Thank you so much! You’re absolutely right, we fibro warriors often have to put on a brave face. I usually try to film when I’m having a good day, and if my energy allows, I’ll film two videos at once. That way, I have two weeks' worth of content, so even if I’m feeling bad for a while, I don’t miss uploading. Lately, it’s been a mix of good and bad days-unfortunately, more bad than good. But I really appreciate the good ones when they come around. Thank you for your prayers and for being such a supportive part of this community! ♥️
Systemic leaking of cerebral spinal fluid which can't be be imaged in the planet's number one medical center Houston. Shreveport they can though. Isn't that so par for the course?
It’s like it never gives us a break, right? I'm really glad you found the information helpful, though. We're in this together, and every little bit of support counts. Keep hanging in there, and thanks for sharing your experience! It means a lot to know we're not alone in this. 💜🤗
Thanks for the suggestion! A video on fibro fog and tips to overcome it sounds like a great idea. I'll definitely work on that and share some strategies that have helped me and others in the community. Stay tuned! 😊🌸
Thanks so much, Cathie! I really appreciate it. Hitting 15k is such a fantastic milestone, and I'm so grateful for your support. It means a lot to have wonderful people like you in this community. ♥️
Thank you so much, Lynda! Your kind words mean a lot to me. I'm so happy to have reached 15k and even happier to have such a supportive community like you.
I'm so sorry you're going through this. It’s incredibly frustrating when people don’t believe us. I totally understand, I've been there too. Fibro flare-ups are absolutely brutal, and you're right, it is a disability. Remember, you're not alone in this. We're here to support each other. Hang in there, and take care of yourself. You've got a community that believes you and is cheering you on. 💖
Congratulations on 15k!! Thank you for another beneficial video on Fibromyalgia, I always look forward to and enjoy watching your new videos. I hope you're well!
Thank you so much! Hitting 15k feels amazing, and I'm so grateful for your support. It means a lot to hear that you find the fibromyalgia videos beneficial and enjoyable. I'm doing okay-dealing with some flares and other issues at the moment, you know... the usual, but we keep on trucking. I hope you are doing well.♥️
@@tt_looking_glass I bet it does feel amazing! I'm so glad I found you and your community! I really hope the flare goes away soon and the other issues become easier for you. I'll keep everything crossed. But keep being the boss that you are! I'm having my biggest flare up yet and it's kicking my butt. I have my heating blanket and heating pad on me and just taking my meds, there isn't much more I can do to help myself as far as I'm aware and I live on my own I don't have anyone to help me with anything. ❤
I'm so sorry to hear that you're dealing with such a tough flare-up, especially without help. It sounds like you’re doing everything you can with your heating blanket and meds,sometimes that’s all we can do. Remember, you’re not alone; we’re all here supporting each other. I’ll keep everything crossed for you too. Hang in there, and keep being the incredible boss that you are. Sending you lots of love and strength! ❤️❤️
@@tt_looking_glass It's something that I've gotten used to doing on my own for a good few years now. I love that everyone here in this community supports each other and it makes me feel like I belong. Hopefully things will ease for the both of us sooner rather than later. Sending you lots of love and strength too❤❤
@@TheFemaleBoss93 It’s so inspiring how you’ve found strength and resilience in doing things on your own for years. This community is truly special because of amazing people like you. Feeling that sense of belonging and support makes such a difference. I’m right there with you, hoping for easier days ahead for us all. Sending you lots of love and strength right back! ❤️❤️
I totally get how you're feeling. It's so tough to think about the future when you're dealing with something so overwhelming, especially at a young age. Just know you're not alone in this-I’m right there with you, navigating chronic illness myself. I've had fibromyalgia since I was 18, and though it’s exhausting at times, I’ve done so much with my life. I document a lot of it here on this channel in vlog form, and I also make various videos with tips and advice. Feel free to explore the channel! Even though I have multiple chronic illnesses, I have a playlist just for fibromyalgia. It's okay to be scared, but remember, you're stronger than you think. Surround yourself with supportive people, and take things one day at a time. You've got this, and we're all here cheering you on!
I was formally diagnosed and again after a second opinion at 27 (although my symptoms started many years before that) I went in remission at 34 years old. I’m about to be 48. I’m still fine. No issues.
Congrats on reaching a well deserved 15K subs! I'm not surprised as you work so hard and your content is so helpful and inspiring. I think this is a good vid to show to people who know someone with fibromyalgia and need info on what it is as well as for people who are newly diagnosed.I'm sure we'll be congratulating you on even more subs too! Fibromyalgia is a frustrating disease but you've helped and are helping so many people, myself included.Also, can't wait to see how your Inversion chair worked out.There was something so cute about you and your hubby putting it together too-you guys are adorable together.
Thank you so much for the sweet words and for celebrating this milestone with me! I’m so excited to reach 15K - I still remember when I hit 1K, and it feels like a dream. I’ve been working really hard to grow this channel and reach those who may benefit from it, so your support means the world. I'm thrilled to hear that you find the content helpful and inspiring. Fibromyalgia is definitely a tough journey, but having this community makes it a bit easier. I agree, sharing these videos with those who are new to fibro or know someone with it can really make a difference. And yes, more subs would be amazing - fingers crossed! 😊 As for the inversion chair, stay tuned! It didn't quite work out but I will share the deatail in a future vlog. Thanks again for your support and encouragement! 💜
Thank you, Paula! ❤️ Yes, muscle tension, stiffness, and contractions are definitely common in the fibro community. It's like your muscles never fully relax and are always on edge. How about the rest of you? Do you experience this too?
Thank you Daniela,that's true! No way to relax them,the worst are legs and glutes for me.:( as after some time of walking I have to sit cause I can't continue more..It makes me feel so bad,but I am trying to accept it.lots of love❤
I'm sorry to hear that, Nellie. It's so disappointing when something that holds so much promise doesn't work out. I know how frustrating it is to get your hopes up and then not see any benefit. Don't give up, though-sometimes it takes a bit of trial and error to find what really helps. Sending you lots of positive vibes and hoping you find relief soon. 💜
I am trying to saying this in the nicest way: your information is very outdated. I’ve been in remission (with a couple of pop up episodes) for 14 years. It can happen. You don’t mention food, dietary eliminations, and supplements etc. That’s how I did it. I’ve live a normal life now.
Hi Stephanie, thank you for your comment and for sharing your experience! I want to clarify a few points. This video addresses the most frequently asked questions about fibromyalgia, not every aspect of the condition. I do have other videos where I discuss the significant roles of nutrition, dietary eliminations, exercise, and stress management in managing fibromyalgia. Regarding remission, I fully believe that remission is possible and celebrate those who achieve it. However, it's important to distinguish between remission and a cure. Remission means symptoms can improve significantly, while a cure implies the condition is permanently gone, which current medical understanding does not support for fibromyalgia. Thank you again for your input. It’s through sharing diverse experiences and information that we can support and educate each others. All the best.
You are looking beautiful. I know we fibro warriors often fake feeling better. However, i am praying you are having a great day!😊
Thank you so much! You’re absolutely right, we fibro warriors often have to put on a brave face. I usually try to film when I’m having a good day, and if my energy allows, I’ll film two videos at once. That way, I have two weeks' worth of content, so even if I’m feeling bad for a while, I don’t miss uploading. Lately, it’s been a mix of good and bad days-unfortunately, more bad than good. But I really appreciate the good ones when they come around. Thank you for your prayers and for being such a supportive part of this community! ♥️
Systemic leaking of cerebral spinal fluid which can't be be imaged in the planet's number one medical center Houston. Shreveport they can though. Isn't that so par for the course?
Yay, congrats on 15k!!🎉
Thank you so much 😀 I can't believe it happened so quick. My goal was 10K by the end of the year.
i think the collar bone pain is horrible with it and constant lower back pain , never ending , thank you for the information 🤗
It’s like it never gives us a break, right? I'm really glad you found the information helpful, though. We're in this together, and every little bit of support counts. Keep hanging in there, and thanks for sharing your experience! It means a lot to know we're not alone in this. 💜🤗
Thank you for sharing this info Daniela! Congratulations too, on your 15k!!!🤩🥰 Geri
Thank you so much! You have all been so supportive. It's all thanks to subscribers like you who always comment and cheer me on. ♥️♥️
Plz make a complete video on fibro fog, and what we can do to overcome fibro fog
Thanks for the suggestion! A video on fibro fog and tips to overcome it sounds like a great idea. I'll definitely work on that and share some strategies that have helped me and others in the community. Stay tuned! 😊🌸
Nice one mate, congrats on hitting over 15 k, what an amazing achievement 🎉
Thanks so much, Cathie! I really appreciate it. Hitting 15k is such a fantastic milestone, and I'm so grateful for your support. It means a lot to have wonderful people like you in this community. ♥️
Thank you so much Daniella for this information. Congratulations on your 15k!! Absolutely, wonderful. Blessings and shining light.🦋 🌟🎉❤️
Thank you so much, Lynda! Your kind words mean a lot to me. I'm so happy to have reached 15k and even happier to have such a supportive community like you.
All I know is nobody believes us! Im 0n my first day of a flare up, throwing up because of dizziness and it is a disabilty!!!!
I'm so sorry you're going through this. It’s incredibly frustrating when people don’t believe us. I totally understand, I've been there too. Fibro flare-ups are absolutely brutal, and you're right, it is a disability. Remember, you're not alone in this. We're here to support each other. Hang in there, and take care of yourself. You've got a community that believes you and is cheering you on. 💖
Congratulations on 15k!! Thank you for another beneficial video on Fibromyalgia, I always look forward to and enjoy watching your new videos. I hope you're well!
Thank you so much! Hitting 15k feels amazing, and I'm so grateful for your support. It means a lot to hear that you find the fibromyalgia videos beneficial and enjoyable. I'm doing okay-dealing with some flares and other issues at the moment, you know... the usual, but we keep on trucking. I hope you are doing well.♥️
@@tt_looking_glass I bet it does feel amazing! I'm so glad I found you and your community! I really hope the flare goes away soon and the other issues become easier for you. I'll keep everything crossed. But keep being the boss that you are! I'm having my biggest flare up yet and it's kicking my butt. I have my heating blanket and heating pad on me and just taking my meds, there isn't much more I can do to help myself as far as I'm aware and I live on my own I don't have anyone to help me with anything. ❤
I'm so sorry to hear that you're dealing with such a tough flare-up, especially without help. It sounds like you’re doing everything you can with your heating blanket and meds,sometimes that’s all we can do. Remember, you’re not alone; we’re all here supporting each other. I’ll keep everything crossed for you too. Hang in there, and keep being the incredible boss that you are. Sending you lots of love and strength! ❤️❤️
@@tt_looking_glass It's something that I've gotten used to doing on my own for a good few years now. I love that everyone here in this community supports each other and it makes me feel like I belong. Hopefully things will ease for the both of us sooner rather than later. Sending you lots of love and strength too❤❤
@@TheFemaleBoss93 It’s so inspiring how you’ve found strength and resilience in doing things on your own for years. This community is truly special because of amazing people like you. Feeling that sense of belonging and support makes such a difference. I’m right there with you, hoping for easier days ahead for us all. Sending you lots of love and strength right back! ❤️❤️
I have it and I'm scared of what my future looks like because I'm so young
I totally get how you're feeling. It's so tough to think about the future when you're dealing with something so overwhelming, especially at a young age. Just know you're not alone in this-I’m right there with you, navigating chronic illness myself. I've had fibromyalgia since I was 18, and though it’s exhausting at times, I’ve done so much with my life. I document a lot of it here on this channel in vlog form, and I also make various videos with tips and advice. Feel free to explore the channel! Even though I have multiple chronic illnesses, I have a playlist just for fibromyalgia. It's okay to be scared, but remember, you're stronger than you think. Surround yourself with supportive people, and take things one day at a time. You've got this, and we're all here cheering you on!
I was formally diagnosed and again after a second opinion at 27 (although my symptoms started many years before that) I went in remission at 34 years old. I’m about to be 48. I’m still fine. No issues.
@@StephanieBogart That’s amazing. I’m so happy for you. Keep doing what’s working for you. ❤️
Congrats on reaching a well deserved 15K subs! I'm not surprised as you work so hard and your content is so helpful and inspiring.
I think this is a good vid to show to people who know someone with fibromyalgia and need info on what it is as well as for people who are newly diagnosed.I'm sure we'll be congratulating you on even more subs too! Fibromyalgia is a frustrating disease but you've helped and are helping so many people, myself included.Also, can't wait to see how your Inversion chair worked out.There was something so cute about you and your hubby putting it together too-you guys are adorable together.
Thank you so much for the sweet words and for celebrating this milestone with me! I’m so excited to reach 15K - I still remember when I hit 1K, and it feels like a dream. I’ve been working really hard to grow this channel and reach those who may benefit from it, so your support means the world. I'm thrilled to hear that you find the content helpful and inspiring. Fibromyalgia is definitely a tough journey, but having this community makes it a bit easier.
I agree, sharing these videos with those who are new to fibro or know someone with it can really make a difference. And yes, more subs would be amazing - fingers crossed! 😊
As for the inversion chair, stay tuned! It didn't quite work out but I will share the deatail in a future vlog. Thanks again for your support and encouragement! 💜
Thank you Daniela!❤ I have a question to Fibrocommunity here:do you experience constant muscle tension,stiffness and contractions? Thanks!
Thank you, Paula! ❤️ Yes, muscle tension, stiffness, and contractions are definitely common in the fibro community. It's like your muscles never fully relax and are always on edge. How about the rest of you? Do you experience this too?
Thank you Daniela,that's true! No way to relax them,the worst are legs and glutes for me.:( as after some time of walking I have to sit cause I can't continue more..It makes me feel so bad,but I am trying to accept it.lots of love❤
I Tried LDN ...it didnt agree with me at all .. im very disappointed...
I'm sorry to hear that, Nellie. It's so disappointing when something that holds so much promise doesn't work out. I know how frustrating it is to get your hopes up and then not see any benefit. Don't give up, though-sometimes it takes a bit of trial and error to find what really helps. Sending you lots of positive vibes and hoping you find relief soon. 💜
I am trying to saying this in the nicest way: your information is very outdated. I’ve been in remission (with a couple of pop up episodes) for 14 years. It can happen. You don’t mention food, dietary eliminations, and supplements etc. That’s how I did it. I’ve live a normal life now.
Hi Stephanie, thank you for your comment and for sharing your experience! I want to clarify a few points. This video addresses the most frequently asked questions about fibromyalgia, not every aspect of the condition. I do have other videos where I discuss the significant roles of nutrition, dietary eliminations, exercise, and stress management in managing fibromyalgia.
Regarding remission, I fully believe that remission is possible and celebrate those who achieve it. However, it's important to distinguish between remission and a cure. Remission means symptoms can improve significantly, while a cure implies the condition is permanently gone, which current medical understanding does not support for fibromyalgia.
Thank you again for your input. It’s through sharing diverse experiences and information that we can support and educate each others. All the best.
@@tt_looking_glass yes exactly. Definitely not cured. I don’t think that’s possible either. For sure remission though ❤️🙌🏻🙌🏻🙌🏻
@@StephanieBogart That’s wonderful. Thank you so much for watching my video. I appreciate the support. ❤️