Living with an extreme disability | DW Documentary
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- Опубліковано 12 січ 2020
- Markus Behrendt and Christine Wagner-Behrendt from Kassel have been taking care of their son Jascha for 13 years. He broke his neck in a bicycle accident when he was five years old, and he's paralyzed and given artificial respiration ever since.
Jascha can only communicate by blinking. His family does their best to live their daily lives as normally as possible. His two sisters, ten and fifteen years old, do their parts, as well. Markus and Christine have started the Intensiv-Leben Association to support other families who care for disabled children. For their efforts, they were awarded the Bambi in the "silent heroes" category last year. We observe the family going about their daily routine. A Report by Melina Grundmann.
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I'm totally blind, and my brother is a TBI survivor, due to an overdose. These parents are blessings!
Hello..
I'm so sorry, no offense. Just curious.
If you're totally blind in both of your eyes, so tell me. How do you can type the sentences so good like this?
@@berliancahyadi279 I'm not offended at all. It takes years of practice, to learn to use a screenreader. It involves muscle memory, once you get used to typing with a keyboard.
@@chantelcuddemi7646 Screenreader? What kind of thing is that?? 🧐
@@berliancahyadi279 I think just something that says what's written on a screen out loud
The bike accident scared the shit outta me. I’ve had my close calls with that same situation when i was younger. Stay blessed
This is a good documentary. So awesome that they give him the same meals with the family. As a person that survived on a tube for 3 yrs, giving complete nutrients and including him in meals is so important. What a beautiful family!
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Don't really see the point in the blenderized meals. It wastes a lot of time for his family members, he can't taste it anyway, and meanwhile it is imperfect nutrition (as 99% of normal people's diets are) when he could be receiving near perfect nutrition via medical supplements.
Sure it a nice documentary
@@sarahsays6603 ❤❤hello Sarah
@@sarahsays6603 hdddg
One would be so lucky to have that kind of support, in such a situation.
Accidents, like what happened to this boy, are the reason I'm terrified while my boys are doing minimally dangerous activities... But I've gotta keep it in and let them enjoy themselves!
Boys will be boys
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May God bless the family. They are like a light in this crazy world. Thanks DW for the tears, needed it.
Aww you're welcome :)
I have a disabled sibling and boy does he bring me the most joy in this life. I am using this video for my Psychology project in college I want everybody to look at life from a different prospectives to help us all learn and love one another unconditionally.
Excellent perspective!
I'm following your pain. I myself have a beautiful daughter ( our angel) with special needs caused by a Doctor's mistake. She was given a month of life. She is now 39.May our Lord strength you all.
WELCOME TO THE GREATEST SPELL TEMPLE.
A place were all problem are solve, I can help with the following problems,
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Spell against virus and illness
Hi
As a TBI survivor twenty three years ago at 9 years old, I feel for Jascha. I'm glad he has a loving family and siblings. I really hope life will be kind to him. From USA, Texas.
What's TBI?
@@danielmarsala849 traumatic brain injury
@@danielmarsala849 Hi Daniel! Apologies, I should have been clearer. It's Traumatic Brain Injury from getting hit by a car.
It's heartwarming how supportive his family is, and heartbreaking how presumptuous the comments are.
Hello..
He is such an inspiration to others and you parents are the best .. such love is perfection in purest form..
I know what it's like to live with disabilities cause I'm fighting with my illness. I survived a motorbike accident and get my head injured. My left eye and ear are malfunction leading to a very hard life. I cry when I watched this video :(
May god protect this family...biggest respect..these are the true heroes in our Community
His story resonated a little with me. When I was about 6 years old, about the same age when he suffered his accident, I fell down the stairs, after that I remember waking up in an ambulance taking me to the hospital, but... unlike him, fortunately, I was absolutely fine. No serious injury.
But I fell down the stairs.. What COULD have happen? It frighten me to think about that. Maybe if I had felt down in a slightly different way I would have broken my neck and become quadriplegic and this would have changed my whole life, I wouldn't be the person I'm today, my life and my family's life would have been waay harder.
This video just made me to think about this event that happened all those decades ago. I was just lucky, my accident became just some old childhood memory that I sometimes remember it existed just to forget it 5 minutes later.
So important for everyone to make an effort to understand disabled people are just like us, they are beautiful human beings. All my best!
Thanks for the love
I am really glad he has such a loving family. His parents are especially amazing and hopefully in the future he can recover from this accident and be his normal self again.
There's no way anyone can ever recover from an injury like this.
What a beautiful family ❤️
This young man has a kind family that loves and cares for him that is great. I worked with medically fragile children like this young man. They have a sensory room and beds that vibrate. We also use Hoyer lifts to help move the childern safely. I love my job.
Hello..
@@michealrobert6655 hey
What a wonderful family!
It must be such a high level of injury, I’ve not seen a person with their face affected
He’s a very lucky man to have a family that loves and respects him for his disability. He’s a marvelous miracle and I’m glad god kept him. You all are a bunch of wonderful people. God bless you and your beautiful family.
Overcoming a disability is whole other beast.. best of luck life is all about moving forward
lovely family
It is so amazing how the familiar love can do whatever thing posible and endless
Oh poor that guy... God bless him and his wonderful family
Amazing how each family member does their part. What a tremendously blessed family. Papa God watch over them.
I hope with how tech and medical advancements are going, that he some day in the future will be able to regain what he has missed. Stem cells, crisper cas9, and many other things are on the horizon to help people like him. Hope your days are swell.
What about those disabled like ME who CANNOT be helped by any science or tech because their appalling life ruining problems are beyond such help? THEY need providing for.
@@majorpygge-phartt2643 in due time
@@Mr_Banker222 Oh yeah, when?! Like next century. The way things are going here in the UK it's looking like it'll take at least that long for severe misophonia and extreme HEAT intolerance and uncontrollable profuse sweating to be properly and officially recognised as disabilities, which they most certainly ARE! We need ACTION, NOW, NOT next century, or next millennium! So come on boris, get your fingers out and get it DONE!
@@majorpygge-phartt2643.. 😐💀
@@majorpygge-phartt2643 stop whining
He has a lovely life and family. Praise God.
Hello...
"lovely life" u serious?
Be serious he sadly doesn't have a lovely life
@@idontcareidontcare901 for someone who grew up without a family I'd give almost anything for that. He has people who cherish him. He's precious to someone. How is that not lovely?
@@iwanttosleep5053 he has people who adore him. He's never lonely. He has a family. I grew up without any of that but was beaten up by my own mother while his cherish him. That's lovely.
Very lucky that Germany has such great health insurance.
Poor boy 😪
It’s funny
@@ghkezsw2542 no it's not..
Strong amazing beautiful family ❤️
Hello..
At least they're well off but all in all one can't consider how lucky they are to be able to do everything normally
God bless them all!
Damn dude, stay strong💪
I hope from God to heal him🙏
Kind of horrified that his school caregiver is suctioning his trach with no gloves on. It's supposed to be a sterile technique.
I love the love you give
Is he able to use head switches to use a computer/tablet, drive a power whèelchair or to turn off and on items such as a tv or a lamp to give him some leve, of independence?
I would assume it’s possible- for example, there’s already technology for people with ALS to type and communicate just by using only their eyes (Stephen Hawking is a good example)- so I would assume a device like that would help Jascha communicate more effectively as well.
brave
Seriously, does this guy really want to live like this?
Has anyone ever asked him that question?
I don’t see any quality of life.
I’m a disabled person and have to admit I wouldn’t want to live like that … barely want to now and I’m no where near that severe
If love is madness, then I have complete faith in madness
Life can be unpredctable.
May God help you
So heartwarming.😘
the syster is so preatty
I used to look after a boy that can't walk or talk and he would smile when at me
Death is not the end people this life quality is awful I certainly like to end it if i end up like this 50-60 hours a week>? Who will care for him once his parents get too old? Life is for living not being alive for the sake of life. There sacrifice and hard work will not go unnoticed by Jesus
terrible things happen to people like this poor boy unfortunately such is life. now for myself I could not imagine being a burden on someone for an entire lifetime stuck in a useless body. for me death would be more preferable. I don't blame the family for loving their son and trying to hold on to him but sometimes you just gotta let go
C4mp3r01 he’s living life. He goes to school, he is living his life. His parents love him and he loves them. He isn’t a burden to them.
Kathleen Stevens life? you call being unable to move talk eat or breath on your own life? his only means of communication is blinking. I have no doubt that his parents love him but what happens when they are gone? The boy will never be able to take care of himself. either one of his siblings will have to totally give up normal life to care for him 24/7 or he’ll be stuck in a miserable facility for the rest of his life.
C4mp3r01 HE wants to live is my point. he tells his parents what he wants. If he asked them for the right to die, they would fight for that right for their son. The parents and siblings love him to the moon and back. I’m sorry for you if you think he wants to die, because he does have a right to live if he wants to, and it’s obvious he does💯👌🏻want to live.
@@kathyinwonderlandl.a.8934 but did they ask him if he wants to die? Or did they just assumed that?
Direkt they would easily fond out of he was in distress and wanted to die, vetter than you at least. What I Saw in this video at least he clearly wanted to and is enjoying lider,sure that Night chance in the future.
god bless him and his family they are so strong but why are they making him do math no kid likes math like that must be so stressful for him honestly. also idk i just worry he is in mental pain since he is so smart and aware and i just hope he is happy i really do
I am assuming the family has explored various communication devices such as eyeball technology?
Hello..
Just wondering.. Is that 10 years old a girl or a boy?
I have a question. Are expenses incurred in taking care of Jasha subsidisedby state or his parents have bear those cost entirely by themselves? Costs like full time carer, oxygen cylinders and all I mean.
In the UK its all free, Germany is similar
He is smart
May God just heal him one day.
There is no god my friend
A fate so much worse than death. It always astounds me how "loving" families can be so horrible as to keep such extremem saccident victims alive, just to force them to live out miserable existences. And they even delude themselves into really believing that they're doing the right thing
I absolutely agree!! It's inhumane and horrible!!
@@blairariavanderkamp3405 I’m disabled and even my reaction was that’s just cruel its existing not living
I wonder why then the boy in the video says that he wants to live. He nodded. He wants to live. Who are you to judge how he is living?
I would prefer to die if it were me 😓
I’m a disabled person if I was that severe id prefer that to
I would not, so be sure to write that in your medical requests if something happens to you but don't be hasty to decide for others.
@12:15 Move him where?
disabled people have rights to live and just because the childs disabled doesn't mean the mum wanted a abortion
He should be on SBSK
I wonder if he would benefit from aac table or sgd tablet?
He may speak again - even sing/or create music
🥺❤️
I never understand why people still make their kids go to school when they are like this. Do you think the are going to get a job one day or even write a text.
Subtitles would be so much better tbh, very unnatural to listen to it dubbed
May Allah bless the boy and his family
According to your faith Allah is the one who has destined everything, which includes good things and bad things (like accidents and sickness). Furthermore, he, supposedly, will destroy all the 'unbelievers' (non-Muslims) anyway. So why are you making such a hypocritical comment?
@@BetwixtDandD Why are you trying to start a religious flame war when the guy said something nice and simple as hoping that God blesses him and his family?
@@BetwixtDandD we know what your doing, why are you trying to start a religious war?
Absolutely terrible. He should have never gone through this or die
That's so cruel to keep him alive
Perhaps even this life can be worthy to that person. He can feel and live through prison of his broken body and that is something rather than void of nonexistence after death. I really dont know if I personally would want to live like that, but I recognize that this life can have immense value we dont see from our point of view.
@@TheIgdrasil1 dude I'm just joking around.
Nov Home if he wanted to die he would tell them. He goes to school and he lives his life.
Nov Home wouldn’t it be ironic if something like that happens to you? Life has many ups and downs, and lessens to learn..
@@kathyinwonderlandl.a.8934 I would want to die 😜
locked-in syndrome?
Ya it makes me laugh how helpless it is
Try turmeric, honey and black pepper bland all together,
Dude , u being serious?
just wow...so stupid
I'm sorry, but I really can't understand why he needs to go to school.
I know he should live a normal life, but this is ridiculous, useless and a waste of time.
His mind still needs stimulation. If his brain still functions normally, no reason for him to not go and learn.
Keeps his mind active bro do you want him to stay at home and let his mind waste away as well. I know the e.g I'm gonna give now is not really relevant but staying at home for 3 years a degree holder can really mess up a person.
@@AndreaHa There must be other ways to stimulate his brain that don't involve all those people dedicated to him, a whole classroom disrupted, and this helpless boy dragged around the town on vehicles and machines.
Fausto Levantesi - I have a disability, I’m blind and I use a wheelchair full time.
I cling to the days that I leave the house to go acoustic rifle shooting.
I don’t get to see people other than the people at the shooting club and my carer.
I would love to continue my education and get out of the house more.
I crave real human interaction, social media isn’t the same.
Billie.
@@billiebluesheepie2907 Yes, but at least acoustic rifle shooting amuses you and entertain you.
Now somebody explain me how mathematics can amuse and entertain a boy who will never be able to apply any of that knowledge, NONE whatsoever...
Do his parents think he is like Stephen Hawking or what?
1
mohmmed AD thank you for your contribution to this world... 🥱
Thanks for reinforcing "number 1", which is lower than number 2. If others could see what we see, the world would be very different indeed. I understand your message.
Not a comment about the content but the way those documentaries are made. Multiple lectors with thick accents, unable to properly talk are incredibly annoying. You want English speaking people to watch this? Find one lector for all documentaries or even better - include subtitles and the original language will be retained. It will provide realism of what people are watching and serve as a reminder how international those documentaries are.
Huh? The voices are perfectly easy to understand and having different voices for each person makes understanding easier because you can know when it's swapped to another person talking
Hell on earth is to be under the care of god and church, as one is paralised, or too ill, or too handicapped, to get out of the slavery of the kingdom of god.
I am deeply sorry for Jascha's condition but what's the point of keeping him alive. Where does his life leads to? And those math classes... come on! what a joke! "Jasha learns like the other students do"... then the teacher shows him something, Jasha blinks, done.... what's that good for? you are deluding yourself, all the people around him. You think you are doing good, but you are not.
I am similar to Jasha. I use my eyes to controll everything I do. They said that mentally he is aware of everything. Just because you aren't aware of what his day to day life experience is, doesn't mean that from that short clip you understand what his entire existence is like. With my eyes and head/mouth I can drive a wheelchair, I'm doing a computer science degree at the moment, I can play video games, chat with friends, browse youtube, make comments like this! It's absolutely a life worth living. It's a big difference to someone able bodied though so I can understand why so many people say they'd rather be dead and once I said the same but you just adjust and move on. There's so much tech to help these days. And living in the UK, I'm not burden on my family. I live in my own flat, I'm not bankrupting them just to live. It's a shame that so much of the discussion I see where people talk about how much of a burden a disabled person is, how when parents die the sibling is stuck with them forever etc but that's not the disabled person's fault, it's the fault of a country that hasn't got enough systems in place that you don't need to sacrafice either your life or your bank balance just to give someone a life. Even with blinks, it's more than enough to communicate when given patience. Look at Stephen Hawking. They clearly described how they knew that he wanted to live, if he didn't it would be easy to have let him go if that's what he desired. Try asking and understanding, not just viewing it through the lens of your own existence
@@unknownentity7964 Thanks for your comment. I really changed my mind after reading this. In fact I myslef occasionaly meet quadriplegics and similar in train or in the streets and often they have the most genuine smile and radiate positivity whilst common ppl often (here in Eastern Europe where I live) are grumpy by default. I am not sure why it is but my hypothesis is that in our currenty system everything is too easy for ppl so they get bored and are unhappy while for disabled ppl even basic everyday things are challenging and overcomimg these makes them content?
@@anonymnianonym you're welcome! I do absolutely understand why you'd have that view, as from the outside my life probably looks terrible if you're not aware of all the possibilities these days with assistive technology and such.
Even people mildly disabled aren't usually aware of the things I use that mean I can have a full functional life. I mean let's face it, plenty of able bodied people haven't even done a lot of the things I have! I think places of work are just starting to be aware of how disabled people can be useful to a company and the particular skills and outlook we bring that other people might not have.
If I can help even 1 person in my lifetime to understand how people like me and the guy in this video are able to lead a life worth living then I'll be happy!
I also am very aware that me living in the UK is a blessing that a lot of people don't have. A lot of other countries don't have funding for enough help we need so it's left to a family only. That's not fair for the person or the family, how can anyone live a full life if the constant worry is money and how to manage that long term. Plus having access to the right technology, wheelchairs, that kind of thing isn't standard everywhere and I'm also very grateful that I'm able to access that too. Without it, my life would be a lot worse
I think everyone has things in their life that could be better if we had that 1 thing we need. Like, stable housing, education, money, people to support them, whether they have a disability or not. But it's a sign that society is evolving for the better that more and more of these people are being supported and allowed to reach their full potential!
@@anonymnianonym you've got a good point about the success making it a lot easier to be satisfied in life compared to people without as many struggles. I know how much worse my life could be if I was even born just 5 years earlier so a lot of disabled people I know are more aware than most people about how truly lucky they are. They've often had bad times in hospital, in bed etc where they couldn't go out so when we can do those things, it's a lot more significant and worth being happy every day for. Whereas most able bodied people will view work as boring and a bad thing, I'm so excited to be working soon! It's all about perspective :) you're doing an awesome job that you're able to change your mind. A lot of people can't admit that
I have a small pp does that count as a Disability?