What is NVLD?
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- Опубліковано 24 тра 2024
- The NVLD Project founder, Dr. Laura Lemle, hosts a round table discussion with experts in learning disabilities from the Child Psychology Division at Columbia University Medical Center. The roundtable discussion includes what Non-Verbal Learning Disability is, the differences between NVLD and other diagnosis, and the ground-breaking research that Columbia is conducting to make NVLD a valid diagnosis in the DSM.
Learn more about Non-Verbal Learning Disability at nvld.org.
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I was just diagnosed at age 34. I've always felt different. I can't create templates, read maps, recall movie plots, and I have trouble with math, but I always made amazing grades, I became fluent in Spanish, I'm amazing at proofreading and spelling, and I'm extremely charismatic and social. I'm so relieved to find a community and to see that I'm not alone. ❤️
I was diagnosed at the 33 💜
I'm a 43 year old man with NVLD and I'm an emotionally destroyed man. The feeling that there's that thought of, "what I might have been able to do if I hadn't been cursed with this problem." I didn't even know what my learning disability was until about a week ago and it opened my eyes. I've found some support from a UA-cam personality, who is also an adult struggling through adult life with NVLD. I was diagnosed with ADD in 1984 at the age of six. I was jerked out of my first grade classroom and put into the basement of the elementary school with children who had differing severities of learning disorders, ranging from Down Syndrome, to kids who were fifteen in the fifth grade and thought they were going to be a policeman to kids with lesser severity of LD.
I would volunteer for experimental treatments, just for the CHANCE at curing this affliction! This is Awful!!!
It is my understanding that because this is a neurological difference, it is not an 'affliction' to be 'cured'. This is just the way we are, and the pathway through is to better understand what this means for ourselves, so we can navigate life to the best of our ability.
Always had learning problems. Diagnosed when I was 24. I'm almost finished Law School
Yes!! Love hearing this. You are such an inspiration to me. Congratulations ☺
Love to hear my friend , you inspire me
👏🏾👏🏾👏🏾👏🏾
I was diagnosed at age 8
Congratulations
I appreciate these publicizings of information about NVLD. I've suffered from it my whole life and am now in my 60's. But I would like to see more research results and information about NVLD regarding adults instead of seeing it almost exclusively focused on children. Yes, understanding children and helping them to deal with this condition is immensely important. But adult lives are important too. We adults can suffer from this condition as much if not more than kids can and could use all the help we can get in understanding and dealing with our NVLD.
Agreed. And while I am glad the disorder is gaining more attention; many adults, such as myself, have wound up getting this diagnosis later in life, so we wind up largely LACKING the tools we may need for this disorder. Believe me, I was relieved to find out that there actually was something up with me when I was 22 years old; but I have still been struggling to figure things out several years since then because there are simply no resources for people like me. I am more than certain that those of us diagnosed late in our adulthood still struggle because of this very reason. We really have nothing to really relate to.
1953nagarjuna i second your comment ... Adults need support, solutions and more people to get to know about it
1953nagarjuna May i ask what are your current jobs? i know a family member with NVLD but not officially diagnosed it... and he can't keep a job because of some communication problems ....etc.
I am an adult and I agree. It seems we have barely scratched the surface. I just emailed to be a particpant in a survey. They are working on collecting more information and Columbia is doing a survery nvld.org/adult-survey-information/
@@TheBiteofDelight Im a Spanish teacher. I´ve been struggling to keep a good number of students. some have complained that I am very shy or that they don't feel at ease in my classes. There is always that social or that non verbal area that im not very attuned to.It is very disappointing because there is something off and I don´t have any idea how to fix it.So it´s a lot more challeging for a person with NVLD to keep a job and even to keep healthy relationships at the workplace.
Having so many bad experiences and not knowing how to fix it is very draining and traumatizing for people like us.
Too bad almost all info regarding to nvld is focussed on kids...
Still hits home..
Yeah as if all kids are diagnosed, or as if when they grow up they heal or something
I try to leech off the autism and adhd adult communities since they have a lot of the same issues.
Of course is focused on kids. The younger they can get the help the faster they will learn how to 'act' normal. Of course, people should be accepting of others as they are, but again. Kids suffer a lot in schools, making friends... If you are an adult, you can go and find help. Kids doesn't have that option, their parents make those choices for them. You are an adult, you can go find help. They are kids, they don't have that option.
@@milagrotorres5252 I get what you're saying, but even as adults help is not always available if you can't afford it. I sure can't.
Honestly I don't even know if getting help that would actually help is possible for me. I don't struggle academically and I'm out of school now, its more life in general I struggle with (especially socially).
I got diagnosed four years ago and I hope it gets recognition to help people. I'm 26 and I want everyone to actually get assistance before they hit my age
I have NVLD and ADHD school is so so hard I was diagnosed in 7th grade I'm now going to be a freshman in high school
Same! :)
I was diagnosed at 13 with this and it's been hell! Seeing this made me cry to realize people are working to figure this out
I've been to help in that case then, it was hard in the most unconventional, unrelatable possible way...But at least you see how you are predisposed and it's not your fault. Knowing that, you can understand yours and embrace it, and still push yourself to fix things
Hang in there. I feel for you, as my son has it so I know some of the challenges you may be going through. I say “may” as it seems each person has his/her own unique set of symptoms. My son found some salvation in music & hopes to start college in the fall, studying for a degree in sound recording technology. He will need lots of specialized support. Have you found anything that you have a passion for?
It was pretty dang surreal to experience the exact phenomena at 1:40 as she was explaining it.
Was diagnosed with NVLD at the age of 14. I only know math up to a 3rd grade level. I struggled with bullying which caused the development of social anxiety. It can be extremely overwhelming at times especially with both conditions.
my boyfriend has NVLD and its been really hard to understand, but this video helped ☺️
Are you still with him?
@@ibraosman8710 Why wouldn't she still be with him?
@@keithkarvelis82 tf u want?
@@ibraosman8710 I'm just asking why you think they wouldn't still be together.
im 20 and i struggled my whole life in education settings until i was diagnosed in grade 11, my last year of high school with all the help i could get i was actually able to soar thru classes with better grades! im grateful for the research people do to make the things not possible to elders with nvld possible for me and ill forever be grateful i could be this lucky in this day and age for the science and technology we have so we understand neurological disabilities even better now ^_^
thank you for doing this for us who have NVLD
Finally! I'm pleased to see more investigation & research on this topic. While I've read many books on the subject, I am aware that there is almost no public recognition of NVLD. One thing I would stress is that everyone involved in this field focus on the strengths that people with this learning disorder have. Many of the difficulties can be overcome & you can learn to adapt. You might not be able to overcome all of them, ( for my loved one the social interaction & self confidence in social settings is the most difficult obstacle to overcome) but you can still be a happy, successful individual with NVLD.
Great to see research into NVLD when the info about the condition is so scarce.
sending this channel to my boyfriend so he can get a better understanding of my disability! thanks so much, channels like these for us are pretty few and far between
I have NVLD, ADHD, Dysgraphia, and I'm bipolar and I was diagnosed with NVLD last week
Thank you all for your hard work and dedication. I have NVLD and pretty sure my 88yr old mother has it too. I’ve been able to communicate about my formal diagnosis and shed some light on aspects of who she is as well-we both get lost 😆
I was diagnosed as a teenager, but I don't always fit all the traits associated with nvld. I have a very strong sense of direction and reading maps is easy for me. However, I struggle sometimes with where my body is in space. I have 20/20 vision, but I'm always bumping into things. Social situations are the hardest for me, like if I don't know someone well, it's very difficult to pick up on sarcasm. I want to have friends and relationships and fit in, but in school I always found it hard to make friends and I still struggle as an adult in the workplace. I hear my coworkers talking and making plans and I wish I were included, too...
The inability to read maps, getting lost, and not knowing directions part of NVLD doesn't vibe with me either. I was kind of shocked when I read that that was a part of the problem for a lot of folks.
I was also diagnosed with borderline Autism, do you have that as a co-diagnosis?
I really appreciate this video!
It's partly to do with a lack of myelination in the white fibre of the right brain hemisphere and I think, how the hemispheres connect and interact. Some stimulation and correction is possible through diet and light physical activity, including covering one eye and say, walking up some steps, then back down, then repeating while covering the opposite eye. The Arrowsmith School does some things like that though usually with looking at clocks.
I’d like to know more about that
@@kellysmith8269 Sure. The idea is that the left eye and left side of the body links to the right hemisphere of the brain. If you stimulate the left side of the body in ways it's not normally used to, supposedly it stimulates growth and new connections in the right side of the brain. Even without covering either eye, using your computer mouse with your left hand for a while each day or various every day things, stretching, anything really, you can use to try to stimulate this process. With fish or fish oil in your diet, nuts, vegetables too I guess, you can probably repair some of the right hemisphere fibres and maybe even improve the myelination, at least around the areas of new growth. Others that believe in visualisation or 'The Secret' would say, just picture yourself with perfect function already, not that it's in the future. I hope nanobots can fix me one day but I have to do what I can until then. I'm 44 and it's been a long, torturous journey. NVLD is living hell, mostly, I think anyway.
I believe I was diagnosed with nvld not sure I was just told I have LD that I had problems with math and that I wouldn't graduate from high school, that I needed to be enrolled in a vocational school. Well I graduated from an academic high school with okay marks. A Decade after that i went to college and took a welding course and became a welder/fabricator. A couple of more decades late,r I'm going back to school at the ripe old age of 47 and have enrolled for a vet tech course, hoping to bridge over to full DVM, by the time I'm 50. Not bad for someone who thought all his life that he was stupid.
I have NVLD ADD and Deppriession and its really hard to do simple tasks and i feel ashamed
same here, anxiety too. you're not alone!
@@insertnamehere3971 ibralfc, this is my Instagram, I could help you.
I totally agree. When I was doing a test to get diagnosed and was asked a math question, I got confused. I like seeing stuff written down.
I had to drop out of college because of it. I wanted to be an ECE (a person who works with kids in a daycare) but I was horrible at my practicums because I couldn’t read body language and so much more.
I have issues cutting stuff for example.
My listening skills too aren’t good either.
I have NVLD, A.D.D (NOT A.D.H.D!!!!), SPD, Congenital Nystagmus Horizontal Jerk Type, and a mild form of cerebral palsy (thank Thor I don’t need a wheel chair or crutches]. I just graduated college with an art history degree and plan to go to grad school for arts management. Out of all of the disorders I have, NLD was by far the hardest to deal with. With Thor’s protection and Odin’s tough love, I got through the last half of my hardships during college. I can say that finding the gods and goddesses of my ancestors really helped me. I feel that as someone with NLD and SPD, that I am more open to spiritual experiences and I believe that I have a very acute sixth sense. Do other people with NLD share the same experience that they have a heightened sixth sense?
My sister is hyper so she has ADHD and NVLD and mild astium she takes Risorridone and ritalib
I have add, aspergers, chronic back pain, and strabismus (where one eye turns out involuntarily making it hard to make eye contact, read for long periods, knowing where objects are in space etc). I'm at the point where happiness for me is not a fixed point but a fluctuating one. If I'm able to function as well as a person with only one of the above mentioned conditions I'm happy. It also doesn't help that English isn't my first language so I'm really disadvantaged when it comes to employment.
btw by SPD do you mean sensory processing disorder, or schizoid personality?
@@stevexie2705
Thanks for the reply. I understand what the struggle is like. Sometimes I feel lucky if I even get out of bed and do one thing. I get it.
I found out in 2017 that I have Asperger's (ASD) (my mom hid diagnosis form me since I was three when diagnosed). By SPD I mean Sensory Processing Disorder.
As for unemployment is concerned, I guess it helps to grow up in the upper class (1% (USA)). School and college were always seen as goals that I had to shoot for. I am currently applying for jobs and trying to earn an Archival Science certificate.
Also, I forgot to mention that I have Executive Functioning Disorder
Yeah definitely I also have a tone of stpd symptoms and it wouldnt surprise me if the two were part of the same disorder
@@buddykischer6640 Would not surprise me either.
So many years..."I fucking have something I know it, despite all the fault you can hold me too there's something I have and it's not primarily add, social anxiety or antisocial disorder
I'm glad I was diagnosed early. Although my parents acted like it was wrong diagnoses and kind of expected me to be normal. I knew that I was diagnosed something but they didn't tell me just that I struggle with things. I have found my diagnosis on paper in a box in the atic from when I was 6. It clearly stated I had verbal learning disorder. It didn't say non-verbal but just verbal. I guess it's probably the same but I'm glad I found out what really my case were bc I didn't knew how to explain it to ppl😅
I have NVLD, Anxiety, Depression, APD, ADHD associated with NVLD, I WAS JUST DIAGNOSED WITH NVLD ABOUT 5 DAYS AGO.
I live with nvld, and i live in the netherlands, but i can ride the bike perfectly!
I wish this had been a thing when I was a child. I’m nearly 50 and just learned that I likely have it.
My daughter was just diagnosed with NVLD at age 14. My other daughter had Rett’s Syndrome. She passed away in 2011. I am adopted so I don’t know any
Family history. I know that, one day we will NVLD, ASD’s & Rett’s are all genetic mutations (Rett’s mutation has already been found). First start to a cure!
I grew up in the absolute worst imaginable situation for someone with my condition and only self diagnosed when I reached around 28-29 years old- I will be post traumatic for life- am AM PTSD for life- I was battered by my mom for the first decade of my life and bullied by my step DAD for the rest of my teens- and my sister Nevr EVER left me alone continuously exposing every symptom I tried to hide- I had nowhere to go, nowhere to run and I will never be able to bond with people fully for the rest of my life- my grandad ended my early adulthood by bringing a good friend of his- A welfare employment offce agent into our home and I was bullied for 6 years without even knowing it was happening- eventually I want completely Mad- took 6 months to recover and 1 year later I was still having delusions, I completely cracked
I will never ever trust another human being for the rest of my life- and this world was created maybe solely and purely for my own torture- I am independant now but I will suffer for the rest of my life.
the system is itself is a special form of evil for people like us- go somewhere in the world that is safe- away from exploitation and profit!
criminal law was invented to destroy us and to let trained bullies rule over our western societies!
I got nvld but i relate more to adhd idk if i got diagnosed wrongly when i was a kid.
Chris Rock brought me here.
Do you mean, mothers and fathers with their infants, Dr. Margolis, at about 2:12?
My 12 year old has NVLD, and im not sure how I can help her.
I have this as a adult
Please do a study for 40 year olds who weren't diagnosed until they were adults
Still looking for connection of NLD with premature birth and chromosome xxy connection. From personal research my belief is connection is all neurological but definitely not psychological!
This is weird to me because I have a not otherwise specified condition that may have come from a brain injury as an infant...and I can relate to some of these things...
I was diagnosed with aspergers but what’s the difference between these?
Evil Snail hmm I have no spacial awareness
Evil Snail I was diagnosed a long time ago at school with it. I’m 23 now. But I’ve had testing done many times over the years.
I thought it was normal to have profound strengths and weakness with aspergers in your cognitive profile.
I’m diagnosed with nvld but am thought to have aspergers instead
I was recently diagnosed at 16 :/
I have nvld I wasn’t diagnosed until I was 16 they thought before I had ADD
Constant failure at one school. No help from faculty. My next school i ended up with the most improved student award at graduation (grade 8) which basically means you used to be bad not now you're less bad. Life's good on the spectrum.
Ive got NVLD ^_^
So do I I was diagnosed at age 8 (I might be misdiagnosed though because I have more asperger symptoms than NVLD)
I was diagnosed at age 8 (I’m getting reevaluated though)
Pll dont recognize nvld i have it watching these videios have changed and inspired me
I was diagnosed with NVLD at 55 years old the exact same age that Chris Rock was. I related to the show Everybody Hates Chris because my life was so much like his. Although I'm female and biracial comedy is what I do best.
Wow, im happy you were able to get a diagnosis 😁 how was life growing up with Nvld life?
@@raventate0112 Always wondered what was wrong with me.
If I was a psychologist, research into this wouldn't seem like a bad idea...why is there a developmental error in the brain that causes an apparent motor/social deficit
Would this diagnosis cause problems taking care of a child would it warrant dcpp ripping your child from you?
Is NVLD in the DSM?
Not yet. We have funded research to have it included. Hopefully with in the year.
I am 12 years old and I got NVLD
I have it too
So is this genetic, neurological, or part of an attachment trauma?
Researchers are not sure whether or not NVLD is genetic, but go to our website nvld.org for more information on the research that has been conducted thus far. You can find helpful information under our 'What is NVLD' tab as well as our 'Resources' tab.
@@TheNVLDProjectOfficial thank you! I’m a pediatric PT in NY EI with specialization in infant massage, sensorimotor processing, attachment, and childhood trauma. I truly believe that I can clinically see signs of a future ASD in very young babies despite being told I can’t, and I’d love to be able to differentially be able to decipher between ASD and NVLD.
Perhaps eye contact / desire for social interaction could be a difference? I'm mother to one assumed by some to be autistic, diagnosed SCD, but NVLD fits better. Very social, just bad at it.
Even my sister is NVLD can't it be cured?😣😣😣I am from India..Hare Krishna 🙏🏻
I was diagnosed at age eight I’m starting a channel to raise awarness
This shows how misunderstood disabillies can be.
#nvldsquad
#nvldsucks