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Vlogging with EDS: I WAS AWAKE THE ENTIRE SURGERY! - Tibiofibular Fusion | Week 74
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- Опубліковано 1 кві 2018
- So I had quite a week... But guys, we did it! Knee surgery is behind us! Bring on the recovery! One thing I forgot to mention, remember when I told you guys to always carry your “Port Card” or central line card with you in your wallets? Well I luckily had mine with me and they told me that most of their port patients don’t. If I hadn’t had it in my wallet then they would have had to do an xray and my surgery would have been pushed back! So don’t forget to always carry around all of your medical ID cards!
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PROPS TO DAD FOR SAVING THE DAY! I haven't finished the vlog yet, but I had to stop and comment for your pops. WHAT A GUY!!!!
Your wheelchair modification is a good example of why I want to learn how to weld and solder. Custom metalwork? Hell yeah!
I won’t out the hospital name for your privacy’s sake (would leave that up to you!), but I am a nurse there! Such a small world. I work one floor below where I am guessing you were, on the transplant floor! Small world! Best wishes for a speedy recovery ❤️
+Katie Minnick Too funny! Too bad our paths didn’t cross! I was told the floor was neuro-orthopedic. Not really sure if there were also transplant patients with us.
Christina Doherty There wouldn’t have been transplant patients with you, but one floor below 😊 Happy healing!
Christina, I just have to give you huge props. I hope this doesn’t come off the wrong way! You have certainly made an illness like EDS into a fashion I am totally obsessed with. From the ring splints, to the feeding pump leg bag and now the skirt belt/hook. I love love love how you have turned the medical into the fashionable, that even non-chronically ill people (like myself) love and find inspiration!
You are just so resourceful and creative and have a killer fashion sense! ☺️😍
Those skirt hitches are a brilliant idea! I wear long skirts for reasons of modesty, being a traditionally observant Jew, but stairs are a real hazard. This could be my answer for floaty summer skirts, so thank you Christina! xxxxxxxxx
Desk chairs are awesome for getting around when you can't walk. I don't know if it will work in your situation, but after I had foot surgery several years ago I found it to be a lot easier for me to roll backwards in the chair. Pushing off was a lot easier, smoother, and less exhausting than dragging myself forward.
Angie Danson that is so true. Plus my physio said that it is better to push yourself backwards and it puts less pressure on your legs and joints then trying to drag yourself forwards cause to much rocking forward and backwards can jar and strain the spine and back so if you can push backwards it is a lot easier and doesn't use so much energy and it's easier for the body to cope with. Very good tip! Also using a plastic carpet saver can help to make it easier to move the chair around the house if you can get them in the USA as they are used a lot in the UK but I don't know if you have them in the USA? Take care xxxx
I was thinking the same thing. Also, make sure that all of the wheels are unlocked (:
WAY TO GO DAD!!!!!! makes me feel confidant that when this happens with me my hubby can do the same if needed...Love men that know how to make things with their hands...
disabilitydish lucky my dad and hubby left with my illnesss
nicki p sorry, my 1st husband of 25yr left too..but have an amazing husband now
Hey! Girls can use tools to fix (and make) things, too. =) I have to admit that (during my engineering career) it was quite amusing to see the looks that I'd get for crawling in, around, and under machines, usually while wearing business casual clothing.
But to be fair, when I tried welding ONE time in my 'machine shop' class in college, I ended up burning a hole in a super-thin piece of sheet metal instead of joining the two pieces of scrap metal together.
I’ve been watching your vlogs for a while now but I’m a shy bean. But I had to comment because you are SUCH a badass woman. I thought I was crazy for being fully conscious for my wisdom teeth removal, but wow, you’re tough. I’m so glad your healthcare is all finally falling into place perfectly and things are only gonna keep getting better. Sending lots of positive healing vibes 💖
She had an epidural so she didn't feel anything the whole time.
Christina, that xray is is a show-stopper for sure! I am confused as to how a free-floating fibula won't cause issues, or how that fragment of bone screwed to the other will help stabilize the joint. It looks like they tried to fuse the bones together, then decided that wasn't going to work... did you get further information on what the doctors were going for, and how this surgery helps you?
I’ve had a free floating fibula for 20+ years. As long as no one kicks you in the leg , you can live with it when there is hardware on the tibia.
No joke, I am seriously tempted to buy myself a "safety belt" to see if I can use it for my service dogs mobility work. He's super bossy and likes to grab onto my pants legs and even bite my belt when he sees me swaying or falling. I hope your recovery goes smoothly!
Alex B somehow I find this really adorable hope the belt works for yall!
Alex B -- You might want to look into "industrial fall protection"... the harnesses and belts are going to be a little bit more heavy duty and have better quality assurance.
Industrial fall protection is used... more like absolutely required... when working more than so many feet off of the ground in a manufacturing plant, etc. Christina's dad likely has one that he uses when he installs pipes on the ceilings of industrial buildings and manufacturing plants. (Not so funny story -- I actually witnessed the aftermath of two contractors getting kicked out of the manufacturing plant that I worked in at my last job. The EHS manager caught them up near the ceiling... so 30ish feet from the cement floor... sitting on a rusty steel I-beam with NO fall protection tethering them to the I-beam. She walked them out to their truck, and sure enough, brand new fall protection that had never been put on or adjusted. If steam actually did come out of people's ears, I think we would have seen it coming out of that EHS manager's ears for the rest of that day.)
... so, yea, hopefully, that gives you an idea of what "industrial fall protection" is AND how heavy-duty it is before you waste a bunch of time looking into it (only to realize that it is complete and total overkill for your purposes). =)
Sunglasses Girl - I’m pretty certain that @Alex B meant a safety belt much like the one Christina has, shows, talks about, and uses, in this video. 👍🏻
Your Dad is so great wow he did a wonderful job on the wheel chair praying for an easy recoverory for Your knee and that Your still healing good from back surgery
You're amazing God Bless
Wow. That's a real man who knows what's right. Amazing seeing humans with heart like that.
I had the same surgery in both knees and I too wook up to that same x-ray and was shocked we didn't even talked about that braking my bones and leaving things floting but it worked out in the end I'm 5 years out since my surgies and it's worth it! It did take me a vary long time to heal but I think all ppl with EDS do. I feel ya I don't miss those days.
+Lunar Wolf This is such an encouragement!!!! I haven’t found anyone else who has had remotely the same type of surgery. I can tell ill be healing for a while, but glad i’m not the only one out there with floaty bones 😂
+Christina Doherty
I'm glad I could set you at ease. I cried when I wook to the news after surgery and say the X-rays, but was worth it in the end I can now rely on my knees I had them done back to back. They where the first joints to go from my EDS. I also can't have Morphine do to allergies and my body just strait up rejects it. Pain killers really do nothing I had to just bare the pain. I also didn't stay in my room wile I healed up, I stayed in the living room since it would be easier to get to the bathroom with my cane or crutches. We didn't know I had EDS then so we didn't get why using crutches messed up my shoulders thanks to it (almost a full year on crutches I most likely will have to have surgery on my shoulders so I'm glad you didn't go with that. I also went to PT the day after surgery to get my leg moving once my first knee bared wieght and PT could sign off on it I went on to my other knee. (then my jaw after that lol) I hope you heal well and fast watch stiches (you probly know with you back/neck) but my right knee rejected my stiches inside and out and I got an infection silly doctors told me it was normal go into PT and my leg was swollen painful red and we'll lots of puss so ya went to the ER I don't see that doctor anymore. I have a crazy scare from it though lol. And just like your back/neck my knee scares open up sometiles if I don't keep them mosterised. I hope any of that helps. If you have questions on it just PM me on facebook "Gina Cook" don't mind helping with any worries. Your the first I have seen to have the same surgery as me.
Christina Doherty I had a similar operation to help stop my knees from dislocating and I woke up after surgery to have floating bone but not as big of a gap and I was told that the bone will grow new bone to connect the ends of bone together but it took quite a while for it to show that the ends of bone have connected and even longer before it showed that it looked strong enough to start to weight bear on it. I started weight bearing by only 10 percent and after each xray they would see how much more it had healed before deciding how much more weight I could put through it. I had to have both knees done and i was not allowed to use crutches or anything to help either so I can understand how hard it is. It helps to go backwards with the office chair as it puts less pressure and strain on your body and legs I left another comment after someone else put the same thing. I don't know if you can get this in the USA but in the UK we have a plastic runner called carpet savers to help save the carpets from damaged from the chairs and it makes it a lot easier to move the office chair around with the saver down. Maybe you can look into this to see if you can get it in the USA and if this would help you move the office chair around the house. I am so happy that everything went well with your knee surgery I was praying for you and bonnie that it all went well. I am praying for you both that you are ok and heal ok! One question I would like to know is where did you get your thumb splints from as I showed my surgeon who operated on my thumb and he said that if I could find something similar that it would really help me to get out from the cast and support that I use as the cast is the only thing that can give me enough support and comfort after my thumb fusion. Plus the surgeon is quite interested in your thumb and fingers support to help me and other people who need support. I am keeping bonnie and you and your family in my thoughts and prayers. Take care and God bless you all lot's of love from me kelli xxxxxx
Hi! I think the splint you're talking about is the Silver Ring Splint company: ua-cam.com/video/NevbHBhd0CM/v-deo.htmlm54s
Your dad made me bawl....he is such an awesome guy. Also today is the one year anniversary of my Dad’s death so I am missing him like crazy. Also my dad was a welder and machinists so there was that also.
Congrats on making it through! Also, love to Bonnie in her recovery and big thumbs up for your dad. I was wondering why/how it works for the surgeons to leave that bone loose in your leg? I’m sure they had their reasons, but I can’t blame you for being shocked. You handled it all like a pro! Wishing you healing and recovery 🙏💙😊
I was awake during my knee surgery and it was funny seeing my leg in the air. Please be careful on the office chair I was using one and it went one way and I the other, which set me back a lot. My prayers are with you and your family and friend hugs xxx
I was going to be awake for a wrist surgery, but my surgeon convinced me to be fully put under due to the plan of it being over an hour. It ended up being almost 4 hours, and therefore was very glad I was put under!! Edit: and yes, nerve blocks are suuuuuper crazy!! But beats the pain hah.
I had two wrist surgeries between November '22 and March '23 (R was in November, L was in March). I was given a few options () 1- nerve block and IV benzos, 2- nerve block and nothing else, 3- nerve block and monitored sedation w/o fentanyl-> not fully under but not remembering, 4- nerve block and general anesthesia w/o fentanyl-> totally under and no memory, 5- no nerve block but general anesthesia w/o fentanyl. I have to opt for no fentanyl because I have a tendency of being SUPER fucked up for several days after having even a partial dose of fentanyl.
For both surgeries I went with option 3.
I hope you’re still continuing to recover from your surgery well. Sending love and prayers your way! 💕
My husband keeps having to catch me when my stubborn ass tries to walk unassisted and we have the same problem of my joints dislocating! I feel like the belt is a BRILLIANT idea!
Bethany H lycky u even have ppl. I fall im alone.ive had ppl walk over me
I try to walk unassisted all to often and my fiancé has to keep watching me and catching me if one my my joints dislocates or gives out. Thank goodness for those around us that put up with our stubbornness!
You are such a beautiful person and a true inspiration. The way you smile on all of your videos and keep such a positive spirit, I most certainly can learn so much from you. I just want you to know you are influencing many people in a positive way.
I’m so very glad that the surgery went well! I’ve been really praying and thinking about that all week! It kind of makes me angry at your doctors that they didn’t tell you exactly what they were going to do...BEFORE the surgery. But I’m really happy that you have found a team you can trust and who are willing to be your pcp! You can make it through this recovery. I can’t wait to see you walking around again maybe even without that brace! It’ll be here before you know it. :)
Aww so sweet of ya Dad, fixing the problem so ya leg be ok on the wheelchair, and giving up his spot on the bed for you, he works hard for the family, make sure that you all ok, must say I love ya parents in general in all that they do for you, as whole. xx
Omg I would have needed that wheelchair 9 years ago when I had my skiing accident. They wouldn't let me get out of bed because they didn't want my leg to be down (only option was the toilet chair, and there was only ONE on the entire unit). So glad time has changed and I am able to even walk again short and middle distance.
Omg that belt, my parents always grab me by the waist of my pants and it’s so hilarious/embarrassing but hey it’s better that then an arm lol!
I can really notice in your face when you have a good PT session. Your facial muscles are so relaxed and everything moves fluidly. Gorgeous smile. Hang in there.
Can I just say...your dad rocks! He is a surgeon in his own right. Love the modification.
I love your videos! Not only are you super strong and brave but you are also incredibly knowledgeable about your conditions even though you’re so unwell! Keep strong girlie❤️
Your parents are awesome. I’m glad that you are home. The X-ray of your leg is wild and confusing. Did the Dr. say why?
I love Sammie at 8:20. On top of the couch! So awesome!
You are such a trooper!
Isn’t the spinal the weirdest feeling? I can totally relate. When they transferred me from my bed after my c-section I could see them moving my legs but couldn’t feel them. So bizarre.
You look so steampunk in the first clip and I love it!!!
I only just "found" you last week. But I was so happy to see a new post come through! Your strength and positivity is remarkable. You're such a sweetheart. I'm wishing you continued healing & pain relief. I know things didn't go "according to plan" for you, but you've got this!!! Hugs from WI!!! (Ps- Totally off-topic! But, it is great to find another classics lover! I adore Oscar Wilde!)
You are so gracious after that huge shock! And I’m seriously impressed with your transfers! I’ve definitely used a desk chair in my parents’ basement to get around when I couldn’t get my regular chair downstairs. Pushing yourself backward is definitely easier than trying to pull yourself forward, as I’ve seen other people suggest.
So glad it seems to have gone well, Christina. Hope the pain starts to subside this week. You’re amazing going through it without morphine! Sponge baths for four weeks sounds grim. 😕
Christina, you are most definitely an inspiration!! One more surgery down!! You go girl!! When I had my knee surgery we put a 'port-a-potty' (camping toilet) in my room so in the middle of the night I didn't have a long trip to the bathroom!! I found it to be a huge help!! Sending you zebra strength and love!! XOXO
Yah!!!! Your dad is top notch!!! I am so glad you are past the surger! What a crazy experience to be awake for the surgery and being able to see it but not feel what was going on...! I am so excited for you to be on a great road of recovery! It sounds like you had such a wonderful team of doctors and staff - the way it should be! Really hoping it works out for having a primary dr through them! Awe - praying for such a speedy recovery. 💜 You are a champion! Maybe consider pushing yourself backwards in the chair if you can..?... Trying to go forward is crazy hard!
Awesome clips and seeing Bonnie. Prayers to everyone. Nice to have each other. Nice to have things lined up. You look good-ur countenance is brighter than usual. Awesome welder dude with nice accent and matching awesome mom gal😀love how doggie sleeps up top on the couch.have u tried afos for some of ur instabilities? You can get thru this. Ur a warrior. Ask doc if you can have extra iv or feeding tube bit. C just make sure it is food sourec not synthetic. U r awesome love ur outfits u really inspire me.yahoo for tramadol. Happy Easter.
When you're so EDS you need handles
Wow Christina, you've really been through it lately. I can't believe all the surgery drama you've had (by drama I mean the crap you're physically going through, not attitude, lol). Your happy spirit is always inspiring. Thank you for taking us with you through your journeys!
You just always bring a smile to my heart with your eternal optimism and gratitude towards the people that help you. Bless your heart, sweetie. Hope your recovery is quick and with as little pain and discomfort as possible.
I'm so glad all went well! That's what Dad's do!!! I love the dynamics of your family. You haven't stopped to laugh at times! Keep up that positivity girl, you got this. You'll figure it out I have no doubt!!!#❤💖💗
Than you for including this clip. The love between you all is beautiful. ❤️ (Your Dad's accent is so charming!)
I'm glad the upped dose helped your pain and you were able to avoid the morphine. I'm so happy for your good attitude and view :)
your dad totally needs to oil the wheels on that chair! it would be so much easier to get around. Or maybe add larger wheels than the standard office chair has.
So so glad you're OK.
I’m so glad the surgery went well, despite the last minute changes. It definitely looks like this surgery was the right move. Awesome job!
Got great style! Another friend wears the finger braces and all us belly dance friends want some because they look awesome!!
Your dad is brilliant!👏 When you were in the hospital this time, I was so worried about you. You were really weighing heavy on my heart and I think maybe it was because you were fighting the pain so hard and doing whatever you needed to keep from going back through the morphine cycle. I had to talk to my mom several times this week to pray for you. I'm glad you're home and enjoyed such a fantastic live concert yesterday! OMG! What an amazing performance John Legend, Alice Cooper, and Sarah Bereleis (?) put on with that cast! 🤗🕇❤
I'm so glad to see you came through the surgery and all the surprises so well. You are such a lovely woman and I'm so glad I accidentally found your vlog. Happy Easter, lovely lady!
It made me upset to learn that all your plans have been changed. I hope all the changes were for the better. You're really strong girl!
I totally know what you mean about being shocked with your fibula just hanging there. I had an accident where my tibia and my fibula broke. My fibula was broken in multiple spots. They fixed my tibia with a rod, but just left my fibula with all of its broken pieces. I'm almost completely recovered now and my xrays show new bone growth between all of the separate pieces. It was just so weird to me that they didn't need to fix it and it doesn't affect my walking ability. :D
i freaking LOVE your pirate outfit girl! That surgery sounds mental you are truly an inspiration.
That x-ray is very upsetting! What a blow. Hopefully this is the right path for a knee with less drama. Love from VA ♥♥♥
Love your dad's handy work on your wheelchair! What a perfect solution for you :) I was following on instagram for news of your surgery so I knew it had gone well but it was good to see it all in the vlog and see how much smoother it seemed to go than last time. Fingers crossed for a speedy recovery! :)
Also the way they did your surgery sounds fascinating (I hope you don't mind me saying that!) It's great they were able to be flexible and do the right thing for you.
Turn the chair around backwards and push backwards. It's MUCH easier! I had to do that myself and discovered it helped a lot.
Even though the surgery wasn’t exactly what you expected I am glad to see that you are doing so well. Tramadol is an awesome choice for some pain situations. I was given it after getting home from one of my surgeries and was amazed at how well it worked. I have had an allergy to codeine since I was 16 so finding pain medication that I could tolerate has been an adventure. Something that many people don’t know is that taking Ibuprofen or Naproxen sodium inhibits bone growth. So that limits your choices for non prescription pain relief. You constantly amaze me at how quickly you bounce back following your surgeries. Like you I needed and wanted to have my primary care doctor in the same system as my other doctors as I collected them due to different health issues. Being able to have everyone on the same page and understanding the different health issues was essential to my care and health. My previous doctor became not so stellar as the years went by and it was clear he didn’t listen or understand or believe me when I tried to explain what I was experiencing. His negligence nearly cost me my life and I also discovered that he had falsified my records and got someone at the local hospital to change the date of my biopsy on a lump in my breast. I can’t comprehend how he thought I wouldn’t notice that the date was wrong. I will be keeping you in my prayers.
+Merilora Duncan I am so sorry to hear that! Its amazing what a crazy business the medical system has become. Its become so much about money and paperwork and not the patients and their wellbeing
I love you. You are strong, i believe you ❤️❤️❤️
You are just a sweetheart! I love watching your videos. Thank you for sharing yourself with us!
I’m so so so proud of you Wonder Woman! You didn’t want to take morphine after just coming off it and you managed it! Plus how do you always look so stylish?? You are totally my disabled pirate queen and I love that about you! I know it was frustrating but I’m glad you got through it sweetheart sending much love...oh and I love Jesus Christ superstar too! I have the old 70s version on dvd it’s so bad it’s so good xx
You're so brave! Way to go, girl! Cheering for you!
Glad to see things finally coming together for you. Wishing you a speedy recovery.
Another enjoyable vlog! Sending lots of love and good wishes your way!
Your parents are so great! I'm glad the surgery went well and hope that you're able to sleep really well as your body recovers. You guys are so clever with managing difficult situations. Sending positive vibes for managing sponge baths LOL I had to do that for a while too. It's not so bad. Hugs!
My goodness! Your dad is AWESOME!!! Love your vlog, it's so informative. ❤
I tumbled down the stairs in December and I still can't walk on it, my house is not wheelchair friendly at all so I use an office chair too! I had the same problems with the little wheels and I realised why the sometimes would not turn (in my case), my hair is long and can be found everywhere in the house. Then it clicked, my hair was getting stuck on the wheels limiting movement. Maybe check your little wheels if there are hairs on it. I wish you the very best of recovery all the way from Holland💐😘
I usually don't comment..but I have been watching your videos for a long time now...and I gotta say your parents are pretty awesome :)
Super dad wins again. My dad was awake for his knee reconstruction surgery (which was done over 35 years ago) and he has no health issues and no issues with his airways he actually wanted to watch it and his doctors wouldn't let him. (He's strange) It isn't super uncommon with knee surgeries apparently?
Way to go to your Dad. You are so brave with the spinal. I had mega competition with the one I had so never again for me.
You are so strong! 💪 if you don’t mind I’d like to be another Nana for you. I’m 68 and have 5 wonderful grandkids from 22-12. My oldest grandson started calling meNana in stead of Grandma so it stuck. Oh it just hit me you and Ethan are both 22. He’s a correctional officer in Jacksonville Fl and yes I’m very proud of him.
I'm so proud of you
Congratulations on making it through surgery so well!
Way to go Mr Doherty! You are a genius!
when i heard about the live jesus christ superstar I immediately thought of you. I'm so happy to see that your surgery went well and you're regaining function in your foot!
I'm sure they made the right decision with the surgery, I really hope it works out well for you
Now that was some impressive metal work!!!! Wow!!
i have no idea how you go through that without narcotic pain meds. you are a superwoman! i had a very similar surgery, and i was miserable.
hopefully, you won’t have to have another surgery, but if you do...there’s this great little thing i had for my last knee surgery. now mine had lidocaine in it, but i’m sure different meds can be put in it, since you’re allergic to that. they implant a little catheter in your thigh and it slowly drops a medication into your leg. it’s a little ball that you carry with you and mine lasted three days. kept it almost completely numb (which i didn’t know how well it was working until i didn’t have it). i’m gonna go look through my pictures and figure out what the name of it is and edit my post.
**edit: its called ON-Q. the website is
myon-q.com**
I just have to say, you have the most amazing spirit. No matter what comes your way you take it in stride and with a smile on your face. I have CRPS and have had 12 surgeries over the years for various reasons but most of them on my shoulder. I can honestly say I don't ever remember being as pleasant as you seem to be. You are truly amazing! Keep your head up and remember, our Father up in heaven has a special plan for you and he is watching over you. I can't help but think that it is for you to share your life with us and teach us how to be grateful for what we have and how to be positive and loving no matter what our circumstances. And you are such a talented artist as well! Best wishes and I'll pray for a speedy recovery. By the way, my name is Jennifer. This will probably be signed with my sons name. I'm not tech savvy and don't know how to create my own account. Try not to laugh too hard, it might hurt! Get well soon!
Hi!! I haven't watched you for a while so I'm trying to catch up with you.
Christina with all that you are going through personally you are a wonderful friend!❤️🌸
Christina I have suggestion instead of moving forward with the office chair. Try moving backwards to see if that would help.
Wishing you a speedy recovery xxx
Holy cow, I have never seen them just leave a bone floating like that!
I had a total knee replacement in both my knees about four months apart and I couldn't take morphine because it made me way to sick so they gave me something else that worked great but unfortunately I don't know what lol! After I got home I was in the worst pain that I ever had but you seem to be handling it great but just a little advice don't wait until the pain hits you to hard to take the next dose because it's so much harder to get it back under control also if you get therapy take your pain meds about an hour before it will help a lot! But check with your therapist or doctor first because like you said everyone is different! You seem like a very sweet person and I love to watch your channel! I pray that your recovery goes great for you and I think the weeks will fly by for you as long as you have things to keep your mind busy! Well I guess I blabbed long enough for now lol! That's what us old folks do best, you take care now and let your body heal!
I do take hydromorphone 4mg everyday. I too hate taking it but as you say I really need it just to get through the day. I do cut he pills in half as much as possible. Take care and you have wonderful parents
OMG Jesus Christ superstar was amazing. I have to watch it again.
Wanted say you are so strong and beautiful inside and outside stay strong xxxsending positive thoughts from britain
Love you Christina. Enjoy your day.
So excited for this vlog!! Love you Christina💗💗
I just want to be your friend 😂 you are so awesome.
Sending lots of love and hugs!x
YAY for your amazing magician dad!
Once I dislocated my knee really badly (oh I had no idea how many more would come after that), and my house is narrow too so a desk chair was my main transport around the house.
praying for u!! i know exactly what u r going through i have to get my other knee done but i got a tto mpfl and vmo and reconstruction of my knee groove... rest up get better soon
what you said about that phantom limb thing is exactly how I felt! I had a nerve block to my arm for my hand surgery (I was awake too haha) and I was so confused bc I was so sure that my hand was in the position that I last felt it in but I couldn't actually see it and I was so wrong! I thought I was moving it though and I kept getting worried that I was gonna mess up the surgery haha
You are always so positiv. ☺👍❤
Your dad did an amazing job!
i have had a csf leak, before we realized i had eds, during a surgery to fix severe dental crowding (also a eds thing) i will NEVER allow an epidural or another spinal tap, or lumbar puncture drain ever again
Seems like your finally finding a team who can work with all your needs and I was suprised you went into surgery without knowing what they were going to do! But it would be interesting to understand better what was happening with your leg to make you need surgery and what you thought they were going to do and actually what they did and why....how breaking your leg helped you ankle to be able to have more control? I'm so happy for you.
We are MA patients! Where do you have your surgeries. You are amazing BTW!! But I hope you already know that! 😀😘
Awesome experience with those turkeys!
Praying for your recoveryglad they fixed the meds for you and your dad is a rockstar! My boyfriend is a machinist as well and he helps me with my wheelchairs and rolator all the time. Its so handy and hey is so smart and they act like it's no big deal. But to us, it means the WORLD you know? Praying for Bonnie since you picked her up from airport and started following her. 💜💜💜💜 Going to try to watch Jesus Christ Superstar (one of my families all time favorites as well! And can't wait to be able to watch it but I couldn't record it because of mast cell attack and asthma attack and bronchitis at the same time and two night at ER in a row. =( but my bestie said she would find it for us on the nbc app on her tv and we'll watch it at her house and i see her thursday!! Woot woot! Cant wait. It was nice that everyone was helping and the nurses were great. Praying for healing. And i totally get thinking you're having one surgery and then finding out is was something different. Im dealing with that currently and it has caused a 25-30 pound weight loss to where i look way too thin but only 9 more days til GI! Gotta get through this! Love and hugs!
So proud of you for choosing not to take the morphine. Its a difficult choice when it is so readily available and the pain is bad...