Sending Prayers to continue with a healthy life 🙏🏻 My daughter was Diagnosed with severe aplastic anemia last year. She is 25 it has been a long road. She did ATG last April number are still holding steady .
I am diagnosed Aplastic Anaemia in 2020. Did ATG. No response. Now due to fibrosis of liver I can't undergo BMT, ATG. I know I will die soon. But you nice people keep this planet healthy, loving and blissful ❤
so happy for you 🙏 my son also had the situation 😥 he’s going on a bone marrow transplant nxt month 2022 6/6 he had a 90-99% match to his big brother 🙏my son is 18yrs.old
Hello! Yes, AAMDSIF sponsors patient-led support groups, available to anyone with a Zoom link. The June list will be posting later today, here: www.aamds.org/support/patient-family-support-groups
saya kurang bisa bahasa inggris maaf pakai bahasa indinesia. anak saya. kena anemia aplastik. gimana cara penyembuhan nya tiap bln kontrol ke rs. sekarang udah 3 kali di rawat. saya minta solusinya. trimakasih
Half-match, or haploidentical transplants, can be successful. Here is a webinar recording for more information: What You Need to Know about Haploidentical and Cord Blood Transplants ua-cam.com/video/Cz4oLVfA1mc/v-deo.html If you'd like to contact our Patient Advocacy team, please email help@aamds.org with your question. Thanks.
@@AAMDSIF I am now on observation after Rabbit ATG since Horse failed. Am no longer on daily platelets or blood transfusions but on heavy drug with a doctor's appointment every week for the next three weeks. My bro was tested but results came out (not fully a match) I just hope I'll stabilise with the last ATG. But your story is like mine even the dates 😁😁😁
@@livewire_podcast If you'd like to chat with patients in a (Zoom) virtual support group, check out this page where we list upcoming online meetups: www.aamds.org/support/patient-family-support-groups. Other patients can share their experiences with you if you like!
Sending Prayers to continue with a healthy life 🙏🏻 My daughter was Diagnosed with severe aplastic anemia last year. She is 25 it has been a long road. She did ATG last April number are still holding steady .
My husband was diagnosed with aplastic anemia in 2020,thank you for sharing your story.
So glad you found this useful!
I am diagnosed Aplastic Anaemia in 2020. Did ATG. No response. Now due to fibrosis of liver I can't undergo BMT, ATG. I know I will die soon. But you nice people keep this planet healthy, loving and blissful ❤
so happy for you 🙏 my son also had the situation 😥 he’s going on a bone marrow transplant nxt month 2022 6/6 he had a 90-99% match to his big brother 🙏my son is 18yrs.old
We are cheering for him!
Hi Rohail, Thank you for sharing your experience.
AA.MDS is there any AA community that we can join?
Hello! Yes, AAMDSIF sponsors patient-led support groups, available to anyone with a Zoom link. The June list will be posting later today, here: www.aamds.org/support/patient-family-support-groups
saya kurang bisa bahasa inggris maaf pakai bahasa indinesia. anak saya. kena anemia aplastik. gimana cara penyembuhan nya tiap bln kontrol ke rs. sekarang udah 3 kali di rawat. saya minta solusinya. trimakasih
So half half match works ??????
Half-match, or haploidentical transplants, can be successful. Here is a webinar recording for more information: What You Need to Know about Haploidentical and Cord Blood Transplants ua-cam.com/video/Cz4oLVfA1mc/v-deo.html
If you'd like to contact our Patient Advocacy team, please email help@aamds.org with your question. Thanks.
@@AAMDSIF thanks
@@AAMDSIF I am now on observation after Rabbit ATG since Horse failed. Am no longer on daily platelets or blood transfusions but on heavy drug with a doctor's appointment every week for the next three weeks. My bro was tested but results came out (not fully a match) I just hope I'll stabilise with the last ATG. But your story is like mine even the dates 😁😁😁
@@livewire_podcast If you'd like to chat with patients in a (Zoom) virtual support group, check out this page where we list upcoming online meetups: www.aamds.org/support/patient-family-support-groups. Other patients can share their experiences with you if you like!