At 24:40, these next few minutes show an exercise that demonstrates the major impact of head position and being examined in a supine position. It highlights how imaging and examination in an upright position is crucial for revealing significant clinical clues in someone who might otherwise be wrongly screened as clinically normal.
Our system is broken. Doctors are just there to make prescriptions and get you out of the office. The greed is astounding! Dr's are useless! We are all forced to become our own doctors. I spend all day everyday researching. Why is this video so hard to find?
Preach. Thats what im doing now. Theyve got me on these meds that have turned my body into a burning wasteland. Its so weird. I actually had to diagnose myself thru research and tell the doc to test for a certain arthiritis because they dismisssed it as fibro-like condition. Fibro is bs
Dr you are in a class of your own . Dr Ross Hausa Caring medical center . Dr Drew Hall chiropractor. Dr David Pecca . I like to congratulate these Drs who use 3D upright , Exomiter, high resolution ultra sound . These Drs find out with these images other wise you come up empty handed results. These Drs are telling the truth and unfortunately other Drs specialists are not up to standard in diagnosing and with my experience I learnt so much with Drs above . Finally I learnt my condition better . 👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏STANDING OBATION .
This is such an insightful video with valuable information for patients like me. I’ve undergone fusion for cranial cervical instability and atlantoaxial instability, and gaining perspectives on the nuances of patient care and specific needs is truly empowering. I also strongly agree with the emphasis on daily physiotherapy exercises and working with a knowledgeable practitioner skilled in manual therapy. It’s reassuring to hear this doctor highlight the differences in treatment approaches and acknowledge that while our progress might be slower, it can still be significant and meaningful.
MSK neurolgies UA-cam and website has a completely different take on neck stability. He has a few videos that are very short and simple, showing also very simple yet extremely effective excercises to do for neck instability, while discrediting almost everything else you’ve most likely already watched. I’ve done everything short of surgery and this guys 5 minute videos have changed my life. He needs to be protected at all costs 😊
@@MI-qj6xr if you look into MSKs videos, he has ones that show unique excercises for stabilizing the neck. The difference between his excercises and any other neck videos out there, is his ones focus on the deeper and smaller muscle groups, which in the case of the spine, are arguably more important. His video on the deep neck flexors and the sub-occipital muscles are in my opinion the best
Holy cow, this all makes sense, it explains symptoms after my accident. I don’t feel so alone, I just need to find a doctor that understands CCI better (or at all).
Did you get help? Where are you from? Find an upper cervical chiropractor who takes xrays and uses a tool to do low impact atlas adjustments. Dr Hauser at Caring Medical has been amazing so far too although I have not started the prolotherapy yet but my CCI was diagnosed by their DMX and other imaging/ultrasound testing
I cried watching it as well. It's such a relief to know that what I'm feeling is real! You're so lucky to have specialists near you. I hope you get some relief xxx
@@colettejohnston3924 yes. me too. even mentioning immunotherapy. my ZONCOLOGIST POOPOOED IT. I AM IN MY THI 3RD ROUND WITH CANCER. LISTEN TO YOUR patients!
Dr.s let my injuries go so long that I've developed a spontaneous fusion of C6&7 and developed Retrolisthesis and lack of normal curvature of my cervical spine,herniated discs as well .I also have Spondylosis ,L5,S1, developed nerve damage ,failed fusion , Spondylolisthesis ,DDD, Decompression and now stenosis at L5,L4 fused but developed ,L3 slippage with bulging discs at L3and L2 severe muscle spasms in my Thoracic Spine ,developed , curvature after Lazer surgery L4to L5 ,along with Severe Sciatica to where I can't walk and the lightening shoots from Lumbar separating up through my chest to my head and down through my legs to my feet .My surgeon said to me that his surgery was perfect (Lazer)!!! That my pain is from doing therapy and that with time they will go away ?That was in Dec.2020 immediately after coming out of recovery I felt that white lightning nerve pain from lower to my knees like a puppet ? Well as you know None of it went away and it keeps getting worse and flares just getting closer together. I wish there were Dr.s in America that understood what I live with and feel every day of my life since age 19.I was born with Spondylosis at birth and just never was diagnosed untill the fractures finally broke my back literally.They refuse any braces ,I've went through multiple rounds of Therapy and as you know therapy can't heal A fractured ,slipping spine causing stenosis ? So at 51 here I sit watching and learning as much as I can to bring the information with me to my primary in hopes that he will see It's Not In My Head ?
Cauda Equina caused by surgery to remove spinal cord tumor. Also caused spinal fluid leak. Second surgery to repair that. Left with saddle area numbness, bladder/bowel issues.
Omg I'm crying. I've been struggling with all of these problems for 5 years with no help from drs. Its ruined my life. How do I find a dr or physical therapists that can help me with this?
@@pok0239 no actually i live in Switzerland , but I go to Belgium on the 23rd this month to see if my case can apply to injections , because these injections are hard to find for the neck in Europe. I guess in canada or Usa it is easy to find. The Caring center I found online seems to be super specialized in this field , this might be an option for me if I do not find my answer in Belgium
I cry everytime as well when I see all these out of state Doctors on many sites that get it , and the rest have no clue ..... have had to have the C4-7 Fusion and still have C2-7 Spinal Stenosis, Foraminal Stenosis , and Osteophytes . I will have to travel and pay to get someone to help me ......
Upper cervical instability is a ligament problem that is stretched or torn due to trauma or birth, and all you just need to tighten and strengthen the ligaments by using regeneration therapy on the effected ligaments which will stable the bone and will stop the excess movement that causing brain stem impingement
Exactly. I'm about to get prolotherapy for my cervical instability. Due to several Drs misdiagnosing me saying I had pulled muscles and sending me to PT it made me WORSE. I freaking told my Dr too about a month into physical therapy that I was getting worse not better and she said "finish the physical therapy" well by my last session I was so weak, was dizzy, nauseous, had tremors, etc I was so bad I couldn't even drive my car or work. I was forced to do my own research and now my upper cervical chiropractor and Dr Hauser are saving my life. Months of atlas adjustments I have been getting have gotten me able to function again and hopefully the prolotherapy will get me back to 100%. I'm working again now but my job is super easy and it's still a struggle sometimes and being only 35 years old I would love to be able to dance and exercise again 😫🙏🙏
Oh yeah and after the Lazer in 2020 I am now constantly In a front bent over position also .I cannot stand up straight ,I cannot walk more than 20 feet without extreme muscle spasms throughout my Thoracic spine and my hip gets locked up ?I'm a mess after that surgery (Lazer Fusion of L4 to L5 with Rods and Screws which are crooked and that was immediately.My Primary to!d me that the left screw is only half way in? Omg I know for a fact that because he did the show off surgery (Lazer) and did not open me up is why he left me in this state because he couldn't see what was around that Lazer Focused area up or down? All this is how I discovered all my cervical issues ..and as time goes by I no longer have full use of my left arm , had double Carpel tunnel surgeries ,nerve damage ,right elbow ulnar nerve entrapment, decompression surgery and. It's is still running outside under my elbow and bulged at the right wrist ..? After therapy I never regained strength in my grip or right arm,left wrist and arm went very well ,regained most strength in grip and arm but left with median nerve severe damage ?EMG never registered ? I know you can't do anything but it's nice to just talk to someone who gets it .?
I have Chiari 1 and Cervical Stenosis 4,5&6 and I was supposed to have a CT scan flexion and extension with movement to see if I had CI but I went for scan and it was just flexion and extension with no movement and results was that I did not have CI. So, I wonder why I travelled an 8 hour round trip for a scan that I could have had a half hour away. I did ask the neurologist (after another 8 hour round trip) why I came this distance and not get the scan I was supposed to get, he just shrugged his shoulders. So, I still wonder whether I have CI or not. If someone here can tell me that the scan I had was the correct one (without movement) to diagnose CI I would appreciate it. I am female 56 from Scotland.
Dr. Paolo Bolognese says he prefers a supine MRI because the image is clearer, but I worry that it wouldn't show as much of an issue as an upright one would. The problem is that the closest upright is over 4 and a half hours away from me. I can't afford to do both, so which would you suggest? I have hyper mobile EDS, MCAS, POTS, MVP, a-fib, and suspect CCI and/or chiari.
I have all the same diagnoses as you. Dr B didn’t see anything on supine MRI for me, so I got upright images in flextion and extension. Still waiting on his response to those. I’m also doing DMX (digital motion X-ray). I’d say go with upright always. My symptoms get better when I’m laying down so I don’t think supine is that useful in EDS. I understand Dr B wants supine but if you can only afford one, I’d always choose upright. I have pretty severe EDS and dislocate all over my body every day and I have visceroptosis where my organs fall into my pelvis, which is horribly painful and make me look 6 month pregnant. If you can get a DMX too that would be helpful. It shows how all the vertebrae move when you look up/ down/ left/ right. People on the CCI Facebook group say you should get laying MRI, standing MRI in flex/ext, and DMX. All of these are expensive though, which sucks. Also so damn hard to find places to do these images.
My NUUCA chiropractor said that he has patients who come to him and go down the road to prolotherapy. I’m not sure what prolotherapy is, but I know it’s an injection. This would be in Troy, MI.
What if you have eagles syndrome? I have had rank pain in my neck, pooping in my ear, sharp pain in my throat, sharp pain in my chest, started when i was 18 and a multitude of other problems. Dizziness, shoulder pain, and then it went into bad stomach pain, then bad digestive track for years. And now everything is failing in my body.
I started having neck and shoulder issues in the 80s. I was in constant pain and diagnosed with fibro. I later tested positive for lyme and babesia. I had shoulder surgery in my 30s. My dr thought it was a torn rotator cuff because I couldn't lift my arm. It was due to a lot of bone spurs. They shaved it down and now there are back on the other side. I have spurs everywhere. My daughter was diagnosed with Ehlers Danlose and it turns out I have it as well. My C spine is in very bad shape. I have foraminal stenosis, herniated discs, arthritis and bone spurs. After MRIs, they asked when I was in a car accident. I've never been in an accident.
Multi level head and spinal.trauma patient..oblique lucency through base of dens and 2cm.lesion left paretial lobe..C 7 6 5 BILATERAL foraminal stenosis .+++
I am scared that when I go to bed every night I will not wake up....1 year and 17 specialists later, crushed financially, to be told nothing is wrong....why is it so hard for us to get help?
I hate to say it, but I feel the same way, my whole body aches, my vision is going. I’m only 40 years old, I’ve had the surgery 2 years ago, my neurosurgeon is trying to say, my symptoms now must be from something else!
At 24:40, these next few minutes show an exercise that demonstrates the major impact of head position and being examined in a supine position. It highlights how imaging and examination in an upright position is crucial for revealing significant clinical clues in someone who might otherwise be wrongly screened as clinically normal.
Our system is broken. Doctors are just there to make prescriptions and get you out of the office. The greed is astounding! Dr's are useless! We are all forced to become our own doctors. I spend all day everyday researching. Why is this video so hard to find?
Preach. Thats what im doing now. Theyve got me on these meds that have turned my body into a burning wasteland. Its so weird. I actually had to diagnose myself thru research and tell the doc to test for a certain arthiritis because they dismisssed it as fibro-like condition. Fibro is bs
Dr. VON SOLO concurs!!! It's a disgrace
I know more about medicine than my doctors is so sad
X-act-ly. I do the same. It's really disgusting that our medical system has come to this.
Sweet sweet late stage capitali💰m baby!
Dr you are in a class of your own . Dr Ross Hausa Caring medical center . Dr Drew Hall chiropractor. Dr David Pecca .
I like to congratulate these Drs who use 3D upright , Exomiter, high resolution ultra sound .
These Drs find out with these images other wise you come up empty handed results. These Drs are telling the truth and unfortunately other Drs specialists are not up to standard in diagnosing and with my experience I learnt so much with Drs above . Finally I learnt my condition better .
👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏STANDING OBATION .
This is such an insightful video with valuable information for patients like me. I’ve undergone fusion for cranial cervical instability and atlantoaxial instability, and gaining perspectives on the nuances of patient care and specific needs is truly empowering. I also strongly agree with the emphasis on daily physiotherapy exercises and working with a knowledgeable practitioner skilled in manual therapy. It’s reassuring to hear this doctor highlight the differences in treatment approaches and acknowledge that while our progress might be slower, it can still be significant and meaningful.
MSK neurolgies UA-cam and website has a completely different take on neck stability. He has a few videos that are very short and simple, showing also very simple yet extremely effective excercises to do for neck instability, while discrediting almost everything else you’ve most likely already watched. I’ve done everything short of surgery and this guys 5 minute videos have changed my life. He needs to be protected at all costs 😊
Really? What have you already tried doing?
Also which videos worked for you? Did you do them on your own?
@@MI-qj6xr if you look into MSKs videos, he has ones that show unique excercises for stabilizing the neck. The difference between his excercises and any other neck videos out there, is his ones focus on the deeper and smaller muscle groups, which in the case of the spine, are arguably more important. His video on the deep neck flexors and the sub-occipital muscles are in my opinion the best
Holy cow, this all makes sense, it explains symptoms after my accident. I don’t feel so alone, I just need to find a doctor that understands CCI better (or at all).
I can save you
Did you get help? Where are you from? Find an upper cervical chiropractor who takes xrays and uses a tool to do low impact atlas adjustments. Dr Hauser at Caring Medical has been amazing so far too although I have not started the prolotherapy yet but my CCI was diagnosed by their DMX and other imaging/ultrasound testing
I am crying watching this. I have felt so hopeless. I am calling the specialist in providence. It's where I live!!! 😭😭😭
I cried watching it as well. It's such a relief to know that what I'm feeling is real! You're so lucky to have specialists near you. I hope you get some relief xxx
@@colettejohnston3924 yes.
me too. even mentioning immunotherapy. my ZONCOLOGIST POOPOOED IT. I AM IN MY THI 3RD ROUND WITH CANCER. LISTEN TO YOUR patients!
Dr you are a legend. No two ways about it .
This needs to be searchable for people with dystonia as well.
Great job and definitely worth a trial before Decompression surgery if there’s no CFS leaking
This man just gave alllll the creddddsss!👏👏👏👏💕💕💕💙💙💙
Dr.s let my injuries go so long that I've developed a spontaneous fusion of C6&7 and developed Retrolisthesis and lack of normal curvature of my cervical spine,herniated discs as well .I also have Spondylosis ,L5,S1, developed nerve damage ,failed fusion , Spondylolisthesis ,DDD, Decompression and now stenosis at L5,L4 fused but developed ,L3 slippage with bulging discs at L3and L2 severe muscle spasms in my Thoracic Spine ,developed , curvature after Lazer surgery L4to L5 ,along with Severe Sciatica to where I can't walk and the lightening shoots from Lumbar separating up through my chest to my head and down through my legs to my feet .My surgeon said to me that his surgery was perfect (Lazer)!!! That my pain is from doing therapy and that with time they will go away ?That was in Dec.2020 immediately after coming out of recovery I felt that white lightning nerve pain from lower to my knees like a puppet ? Well as you know None of it went away and it keeps getting worse and flares just getting closer together. I wish there were Dr.s in America that understood what I live with and feel every day of my life since age 19.I was born with Spondylosis at birth and just never was diagnosed untill the fractures finally broke my back literally.They refuse any braces ,I've went through multiple rounds of Therapy and as you know therapy can't heal A fractured ,slipping spine causing stenosis ?
So at 51 here I sit watching and learning as much as I can to bring the information with me to my primary in hopes that he will see It's Not In My Head ?
Best pictures showing the real thing
YOU DID A GREAT JOB!!!!!!
Best explanation and education received!!!!!!!! Thank u!!!!!!!
Cauda Equina caused by surgery to remove spinal cord tumor. Also caused spinal fluid leak. Second surgery to repair that. Left with saddle area numbness, bladder/bowel issues.
Omg I'm crying. I've been struggling with all of these problems for 5 years with no help from drs. Its ruined my life. How do I find a dr or physical therapists that can help me with this?
WOW! NO ANSWER. I FEEL YOUR PAIN. I'M GOING TO THE SAME THING.
Sam problem . Dr have no idea . This Dr is a champion 🏆 legend
@@googo151 caring medical center florida if you are in the USA
@@RaphaelleREY-EMMEN- Have you found any options in Canada?
@@pok0239 no actually i live in Switzerland , but I go to Belgium on the 23rd this month to see if my case can apply to injections , because these injections are hard to find for the neck in Europe. I guess in canada or Usa it is easy to find. The Caring center I found online seems to be super specialized in this field , this might be an option for me if I do not find my answer in Belgium
As always great to spend time with you and your information about mistakes made is invaluable. Looks nice where you're staying btw
thank you
I cry everytime as well when I see all these out of state Doctors on many sites that get it , and the rest have no clue ..... have had to have the C4-7 Fusion and still have C2-7 Spinal Stenosis, Foraminal Stenosis , and Osteophytes . I will have to travel and pay to get someone to help me ......
I wish you all the best.
Good luck!
What type of Dr. Is Dr.Healy? He is amazing. I am the medical field and very unfortunate can't locate anyone here like him where I am.
I am pretty sure I have this. I have syringomyelia and I have been experiencing these symptoms.
excellent presentation
Dr.do you come to Canada to treat patiant?
Also can anyone recommend a place in Indiana for treatment?
You're missing Prolotherapy as a treatment option for ligament laxity. Physical therapy can only do so much in certain cases.
Upper cervical instability is a ligament problem that is stretched or torn due to trauma or birth, and all you just need to tighten and strengthen the ligaments by using regeneration therapy on the effected ligaments which will stable the bone and will stop the excess movement that causing brain stem impingement
Exactly. I'm about to get prolotherapy for my cervical instability. Due to several Drs misdiagnosing me saying I had pulled muscles and sending me to PT it made me WORSE. I freaking told my Dr too about a month into physical therapy that I was getting worse not better and she said "finish the physical therapy" well by my last session I was so weak, was dizzy, nauseous, had tremors, etc I was so bad I couldn't even drive my car or work. I was forced to do my own research and now my upper cervical chiropractor and Dr Hauser are saving my life. Months of atlas adjustments I have been getting have gotten me able to function again and hopefully the prolotherapy will get me back to 100%. I'm working again now but my job is super easy and it's still a struggle sometimes and being only 35 years old I would love to be able to dance and exercise again 😫🙏🙏
Thank youuu sooo much !
Oh yeah and after the Lazer in 2020 I am now constantly In a front bent over position also .I cannot stand up straight ,I cannot walk more than 20 feet without extreme muscle spasms throughout my Thoracic spine and my hip gets locked up ?I'm a mess after that surgery (Lazer Fusion of L4 to L5 with Rods and Screws which are crooked and that was immediately.My Primary to!d me that the left screw is only half way in? Omg I know for a fact that because he did the show off surgery (Lazer) and did not open me up is why he left me in this state because he couldn't see what was around that Lazer Focused area up or down? All this is how I discovered all my cervical issues ..and as time goes by I no longer have full use of my left arm , had double Carpel tunnel surgeries ,nerve damage ,right elbow ulnar nerve entrapment, decompression surgery and. It's is still running outside under my elbow and bulged at the right wrist ..? After therapy I never regained strength in my grip or right arm,left wrist and arm went very well ,regained most strength in grip and arm but left with median nerve severe damage ?EMG never registered ? I know you can't do anything but it's nice to just talk to someone who gets it .?
I have Chiari 1 and Cervical Stenosis 4,5&6 and I was supposed to have a CT scan flexion and extension with movement to see if I had CI but I went for scan and it was just flexion and extension with no movement and results was that I did not have CI. So, I wonder why I travelled an 8 hour round trip for a scan that I could have had a half hour away. I did ask the neurologist (after another 8 hour round trip) why I came this distance and not get the scan I was supposed to get, he just shrugged his shoulders. So, I still wonder whether I have CI or not. If someone here can tell me that the scan I had was the correct one (without movement) to diagnose CI I would appreciate it. I am female 56 from Scotland.
Can you recommend anyone in Ottawa?!
Dr. Paolo Bolognese says he prefers a supine MRI because the image is clearer, but I worry that it wouldn't show as much of an issue as an upright one would. The problem is that the closest upright is over 4 and a half hours away from me. I can't afford to do both, so which would you suggest? I have hyper mobile EDS, MCAS, POTS, MVP, a-fib, and suspect CCI and/or chiari.
I have all the same diagnoses as you. Dr B didn’t see anything on supine MRI for me, so I got upright images in flextion and extension. Still waiting on his response to those. I’m also doing DMX (digital motion X-ray). I’d say go with upright always. My symptoms get better when I’m laying down so I don’t think supine is that useful in EDS. I understand Dr B wants supine but if you can only afford one, I’d always choose upright.
I have pretty severe EDS and dislocate all over my body every day and I have visceroptosis where my organs fall into my pelvis, which is horribly painful and make me look 6 month pregnant.
If you can get a DMX too that would be helpful. It shows how all the vertebrae move when you look up/ down/ left/ right. People on the CCI Facebook group say you should get laying MRI, standing MRI in flex/ext, and DMX. All of these are expensive though, which sucks. Also so damn hard to find places to do these images.
I'm getting a DMX just to be safe to send to him, found a machine at a chiropractor in Missouri a few hours away
Upright MRI will be worth the drive
I wonder what about NUCCA or Atlas Orthogonal?
Would help to put the bones in alignement but if the ligaments are injured , it won't hold.
My NUUCA chiropractor said that he has patients who come to him and go down the road to prolotherapy. I’m not sure what prolotherapy is, but I know it’s an injection. This would be in Troy, MI.
@@RaphaelleREY-EMMEN- thta's right - I tried NUCCA but it would not hold for my daughter with CCI and BI
What if you have eagles syndrome? I have had rank pain in my neck, pooping in my ear, sharp pain in my throat, sharp pain in my chest, started when i was 18 and a multitude of other problems. Dizziness, shoulder pain, and then it went into bad stomach pain, then bad digestive track for years. And now everything is failing in my body.
Do u have the option of surgery?
I started having neck and shoulder issues in the 80s. I was in constant pain and diagnosed with fibro. I later tested positive for lyme and babesia. I had shoulder surgery in my 30s. My dr thought it was a torn rotator cuff because I couldn't lift my arm. It was due to a lot of bone spurs. They shaved it down and now there are back on the other side. I have spurs everywhere. My daughter was diagnosed with Ehlers Danlose and it turns out I have it as well. My C spine is in very bad shape. I have foraminal stenosis, herniated discs, arthritis and bone spurs. After MRIs, they asked when I was in a car accident. I've never been in an accident.
better you than me
@@throttlebuff gee thanks James lol
😜
@@throttlebuff Rude.
@@Tinyteacher1111 stfu. she knew i was joking karen
The symptoms resemble a CSF leak too.
Stem cell and prolotherapy...m
Dostum senin neyin var? Buralarda neden geziyorsun? Ehlers Danlos mu var?
Will these therapies eventually put mixed connective tissue disorder in remission? Anyone know
No - that's autoimmune so different
I live in Germany, Berlin. I would love to find someone who works like this here. Anybody any ideas? Most normal PTs don't know any of this...
Who is this doctor I need to find him
Hi Christina! This is Dr. Michael Healy. He's up in Rhode Island! healyphysicaltherapy.com/our-team/dr-michael-p-healy/
I lost hope
Multi level head and spinal.trauma patient..oblique lucency through base of dens and 2cm.lesion left paretial lobe..C 7 6 5 BILATERAL foraminal stenosis .+++
32:00
Please avoid COVID infections
My ripots send Or co,., n,.,
I believe I'm quite close to death..
me too
Same
I am scared that when I go to bed every night I will not wake up....1 year and 17 specialists later, crushed financially, to be told nothing is wrong....why is it so hard for us to get help?
@@aprilg4116 sorry for what you are going through. Maybe you can look into the Blair technique.
I hate to say it, but I feel the same way, my whole body aches, my vision is going. I’m only 40 years old, I’ve had the surgery 2 years ago, my neurosurgeon is trying to say, my symptoms now must be from something else!