Umama Aisha I am so sorry your daughter has CDG but also my son Peter was the light of my life. He passed aged 39 . I will be honest with you he overcome many illnesses and surgeries. Children with this disorder do seem to be very strong and also there are about 140 types. I never found out Petes type because I didn’t know CDG group existed till a week after Peter passed. Are you in touch with CDG group on Facebook?
My son Peter had CDG he passed away 17/12/18 I miss him every day 💚
Karen Hackney am sorry to hear that my daughter also Diagnosed with CDG 😞 she is about be 1 how old was he ?
Umama Aisha I am so sorry your daughter has CDG but also my son Peter was the light of my life. He passed aged 39 . I will be honest with you he overcome many illnesses and surgeries. Children with this disorder do seem to be very strong and also there are about 140 types. I never found out Petes type because I didn’t know CDG group existed till a week after Peter passed. Are you in touch with CDG group on Facebook?
Karen Hackney am so sorry 😭 no am not if you can give me the link for that I’ll appreciate 🙏🏻
Karen Hackney if you don’t mind giving me you Facebook information it will help a lot
@@umamaaisha4818 look for karen lesley in Chester uk. I'm not very good with technology so I will try and send link.