I wish so much any one of the doctors I saw would have understood I was sick instead of trying to get me out of there office. Getting care once your brain is messed up but not diagnosed is basically impossible
I got my hit by a drunk driver 6 months ago and was constantly forgetting stuff and repeating myself, extreme light sensitivity, balance issues, and extreme fatigue. I lost my job, relationship and basically went broke, I went to my local doctor for guidance, but she basically told me there was nothing I could do. It takes almost all of my effort to even preform basic task, things that required almost no effort are now incredibly overwhelming, I’m terrified to look like an idiot during job interviews, and I really hope I can recover back to what I was before. I’m 19 and was just moving out of my house has recently purchased a car, it was totaled, insurance company didn’t want to pay anything for it,so I couldn’t get anywhere, missed appointments, I kept forgetting about them. People were saying I was being dramatic, but I was seriously struggling every day, I’ve definitely shown signs of improvement in the last couple months, but I got a ways to go, hope anybody who’s reading this also recovers🙏
I was in a very similar situation. I didn't really start feeling any kind of normal until at least 6 months after the accident. I'm still have issues and the recovery has slowed dramatically but I can tell here and there certain things were better than days before. Lawyers have been a headache. I'm in a lawsuit with my insurance company and I had to go to 5 doctors just to get confirmation that I was injured. The hospital I went to after the wreck didn't even physically examine me and my head was actively bleeding. Get a family member to help you with making appointments, people do not understand how impossible it is to get the help you are entitled to. I had to get a family member to make appointments, deal with insurance, make sure a even remembered I had an appointment and I still haven't everything settled but if you don't fight for yourself they will forget you exist much less try to help you.
Please see a Personal Injury attorney to discuss suing over this accident, the injuries you sustained, and the many losses. This is a big deal. Regards, retired paralegal
Please tell me how you are now I’m 19 as well didn’t have as bad of an injury as you and it’s getting better but I desperately need this to go away has it got much better for you or are you completely cured now?
@@GHOST445-ej4on and @poppz-11 I have a TBI and have been recovering from mine for a few years now. It can be done, you just need to get to the right people. You're going to need to see a vision therapist, physical therapist, speech therapist, and possibly an occupational therapist depending on exactly what's going on with you. Some of them will let you walk off the street and make an appointment, some need a referral from another doctor. Just give them (or ask a family member to) give them a call. You're also going to need to change your lifestyle around a bit. These are tips and tricks that worked for me. 1.) Eat mild simple foods that grow from the Earth and only drink water. Try it for a week. I know it sounds crazy "What? You think soda or coffee is going to kill me?" it's not killing you, sugar and chemicals stimulate your brain. You want everything nice and clean so your brain can heal. Some doctors will tell you to take fish oil (for memory) and eat a bowl of blueberries (for headaches) and believe me, they work wonders. 2.) Cut down on stimulation. Get off screens as much as you can. You're basically shocking your brain being online so be on here as little as you can. If you need to be online change the settings to dark mode, enlarge the text, etc. Don't watch fast moving videos, try to listen to audiobooks over reading if you need to do stuff for school. 3.) Sunglasses and hats are your new best friends. I feel like I've joined the FBI, I never take my sunglasses off but they're a life saver. Get a wraparound style sunglass. Play around with the different color tints. Some people like gray, some like brown, some like red, blue, yellow, etc. Try everything, you'll know it when you see it. 4.) Cut down on stimulation. Everything is stimulation. Sound, taste, touch, smell, movement, etc. Cut out as much as you can so you last as long as you can. Wear clothes you don't need to think about. Don't wear anything that jingles or clinks. Think about noise canceling headphones. Hang out in places with lower sound. 5.) Pay attention to lights. Do you handle fake light or sunlight better? They make lamps you can by that act like sunlight so get yourself one of those to use at night if needed. Mine is called an "OTT LITE" and it's made to cut down on eye strain. 6.) Figure out what you can do. Can you read? For how long? What happens when you try? Can you write, do math, walk, run, jump, skip? Can you read a calendar, keep track of time, make a clear list without getting confused? Find out where the blindspots are, write them on a list and show them to your doctor. You can't remember all this stuff off the top of your head, you need to be over the top ready to get the help you need or they'll scoot you out the door. 7.) Ask family and friends to make lists of things they noice you can't do or are struggling with. This is most commonly memory stuff but you're not going to be seeing what they're seeing. No shade on you, you just can't when you're the one having the memory trouble. 8.) Try walking with a third point on the ground. Get a hiking pole, a cane, an umbrella, anything that goes from your hip level to the floor. Hold on to that and use it to walk around a bit. Does your brain relax? If it does you just found your new best friend until you can get to physical therapy. 9.) Try everything. This is exhausting but just keep trying stuff until it works. Cut down on the amount of effort you're putting into things and how much it's stimulating you. Use a manual toothbrush instead of an electric one. Boil water in an electric pot instead of on the stove so you don't need to worry about burning the house down. Wear clothes without print (less stimulating to look at). Watch tv in black-and-white (if you really can't give it up) and watch the super old stuff (less stimulating). 10.) If you have any more questions please feel free to ask me. I'll help as best I can. This isn't easy but you can do it. It's a fight but you're a fighter, you wouldn't be on here searching for answers if you weren't. All my best to you, you can do this!
New to violent act acquired TBI. The symptoms of memory loss, light sensitivity, crushing headaches, nausea, and new stuttering are frustrating Amdahl were even mocked. The memory loss will make my employment much more difficult. Those of us going through this could start a stigma free support group. We get it.
I also have a TBI and have discovered that eating a big bowl of blueberries helps with my headaches, fish oil helps with my memory, and eating mints helps with my nausea. I wanted to pass this information along in the hopes that it could help you too. It's not easy dealing with what we're got but we can do it!
I found this very moving and informative especially coming from a fellow very frustrated brain injury patient. I’m so tired of doctors medical gaslighting me and not affirming my brain injury (I had a brain tumor surgery) but trying to pin it on my mental health
How do you get them to acknowledge and act accordingly?? As I’m desperately trying to get negligent mere GP claiming “no ABI” to acknowledge there IS one…
@@InJusticeAustralia Many doctors today are just salesmen for pharma. Besides that, they're afraid to actually "practice medicine," but must adhere to corporate designed protocols with the purpose not of healing but of making money. You may receive a treatment that is unnecessary and even harmful because it's covered by the insurance, while the needed treatment is withheld because it's not. HBOT (hyperbaric oxygen therapy) is not covered, but shooting radiation into the brain numerous times because it's covered can actually be harmful. Drugs are covered, while time in the sun with D3 and probiotic supplementation are not.
I was 16 months old, pulled a 1970's tv off a dresser onto my face because i climbed the dresser. It smashed the right side of my face, broke my nose, pushed my teeth back. in my 20's my impulse control was gone, I did things and i didnt know why. I also developed addiction problems, that i fight to this day. Learning that i had trauma to a very important part of my brain made me feel better about myself, I accepted it, and i am making progress. I at least know now what some of the reasons are behind doing what i do.
I had tbi 25 years ago and I've only just started to discover why my behavior and things are how they are I thought I was long term ptsd from the way the injury happened an unprovoked claw hammer attack
It's nice to feel validated about everything that's going on with me. I bewilder everyone around me, but to me it makes perfect sense. Hopefully I can get them to understand, or find a place I fit well.
I got my first diagnosed tbi in my senior year of high school during football practice. I was naive and did not say anything, I also didn’t realize I had one.l just thought I was sick. I played the rest of the season and it got worse and worse. School which was easy was now impossible, I couldn’t read, do math or literally think. I lost almost all my friends, to be fair I I tried to be a good friend but I literally couldn’t keep up. It’s been 2 years and this popped up on my page, I almost cried because I thought I was just being a wimp the whole time. I’m thankful to find people that have gone through this, and thank yall for making me feel not alone. I’ll pray for all of yall and Godspeed on recovery!
People with brain injiry can actually teach you alot if you listen. We aren't delusional. I don't have any emotion towards peoples feelings anymore. If I say something its raw and honest I'm not worried about how you perceive its just how it is. All the BS and ego and filters are gone, living with a TBI is just really raw. I figure almost like autism in a way.
Raw, yes. Unfortunately, people don't understand how hard it is to live without filters and/or attempt to use them. Because this requires intentionally managing our verbal and non-verbal responses. Which - for a brain injury survivor - is physically, emotionally and psychologically exhausting. Life is never the same after TBI. No matter how healed someone looks or appears to be operating.
@@PattyBlock i found it exhausting until I gave up on trying. I was a truck driver before my injury and I didn't have a professional image to uphold, nor any kids to worry about. I'm thankful for that.
@@PattyBlock in a way I was also fortunate that this happened at work. It has been a 3 year battle but I have just got an appointment for a neuropsych assesment. I'm pushing for substantial compensation now. They forged so many documents and lied so much, being on a permanent vacation won't shake my pride at all.
This made me think about how I sometimes watch clips over and over and repeatedly forget to pay attention. I don't mind taking longer to get it 😄It saves data lol. I'm trying to connect a lot of what's tbi and what's what from that. I don't consciously think about certain things that maybe are not functional and due to tbi. It's weird because I only know what I know, so I have to figure it all out. Stimulants and thc can both really help that process because they allow me to be more functional and see the difference in myself and reality. I only really know myself with tbi lol. I have to figure out what I'm even looking for. It seems like maybe that process for me has been what you're talking about with awareness issues. Valuable video. Thanks.
It is ruining my career and my life and I cant fix my issues no matter how mich i try to be normal and no matter how much slef help and meditation and self groeth and affirmations I do i just make the same mistakea over and over since my 2019 concussion
I have a TBI too and have been recovering from mine for a few years now. It can be done, you just need to get to the right people. You're going to need to see a vision therapist, physical therapist, speech therapist, and possibly an occupational therapist depending on exactly what's going on with you. Some of them will let you walk off the street and make an appointment, some need a referral from another doctor. Just give them (or ask a family member to) give them a call. You're also going to need to change your lifestyle around a bit. These are tips and tricks that worked for me. 1.) Eat mild simple foods that grow from the Earth and only drink water. Try it for a week. I know it sounds crazy "What? You think soda or coffee is going to kill me?" it's the sugar and chemicals stimulating your brain. You want everything nice and clean so your brain can heal and healing takes YEARS. Some doctors will tell you to take fish oil (for memory) and eat a bowl of blueberries (for headaches) and believe me, they work wonders. 2.) Cut down on stimulation. Get off screens as much as you can. You're basically shocking your brain being online so be on here as little as you can. If you need to be online change the settings to dark mode, enlarge the text, etc. Don't watch fast moving videos, try to listen to audiobooks over reading if you need to do stuff for school. 3.) Sunglasses and hats are your new best friends. I feel like I've joined the FBI, I never take my sunglasses off but they're a life saver. Get a wraparound style sunglass. Play around with the different color tints. Some people like gray, some like brown, some like red, blue, yellow, etc. Try everything, you'll know it when you see it. 4.) Cut down on stimulation. Everything is stimulation. Sound, taste, touch, smell, movement, etc. Cut out as much as you can so you last as long as you can. Wear clothes you don't need to think about. Don't wear anything that jingles or clinks. Think about noise canceling headphones. Hang out in places with lower sound. 5.) Pay attention to lights. Do you handle fake light or sunlight better? They make lamps you can by that act like sunlight so get yourself one of those to use at night if needed. Mine is called an "OTT LITE" and it's made to cut down on eye strain. 6.) Figure out what you can do. Can you read? For how long? What happens when you try? Can you write, do math, walk, run, jump, skip? Can you read a calendar, keep track of time, make a clear list without getting confused? Find out where the blindspots are, write them on a list and show them to your doctor. You can't remember all this stuff off the top of your head, you need to be over the top ready to get the help you need or they'll scoot you out the door. 7.) Ask family and friends to make lists of things they noice you can't do or are struggling with. This is most commonly memory stuff but you're not going to be seeing what they're seeing. No shade on you, you just can't when you're the one having the memory trouble. 8.) Try walking with a third point on the ground. Get a hiking pole, a cane, an umbrella, anything that goes from your hip level to the floor. Hold on to that and use it to walk around a bit. Does your brain relax? If it does you just found your new best friend until you can get to physical therapy. 9.) Try everything. This is exhausting but just keep trying stuff until it works. Cut down on the amount of effort you're putting into things and how much it's stimulating you. Use a manual toothbrush instead of an electric one. Boil water in an electric pot instead of on the stove so you don't need to worry about burning the house down. Wear clothes without print (less stimulating to look at). Watch tv in black-and-white (if you really can't give it up) and watch the super old stuff (less stimulating). 10.) If you have any more questions please feel free to ask me. I'll help as best I can. This isn't easy but you can do it. It's a fight but you're a fighter, you wouldn't be on here searching for answers if you weren't. All my best to you, you can do this!
13 years later, and I'm just now finding someone that explains how "different tools for different problems" applies to mental health. If THIS is the pace we're at, we're fucked.
One counselor explained my TBI to my wife as “your husband is different like has come back from a war”. This is a significantly better analogy. This video will be a great help with my family. I feel like my family is waiting for me to be fixed, get better, manage my emotions, catchup quicker. It is more akin to speaking or hearing a different language. I don’t understand sarcasm, innuendo, hints, connections. I connect the dots so I can sit back and see the whole picture.
I have Drs doing this stuff intentionally to cause anxiety. They press buttons in attempt to get you agitated so they dont have to work with you. This is Canadian healthcare.
I am 2 years out from my second head injury mva. The doctors did not give me proper cues as to how bad I was. They actually did not speak to me directly at all. I continue to struggle with fatigue, memory and visual problems. God is blessing me with financial support and a job that is supportive. Family helps a lot too. It's all so overwhelming everyday.
So i fell off a 2nd story balcony straight onto my head and had brain bleeding and lately i feel like my shirt term memory is really effected ill walk to the garage to get something and completylblank out and forget what i was going to get its getting kinda scary actually its starting to get worse and worry me im only 33
Short term memory loss is a common symptom of brain injury. It can cause worry but you are NOT alone. Here is some helpful information about a possible treatment: www.brainline.org/treatment-hub/treatments-brain-injury/memory-strategy-training
At age 17 years old i was in a auto pedestrian accident about 40 years ago and I watch a lot of videos on You tube.Awarences ,some people like you said after closed head injuries do not or are aware of things normal people do.Like for almost 40 years after listening to someone talk and I been looking years as to what this person has just said.In my accident my head swelled so bad my high school friends that came to visit could not recognize me because of this.
I’m noticing people in the comments with tbi’s. My question is why can their behavior turn abusive and manipulative? If I had to guess its based in the desire of wanting to connect be loved and valued and told you have worth and feel understood paired with the belief that isn’t possible. So basically the same struggle we all face just a taller harder to climb mountain.
May I know some examples of abuse and manipulation that they did? In my case back then, I just want to be given peace of mind because I'm always tired and people around me would often accuse me that I'm just pretending because I look normal - my case wasn't even mild. They would continually try to "catch" me and I get annoyed because they couldn't understand that I have a headache, chronic fatigue, insomnia, memory problems, etc. even if I told them multiple times about my situation. When I stopped responding because I got fed up, I was accused of being passive aggressive. I was also accused of manipulation whenever I say I don't remember.
i got a severe tbi from getting hit by a car. i’m not a doctor, but here’s my take. for me i injured my frontal lobe which controls things like emotions, memory, logic and reasoning, etc. when my family tells me stories of me in the hospital i’m amazed at how i acted they even show me videos!! it’s like i had no idea i was being so rude and yelling at doctors, i never was physically violent but i was angry. when i went to therapy they told me it was normal because my brain was trying to heal and i hurt my logic and reasoning, i wasn’t thinking through any of my actions and what i said. i’m assuming in some people’s cases they channel their anger into violence which is not right, but they might not even realize why they should not be doing that
@@graciegracie i HATE when people say that. my school wouldn’t give me any additional aid because “i walk and talk just fine.” since then i’ve decided to take a break from school and working because my memory and attention span was so bad. i decided to focus on my brain exercises and training, do light exercises and read books. sometimes people will tell me “wow! that’s so nice, i wish i could just stay home and do nothing! i have to go to work and school and be stressed !“ i would much rather be going to school and work than feeling like a couch potato or sometimes just useless 😐 it sucks cause i remember my old life before the tbi and i was on a mission to return to my normal life. but i had to accept that this is my normal for now
@@christine3389 thank you for this comment. I didn’t have a severe TBI but I sustained a bunch of Mild TBI’s over a short period of time in the military. I find myself snapping on people at work, and it’s not even intentional. I honestly used to be a very humble nice guy, but it’s like my brain just switches, it’s the weirdest thing. I can’t concentrate, my boss gets frustrated when I ask the same question multiple times, and looks at me like I am dumb. It’s very frustrating becuase I never used to be like this. Thank you for this comment and wish you the best of luck in your recovery.
Their behavior can turn abusive because depending on what area was affected, it can cause certain damage like loss of empathy or it could switch back and forth. That is a classic sign of antisocial personality. That lack of empathy along with intelligence that hasn’t been hampered can easily cause manipulative behavior because they scientifically lack the emotional response to care about hurting you but still continue to get what ever it is they want. Also their are two kinds of people. Evil and non evil. Plain and simple. Someone who already had an evil heart can blend in with another person who has brain damage. It’s a sad situation. One of my biological parents has very heartless ways and she had a tbi. I have no idea how it’s going to affect her but I won’t be surprised if she is still stuck in her ways. Only disabled with it. Very sad
i dont want fobbing off with disability payment i want help to get my self back as i was prior to lock down. its discussing the dvla has actively traded data that i pay for my plate !! does any one like me have experience of being persuade because of marks on thier plate through the needs of british colonisation which is not lawful or legal ???
My husband's TBI is interesting at best. His doctor calls it a disconnect from his brain to his mouth. He has moments of clarity and some days very confused. He gets easily confused and then he gets aggravated because he can't get his words out properly. Then he goes downhill with irritation. I am a Registered Nurse (retired) and don't understand why the doctors and nurses who work with TBI'S can't understand that it is a symptom of his TBI. As my husband will tell you.... PEOPLE WHO HAVE TBI'S GIVE UP BECAUSE NOBODY UNDERSTANDS. Sad because he is a veteran with a TBI 😭
Shortly after our daughter was injured, a trauma surgeon talked us into having a PEG and a cannula placed. Shortly after the surgery I was alone in the room with her, and I noticed she was moving her lips. I went over and saw the tip of her tongue; when she opened her mouth, I could see that she had bitten her tongue and it needed repair. I went out into the hall to look for someone to tell. This was supposed to be the ICU at Bayfront Hospital in St. Pete. A few people looked up from their station, but nobody answered my request about getting someone to look at her tongue. I went back into the curtained area/ room our daughter was occupying. I saw something in the tube that looked like it could be tissue; maybe it was just frothy blood from the surgery. Then she started to choke. So I called down the hall for help. Two nurses came, but they were not coming to help; they were angry and came at me for calling down the hall. I explained that she was choking. The head nurse looked up at the monitor and shrugged, "She's fine." Then she went over to suction her mouth as she really was, I think, choking. When I mentioned her tongue, she looked down at me over her mask and scornfully quipped that our daughter wouldn't be needing it. Over a year later and our daughter is trying to talk. Trouble is that someone in the hospital there amputated a large part of her tongue instead of repairing it. So the medical record says there's something strange about her tongue, but there is no record of them amputating it or harvesting it for tissue. Another doctor had been working on us to sign some sort of DNR; I don't even think we had the right to do that if we had been so inclined. I know they were looking at her young, healthy organs. Monsters. Hoping and praying our daughter will be able to talk with what tongue she has left after Khaled F. Basiouny, MD, removed so much of it instead of consulting us and helping us find someone to repair it. His PAs kicked her out of the practice; I think it was because I asked what happened to her tongue. We are very thankful to have found a kind gastro guy to remove the PEG, as doctors don't want to take the risk involved. The words of the nurse in ICU echo in my ears, that "she won't be needing it anyway." But she does. It would make it easier for her to be understood. She's not a veteran. (The next day a nurse came in and agrily let me know I was in trouble for calling down the hall the night before. She said I should have pushed the buzzer or button, I can't remember which. I asked what buzzer? She looked over at the tower that held all the monitors, etc; and then she said, Oh, there isn't a button.)
@@rosaartemisg5027 Thank you for your prayers and encouragement. Those of our friends and even strangers have meant so much over the past year and a half. We're thankful to have found a neurologist with several therapists who've helped her and taught us what to do to care for her. She's been home with us since Feb 2022. 24/7. Not walking yet. But she can say "yes" and "no" and some other things, which helps us help her. (The medical records show she was supposedly 170# and other various weights through a few weeks period; closer to 130. I believe that at some point they may have given her fentanyl for that weight of a person.)
Is this an excuse for compulsive lying, racism, and bigotry? I wouldn't think so. I am currently suing a person with TBI in small claims court and I do not at all feel sorry for her. I have tried over and over to give her a chance to be a good friend and all she has done is rip me off and behave abusively. Some compassion, of course. But no more enabling.
I wish so much any one of the doctors I saw would have understood I was sick instead of trying to get me out of there office. Getting care once your brain is messed up but not diagnosed is basically impossible
I wish my family would watch this video... reading the comments make me realize a lot of us feel the same and i don't feel so alone thank you!
Thank you for that comment…it really helps.
Me.2
Yes Thank I also dont feel so alone (living with a major traumatic brain injury)
I wish my friends and family could understand me
I got my hit by a drunk driver 6 months ago and was constantly forgetting stuff and repeating myself, extreme light sensitivity, balance issues, and extreme fatigue. I lost my job, relationship and basically went broke, I went to my local doctor for guidance, but she basically told me there was nothing I could do. It takes almost all of my effort to even preform basic task, things that required almost no effort are now incredibly overwhelming, I’m terrified to look like an idiot during job interviews, and I really hope I can recover back to what I was before.
I’m 19 and was just moving out of my house has recently purchased a car, it was totaled, insurance company didn’t want to pay anything for it,so I couldn’t get anywhere, missed appointments, I kept forgetting about them.
People were saying I was being dramatic, but I was seriously struggling every day, I’ve definitely shown signs of improvement in the last couple months, but I got a ways to go, hope anybody who’s reading this also recovers🙏
same I understand the emotional toll of everything you said but worse since ur just starting ur life
I hope you keep finding recovery and wins
I was in a very similar situation. I didn't really start feeling any kind of normal until at least 6 months after the accident. I'm still have issues and the recovery has slowed dramatically but I can tell here and there certain things were better than days before. Lawyers have been a headache. I'm in a lawsuit with my insurance company and I had to go to 5 doctors just to get confirmation that I was injured. The hospital I went to after the wreck didn't even physically examine me and my head was actively bleeding. Get a family member to help you with making appointments, people do not understand how impossible it is to get the help you are entitled to. I had to get a family member to make appointments, deal with insurance, make sure a even remembered I had an appointment and I still haven't everything settled but if you don't fight for yourself they will forget you exist much less try to help you.
Please see a Personal Injury attorney to discuss suing over this accident, the injuries you sustained, and the many losses. This is a big deal. Regards, retired paralegal
Please tell me how you are now I’m 19 as well didn’t have as bad of an injury as you and it’s getting better but I desperately need this to go away has it got much better for you or are you completely cured now?
@@GHOST445-ej4on and @poppz-11 I have a TBI and have been recovering from mine for a few years now. It can be done, you just need to get to the right people. You're going to need to see a vision therapist, physical therapist, speech therapist, and possibly an occupational therapist depending on exactly what's going on with you. Some of them will let you walk off the street and make an appointment, some need a referral from another doctor. Just give them (or ask a family member to) give them a call. You're also going to need to change your lifestyle around a bit. These are tips and tricks that worked for me.
1.) Eat mild simple foods that grow from the Earth and only drink water. Try it for a week. I know it sounds crazy "What? You think soda or coffee is going to kill me?" it's not killing you, sugar and chemicals stimulate your brain. You want everything nice and clean so your brain can heal. Some doctors will tell you to take fish oil (for memory) and eat a bowl of blueberries (for headaches) and believe me, they work wonders.
2.) Cut down on stimulation. Get off screens as much as you can. You're basically shocking your brain being online so be on here as little as you can. If you need to be online change the settings to dark mode, enlarge the text, etc. Don't watch fast moving videos, try to listen to audiobooks over reading if you need to do stuff for school.
3.) Sunglasses and hats are your new best friends. I feel like I've joined the FBI, I never take my sunglasses off but they're a life saver. Get a wraparound style sunglass. Play around with the different color tints. Some people like gray, some like brown, some like red, blue, yellow, etc. Try everything, you'll know it when you see it.
4.) Cut down on stimulation. Everything is stimulation. Sound, taste, touch, smell, movement, etc. Cut out as much as you can so you last as long as you can. Wear clothes you don't need to think about. Don't wear anything that jingles or clinks. Think about noise canceling headphones. Hang out in places with lower sound.
5.) Pay attention to lights. Do you handle fake light or sunlight better? They make lamps you can by that act like sunlight so get yourself one of those to use at night if needed. Mine is called an "OTT LITE" and it's made to cut down on eye strain.
6.) Figure out what you can do. Can you read? For how long? What happens when you try? Can you write, do math, walk, run, jump, skip? Can you read a calendar, keep track of time, make a clear list without getting confused? Find out where the blindspots are, write them on a list and show them to your doctor. You can't remember all this stuff off the top of your head, you need to be over the top ready to get the help you need or they'll scoot you out the door.
7.) Ask family and friends to make lists of things they noice you can't do or are struggling with. This is most commonly memory stuff but you're not going to be seeing what they're seeing. No shade on you, you just can't when you're the one having the memory trouble.
8.) Try walking with a third point on the ground. Get a hiking pole, a cane, an umbrella, anything that goes from your hip level to the floor. Hold on to that and use it to walk around a bit. Does your brain relax? If it does you just found your new best friend until you can get to physical therapy.
9.) Try everything. This is exhausting but just keep trying stuff until it works. Cut down on the amount of effort you're putting into things and how much it's stimulating you. Use a manual toothbrush instead of an electric one. Boil water in an electric pot instead of on the stove so you don't need to worry about burning the house down. Wear clothes without print (less stimulating to look at). Watch tv in black-and-white (if you really can't give it up) and watch the super old stuff (less stimulating).
10.) If you have any more questions please feel free to ask me. I'll help as best I can. This isn't easy but you can do it. It's a fight but you're a fighter, you wouldn't be on here searching for answers if you weren't. All my best to you, you can do this!
New to violent act acquired TBI.
The symptoms of memory loss, light sensitivity, crushing headaches, nausea, and new stuttering are frustrating Amdahl were even mocked.
The memory loss will make my employment much more difficult.
Those of us going through this could start a stigma free support group.
We get it.
I also have a TBI and have discovered that eating a big bowl of blueberries helps with my headaches, fish oil helps with my memory, and eating mints helps with my nausea. I wanted to pass this information along in the hopes that it could help you too. It's not easy dealing with what we're got but we can do it!
I like this man. He is so compassionate and really understands the needs of persons with brain injuries. And he sees them like anyone else.
This needs to go viral.
I found this very moving and informative especially coming from a fellow very frustrated brain injury patient. I’m so tired of doctors medical gaslighting me and not affirming my brain injury (I had a brain tumor surgery) but trying to pin it on my mental health
How do you get them to acknowledge and act accordingly??
As I’m desperately trying to get negligent mere GP claiming “no ABI” to acknowledge there IS one…
@@InJusticeAustralia Many doctors today are just salesmen for pharma. Besides that, they're afraid to actually "practice medicine," but must adhere to corporate designed protocols with the purpose not of healing but of making money. You may receive a treatment that is unnecessary and even harmful because it's covered by the insurance, while the needed treatment is withheld because it's not. HBOT (hyperbaric oxygen therapy) is not covered, but shooting radiation into the brain numerous times because it's covered can actually be harmful. Drugs are covered, while time in the sun with D3 and probiotic supplementation are not.
yes
Advised to write it down clear simple direct ask for
aknowlege facts
or referal to specialist
bring advocate
for support
stay calm
be ok
I was 16 months old, pulled a 1970's tv off a dresser onto my face because i climbed the dresser. It smashed the right side of my face, broke my nose, pushed my teeth back. in my 20's my impulse control was gone, I did things and i didnt know why. I also developed addiction problems, that i fight to this day. Learning that i had trauma to a very important part of my brain made me feel better about myself, I accepted it, and i am making progress. I at least know now what some of the reasons are behind doing what i do.
I had tbi 25 years ago and I've only just started to discover why my behavior and things are how they are I thought I was long term ptsd from the way the injury happened an unprovoked claw hammer attack
It's nice to feel validated about everything that's going on with me. I bewilder everyone around me, but to me it makes perfect sense. Hopefully I can get them to understand, or find a place I fit well.
Yes
I got my first diagnosed tbi in my senior year of high school during football practice. I was naive and did not say anything, I also didn’t realize I had one.l just thought I was sick. I played the rest of the season and it got worse and worse. School which was easy was now impossible, I couldn’t read, do math or literally think. I lost almost all my friends, to be fair I I tried to be a good friend but I literally couldn’t keep up. It’s been 2 years and this popped up on my page, I almost cried because I thought I was just being a wimp the whole time. I’m thankful to find people that have gone through this, and thank yall for making me feel not alone. I’ll pray for all of yall and Godspeed on recovery!
I'm always the Odd person out
Same here even though I have “friends” I still don’t feel like I fit in at all..
@@andrescott3664let’s just get all the odd people together
People with brain injiry can actually teach you alot if you listen. We aren't delusional. I don't have any emotion towards peoples feelings anymore. If I say something its raw and honest I'm not worried about how you perceive its just how it is. All the BS and ego and filters are gone, living with a TBI is just really raw. I figure almost like autism in a way.
Raw, yes. Unfortunately, people don't understand how hard it is to live without filters and/or attempt to use them. Because this requires intentionally managing our verbal and non-verbal responses. Which - for a brain injury survivor - is physically, emotionally and psychologically exhausting. Life is never the same after TBI. No matter how healed someone looks or appears to be operating.
@@PattyBlock i found it exhausting until I gave up on trying. I was a truck driver before my injury and I didn't have a professional image to uphold, nor any kids to worry about. I'm thankful for that.
@@RaneBane You're right. If no kids then one less thing to worry about. I hope you were able to find work that you enjoyed after your TBI.
@@PattyBlock in a way I was also fortunate that this happened at work. It has been a 3 year battle but I have just got an appointment for a neuropsych assesment. I'm pushing for substantial compensation now. They forged so many documents and lied so much, being on a permanent vacation won't shake my pride at all.
I hope it all works out. Truly, I wish you all the best.
This made me think about how I sometimes watch clips over and over and repeatedly forget to pay attention. I don't mind taking longer to get it 😄It saves data lol.
I'm trying to connect a lot of what's tbi and what's what from that. I don't consciously think about certain things that maybe are not functional and due to tbi. It's weird because I only know what I know, so I have to figure it all out. Stimulants and thc can both really help that process because they allow me to be more functional and see the difference in myself and reality. I only really know myself with tbi lol. I have to figure out what I'm even looking for. It seems like maybe that process for me has been what you're talking about with awareness issues.
Valuable video. Thanks.
It is ruining my career and my life and I cant fix my issues no matter how mich i try to be normal and no matter how much slef help and meditation and self groeth and affirmations I do i just make the same mistakea over and over since my 2019 concussion
We are in the same boat, they will never understand
I have a TBI too and have been recovering from mine for a few years now. It can be done, you just need to get to the right people. You're going to need to see a vision therapist, physical therapist, speech therapist, and possibly an occupational therapist depending on exactly what's going on with you. Some of them will let you walk off the street and make an appointment, some need a referral from another doctor. Just give them (or ask a family member to) give them a call. You're also going to need to change your lifestyle around a bit. These are tips and tricks that worked for me.
1.) Eat mild simple foods that grow from the Earth and only drink water. Try it for a week. I know it sounds crazy "What? You think soda or coffee is going to kill me?" it's the sugar and chemicals stimulating your brain. You want everything nice and clean so your brain can heal and healing takes YEARS. Some doctors will tell you to take fish oil (for memory) and eat a bowl of blueberries (for headaches) and believe me, they work wonders.
2.) Cut down on stimulation. Get off screens as much as you can. You're basically shocking your brain being online so be on here as little as you can. If you need to be online change the settings to dark mode, enlarge the text, etc. Don't watch fast moving videos, try to listen to audiobooks over reading if you need to do stuff for school.
3.) Sunglasses and hats are your new best friends. I feel like I've joined the FBI, I never take my sunglasses off but they're a life saver. Get a wraparound style sunglass. Play around with the different color tints. Some people like gray, some like brown, some like red, blue, yellow, etc. Try everything, you'll know it when you see it.
4.) Cut down on stimulation. Everything is stimulation. Sound, taste, touch, smell, movement, etc. Cut out as much as you can so you last as long as you can. Wear clothes you don't need to think about. Don't wear anything that jingles or clinks. Think about noise canceling headphones. Hang out in places with lower sound.
5.) Pay attention to lights. Do you handle fake light or sunlight better? They make lamps you can by that act like sunlight so get yourself one of those to use at night if needed. Mine is called an "OTT LITE" and it's made to cut down on eye strain.
6.) Figure out what you can do. Can you read? For how long? What happens when you try? Can you write, do math, walk, run, jump, skip? Can you read a calendar, keep track of time, make a clear list without getting confused? Find out where the blindspots are, write them on a list and show them to your doctor. You can't remember all this stuff off the top of your head, you need to be over the top ready to get the help you need or they'll scoot you out the door.
7.) Ask family and friends to make lists of things they noice you can't do or are struggling with. This is most commonly memory stuff but you're not going to be seeing what they're seeing. No shade on you, you just can't when you're the one having the memory trouble.
8.) Try walking with a third point on the ground. Get a hiking pole, a cane, an umbrella, anything that goes from your hip level to the floor. Hold on to that and use it to walk around a bit. Does your brain relax? If it does you just found your new best friend until you can get to physical therapy.
9.) Try everything. This is exhausting but just keep trying stuff until it works. Cut down on the amount of effort you're putting into things and how much it's stimulating you. Use a manual toothbrush instead of an electric one. Boil water in an electric pot instead of on the stove so you don't need to worry about burning the house down. Wear clothes without print (less stimulating to look at). Watch tv in black-and-white (if you really can't give it up) and watch the super old stuff (less stimulating).
10.) If you have any more questions please feel free to ask me. I'll help as best I can. This isn't easy but you can do it. It's a fight but you're a fighter, you wouldn't be on here searching for answers if you weren't. All my best to you, you can do this!
13 years later, and I'm just now finding someone that explains how "different tools for different problems" applies to mental health. If THIS is the pace we're at, we're fucked.
One counselor explained my TBI to my wife as “your husband is different like has come back from a war”. This is a significantly better analogy. This video will be a great help with my family.
I feel like my family is waiting for me to be fixed, get better, manage my emotions, catchup quicker. It is more akin to speaking or hearing a different language. I don’t understand sarcasm, innuendo, hints, connections. I connect the dots so I can sit back and see the whole picture.
Clarification: the analogy of walking into the wrong room or needing an interpreter is a better analogy.
I have a tbi and this information helped me. Thank you
I have Drs doing this stuff intentionally to cause anxiety. They press buttons in attempt to get you agitated so they dont have to work with you. This is Canadian healthcare.
Great video man.
I am 2 years out from my second head injury mva. The doctors did not give me proper cues as to how bad I was. They actually did not speak to me directly at all. I continue to struggle with fatigue, memory and visual problems. God is blessing me with financial support and a job that is supportive. Family helps a lot too. It's all so overwhelming everyday.
So i fell off a 2nd story balcony straight onto my head and had brain bleeding and lately i feel like my shirt term memory is really effected ill walk to the garage to get something and completylblank out and forget what i was going to get its getting kinda scary actually its starting to get worse and worry me im only 33
Short term memory loss is a common symptom of brain injury. It can cause worry but you are NOT alone.
Here is some helpful information about a possible treatment: www.brainline.org/treatment-hub/treatments-brain-injury/memory-strategy-training
At age 17 years old i was in a auto pedestrian accident about 40 years ago and I watch a lot of videos on You tube.Awarences ,some people like you said after closed head injuries do not or are aware of things normal people do.Like for almost 40 years after listening to someone talk and I been looking years as to what this person has just said.In my accident my head swelled so bad my high school friends that came to visit could not recognize me because of this.
I’m noticing people in the comments with tbi’s. My question is why can their behavior turn abusive and manipulative? If I had to guess its based in the desire of wanting to connect be loved and valued and told you have worth and feel understood paired with the belief that isn’t possible. So basically the same struggle we all face just a taller harder to climb mountain.
May I know some examples of abuse and manipulation that they did?
In my case back then, I just want to be given peace of mind because I'm always tired and people around me would often accuse me that I'm just pretending because I look normal - my case wasn't even mild. They would continually try to "catch" me and I get annoyed because they couldn't understand that I have a headache, chronic fatigue, insomnia, memory problems, etc. even if I told them multiple times about my situation. When I stopped responding because I got fed up, I was accused of being passive aggressive. I was also accused of manipulation whenever I say I don't remember.
i got a severe tbi from getting hit by a car. i’m not a doctor, but here’s my take. for me i injured my frontal lobe which controls things like emotions, memory, logic and reasoning, etc. when my family tells me stories of me in the hospital i’m amazed at how i acted they even show me videos!! it’s like i had no idea i was being so rude and yelling at doctors, i never was physically violent but i was angry. when i went to therapy they told me it was normal because my brain was trying to heal and i hurt my logic and reasoning, i wasn’t thinking through any of my actions and what i said. i’m assuming in some people’s cases they channel their anger into violence which is not right, but they might not even realize why they should not be doing that
@@graciegracie i HATE when people say that. my school wouldn’t give me any additional aid because “i walk and talk just fine.” since then i’ve decided to take a break from school and working because my memory and attention span was so bad. i decided to focus on my brain exercises and training, do light exercises and read books. sometimes people will tell me “wow! that’s so nice, i wish i could just stay home and do nothing! i have to go to work and school and be stressed !“ i would much rather be going to school and work than feeling like a couch potato or sometimes just useless 😐 it sucks cause i remember my old life before the tbi and i was on a mission to return to my normal life. but i had to accept that this is my normal for now
@@christine3389 thank you for this comment. I didn’t have a severe TBI but I sustained a bunch of Mild TBI’s over a short period of time in the military. I find myself snapping on people at work, and it’s not even intentional. I honestly used to be a very humble nice guy, but it’s like my brain just switches, it’s the weirdest thing. I can’t concentrate, my boss gets frustrated when I ask the same question multiple times, and looks at me like I am dumb. It’s very frustrating becuase I never used to be like this. Thank you for this comment and wish you the best of luck in your recovery.
Their behavior can turn abusive because depending on what area was affected, it can cause certain damage like loss of empathy or it could switch back and forth. That is a classic sign of antisocial personality. That lack of empathy along with intelligence that hasn’t been hampered can easily cause manipulative behavior because they scientifically lack the emotional response to care about hurting you but still continue to get what ever it is they want. Also their are two kinds of people. Evil and non evil. Plain and simple. Someone who already had an evil heart can blend in with another person who has brain damage. It’s a sad situation. One of my biological parents has very heartless ways and she had a tbi. I have no idea how it’s going to affect her but I won’t be surprised if she is still stuck in her ways. Only disabled with it. Very sad
i have this ..happen past 10 years ago ...its so hard for me to live my life like this...
why cant i get help?
i dont want fobbing off with disability payment i want help to get my self back as i was prior to lock down. its discussing the dvla has actively traded data that i pay for my plate !! does any one like me have experience of being persuade because of marks on thier plate through the needs of british colonisation which is not lawful or legal ???
well. I uh had a brain injury and how incredible it is to think back. holy fuck
I was in a coma for a couple days and I can't talk properly I speak very low
My Brain Real Trautamic Injury
😔😔😔
Agreed.
What is the reason why a person with brain injury is able to understand the speech of others but is not able to speak?
I believe its called Broca's Aphasia
My husband's TBI is interesting at best. His doctor calls it a disconnect from his brain to his mouth. He has moments of clarity and some days very confused.
He gets easily confused and then he gets aggravated because he can't get his words out properly. Then he goes downhill with irritation.
I am a Registered Nurse (retired) and don't understand why the doctors and nurses who work with TBI'S can't understand that it is a symptom of his TBI.
As my husband will tell you....
PEOPLE WHO HAVE TBI'S GIVE UP BECAUSE NOBODY UNDERSTANDS.
Sad because he is a veteran with a TBI 😭
Shortly after our daughter was injured, a trauma surgeon talked us into having a PEG and a cannula placed. Shortly after the surgery I was alone in the room with her, and I noticed she was moving her lips. I went over and saw the tip of her tongue; when she opened her mouth, I could see that she had bitten her tongue and it needed repair. I went out into the hall to look for someone to tell. This was supposed to be the ICU at Bayfront Hospital in St. Pete. A few people looked up from their station, but nobody answered my request about getting someone to look at her tongue. I went back into the curtained area/ room our daughter was occupying. I saw something in the tube that looked like it could be tissue; maybe it was just frothy blood from the surgery. Then she started to choke. So I called down the hall for help. Two nurses came, but they were not coming to help; they were angry and came at me for calling down the hall. I explained that she was choking. The head nurse looked up at the monitor and shrugged, "She's fine." Then she went over to suction her mouth as she really was, I think, choking. When I mentioned her tongue, she looked down at me over her mask and scornfully quipped that our daughter wouldn't be needing it. Over a year later and our daughter is trying to talk. Trouble is that someone in the hospital there amputated a large part of her tongue instead of repairing it. So the medical record says there's something strange about her tongue, but there is no record of them amputating it or harvesting it for tissue. Another doctor had been working on us to sign some sort of DNR; I don't even think we had the right to do that if we had been so inclined. I know they were looking at her young, healthy organs. Monsters. Hoping and praying our daughter will be able to talk with what tongue she has left after Khaled F. Basiouny, MD, removed so much of it instead of consulting us and helping us find someone to repair it. His PAs kicked her out of the practice; I think it was because I asked what happened to her tongue. We are very thankful to have found a kind gastro guy to remove the PEG, as doctors don't want to take the risk involved. The words of the nurse in ICU echo in my ears, that "she won't be needing it anyway." But she does. It would make it easier for her to be understood. She's not a veteran. (The next day a nurse came in and agrily let me know I was in trouble for calling down the hall the night before. She said I should have pushed the buzzer or button, I can't remember which. I asked what buzzer? She looked over at the tower that held all the monitors, etc; and then she said, Oh, there isn't a button.)
Terrible medical team ! I pray your daughter improves 🎈🌺🌸♥️
@@rosaartemisg5027 Thank you for your prayers and encouragement. Those of our friends and even strangers have meant so much over the past year and a half. We're thankful to have found a neurologist with several therapists who've helped her and taught us what to do to care for her. She's been home with us since Feb 2022. 24/7. Not walking yet. But she can say "yes" and "no" and some other things, which helps us help her. (The medical records show she was supposedly 170# and other various weights through a few weeks period; closer to 130. I believe that at some point they may have given her fentanyl for that weight of a person.)
444th like, 44th comment
Thank you!
Is this an excuse for compulsive lying, racism, and bigotry? I wouldn't think so. I am currently suing a person with TBI in small claims court and I do not at all feel sorry for her. I have tried over and over to give her a chance to be a good friend and all she has done is rip me off and behave abusively. Some compassion, of course. But no more enabling.
AMEN BROTHER I CAN RESPECT YOU THANK YOU