end up with flatteren pituitary gland and live with it.
So wht did d doc say inview of empty sella. Do u hv vision issues?
This condition ...disease ... its horrible ... I really hate my life. The emotional and social problems it has caused me makes me want to die. I finally told my ex... He treated me more like a piece of shit and was verbally and emotionally abusive. I feel all alone. I just want to be happy I want to feel normal. and I want the love of my life back.
Its hard to love yourself exp when your in constant pain, hoping u can find somebody who can share that with you?
Heather Pala 😓😔😔 verry sad
I tried to live normal but I gave up and hooping my medicine and results be always okay so I can work or do something minimize my depression and tension
Doctors are seriously evil and negligent. I have had ALL of these symptoms for more than ten years. Yet because my tumor is a benign MICROadenoma they wont remove it,diagnose me with Cushing's Disease even though my bmi is over 35. My bmi used to be higher. Then I received bariatric surgery,but still am technically"obese". I have had many blood tests with cortisol higher than normal by two points. Yet No neurologist referral,Cushing's diagnosis,more future testing. I am allergic to cadmium and thimerisol so getting an MRI to "monitor" the tumor is out of the question. I have very little if no libido,severe migraines especially right before my periods which are at times an absolute nightmare.
+Lana Howard Have you been to a pituitary specialist? If you haven't I would highly recommend it. You can find a list of pituitary specialists on our website at www.pituitary.org. They are listed under the Resources tab along with other helpful resources.
***** They wont do it.
Did you have a brain MRI with and without contrast?
I similar to you re weight issues and migraines , topamax for my migraines helped migraines and with weight loss, miracle, google it, ask for it, some small side effects like bit of faint nausea but they disappear after a few months. Only thing after many tires of others that helped me. Goouck all the best xxx
Lana Howard your not going to believe this, I had my MRI here in Australia yesterday and they Had to go ahead and do it without contrast dye because they couldn't find a vein to insert the IV!!! I have notoriously difficult veins and I purposely didn't drink much of anything so I wouldn't be busting for a wee stuck in that machine lol! They went ahead with the MRI anyway cos they said they got good clear images cos I was so still. But with pituitary stuff they really wished they could have had the dye. I get my results tomorrow. So I guess I'll find out if I have to do it again or not! Isn't that ironic!? Anyway all the best to you :)
I have had a pituitary adenoma of which I was required to undergo for rain surgeries. Those did save my life. However, I have had depression, anxiety, irritability, etc. etc. for many years, and I have to find it every single day. I see a psychiatrist, a psychotherapist, and I take plenty of medication’s for it. It’s what keeps me alive. I also have a very strong faith in God and a great family. I do go to church, and that is definitely helping me. However, sometimes I don’t know if I want to cry, scream, or if I’m overly happy. I can’t work because of this thing so I do get benefits from the government. That has been a lifesaver. Even though this is not a malignant tumor, it can still cause hell in one’s life. There have been days where I have had so much anxiety that I can’t function. Like I said earlier, I have to fight through this every single day. I know what you guys are going through. This tumor has also caused a lot of other medical issues. Luckily, most of the tumor was removed through surgery but I still have remnants left. I have to go for an MRI tomorrow morning. I am a little bit apprehensive about that so we’ll see how it goes. I love y’all! Take it one day at a time.
pituitary tumour it can turn life upside down, it’s so painful I kept passing out, now I can’t ever remember having it at all, it was not pulled out of my head, it just gone
I have a pituitary tumor
I was diagnose at 8
my 1st Doctor wanted to operate but once they stared to discuss the risk
and possible blindness
my father backed out and got a second opinion
my mother was all for it because she knew the pain I was going through and the erratic behavior.
my father wasn't really around but still had equal rights to me so the doctors didn't operate
well , 11 years later I'm lashing out more acne worse
weight gain.
low sex drive and most scary of it all
I'm getting more violent towards my family and harmful to myself.
And when I'm angry I told my girlfriend
to "get away just run if you have or
even call the cops just plz get away.
because I don't recognize myself when I'm angry just go
somewhere safe"
Knowing her she will try to stay by my side and reason
But there no reasoning.
With this hurricane of anger.
This tumor is the worst thing that ruin my life since a young age
and only making it worst
And the anxiety it bring on top of the depression
trust me the list goes on
I have no Medicare or insurance hard times for me to get help.
I'm Grown now and I'm pushed into the world at 19 with this monster hunting me.
I am so sorry for what you are going through. Please try to find some help, there are treatments available. Try the National Institutes of Health or look for a pituitary center near you, they may have programs available for the uninsured.
king Jones the Spurs fan!!!! I totally know how you feel! I remember being bullied at 8 years because I started developing into a young woman before everyone else, they started calling me a nasty name and the boys in my grade must have been told too. It was horrible. Never though growing up would be that pailful, then having to be teased for my acne a few years later, then going through severe depression etc. Now I'm on a cocktail of meds just to make me feel happy each day. Now I feel I may have crushings disease as I have had many of the symptoms for years but suddenly in the last month i have had some more come up. I never get hungry and have struggled to actually eat food and in the last 2 weeks am constantly hungry every couple hours especially at night. Mine is only a small tumour and my old endo has told me nothing has changed but things don't feel right to me, I'm seeking another opinion but have to wait 6 weeks. I hope they can fine something, I'm in pain from headaches and muscles, I'm tired all the time I could nap every day i just want to be a normal young woman even if just for a few years.
king Jones the Spurs fan!!!! Ouch bud
They only want donations 😢@@pnainfo
I was born with my tumor. I didn’t know this at the time though. At age 11 the doctor told my mom I was obese and put me on a diet. Spent a lifetime of this with doctors until I started to go blind in 2016. I was 56. My tumor was 1.7 CM. Had 3 surgeries in 18 months. The last one they removed my pituitary gland.
i had to go to NORTHWESTERN hospital and get my very large achranoid cyst drained , my headaches were massive & super severe for many years.. called crazy in my home town.. misdiagnosed in my home town ,so CHICAGO's NORTHWESTERN saved my life...
I went to Chicago NORTHWESTERN.. Dr James Chandler saved my life.
anonymous..
Wow! Similar I had a cyst ovary right after it was removed I haven't had a migraine! they said there is no why or reason! but thank god! Since I got my period migraines they are in my mom's family.. but we thought my mom just had migraines.. no idea she had a tumor.. grapefruit sized biggest they ever saw.. just no idea why the MRI didn't see it.. :( hope ur feeling better
Yes it is, I am facing problem after my biopsy.
She called me paranoid. The only thing that bothers me is the truth that people make remarks about my fair skin and my light hair. No one listens to me. I am fifty-two. It’s been a problem that the doctors refuse to help me out with. I don’t know how to convince them that they are wrong? They think they know so much.
My endocrinologist didn’t speak to me for 4 days because I proved her wrong that I had something wrong with my glands… that’s why you gotta demand for tests to be done. Just make sure to research first, educate urself and make it happen
My endocrinologist suggested I seek psychiatric help…. I was like are you serious right now…??? So I demanded a test for fsh and lh levels to be done. And sure enough my levels came back abnormal. She had no choice but to send me on my way to get an mri
@@adolfoonly m....,,.,
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@@adolfoonly this happened to me as well.
I had an infection in my pituitary and now I don't have one at all . Life is hard
How did you get rid of it?
How r u now
@rn5992 HI, how am I? Well I'm thankful I'm still here but since the infection life has been a bit more difficult than before. I could write a few pages on this but the latest symptom of having a challenging immune system is neuropathy in both feet and its creeping up my legs. It's getting harder to walk but I keep pushing through. Plus it's like always having the feeling that im coming down with covid or a bad flu. If you want to ever k own more just leave a message. Take care and thank you.
Lana Howard...is that a pic of Nina Hagen? I went to her concerts and still love her music.
I have a pituitary tumor is not big but I having a lot of side effects from it. I can’t sleep well I have uncontrolled anxiety I feel that I’m going crazy plus my depression is making it worse. I never suffered from anxiety or depression, I don’t feel like myself I’m always tired I feel like I have no life. My doctor give me cabergoline but that medication is to strong for me. Now my doctor told me to not take it anymore but I’m concerned because the tumor is still there and I feel like my anxiety is getting really bad, Plus I have mood swing I can’t concentrate is like I’m losing my mind 😭 and the sad thing is that my doctor told me that pituitary tumors have nothing to do with anxiety or depression 😞 please if someone is going through the same as me please tell me. I really want to feel better thank you.
It really does affect you mentally. I feel like they tell you this so you don’t make an even bigger deal about it but yes these things do make you think you’re losing your mind. Lots of cases are like you. You need to see an endocrinologist and get an mri of your pituitary gland. I’m currently going thru the same thing. It sucks i know but you have to tell yourself it’s not you causing anxiety but the tumor or mass that is sitting on your gland is. You’re not crazy. You are being driven crazy because of this mass. I’m going for my second mri next week and god knows if I find a mass there I will have so much relief in a good way
Just remember this can be removed and this problem can be solved
@@adolfoonly thank you so much I really need it to hear that. I’m go to look for another doctor. Because this is kind of scary!! Hope that everything goes well with you 🙏🏽
@@yolandabatistamendez7680 I appreciate it. Take care of yourself and yes you absolutely need a second opinion and a third if need be… your health comes first. Educate and inform yourself. God bless
@@adolfoonly thank you same to you 🤗 right now I’m in the emergency room because the tumor for some reason is putting my sodium low 😞 I feel like crap.
This is what I am dealing with for the past 27 years
Have you been diagnosed ?
Deliciously 90s that video
5 years ago they found a micro tumor and a cyst. It was producing too much prolactin. I waited to see a doctor after a year without a period. I only took medication for it for a few months which regulated my prolactin and now I've had consistent period cycles for years without medication. But I've been facing mood irregularities since i was an early teen and recently was given medication to treat bipolar disorder. I do have family history with it, my grandmother. Her sister with depression. I'm trying to now understand if it's really a mood disorder or my pituitary tumor. It's very confusing and seems like a hopeless journey to figure out..
Find a pituitary specialist to help you sort it all out. Pituitary endocrinologists can test your other hormones and find out if there is something else going on. Here is a link to a list of pituitary specialists who can help you. pituitary.org/medical-resources/physicians
Hey girl, I dk if you’ll see this comment. I also didn’t have my period for almost a year. What medication did you go for ? I know they usually give you 2 options to treat pituitary tumor for high prolactin levels which cause missed periods.
I haven’t been officially diagnosed bc I don’t wanna do an MRI with contrast. The thing is that it’s crazy all the symptoms that ppl mention. But I literally don’t have any ! other than my missed periods. I don’t have depression, no headaches, only one person gets me angry lol (but he gets everyone angry so that’s not just me). I have a lot of energy, haven’t gained weight/loss weight, no anxiety unless I have to do a presentation for class. Literally no symptoms other than not getting my period.
3:22 is literally me. It's what made me get an MRI. I started having constant anxiety and panic attacks from little things. I had my prolactin secreting pituitary tumor removed, but 2 years later, I'm still a mess! Don't know what to do :(
Awe ... So sorry that you were struggling ... Hope things have improved for you 1 year later !.... my daughter had been suffering with undiagnosed weight gain after her son was born she’s continually gaining weight ... extreme relentless fatigue ... she’s had bad facial pimples for many years ... not acne per se’ but always 3..4..or 5 big pimples irritating her trying to cover them up !... she has no appetite at all and when she does eat she feels nauseated ! ... I’m really concerned about her ... I keep thinking she’s too young to have anything too serious but unfortunately people are getting serious illnesses younger and younger nowadays ... I’m not sure how old you are and at 26 I’m sure this kind of thing isn’t common but probably possible ? ... If you have anything to contribute to my post that you think might be pertinent would love to hear from you 😊 ... Thanks
angela gouldsborough hi! I am pretty much recovered now! No panic attacks or depression, anxiety here and there but nothing serious :) I was 19 when diagnosed, 20 when the tumor was removed, now I am 24.
angela gouldsborough has she gotten a colonoscopy or hormone levels checked?
jtv612 YES ON BOTH !.... nothing suspicious on either test....
I have one too Im a 63 yo male.. It has been a problem for about 15 years but my previous doc was incompetent . My prolactine is 83 ish and they put me on Bromocriptine.The treatment makes me nautilus (sucks) and I have a compulsive action too. . It also crushed my testosterone (which left me too weak to do anything but sleep18 hrs a day) sweating. vision issues, ED, headaches and dizziness, trouble concentrating. Lazy docs are a bitch.. My diabetic doc said "I DONT CARE ABOUT THAT" She is gone too. If that little voice says something is WRONG find a new doc. Your life depends on it. For me only time will tell early days.
have had panhypopituitarism most of my life and the facial roundness/size has affected my social life. not many decent looking women want to date a guy with a round face and thin
arms
God vl heal u🙏
My mom sadly was never diagnosed even after she survived both her lungs collapsing.. weight gain.. thinking her menapuase was close! that was not it.. her symptoms.. were crazy.. hot n cold.. hot n cold.. sleep n than couldn't sleep.. her head always hurting.. until she pressed on it... that should of been a bazooka moment! but even her MRI.. months before didn't show anything.. one morning May 21. 2010 she passed.. and they found a grapefruit sized tumor and her heart was three times too big.. why? oh why? did they not know.. I cant fathom it..
My heart is crying when o read your comment 😕its sooooo sad May her soul rest in peace Why the tumor couldn't be. Shown in mri wasn't there something else they could do to diagnose her...its heartbreaking does your mom had symptoms of sleeplessness??You are brave May god bless you in every step of your life Ameen stay blessed
cool beat I have problem with slepless
@@markkarlatec3176 don't worry take black seeds empty stomach think less stay positive May God heal and cure you completely Ameen stay safe stay blessed
I know words can’t take away the hurt you’re feeling, but I want you to know how much I care. Sending you love and strength for ur mums loss.
unnecessary loud music..couldnt hear what the guy was saying
My wife has a childhood third ventricle tumor since about 7yrs old. Now 41, migraines, body and spine/neck pain, sometimes knife in temple pain, very anxious type, stays away from people like a wild rabbit. Very distrusting. Night terrors, yet goes right back to sleep not remebering them.
Hello, this comment got my interest, I wanna ask you question, did the tumour had something related to growth issues?
@@ZeumaNeXea she had no abnormal growth spurt or deficiency.
@@JJM-f3h Oh, interesting. Thank you for reply by the way
Im beg for surgery, i have this tumor for years, in 4/2023 ...my eyes was watering,painful,first eye doctor "pink eye" started worsted headaches, nausea,another eye doctor sendme E.R they find a pituitary tumor, after i loss my job of 28 years,im in medicaid,now my regular doctor referred me to different doctors, my hormones are normal...but loss sometimes my vision, headaches, nausea, i fall 5 times,i live in Nevada...no sympathy from my symptoms, waiting to grows!! Give medicine for migraine 😫 dosent work 😢
So how r u now? Wht kind of vision issues do u deal with
I still haven't help 😢
Thankyou for this video. Any Pituitary disease/Adrenal Glands. I was wasting away to 89 pounds until they finally diagnosed me with Hypopituitarism and Pologlandular Addisons. The mood swings cannot be blamed on mental when it's physical. Take Care everyone who has this and similar. I've been on 30mgs of Cortef for 17 years now..I'm 45 years old and the cortisteriods are life saving, but cause alot of side effects and damage. Stress....
The left side of my body went numb back in October suffering from Long Covid come to find out in the ER getting an MRI they saw something odd about my pituitary gland and had me see my PCP who sent out another MRI Stat! Then I was told the other day one side of my Pituitary Gland is bigger than the other and I have consultation with a Neurosurgeon on the 13th of December.
So wht did the neurosurgeon say
And all my doctor tells me to do is lose weight which I can’t because of my genetics, PCOS, pituitary tumour, Cushing syndrome and early menopause (I’m 23)
I had partial empty sella
It is very hard to me..due depression and anxiety low sex drive
My sister is also suffering this desies please help what I do for her
Where you from...
Can some recommend me to a goood endocrinologist in Las Vegas Nevada
Hi can anybody help me with the good endocrinologist in New York please? Thank you
What part of New York?
I think that I have something wrong with my pituitary gland. I mentioned this, but the stupid therapist who seems to have a love for indigenous Americans
One in five has some version of PTSD? yeah, I believe that
How about a brain MRI with and without contrast?!!! No MRI for me for 20 years!!!!
good news! I don't have one for another 5 years! Im so happy about that!
I had my first one 8 yrs ago. I had one a few wks ago. I’m having my 3rd one this wk!
The last one showed my pituitary was enlarged I had pituitary tissue on the floor of my sella also going into my right sinus cavity. Wish me luck 🍀
I hope you both live a long healthy life z
Thank God for his Grace and healing ❤️🩹
@@mrs.Italy.D let me know if you will be going through surgery. I have experience with that. I am now taking a monthly injection called Somulatine Depot. Let’s keep in touch!
@@starfishjennie I would love to! I’m scared.
Do you have ig? On ig my name is the same as on here.
@@mrs.Italy.D I think I followed you on ig
Studenci WUM przejmują ten filmik!
9😅😊9