Listening to my body was/is the hardest thing I've had to learn with this illness. An abusive childhood teaches you not to listen to your body like at all, at least that's what it did for me. The other thing is that healing from CFS/ME is not linear so what I can do for a few hours, days or weeks I may not be able to do in the future. But the biggest challenge is people in my life not understanding why I'm not just getting better all the time. Until you go through this illness, you can't even imagine how much your body can fall apart & be so unpredictable for such a long period of time. I appreciate the people in your videos verbalizing what we go through with this illness, makes me feel less crazy! :-)
Whaa guys, this must be my favourite session so far - so helpful and a truly worthy 100! :-) Thank you so much to both of you and I´m super stoked for you Liarne!
Fantastic interview. So helpful in articulating all the challenges of navigating our way back into life’s activities and the emotions, precautions and green lights that are involved! I find myself so protective of every ounce of function that I get back and the anxiety that occurs when I fear I’m over-riding my body’s current capacity ( and heading for a high symptom crash) can be overwhelming. Thanks for normalizing this whole process. It is really supportive to watch this. In the Lyme disease world ( I have chronic Lyme), everyone seems to ignore these essential lifestyle choices and management strategies and just be in search of a cure. But these CFS strategies are essential to healing with Lyme as well-- many parallels.
Thanks Lisa! Yes we hope our approach can help people with all kinds of chronic illness, from an integrative, functional and personalised medicine approach. We really appreciate the comment! (Jenny-OHC team)
This is such a helpful video for me. It talks about a range of points I haven't appreciated and that help me put some of my issues into context. Thank you Leanna and Alex
How do you define baseline? How do you kniw when youve established your baseline? Is that when you have no symptoms doing nothing? Or is that being able to get through a day without crashing?
Charlotte Inez Activity you can do consistently without a setback. That might be a 5 min walk, 30 min walk or just getting up but it doesn’t exacerbate symptoms more than they are
Hi Charlotte - I'll see if Alex can elaborate on this in a future video, but for now here's a little 2 minute video that describes what a baseline is from a basic perspective ua-cam.com/video/FIP-qqikNCo/v-deo.html (Jenny - OHC team)
This was really brilliant - thank you so much - I really identified with everything that was discussed and it really helped to know that I am not the only one going through this difficult journey and having these conflicting feelings along the way - really appreciated very very much
It was interesting listening to Liarne talking about cutting back on a lot of what she was doing. I'm interested to know some more about that. I'm currently working on establishing my baseline. It seems a very subtle place for me. Over the past 24 years of ME/CFS I've never really had a major crash. My crashes are feeling a bit achey or downcast for 2-3 days. that might be after walking for 5 or 8 miles on 1 day. I was walking for an hour most days for a couple of months. I'm now cutting back to 30 minutes. Any insight for this one would be helpful.
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Listening to my body was/is the hardest thing I've had to learn with this illness. An abusive childhood teaches you not to listen to your body like at all, at least that's what it did for me. The other thing is that healing from CFS/ME is not linear so what I can do for a few hours, days or weeks I may not be able to do in the future. But the biggest challenge is people in my life not understanding why I'm not just getting better all the time. Until you go through this illness, you can't even imagine how much your body can fall apart & be so unpredictable for such a long period of time. I appreciate the people in your videos verbalizing what we go through with this illness, makes me feel less crazy! :-)
@Matthew Thaddeus Definitely, been watching on flixzone} for since december myself :)
Whaa guys, this must be my favourite session so far - so helpful and a truly worthy 100! :-) Thank you so much to both of you and I´m super stoked for you Liarne!
That makes so much sense, being very protective of the progress, thanks for that! 😀
Fantastic interview. So helpful in articulating all the challenges of navigating our way back into life’s activities and the emotions, precautions and green lights that are involved! I find myself so protective of every ounce of function that I get back and the anxiety that occurs when I fear I’m over-riding my body’s current capacity ( and heading for a high symptom crash) can be overwhelming. Thanks for normalizing this whole process. It is really supportive to watch this. In the Lyme disease world ( I have chronic Lyme), everyone seems to ignore these essential lifestyle choices and management strategies and just be in search of a cure. But these CFS strategies are essential to healing with Lyme as well-- many parallels.
Thanks Lisa! Yes we hope our approach can help people with all kinds of chronic illness, from an integrative, functional and personalised medicine approach. We really appreciate the comment! (Jenny-OHC team)
This is such a helpful video for me. It talks about a range of points I haven't appreciated and that help me put some of my issues into context. Thank you Leanna and Alex
Great session! So pleased that things are moving in the right direction for you Liarne!! x
How do you define baseline? How do you kniw when youve established your baseline? Is that when you have no symptoms doing nothing? Or is that being able to get through a day without crashing?
Charlotte Inez
Activity you can do consistently without a setback. That might be a 5 min walk, 30 min walk or just getting up but it doesn’t exacerbate symptoms more than they are
Hi Charlotte - I'll see if Alex can elaborate on this in a future video, but for now here's a little 2 minute video that describes what a baseline is from a basic perspective ua-cam.com/video/FIP-qqikNCo/v-deo.html (Jenny - OHC team)
@@TheOptimumHealthClinic it would be wonderful if alex could expand in a further video, thanks Jenny x
Thank you so much for this question and all the replies - yes it would be really helpful to discuss this subject in the future - thank you x
This was really brilliant - thank you so much - I really identified with everything that was discussed and it really helped to know that I am not the only one going through this difficult journey and having these conflicting feelings along the way - really appreciated very very much
It was interesting listening to Liarne talking about cutting back on a lot of what she was doing. I'm interested to know some more about that. I'm currently working on establishing my baseline. It seems a very subtle place for me. Over the past 24 years of ME/CFS I've never really had a major crash. My crashes are feeling a bit achey or downcast for 2-3 days. that might be after walking for 5 or 8 miles on 1 day. I was walking for an hour most days for a couple of months. I'm now cutting back to 30 minutes. Any insight for this one would be helpful.
Incredibly helpful . Liarne is so very articulate.
You share so much valuable information! Thank you!
Just watched this. So so helpful Alex. Thank you 🙂
Alex, do you offer these sessions for others outside the program?
❤️❤️❤️absolutely awesome! 🙏🙏🙏so clear, so encouraging, so empowering, so real! 💪
Protecting your progress. I like that idea.
These videos are fantastic. Finding them really helpful. Thanks to all who are taking part.
Thanks for the feedback Joan!
great tips in this video!
First time I have heard you on video talking abt CFS ..OMG ..someone who actually gets it !!!! And has some valid real helpful advice . Thank you 🤎🙏