Understanding Necrotizing Myopathy Dr Andrew Mammen

This was a session at The Myositis Association's 2017 Annual Patient Conference in San Diego. Necrotizing myopathy (aka necrotizing autoimmune myopathy) is becoming more well-understood. In this presentation, one of the world's experts on this rare form of myositis discusses what we know and how NM is different than other forms of myositis.

[@francesmartinez3501]

I had the worse called paramedics cause I choked, horrible, could not walk or get out of chairs I still have weakness, been doing if for 1 year going till March, last 2 years have been hell.Im on my way to recovering well, had to have a port. The ivy method works, I do have some of my daily routines I am able to do now, I didnt get diagnosed earlier cause at 68 you are not very healthy.

[@UKmaryanne]

It would be very helpful to know what you mean when you say "older" - is that 50s? 60s? 70s?!

[@TheWaterfalls7]

How do I kniwtho.

[@farmingirl4281]

Wouldn’t it have been wonderful to have been told that taking a statin might cause this horrible crap!