Dianna's restrictive diet
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- Опубліковано 25 тра 2023
- Health update - Dianna's illness has caused her to go on an extreme elimination diet. Here, Kyle explains a little about the foods she can eat. Dianna has developed a wide variety of symptoms most commonly associated with MCAS. She and Kyle have been working with a specialist for months to get her on a path to recovery.
If you'd like to support Dianna during her recovery, you can do so here → / physicsgirl
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I hope her husband also gets time to take care of himself. Caretaker burnout is real. Sending love and strength to them both ❤
As a care giver for my husband for 9 years, please take care of yourself. He was on dialysis. Good times and not good times. To be a care giver in any form is so demanding. I bow to you sir. She is a lucky woman.
They should be given some kind of support for this. Its basically a full-time job.
Yep ❤
@@debiperkins Hear hear!
To Brian: while waiting for my husband to finish dialysis at the clinic, I heard on the radio of a program FOR caregivers. This was in the beginning when it was all new, and so damn hard. It was talking about a caregivers getaway. I cried while sitting in the parking lot. If you have never been there, you don’t have a clue. The illness hits the whole family, but mainly the spouse. You forget what it is like to have time for you. To take a leisurely bath. To eat a slow meal. Granted, I’d do it again if I could have him back with me. Plus, he didn’t like to be alone. God bless all the caregivers. Love you all.
Also someone give this man a medal for husband of the decade
I'll second that motion!
Through sickness and in health. He renews that vow every day. I cannot bring myself to say the last part (call me superstitious).
@@tafdiz yes but it's not so easy to find people who love you so much
Hey! Don’t be too quick to praise. We haven’t heard her side of the experience yet 🤣
He signed up for better or worse, this is worse.
I have had longcovid since March 2020. I am now in a wheelchair and on IV fluids. My husband takes care of me and our four kids. These caregivers of ours are living angels. I hope the world is witnessing.
To the people who are commenting saying she needs to eat more and saying she has fatigue and the fatigue is caused by her not having protein, that’s not the issue. She has MCAS Mass Cell Activation Syndrome. Which causes her to have symptoms of anaphylaxis. So due to her condition she has to be very careful about what she puts into her body so she doesn’t have an allergic response. They also do see a specialist and work with them to find a diet she can safely eat while still getting proper nutrition. It may not be perfect but they do what they need to so her condition doesn’t affect her.
Looks like it’s still affecting her pretty severely.
Honestly. She has to live every single day like this? For how long? This is the only thing I’ve seen and it’s heartbreaking.
@@KristinnnnnnlaughsThis may be a lifelong condition for her. There's a few but rare exceptions where there's a spontaneous return to normal but the long term prognosis is not great and there's not a lot of research or specialization because it's an extremely rare condition that is frequently misdiagnosed which leads to patients dying improperly diagnosed.
@@Mayhemsmomturns out it's not that rare but I think she has a really really bad case
People think animal protein is necessary, when it's not.
Even his voice sounds tired. Bless this man, and I hope he gets help and time for himself.❤
It sounds like a very put on vocal fry.
@@BedmomentsHave you ever been the primary, or only full time caregiver for anyone?!
@@cacampbell3654 yes I have.
He's got the vocal fry of a teenage girl.
@@cacampbell3654 yes I was a nurse for years too.
As someone who has chronic illnesses I have no advice just a deep empathy and understanding for you both.
I find my support group comforting. We just bounce ideas around, never advice.
Sometimes letting someone know they're not alone is life changing 😊sorry for your struggle too. 🙏
Hope everyone doing good and staying safe. If you need to talk to someone or need help, there are people who care. Sending support and hearts. ❤❤❤
Well I got some advice. Check out the carnivore diet. Watch some of Dr. Shawn Baker's interviews with people who have benefited. Check out Anthony Chaffee and Paul salidino. Read the endless comments from people who have improved all sorts of health problems with this diet. Maybe it will help you, maybe it won't. But it's worth your time to check it out.
Yep. My first reflex is to think of advice to give, but that's frequently the least useful thing I can offer. You're a good person, dear internet stranger. Thanks for the reminder about how empathy from sideline cheerleaders should be conducted 😄
This is a REAL man taking care of his love.
I do hope that Diane’s diet is helping her. I know from personal experience how following a restrictive diet and eliminating certain foods can be very healing. I struggle with autoimmune problems. A few months ago I decided to go on a carnivore/animal-based diet. After six months I tried to re-introduce corn back into my diet, and my reaction to it was not good. I find that when I follow a predominantly animal-based diet, the chronic pain I experience diminishes, my sleep improves, and I feel better, more rested and stronger.
I do hope they do consider the lion diet.😮
@@rbt772 ~ I think that would be a good idea.
It's crazy how everybody's body is so different and how something that works for one can be totally impossible for someone else. You'd think it's all just food, but everybody has a specific diet that is best for their body chemistry. I just find that so interesting and I'm glad you found a diet that makes you feel good.
@@TheSkylineAwaits ~ Agreed, and thank you.
I am so glad she has you in her life to help support her recovery.
Amen!
Is that not what love is supposed to be? Have we stooped so low? Yes we have. To congratulate someone on doing something that is as basic as putting on not two right pair of shoes in the morning.
Am i going to be told by some one that it still is cute or worthwhile? Probz
Still. Weird reading these comments while considering New Age Love
@@groovygambino4908 I'm not congratulating anyone???
I am simply expressing gratitude that someone I enjoy has caring support system. Many people do not have that.
Are we not allowed to be grateful now?
Your comment is thoroughly confusing to me.
he is part of the cause of her ongoing psych issue and is not helping her
@@MarkasTZM Ah, a doctor with a diagnosis based on decades of study and experience. What psych issue, doctor? What is your professionally advised treatment?
[Great husband, please read this to Dianna]
As someone who has almost entirely recovered from CFS, against the odds, please note the following...
When Dianna recovers, and on her journey of recovery, we MUST NOT want her to have that same extreme energy that she had before. She must understand from us that it's OK for her to be normal. She'll be of tremendous value even then, be sure of that.
Part of her recovery is to know that she's not aiming for that overdriven state that she was in before.
I was told this about myself by an excellent neurologist in London in ~2001, Dr Kapoor, but it took me until 2012 to understand it properly, not least because everyone expected me to be like I was before.
Like Dianna was before.
My trigger was different, but the results were similar. Just a year before I was struck down, colleagues said of me that I had endless energy; that I could work almost indefinitely without a break.
Let's help her heal by helping her understand that we love her however she is. She doesn't have to be like she was before; in fact we won't want that. We want her to be sustainably healthy. She'll still be amazing. She'll need to change her expectations of herself, and that will be a long and difficult task.
She will recover. With our help.
One great thing is that her great work was captured on UA-cam. I sincerely hope that her great work is preserved for eternity. We should not assume that she can simply recreate it.
The scientific brain wants to break everything down; identify the exact cause of the problem, fix it, and get back to exactly as before, like when fixing a racing car or some software. But that approach doesn't work with CFS. It's a more holistic thing than that. It seems to involve the whole body-brain interaction deciding for itself whether what it's doing is in its own best interest.
She can't ignore what we think, so let's be sure to think what's best for her.
xx
❤❤❤
She might improve to some extent. The prognosis isn't very good for ME/CFS though. Most people don't recover to a significant extent. Reasonable improvements are generally the best you can hope for.
Thankyou so much
This is what I really needed to hear
I had CFS in HS but have never been the same, and struggle to match my twin Sisters achievements and energy.
I'm so far a lot better but can get really tired and need a whole sleep day and have a constant fear of it coming back
But this was a bitter sweet truth
What is CFS?
@@Jelleybean18 Chronic Fatigue Syndrome
Hats off to her husband. In sickness and in health……these are not just words. Look after yourself too.
seeing a lot of people recommending exercise so just a reminder that if you're diagnosed with moderate-severe ME/CFS like she is exercise is VERY dangerous and not at all recommended. I'm much less disabled than Dianna and my specialist (Dr. Susan Levine) said that she wouldn't be able to do PT with me because of how low my exertion tolerance was. If a patient with severe CFS reaches Post Exertional Malaise (PEM, or a "crash" as many of us call it) it's almost guaranteed to make them worse. I attempted PT when I was first diagnosed because it was (incorrectly) recommended to me and it nearly caused me to become bedbound. We're now finding out that rarely people who are already in a very severe state might crash so hard that their organs fail because they don't have enough energy to keep going. I know the default for every condition is "exercise and you get better!", but please don't encourage Dianna to hurt herself in the name of getting back to making videos.
I got diagnosed with fibromyalgia and ME/CFS together and tried to exercise my way out of fibro without really looking into ME/CFS. That was such a huge mistake. Im almost 3 years past the onset of my symptoms and I'm only now starting to recover from the initial damage i did trying to push myself.
Low impact stretching and assisted stretching (having a physiotherapist move your body for you) has helped a lot with my pain and mobility. But fatigue is the hardest thing to break. I just cant do much before hitting a wall where I'm just not present or capable anymore.
Also that PACE trial was badly done and exercise definitely does not help CFS. and yet it’s still the protocol
@@saritshull3909 luckily the FDA, CDC, and WHO all recognize CFS as having no treatments and the CDC even has a warning against recommending exercise to patients. I'm hoping eventually the "reputable" sources that claim exercise helps CFS will follow
genuine question is this fatigue just in your head and could you say power through it with I don't know painkillers and "enhancers" or is it "really physical"? Sounds strange I know and I'm not trying to produce a therapy here, I was just wondering can people die from it, or would it be the circumstances of laying in bed all time (no movements, infections and so on)? Also, what would happen if you took something which alters your mind, the usual stuff you know? Could you simply "forget" to have this illness?
@@climatixseuchet isn't "just in your head". That idea is what is so damaging to the ME/CFS community, but I understand you were asking a genuine question. The fatigue is nothing like tiredness or sleepiness, it's like all energy is being stripped from your body so things that you don't really think about like breathing and moving become the effort of if someone else did 1000 pushups. So you can't push through, and yes, unfortunately people with the most severe forms of ME/CFS have and do die. The condition is just not well enough understood because people think its just "all in the head". Hope that clears things up a bit.
Also, exercise (eg powering through) has been suggested as a treatment and it does so much more damage than good.
This is heartbreaking. I am so sorry for Dianna and her loved ones. I wish for a swift and complete recovery for this amazing young lady.
Considering it’s been months, I don’t think Swift is the operative word anymore
Swift? It’s been a year already. Yes, that’s wishful thinking.
She's gone
@@fosminclorin she died?
So disgraceful and fake.
I salute you sir! For better or for worse is forever with these two!! Prayers to you and your family! May God bless you and your family's!!❤❤
I am praying for a miracle that you have a full recovery. Miss your posts. Miss you. God bless your husband too.
It took me so long to realize this was the same woman I had seen in the science videos. It’s heartbreaking. I am adding to the mountain of prayers for Dianna’s recovery.
Wait what happened to her
@@_Hollie_ she is suffering from long covid and has been bed bound. Her husband is caring for her. 😢
@@Wickedweirdwednesday oh wow, thats really sucky. I hope she can get better
@@Wickedweirdwednesday what do you mean covid, as in covid-19, the 2020 coughing virus?and she can't eat normal food?
@@mr.gurung745 some people do suffer from Long Haulers Covid. There's some plant bioactives that show promise; which is probably where this diet is coming from.
Hes an angel. I have CFS, my children who are teens remember me just lying in bed. Im divorced so its taken a toll on us all. It makes me cry thinking of how much he loves her.
As a man, and husband, he is awesome and it's great he gets recognition for that, but he it seems so obvious to him and the rest of us when she is as awesome as she is. Given how amazing Dianna is, any relatively awesome husband would do the same. I'm sure he feels privileged to be the husband who does that, and I'm glad she has him.
Isn't it great to see there are still heroes left in the world? Congratulations, you survived, & your children are still w/ you! That makes you a hero too. Single parenting (extra-specially w/ physical challenges) can be tough. I have survived it w/ Jesus' help.
Did your illness weed-out the un-supportive situation? That is what happened with me. It was much easier to get stronger without the constant stress of an un-supportive & even cruel person. Prayers for you & children :) :)
@@brendaann727 bless you. Thank you for the kind words. My support system or lack of actually do not believe that fibromyalgia and CFS are real, depression and anxiety aren't real.
I've joined some support groups and my lovely teen daughter helps me as much as she can. I'm like no it's real it's listed in my medical record. I had no idea it could become so severe. It seems to get worse with age. I feel like I have a terrible flu with mononucleosis kind of fatigue. We're all blessed for a loving person to recognize our limits and have a little empathy. I pray this lady bounces back.
I thought she had long COVID? Is it CFS?
@@Initium1000 that's what the comments imply. There's words overlayed on some of the text but it says CFS/PE. The PE is post exertion if you've done too much or really done even regular things like housework. Any exertion really.
I hope she can recover fully, for both of you, and good on you for showing everyone what a real man looks like.
Mast cell activation syndrome has no cure
You're in our thoughts dear Dianna, hoping you a full and speedy recovery 🙏
This incredibly dedicated and selfless man is awesome, you can see he is giving everything of himself to help poor Diana - often the carers get overlooked and become ill themselves
I misread it as selfies man.
I was my mom's caretaker for five years lived with her. I can count on my two hands the amount of times my six siblings came around.
@kittyfeline6857 same here. 1st my Dad and now my Mom. It blows my mind.
I feel bad for him. This is an awful way to live and deal with loved ones.
@@kittyfeline6857that's awful. But, unfortunately pretty normal.
I went to visit a friend in hospice once who was only 35 and he was within 24 hours of passing and no one was in there with him. He lived in the city he grew up in and was born in. His family all lived in that city and so did his significant other and their little one. I stayed and held his hand to the bitter end.
Somehow it’s a little comforting to get a glimpse into her care. I hope she has more good days where she can gradually add more interesting food.
Keep hope alive Kyle!!! And Diana keep fighting!! You are a light in this world and a bright shining one. You’re enthusiasm of and for science is so….amazing …and…it really drives curiosity of others and gives information to people who otherwise might not even know they were interested in. I love your videos but most of all love you sending tons of healing vibes your way for a recovery that has a better quality of life even if that means not being on YT anymore!!!
We are pulling for you Diana. Great job to you and your hubs. Hurts my heart to see you like this. You are and always have been such a strong human being. Lots of love and positive thoughts to you guys.
I cannot imagine. Get well soon!
✝️🩸
Luke 5 KJV
31 And Jesus answering said unto them, They that are whole need not a physician; but they that are sick.
32 I came not to call the righteous, but sinners to repentance.
✝️ The gospel of your salvation 🩸
Ephesians 1 KJV
13 In whom ye also trusted, after that ye heard the word of truth, the gospel of your salvation: in whom also after that ye believed, ye were sealed with that holy Spirit of promise,
1 Corinthians 15 KJV
1 Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand;
2 By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain.
3 For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures;
4 And that he was buried, and that he rose again the third day according to the scriptures:
Romans 3 KJV
24 Being justified freely by his grace through the redemption that is in Christ Jesus:
25 Whom God hath set forth to be a propitiation through faith in his blood, to declare his righteousness for the remission of sins that are past, through the forbearance of God;
♥️know♥️
1 John 5 KJV
13 These things have I written unto you that believe on the name of the Son of God; that ye may know that ye have eternal life, and that ye may believe on the name of the Son of God.
Trust me, you don't want to. I wish them both all the best
A trick if she has trouble swallowing pills and capsules, put a little oil, I usually use flax seed oil, in a spoon, put a few pills or capsules in it and coat them well with the oil, and then have them take the oil and pills together. The oil coating keeps them from sticking in the throat.
And as a caregiver and nanny, I say hubby gets a gold medal, it looks like he's truly caring for her.
This is very simple and helpful advice. THANK YOU FOR SHARING !
@@sarajames981 Not reslly... no seed oils. They cause inflammation. Stick to the coconut oil.
I also use yoghurt and applesauce/fruit purees with success, but the oil is easy to do and doesn’t require to open something perishable.
@@saulemaroussault6343 the specific person I was helping when I thought of using the oil, the large pills and capsules would stick on their esophagus wall and basically stay there until they dissolved, which was very painful for them, they were on some strong stuff in the hospital.
Water based substances weren't helping, because things were swollen and gelatin is just sticky when wet, but the oil keeps the capsule or coating dry, and thus not sticky, until it gets digested off in the stomach.
So yes, applesauce etc is a good option for normal situations, and the little applesauce cups are great for it, but if they are having them actually stick, the oil really seems to prevent that.
And I suppose you could also coat them with butter, or something thicker as well if needed.
Oh my gosh thank you!
Hey! Person with ME/CFS symptoms for almost 20 years here. I'm sure you have many people telling you what to do, unfortunately there aren't many practitioners that we can trust and people like to advocate about what worked for them. I don't want to be that person, I just want to share a breakthrough I had in case this might be helpful to you. I am still thankful to Yasmina Ykelestam who in a call told me to check oxalates and she had a feeling that it could be what was harming me the most. Back in 2014 I was really bad, always loosing weight and extremely tired and fatigued. Beddridden. I went to all doctors, nutritionists, etc. Lost 14 kg. After talking with her, I went back to my OAT tests and I oxalates were really high. I also knew I was reacting to FODMAPS, salycilates, gluten, dairy and eggs. After I stopped eating buckwheat toast and persimmon, I gained 3 kilos in a month, in time for my birthday. The oxalates were burdening my system, so in a few weeks I was able to go from 5 foods to 20, including kefir (from a specific brand, as it sometimes depends on the microbiome of the kefir). The diet you give her is very high in salycilates and oxalates - I'm not saying her problem is like mine, but these foods overload her liver a lot, but the bottleneck might be in other place. I'm happy to help in any way, I'm not a practitioner or anything, but I can share what I learned and what worked for me, or even direct you to some specialists or resources. Good luck!
Did you take oxaloacetate supplements at all? I hadn’t heard of the info you cited here, but it took me a long time to recover from long covid and this supplement was a game changer.
U ARE A GOD SENDT GOD BLESS U ❤
That is a seriously dedicated husband who took the “in sickness and in health” vow to heart. Kyle, you are an exemplary person. Wishing you both the very best throughout this.
Wishing Dianna all the best in her recovery ❤
It took 9 years for my husband to finally acknowledge my CFS. I am in awe of everything he does for her.
Oh, hon, I’m so sorry. My husband has been supportive, fortunately.
That makes me sad. I always consider peoples illnesses. I don't just disregard them. And for it to be somebody you love that's not being supportive that's very hurtful
Hey sis, I hope you have the support you need. You deserve to be seen and heard.💜
CFS ????? Please write the long form with the standard abbreviation after it in parentheses
@@stephenstewart13chronic fatigue syndrome.
Science isn't the same without you Diana, get well soon, we love and miss you
@@user-kl9bi4jt4t Science lessons, sorry for your confusion.
Our daughter had POTS growing up. Laying down like this made her become very deconditioned. We sat her up alittle each day, until she could sit up all the way. She took salt tablets for electrolytes and we moved her to a window to get vitamin D and eventually moved her outside. Pistachios are not really that good for you if you read about them. They can mess up your kidneys. Eat walnuts.
She made a full recovery. POTS is awful. I hope she recovers from covid.
Was she also not eating any animal products?
She might have a nutrient deficiency with her restricted diet. Lack of appetite and low energy is a huge sign of low iron, B12s and being in that dark room will make her vitamin D deficient. All to which will make her extremely tired
Neither are chia seeds. It's unreal how food fads come and go
Animal protein and fats … That’s what our bodies are made of, and they are the building blocks we need to repair and rebuild. 🙏🏻🙏🏻🙏🏻
Vegetarians have existed for 100 years. Meat eaters have existed for over 100,000 years. If you or your child are sick and nothing is helping, perhaps it’s time you consider lack of bioavailable nutrition. How could such a simple change affect health? If you are not getting the right kind of amino acids, or you are missing trace minerals your body can not make the proper hormones which control all aspects of your human health including tissue repair. Cholesterol is crucial to proper neurological functioning.
"In sickness and in health"...he epitomizes that in every sense of the words. Hats off.
A+ caretaking, brother. We're all pulling for her recovery.
I'm just hoping for the day to come soon where Diana puts one of these videos out where she says "Hi guys, Diana here I'm really tired but as you can see I'm improving". Thats what I want for a birthday + Christmas present this year. The world is a little darker without Diana's light shining for us. Get well soon Diana, we all miss you.
💜🥹me too
Well said. ❤
It's easy to end up missing some key nutrients when on a limited-ingredient diet, be sure to consider supplements like multivitamins and amino acids and so on, especially things like B12 and D3. Nutrient shortages can really put a crimp in recovery.
Also we probably still don't know everything the body needs for full health, so consider rotating ingredients to cover more bases rather than hope that a single strict limited-ingredient diet is necessarily going to be complete even if it looks that way when analyzed on paper.
Agreed. Adding D Drops to get D3 would work, since she can have coconut milk, and it uses a coconut oil base.
Butternut squash and apples are medium and high FODMAPS, respectively, which increase Mast Cell activity: Kabocha, Buttercup, Hubbard, and Delicata are low FODMAP, low histamine, and keto, and blueberries are low FODMAP, low histamine, and keto. FODMAPS also increase joint pain.
Adenosylcobalamin is the best form of B12 plus Folinic Acid. Both of these will help to stabilize mast cell activity. Methylcobalamin and methyl folate are better than cyanocobalamin and folic acid, but if she has symptoms of over-methylation, then switching to adenosylcobalamin would be best, especially for memory issues and anything to do with nerves (like parasthesias), since it helps the myelin sheath to function. Hydroxycobalamin is best for macrocytic anemia.
I’ve been struggling with a restrictive diet for a few months from symptoms of MCAS. My daughter has long-COVID and likely moderate ME/CFS.
The D Drops are super easy to take. The folinic acid and adenosylcobalamin are sublingual so there are no pills to swallow. I also take calcium carbonate and magnesium citrate in powder form. Calcium carbonate is neutral-tasting enough that it could be added to the coconut smoothie. YMMV
Healing is such hard work, and I’m so grateful for all the work being done by Kyle and Dianna and other support people. Dianna is always worth it.
❤❤❤❤❤❤❤❤❤❤
She’s on the limited diet bc it’s the only foods she doesn’t have allergic reactions to. So rotating ingredients may not be possible. With mcas, we can also be allergic to ingredients in medications and supplements and most of us have to get those specially compounded at a special pharmacy, which is costly. B12 and D3 are both good recs as those are lacking a lot in those with mcas (those help process histamine and we have too much histamine)- but she’d have to get it prescribed and maybe compounded (I have to get both prescribed so they’re pure with no fillers).
I’m really hoping she gains back foods like I did- I was down to only 3 foods in 2020, but gained most back the next year.
Still praying for a full recovery for Dianna. _/\_
In a dark room with sleep mask, not what I wanted to see. Come on Dianna, you can do it!
we're rooting for Dianna
Get well soon.....we need you ❤
One day at a time... Sending healing and comforting thoughts. Keeping you both in my prayers
It's just good to see some men won't abandon their partner when they get sick.
Uhh... most will not, women usually are the ones to leave
@@tropingreenhorn source: your imagination? statistics say that men are 7 times more likely to leave their sick spouse than women, so you're lying
@@tropingreenhorn That's wildly easy to look up.
Just hope that SHE does not abandon Him
omg, nurses joke about how men notoriously leave a spouse while she is in the hospital even if they have kids. who would think women leave??
Thank you for the update. I can't imagine how exhausting this is for both of you, so I (and I'm sure everyone) hugely appreciate the effort to post a video. Really rooting for her recovery!
Agreed. It must be really difficult to have the energy and mind to record a video in between all the things you have to do to take care of her and yourself. We appreciate your efford so much!! And we all hope she recovers soon.
My heart breaks for her and her husband. I’m a homeschool mom and Diana’s channel was a staple for learning Science in our home. We miss you, Diana. Rooting for you and better health.
Dianna, we miss you and are keeping you in our thoughts every day!!! You were one of my first youtube subscribes way back! Thank you so much!!!!
Thank you for caring for Dianna and not abandoning her when she needed you most. You will be rewarded in life with the same love and support you've given her and I know once she recovers you 2 will be able to over come anything the world throws at you. I know how hard it is to care for a loved one. I've cared for my grandfather for the past 10 years and I would do it all over again. He stepped in as my father when my own didn't. ❤ my prayers are with you guys always
@@kovy689ofc she will improve if things are getting better. please done be a nihilist
As a fellow supporter and husband of a partner with CFS (and other chronic conditions) I applaud your attention to detail and managing to keep the bags under your eyes from growing :)
Stay strong, keep healthy, enjoy the little things, and things will improve before you know it! Thoughts are with you both
Bless You both ❤
Chronic fatigue? I also have CFS I’m a lot better now than I used to be but when I was in this situation I wouldn’t have gotten through it without my mum looking after me like this. The true hero’s are the caters aren’t they? ❤
This is so hard... 😢 My heart goes to you both. Caretaker and patient both go through some pretty hard trauma when life changes that drastically. Your courage is so touching, both of you.
I had a brain tumor the size of a grapefruit ( I had been telling them I always had head aches) but no, you aren’t the same after something like that. Be more patient with your self and others as you get to your new normal!
@Dawn Vega Get out!! Me too!!! I'd love to chat with you!
"It's all in your head"
Hope you're doing good, that's quite a huge tumor
@@alinurgali2968 Right? You wouldn't believe the questions. "Couldn't you see it sticking out" 🤦♀️. Then try to explain your shaved head for the next 10 months.
@dawnvega383
Did you have problems getting lost in your town when you were allowed to drive again?
@@judyherzog8986 STICKING OUT?? Are they that ... uneducated?
I am so hoping for your complete recovery. It’s very sad that you have to go through this. Sending you healing thoughts. ❤
On what do you base your very negative and unhelpful assertion; on what factual evidence?
Blessings to both of you. Thank you to Dianna’s dear husband for sharing her recovery and meal prep. Healing ❤️🩹 hugs sent Dianna’s way & comforting 🫂 hugs sent hubby’s way. Dianna, get well as you’re able to in your own way. Definitely miss your presence on YT, however, your health and that of your hubby’s too as a caregiver is of the utmost importance right now. Take good care. 💖🤗
That's so tough. Thanks for taking a little time to share. It's so important to raise awareness about LC. Best of luck with treatment.
As someone suffering from Fibromyalgia, I hope you recover soon. I wouldn't wish it on my worst enemy. We all miss you. Don't push yourself too hard.
Hey, I have fibromyalgia too. I just wrote a comment on my mother having CFS at my age.
what's the connection between fibromyalgia and oxalate poisoning?
Wishing y'all the best❤
I UNDERSTAND THIS SO MUCH!! I'M PRAYING FOR YOU BOTH. WE HAD INTIALLY ASSISTANCE, BUT I CAME HOME FROM WORK AND MY MOTHER WAS ALONE. I WAS SO ANGRY.
AFTER I CLEANED MY MOTHER AND FED HER, I CALLED THE AGENCY THAT WAS SENT THROUGH THE HOSPITAL AND TOLD THEM NEVER TO COME BACK. I FIRED THEM AND WENT TO HOSPITAL AND TOLD THEM WHAT HAPPENED.
MY MOTHER DID NOT DESERVE TO BE TALKED TO AND TREATED THE WAY SHE WAS DONE. SO I TOOK OVER. ITS EXHAUSTING, BUT I KNEW MY MOMS NEEDS AND MADE SURE SHE WAS TAKEN CARE OF.
BE ALERT TO EVERYTHING. YOU ARE HER VOICE AND HER ADVOCATE.
So much love. I’m like this more than half my life with chronic pancreatitis from cystic fibrosis. And gastroparesis from CF, EDS and Celiac. But I do it alone. What a wonderful man. Thank you for sharing and helping her ❤🥹
You are an amazing husband. I am glad that she has you and I hope to hear better news about her recovery.
he is part of the cause of her ongoing psych issue and is not helping her
@@MarkasTZM why do people even program bots like you?
@@dzaijn amazing how many “long COVID isn’t real” bots are here
She’s mentally ill. Or extremely self-absorbed, self-centered to the max. OR both. Don’t pander to folks like this. When you stop pandering, it’s shocking how they snap out of their performance.
@@user-kl9bi4jt4t the truth is, Long COVID is real
I'm so sorry. I can't believe it's taking so long for her recovery. It's not fair. If she reads this, you're amazing physics girls and I hope you recover really really soon and can get back to what you love ❤️
@Austin Chubak I think she has the eye mask on all the time to help with the migraines so she’s not reading anything 😔
I'm so very sorry she has fallen ill, She is an incredible person and an inspiration to many people. It seems these shorts are something you have created, if so, what a way to honor all her hard work and effort!! Sending healing vibes your way, big hugs from FL.
This is heartbreaking -- but also awesome.
Thank you for taking care of her. All of you.
Long COVID disrupts my life, but not anything like this... I'd trade Diana places in an instant if I knew she were better and making awesome Physics Girl videos I could watch later. Here's to a future where she recovers and lives her best life. ❤❤️❤️
Love to you all.
Praying for Dianna and grateful for her husbands support. I dropped out of college due to a similar condition, and was bed ridden for a year. While every situation is different, I can relate. A restricted diet and supplemental enzymes is what got me back to a healthy active lifestyle. It was a long hard journey and I’m hopeful that Dianna will recover!
Was this just depression or were you diagnosed. How did you recover?
She’s lucky to have you. I have this and everyone thinks I can deal on my own. It’s hard to just make food and drink!
I feel so sad that this happened to such a wonderful person. I wish you a quick recovery. Besides, you have to get better, I have so many physics questions to ask. Stay strong, we miss you. Tim W.
A spa, deep massage and a quiet room with white noise playing through headphones is what this man needs. Keep strong bro.
Wishing you a speedy recovery Dianna! 🙏🏻🙏🏻🙏🏻
@@charliecostella, why do you think so?
@@charliecostella, but why do you think it's „a mental issue“? Do you have information that she's feeling better than what the videos suggest?
What is she suffering from ?
@@meliodaskun5688, long-CoViD induced fatigue syndrome.
@@charliecostella people like you who think this way, is because you could do it. You have no morals.
Seeing her like that breaks my heart into pieces, praying for her speedy recovery
I heard a news report on NPR today that long Covid patients have low serotonin levels. I hope that helps lead to a treatment for Dianna and all the other long Covid patients.
How do we get more serotonin?
@Maggdusa Serotonin is activated by the amino acid Tryptophan. There's multiple ways to activate tryptophan. Unfortunately, it's things like exercise and body movement, which Diana and other long covid patients can't do.
I'm so sad seeing Dianna so crushed by this illness. I sincerely hope she gets better soon. It's so very heart wrenching. Good man. Keep going.
We’re all praying for you Diana. You’re an incredible woman, and your husband is a remarkable human.
Both of you are in our hearts and minds. xx😊
I cannot even imagine what this man is going through. To watch your loved one go through so much and always being there for her. You’re going straight to heaven dude. Even though I’m not religious.
If you are an atheist, why do you wish someone to go to heaven that doesn’t exist?
‘I wish good things upon them’ is the metaphorical meaning my dude
Thank you for doing everything you’re doing to help Dianna, Mr. Physics Girl!!! Please tell her that I watch at least one of her videos every day and I always say a prayer for her at the beginning of them.
From another ME/CFS Survivor: Power to you both. I wish you both blessings and lots of Radical Rest. People *do* come back from where you are. No striving. No pushing. No focussing. Surround yourself with their stories, like a gentle, soft blanket. 💖
Get well ❤
Stay strong dude, we're rooting for you guys. Also make sure to look out after yourself, I know its hard to think about your own health at a moment like this but you are basically sustaining two people right now
he is part of the cause of her ongoing psych issue and is not helping her
@@MarkasTZM interesting comment. What drove your thoughts on this? After 5 years in a relationship with my GF, she broke out in a full blown eating disorder. Super self-destructive to the point I had to leave her. She's better now, but I still see the behavior that will always be there.
@@a990dna did your GF have COVID?
@@fastkarr8256 No. her eating disorder surfaced about 5 years into our relationship. It was many years ago with no correlation to an illness. She went through years of therapy and found a renowned nutritionalist that helped her. But it took professionals to change the pattern.
@@a990dna well let’s hope Diana can pull through this
Thankyou for sharing the update. Your time, energy and resources are precious.
These symptoms remind me of a woman i heard describe her experiences when she got sick while she was in a Pfizer trial, and i think she was kicked out of the trial because of the symptoms. I really hope and pray, Diana makes a quick recovery, it is so sad she has been suffering from this so long.
We appreciate these updates on her recovery and we're all rooting for her!
Wishing you and your family all the best.
🙏🙏🙏 Sending Prayers.
Thank you for the update.
I'm sending lots of positive energy and big hugs your way, you are doing so amazing helping her get better, and we're all pulling for her recovery. She will get through this, especially with such awesome support from her family and friends!
Chia seeds can block nutritional absorption.
Thank you for the update. Best wishes for the whole family. Wishing all of you strength. Take care.
Wow. I hope she gets better soon. She's very lucky to have you in her life helping her so much.
Thank you for keeping us updated. We are here with you in spirit. God bless yall.
After watching her UA-cam channel for the last couple years, I feel like I sort of understood her a little. I enjoyed her vibrancy, warmth, intelligence, charisma and gift of sharing fascinating things with us. It breaks my heart to see her like this 😢. She has definitely not aired in her personal life as well, if she landed a husband as loving and caring as you. God bless both of you with the strength to complete recovery for her.
Always watching...
Our prayers go out, for her recovery, and your devotion to her. We miss the PHYSICS Girl.
Best spouse. Anyone who puts this level of care into their loved one (or someone in general) deserves a huge thank you, recognition, and support. I hope you (and whoever else is helping) are taking care of yourself(selves) as well. Remember, it's okay to be a bit selfish when you're being selfless 24/7. We all love and support you guys. 💝🫂
Really? He needs to make her eat proper food. Or at least stick a small amount of liver in her blended puree.
My heart with you both and sincere wishes for her to recover and get better soon
Companies like Nutricia would be really worth looking into if you haven't already. Pre tube feeding I was one some of their meal replacements which are designed for people who can't eat or are medically fragile for whatever reason. They have non diary options too or juice options if thicker fluids are a problem. It can help keep the weight on. 💛
Yes I know someone who works with them and they seem very helpful and the treatment has been the only thing to allow my friend to gain any weight or keep anything substantial down.
I was on disability and bedridden as well.
I now have a part time job and a dog.
I still have bad days, weeks, and months.
One of the primary factors in my recovery was supplements. But doctors don't prescribe those 🤷♀️
Good luck to her and please stay on top of nutrition (especially iron, potassium, magnesium, and D)!
Ironic these are the supplements recommended with a carnivore diet. Can't recommend this diet enough. Give it a 30 day try.
Have you tried sunlight or infrared light? It activates the mitochondria to create antioxidants (cellular melatonin) that protect the mitochondria.
Or just eat real food on a regular basis. 🤷♀️
My heart goes out to you both!! ❤❤ Praying for a full recovery!
Much love and I hope your system recovers fast.. You've always been a bright point in my day whenever I see your stuff. 😢❤😊
I am glad that she has you in her life to take care of her. I am glad that she can get adequate help today. I'm keeping my fingers crossed for her recovery. All the Best!
She is so lucky to have you there to take care of her. God blessed you all!
It is hard work being a caretaker I took care of my mom for a year and a half until she passed and as much as I was happy to do it I was stressed scared overwhelmed❤ much love to this man
Thanks for posting. I really 🙏 for her steady, patient, healthy recovery. There is much appreciation, learning/teaching derived from her awesome channel on YT. 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
I really hope that she is able to recover.
what happened?
@@Nikko_0905 mental illness and depression unfortunately.
@@Nikko_0905 i was under the impression this was long covid induced chronic fatigue and migraines
@@maddawgzzzz She has long Covid complications.
@@Free.zen. y'all out here acting like "long covid" is a real thing lmao. its called: adverse reaction to mrna vaccine.
Get well!!
Sending prayers for a healthy recovery!
Hope you get better D. Thanks for all of the knowledge you’ve shared.
I have post covid Cluster headaches. During the winter, I had them continually for 3 months, until I went to Vegas. For some reason the pressure/humidity there changed something. I went an entire week without any clusters.
I hope the specialist is able to help. I'm seeing about 4 myself and on a bunch of meds for it, but the fact that going there made me not have any was really eye opening about things that can cause inflammation.
Anyway, this comment isn't to center myself. I wanted to say that just in case something that is causing her inflammation could also be weather /allergens where you are. I don't know what region you live in, but I'm in the Midwest, and because of this, I've considered moving to Vegas now.
I can not imagine how Diana feels. I hope she get some relief :C
You got better because you didn't have any reason to be unwell there. You were doing something that you enjoyed and weren't subconsciously trying to get out of the responsibility of day to day life.