New Treatment for Superior Semicircular Canal Dehiscence - Isaac Yang, MD | UCLAMDChat
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- Опубліковано 9 чер 2024
- UCLA neurosurgeon, Isaac Yang, MD, discusses the common causes and leading treatments for superior semicircular canal dehiscence, a condition triggering vertigo, hearing loss, disequilibrium and other balance and auditory symptoms. In addition, he will discuss new data from UCLA showing promising outcomes and recovery times for patients with surgery for this disorder.
Learn more about superior semicircular canal dehiscence (SSCD) at:
www.uclahealth.org/cancer/can...
• Update on Superior Sem...
• Neurosurgery Research ...
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I only found out about this a couple of years ago when I had the courage to mention it to my ENT. I'm 70 and when I was a child people tended to think I was nuts when I mentioned the swishing noise when I move my eyes or the sound somewhat like thunder when closing my eyes hard. These videos I've recently found have explained so much. Like, I didn't know this affects balance and vertigo. My husband and I have always just laughed about me not being able to walk in a straight line when we walk beside each other. When he bought this horrid surround sound system for listening to house shaking bass when watching a movie I about climbed the wall. He can only use it if I am not home. No matter how I try, it just fills me with so much tension I want to scream.
I'm about to have this surgery, I'm learning from the videos.
Thank-you!!! Very well-spoken and knowledgeable.
What kind of medications help manage this condition?
I thank my surgeon, Dr. Yoshikawa every day. And almost more importantly, Dr. Hwang, who was the first of 12 different doctors to diagnose me. I am grateful this terrible condition has increasing surgical options. I truly believe it saved my life--and I was only 25.
Dr. Yoshikawa? Omg she is working with me and has diagnosed me with SSCD. Unfortunately she is extremely overbooked to the point that her calendar does not allow for any appointment bookings until July or later. I was hoping to get this resolved sooner, but feel more relief of having this finally diagnosed!
Do u take any medications for this or only surgery
Can you, Dr. Yang, please tell the UK about this new technology? It would greatly help!!!!
Thank you SO much Dr. Yang and UCLA staff for bringing this to light. It is a silent syndrome, and no one understands when I try to explain it. I'll just forward this video to anyone that asks me about SSCD lol. I am seeing a great Neurotologist in Tampa, FL, Dr. Christopher J. Danner. If surgery is in order I do hope Tampa General has the same brain map navigation. Amazing!
+Jennifer Thomas Hi Jennifer, I am also in Tampa and wondering if you ended up having surgery and if so who did yours? Thanks!
+Teal Henderson I have not had surgery thus far. I see Dr. Christopher Danner in Tampa. Great doctor! I do feel that the doctors at UCLA have the most knowledge and updated info regarding SCDS and have communicated numerous times with Dr. Gopen there. Even scheduled surgery there but I chickened out. Feel free to look me up on fb Jennifer Boyes Thomas and I can fill you in more. :)
It's a M/F'er this is something that will drive you crazy n my doctors say no cure.
Thank you n glad I found this.
You people are heroes. Legit.
Great job!
I would really love a link or the title to the study itself. I appreciate this presentation but I would like to read the study!!
Thank you, Sir!
Thank you for explaining this so clearly
Thank you so much!!!!!!! i would like to know what you make of a decompression of the eight nerve (vestibular paroxysmia). I had surgery a year ago and I am similar symptoms with the exception of the Autophony. Just wondering what else I can do. Thank you.
Thanks and great
great job
+DR Hamidullah Taskin hello do you think one can cause this condition by cracking ones own neck (atlas)?
Dr. Yang, I have Factor V Leiden and am on Coumadin. Is SSCD surgery advisable for someone like me? Symptoms are severe.
do you need to have all of the symptoms mentioned to have sscd?
Thank you for the insightful video. I am having this surgery in 3 days. Well, it’s a duel surgery in which my ENT surgeon will fix the superior semicircular canal and the missing tegmen. The neurosurgeon will then remove the lesions in the temporal lobe. I feel much better about this part of the surgery after watching this. I’ll check back in periodically to let y’all know how I’m holding up
I'm in Florida. I need a total knee replacement and along the way while I was waiting for that I started having severe bouts of vertigo and was diagnosed with bppv. However, that diagnosis did not include other symptoms I was having such as hearing my eyeballs and hearing my heartbeat. I'm so thankful to finally know what the problem is but now I'm concerned about the doctors here that insisted I only had bppv after 5 times of being in the hospital. How can I be part of your Grant study if I'm in Florida?
Dr Yang you have a mistake in your drawing. You are working the lateral canal. the superior canal is defined by the common crus. A good presentation.
When you "hear" body movements can this include spikes in Tinnitus in response to your entire body pitching forward or rolling left? Somatosensory tinnitus, without the ocular triggers? I certainly have hearing loss, fullness, repeated ear infections since head trauma and a motorcycle chopper noise going by can stop me in my tracks to cover my ears, loud sounds. I cannot run like I used to because every step causes a huge spike in Tinnitus. Spike happens when I walk or hit a bump of any kind in a car or on a bike. Certain transmissions (and many cars I ride in) resonate painfully.
Hi, I had a perforated eardrum around 6 months ago and now in my left ear, i can hear my jaw clicking / eustachian tube opening/closing and when I look up with my left eye I can hear a rumbling sound, my balance on my left side is quite bad too but that's always been a problem to me, I also have a dull pins and needles feeling on the left side of my scalp, and tinnitus too, plus the feeling of fullness in my ear, plus i also can hear my heartbeat if i lie on that side .. I do have slight hyperacusis/sensitivity to sound too, although i don't really get dizzy... when i first had the accident it sounded like i had a fly or something in head it was quite bad, but that has died down, the only thing now is looking up i get the rumbling.. its kinda hard to explain to my gp or an ENT even... i think this is more of an injury than a disease.. but i cant see it getting better , do you think this is SSCD, at the moment my docters have me down as having tinitus but there is so much more to it than just a ringing in my head... its a real puzzle for me, any help or suggestions would be much appreciated. thanks
is this guy a genius?
Doctor Yang is a wonderful doctor. Even if the outcome of m6 surgery wasn’t successful. Dr.Yang and Gopin are a great team.
Would u tell me more about your experience and why it didn’t work
Thanks so much for this. I have it and have been diagnosed in London by Prof Dan Jiang. Do you know if any hospitals in the UK have this technology?
I've just been diagnosed also but my specialist didn't specialise in this area so now I have to see another specialist all he had to say to me was it's serious so now I wait
My Dr. called it SCD and didn't recommend surgery at this time. My symptoms are hearing loss, ringing, hearing my heartbeat, hearing my eyes move, neck movement, and getting dizzy at times, loud sounds can cause my eyes to vertigo.
Interestingly enough a lot of these symptoms I thought were normal until diagnosis. So the joke is, who openly talks about hearing their heartbeat or their eyes move or their jaw crackling?
I've always thought those phenomena we're normal as well. Brain surgery is starting to look pretty good.
exaclty. I have them and I never talked about it for fear of people thinking I am crazy
When I told an ENT (30 years ago, as I was seeking a diagnosis for brutal episodes of vertigo & nausea) that I could hear my eyeballs moving, he looked at me like I had a tree growing out of my head. He had no idea what was wrong with me (though I’m sure he thought I was mentally ill). I think I told maybe one other doctor, with the same result. After that, never mentioned it to anyone again. A few people knew I had episodes of vertigo that were incapacitating, but I stopped mentioning that, and the many other symptoms, to doctors.
I only learned about SSCD a few months ago, totally randomly, from one of those Buzzfeed articles about weird medical conditions. I was gobsmacked.
I still don’t have an official diagnosis, because symptoms are milder than they used to be, so I do not want surgery. But I still hear my eyeballs move, “hear” things moving around inside my pillow, get screeching noises in my ear, feel like my ear is plugged up, stumble on nothing, have random episodes of unexplained nausea, and experience episodes of vertigo.
I always thought hearing those things were normal because I’ve always heard them, until it caused headaches so bad they ordered enough tests and now I’m having SSCD repair surgery in 10 weeks.
Was he at Farmington medical center ? I think I was one of the 1st diagnosed and it's awful
Hi, my ct scan reported I have thinned bone, but they think not got this. I have constant strange dizzyness not spinning room but rumbling, swaying visuals, tinitus, muscles spasm feeling back ear, neck. I have had virtigo. Curious, why is this called brain surgery?
I was involved in a car accident six years ago been having vestibular problem since then, finally just got diagnosed with SCD late last year and my quality of life is nil. I hear everything including the passing of the blood on my neck ti my brain. In a crowd or restaurant setting is awful it gives me head ache and become nautious. My head is always foggy, full like i have water on my ears or i just ride an airplane, the ringing on my ears are bad. I have double whammy i have menieres on the left ears on and SCD on right. 🥴🤕🤢
You sound just like me ! 😩
Hru doing now
Dr issac sir, isnt 20 a small number , sample size should be atleast 30 for statistics?
how can i get your help?De
i have weird ovemp and scds symptoms but ct clear helpooo
Can you have just a few of the symptoms. I mean. I get pulsating tinnitus and hearing loss. Hypercusis, and the sound of criquetes or grasshoppers in my ear. I'm not sure what I have. I have had noise induced vertigo before. I have had Ménière's disease as a diagnosis before at guys hospital in London. Since then I have been seen at queens square hospital for neurology and neon surgery in London. They said it ain't Ménière's disease although the hearing loss does resemble Ménière's. They concluded I have vestibular migraine. It's very frustrating to not know what's causing this. My life is crap. This is all in the left ear. I also have amplyopia in my left eye and the doctors have said this could be contributing to my symptoms.
Yes, the way the patient present is extremely varied. Some have vestibular symptoms, some have auditory symptoms and some have a mixture of the two. Please see my post above about the new book - it may answer all your questions.
I want this Dr to do mine
Me too
Wish i was in the usa im in the uk and im scared the surgeon wont be experienced enough to do the surgery x
The "RW" Question was likely about Round Window. i.e. questioning re-enforcement of the round window as an approach of dulling symptoms. If anyone else has this question I'd say that it doesn't fix the issue if its 100% confirmed SCDS... and may make it worse. Note that its the right approach if the issue is with the round window itself (perilymph fistula)... so you have to be 100% sure of your diagnosis before going through with any surgery.
@@Parkertannerz can be... if there is a third window (SCDS) and you are tightening the normal 2nd window (round window), then you may inadvertently put MORE of the pressure out the 3rd window via the balance canal instead
the fail is in the introduction. Perhaps the figure it is no clear.
My friend has all the symptoms of SSCD and had a CT scan, but she has been told the scan was OK. It is ruining her quality of life. What can she do next to get a proper diagnosis. We are in the UK.
Me too, Have all the symtpoms too but scan clear. I need to get the scan from them for a second opinion. Could be thinning did she ask about that.
i’m the exact same the vemp test in my bad ear suggests a hole but ct clear what have you guys done about it ?
Wondering how many of these surgeries they have performed.
Over 300 now. My son is 13 years old he is the youngest person UCLA has done. His first surgery was in July 2020 going back in October to do the other side
@@sjmarsing6738 Isn't plugging of both canals supposed to cause debilitating Oscillopsia? Did the doctors say anything about this?
@Nathan Kapp where did you read that please?
My 7 year old son complains that he hears a sound when he blinks his eyes! Can this be SSCD? He has already had several otorhino and ophthalmology investigations that do not identify any problem. He recently had a CT scan of the Mastoids and did not identify any abnormalities ...
I think thats to do with the nerve, I think the nerve from the eyelid is linked to or is the same as the one that controls the tensor tympani. So he's hearing the muscles that contact to protect the ear, rumble his ear drum. I have it too and told no SCDS. My tensor tympani is very sensitive, I can even voluntarily control it. Hope that helps.
At 21:30 and again at 23:00 Dr. Yang speaks about migraines with this disease and how people who have migraine may have prolonged recovery or "not do so well with the surgery and recovery". Does Dr. Yang suggest that people with Migraine should not have this surgery? Can someone please elaborate a little more on this topic? Is this because people hope this will cure their Migraine/headaches or is it because people with Migraine have similar migraine symptoms this surgery will not cure? Or is there a risk with SSCD surgery and Migraine that may cause people to have worsened symptoms or never recover? At 23:00 Dr. Yang said; People with Migraine do not do so well with the surgery so it sounds like to me this surgery is something that I should avoid. I have SSCD. I also am currently under treatment for GIST Cancer so I take Chemo everyday. I have 22 Migraines per month that are debilitating. I take BOTOX injections every three months and have the migraines down to 12 per month now. I am trying to decide if I should wait for improvements in the surgery or not have it until I can no longer function.
I first had symptoms of SSCD in July 2014. It started 1 week before I started Chemo. I thought it was the Chemo but after the High Resolution CT scan of the temporal bone back in June 2016, I now know it is a different problem. The SSCD is on the right side. My left ear always fills full. (Maybe I have it on both sides?) My ears ring always! When I scratch my head it sounds like someone sanding a drum head with sand paper. At night I hear the blood swishing and swooshing back and forth in my head in my left ear. sometimes I hear my neck joints squeak. I have terrible motion sickness caused by vibration so I do not drive very much anymore. Coughing, sneezing etc sets it off. I have 38-40 motion sickness spells every ten minutes for two years now. It is 24-7, they only last for as long as a sneeze but a few seconds later, I have the feeling again. any vibration sets it off. I cannot wash dishes without experiencing hundreds of these spells. Driving or riding in a car is almost to the point that I feel like I could tell you the date on a dime if I were to run over one of them. I get extremely fatigued/brain fog.Some days are worse then other days. When I am fatigued, I lay on my couch and slip into a twilight for an hour or two and then I can function better. If I do not take that rest period I am done for the day. The chemo fatigues me too. I take Gleevec. The SSCD has physically been worse then the cancer ever has.
I am trying to decide if surgery is right for me but keep finding stuff that suggest it is not right for me. I am a single parent of a seven year old child, I run a tight ship because of these illnesses and I work around the days that are not good for me so as long as I can still take care of him, I feel I should not have this surgery.
el cloruro de magnesio es un sedante natural para el sistema nerviosos pero el efecto se locra alargo plaso dependiendo de cada persona,cuidado con la candida sistemica este hongo cuando entra en la sangre dificil de exterminarlo causa muchas inflamaciones en los organos y sus excreciones contaminan la sangre la candida sistemica se erradica con dieta esta ligado con mucho inflamaciones muchos tipos de cancer anemias cronicas peso bajo obesidad migranas y muchisismas enfermedades y este hongo vive en ambientes acidos y alcalinos lo cual es dificil de eliminarlo hasta con antibioticos naturales con una bieta sin azucares .con proteina y con carbohidratos de indise glusemico bajo se elimina.
Donde lo consigo ese Cloruro de magnesio ? i q cantidad tomo todos los dias ?
I hear my jaw move also hear locus ALL the time i am getting my mri & mrv done Thurs
I was told by my doctor that the canal ends up permanently disabled after this surgery. Is this correct information?
I am diagnosed with super semi canal dehiscence and I have been dealing with serious vertigo all day every heart beat. I am suffering daily for a very long time. I had the surgery last august to repair the hole by transmastoid and the surgery wasn't successful.
I was wondering about the transmastoid approach. I am sorry to hear it was not successful. How miserable you must be!
My next option is via middle fossa. ... Surgery scheduled in August. I am worry it's not working again. I am already completely deaf on my right side. The surgery will be on the left side.... even more scary but I can't go on in my life with vertigo all day :(.
Can u tell us where did u have your surgery ? Thank u i hope u get better 🙏
@@camillecorner1658 I had the surgery with this doctor at UCLA and wasn’t successful. No improvement. I am considering another surgery but thinking to go to John Hopkins because the surgeon do the plugging. UCLA only does the resurfacing.
@@beccakeeton2253 hi, I went to get the surgery at UCLA and no improvements. It’s been 2 years. 😔
Hi plz let me know how much will it cost as i am from uk?? Plz let me know as i got exactly the same symptoms of dizziness eyes whirling all the time.plz reply me and also give me contact details so i can contact u.thanks
Did you have your surgery done?
I had this surgery 10/2022 and unfortunately it opened back up due to being constipated from the anesthesia. I wish they would have stressed taking a laxative after surgery so people don't strain while pooping. Lol Prayers for everyone who has SSCD. ITS SO DEBILITATING
Will you be having the surgery again?
Diagnosed with SSCD by Dr. Stroud, Amarillo Texas. When everything is quiet, I can hear my heart, my eyes and my steps. Loud noises make the room bounce and kind of "throw me off" for a second. However, I don't have these symptoms all the time. What I DO HAVE.......... is a constant sensitivity to ... not loud...but louder noises. Anything over a soft sound is somewhat painful - uncomfortable. But THE WORST is when i speak, anything over a whisper, is just like playing a kazoo - like, if I held the kazoo between my front teeth and played it while speaking. Head vibrates, teeth vibrate - - - so it's my own voice that makes me the most uncomfortable. Singing is virtually impossible. I don't have any headaches unless I am around loud noises constantly, then I can have a bit of a headache but it goes away quickly when I either block the noises (earphones and listening to music) or retreat to a quiet environment. Seems all of us are different - and I feel I'm pretty fortunate that I don't have worse symptoms. But I am surrounded by people who are hard of hearing, and raising my voice to speak to those I love is PAINFUL to me and disheartening. And........my ear always feels "full"... like on a plane and I need to pop my ears, except multiplied by 5.
look into Hyperacusis if you are still suffering.
los suplementos de cloruro de magnesio ayudan, atranquilisar el sistema nervioso
If i had that my head would explode at a prison riot
This is the location for the Superior Canal Dehiscence Support Group (SCDS) on Facebook. facebook.com/groups/221257197900489/
Dank voor verhaal niet alles begrijp ik taal probleem en slecht horen. Ik heb meniere autofonie hartslag in oor 81 j.
I am having my sugery 11/05 /15
Patti Wever how did you do
@@xxGoRiLLaZxx777 they always die, never come back to tell us lol
😂😂😂😂@@sorakie5183
Was he at Farmington medical center ? I think I was one of the 1st diagnosed and it's awful
I need help... please.