I am working a vet nurse, so sometimes I compare human medicine to veterinary medicine. It is really alike. I just had a question about the feeding tube infection, just for curiosity, I imagine that your doctors have talked about it too. Isn’t it possible to take the tube out to clean the stoma and drain the fluid? I saw the tube change and it seemed really easy to take in and out, so maybe doing a surgical cleaning to the infection site every so often can speed up the process of healing. When we have dogs and cats with tubes that get infected we clean the place inside and out every 6 hours, plus antibiotics picked by the culture and almost every patient is clear of infection between 2-3 days. I mean, of course it is human medicine and you are also a special case, just wondering why you haven’t talked about it. Good luck, keep strong, it will get better soon!
Gabriela Guardia I wonder about what they do for people ... To heal us. You are so right about the cleaning. Good of you to bring it to Jacki's attention... We need to be praying too. Blessings to all...
I agree, she does. You should wear it up more often. It’s funny, though. You say you can’t stand it being up...I can’t stand my hair being down. It’s always up...well, except when I’m washing it. Lol
You feeling impatient & frustrated is totally valid, hospital stays can be incredibly draining both mentally & physically. Although it's difficult, it's where you must be to improve. Sending lots of healing love & strength to you.. be gentle with yourself ❤️
You’re such an inspiration Jaquie! For people with chronic illness and without - all alike. Hang in there and sending you lots of hugs and love xx ❤️❤️
I know it's hard, but, I have found that the trick is to accept what happens when it happens rather than be willfull and fight it. Willfullness always makes things harder than they already are.
If you are able to shower while in the hospital but don’t have the energy to wash your hair, run some warm or hot water over your hair and scrub your scalp with your fingers a little. It’ll help loosen up some of the oils. Then I’ll put some conditioner at the end of my hair.
Hey Jacquie, I am sorry you in the hospital again. I hope you feel better soon. But I am praying for you and May the Lord bless you with healing, patience, strength, peace and couragment. Feel better hunny.
I hope you feel better soon and fast :) I just finished giving my daughter her meds and noticed if I don’t clean her glasses she won’t or take her meds unless I give them to her. But I love her and love to take care of her
Jaquie, seeing you continue to fight is what inspires me to do the same. I wish you the best and I am here rooting for you :) say hello and thank you from me to Harlow and Judd!
Have they checked your tube is in the right place? I’m wondering if the formula is coming back out the stoma because it’s not in the right place anymore due to the infection
Hurray for a room overlooking the helipad. During one of my hospital stays my room looked out over the helipad and that was the only thing that made it tolerable. I was in a Level 1 trauma center (highest level, for people who need the highest emergency care) so it landed at least once a day and if it was during daylight hours, the arrival was announced over the PA and if I felt able enough, I’d go to the window to watch it land or take off. My next time in the same hospital, the trauma center had finished its remodel and the helipad had been moved to the roof. I was bummed.
You looked cute with the hair up :) mine is always up cuz I can’t stand the feeling of it in my face . I’m having a GP day and not feeling good but I’m not on a feeding tube or anything :/ I hate this disease
J you have to relax like you said let your body do its thing. Go home early you end up back in hospital! Forget your timeline it's very hard for you except change(Autism trait) I get that as the saying goes if you can't beat them then join them! You will recover and go home at some stage but for now you need all the medical support you get. As when your home it's a different medical support you have. So chill ok big hugs to you 😘
It may take some extra time for yoh to be able to restart feeds. Because of the infection the "seal" that your stoma usually has will be weakened and may not *hold(?)* everything in. GTube stomas or GJ tubes give a little bit more flexibility when they do get infected be the stoma is into your stomach. The stomach is made to hold volume whereas the Jtube stoma is in your intestine and made to move volume. Think if the infection as a wound healing. If you fall and scrape your knee you end up with a super fun abrasion. This abrasion takes time to return to normal. Even after the scabs are gone the skin there is weakened (like how its healed, but still red). Which will heal much slower if gets infected. Thus... even when the infection itself is clearing or cleared up... the skin and stoma site can still be weakened and super sensitive. I know you have EDS so in general this can take longer than any doctor can accurately assume as healing will be prolonged do to EDS dilemmas. I have viscereal hypersensitivity so sometimes pain receptors can go wonky and pain last longer or differently than others. So I cannot say by my own experience aside from the healing aspect. Try not to get too frustrated (I know that's hard and I myself suck at it 🤣). Our bodies sometumes know just what we need. Even when we or our doctors disagree. 😉👍
Every hospital I've been to has aloe vesta. It works as a no rinse shampoo. Some hospitals have what looks like a shower cap with some sort of liquid in them. You put it on like a shower cap, massage your head from the outside, and remove it when your done. Whala!It works like a charm everytime!
I relate somewhat to your struggle with chronic illness and pain only different causes. NEVER seems to end, newest ailment is vertigo which is debilitating. Prayers. for you every day Waiting now for approval for my service dog as I can see what Harlow means to you in your recovery efforts
Hey jaquie im on my neices phone because my phone has to get fixed this week witch sucks and im doing ok im having stoamch problems but im a warrior with gastroparesis and im fighting
When Judd said Fixer Upper is like pinterest had thrown up on the TV I laughed so much I jerked my hand and spread tomato sauce over my cooker 😂 Really hope that you can get out soon, and hold on until then ❤️
JAQUIE I USE THE SAME DRY SHAMPOO ESPECIALLY WHEN I HAVE A BAD DAY OR DAYS PRAYING FOR YOU TO GET BETTER REALLY SOON HOPE EVERYTHING GOES WELL GOD BLESS YOU ME & DENISE(TWIN)ARE PRAYING FOR YOU & JUDD TOO KEEP ON👊👊KEEPING ON YOU GOT THIS
Ive never seen them in person (tho if anyone has one they want me to have id love to heehee)... there is apparently a "shower cap" that you put on like.. Well like a shower cap lol. And massage it in to your hair it lathers up like real shampoo. And the second cap somehow "rinses" it. My gram had one when she was in hospital in Vegas. We always ask my nurses in my hospital if theyve gotten them yet haha. Maybe your hosp is bigger and has seen them. 👍 Also, will the CA or any of the nursing assistants wash your hair for you? I know at my hosp they come and ask just about every shift about sponge baths or if I am able to or need help to shower. (Usually im okay showering long as I have a chair, but hair can be a bit much)
Jaquie, just be patient with your body. God is teaching you patience here, and He will let things happen but in His time. Things are happening like this because it’s meant to be.
Not really because the MMJ is working wonders but I am still having some vomiting and nausea. They are doing their best to keep it under control because vomiting and dry heaving obvious causes more pain to my tube. :/
It SUCKS so bad to be in pain! And something that some people don't know is pain medication doesn't help gastroparesis! Pain meds can cause GP. and it can be like a never ending cycle. Idk if you take pain meds and if so what kind of pain meds but I hope the marijuana helps. I don't understand why mj isn't allowed everywhere seeing it has minimum side effects but most prescribed pain meds can mess a person up!?!
JUST take one day at are time just remember i know it is hard for you but you getting stressed out it just going to make things worse for you take it slow and may god bless you i have been praying for you
Your hair would be so much fuller if you trimmed a couple inches off n put in a couple layers . Just a little groom would do wonders! Love your channel.
I have recently read that all of the symptoms you have can be caused by an underlying eating disorder. Bulimia and anorexia can cause the gastroparesis and dehydration can cause the pots. Was an eating disorder an issue for you in the past or currently? Thank you!
I have never struggled with any type of eating disorder. My GP is directly impacted by my genetic mutations and EDS. Sadly, many people with GP are wrongfully accused of having an eating disorder (a huge stigma I am working to break). Of course, eating disorders are a very serious problem as well. But they are different to what I struggle with. It is interesting you bring this up because I have spoken to people who battled eating disorders in the past and then developed GP. Some of them believe there is a correlation.
I'm sorry , but please if your first instinct is to be accusatory, or let's be blunt come to a chronic illnesss warriors youtube to be a know it all Maybe you should get a new hobby!
First. I HATE the stigma that connects GP to eating disorders. YES I to have talked to people whose GP (seemingly) was caused by an eating disorder. And have known a few who developed mild GP and end up in am active eating disorder. But I know many many many more in which no connection is made. Also, YES dehydration can cause the SYMPTOMS of POTS. It however does NOT CAUSE POTS. Lastly, I do NOT think she was trying to be accusatory. As much as I (and basically all GP'ers I know) get super frusterated with the comparison, questions, accusations, etc... I would 100% prefer to be asked directly if someone is wondering this. THIS is only ONE reason that awareness is so important. And if someone is UN-aware.... surely being able to make them aware is only possible if we address and discuss the conversation. 😍
ALL of the symptoms Jaquie has are related to mast cell activation syndrome, including the eds, pots, and gp. This publication by Dr. Afrin is the most comprehensive one I've seen. www.jillcarnahan.com/downloads/MCAS-Afrin.pdf I had the same issues you are having with the low profile tube. Our intestines are not as elastic as our stomachs, which often leads to complications. It is one of the reasons a G-tube is preferred over J-tube. However, when you have GP you can't be fed by a G-tube. Your stomach expands to accommodate the balloon on a G-tube. You're intestines can't, so your skin stretches and gets tiny tears in it when you have balloon of the low profile tube inflated at the end of the tract. Your intestines are not very acidic like your stomach, so when the bacteria from your intestines gets into the tears, you get painful nasty infections, which causes the cellulitis. J-tubes are notorious for constant leaking. The best way to clear up the infection without getting a new stoma, is to put in the smallest longest regular g-tube needed( I had a 6fr) to get your crushed pills through. Only inflate the balloon half way and do not use the bumper to secure the ballon at the end of the tract. You want the tube to be able to move freely inside. That actually relieves quite a bit of pain. Like you, I couldn't leave it dangling or it would stretch the opening too much. Place the tube securement a few inches above the tube instead of next to it. This really helps keep the stoma from stretching. When you are not using it for feedings, connect a small urinary catheter bag to the end of your j-tube and leave it open to drain. This will help immensely to decrease your nausea, abdominal pain, and leakage on the outside. With the ballon moving freely, you will notice less pain and formula backups during feedings. Using the longer tube that has a small diameter, will allow the stoma to shrink some around the tube which also decreases pain and infection. I'm sending happy healing thoughts your way! I love watching you guys, but don't worry about vlogging if you are not up to it. Let me know if you need any more ideas or have questions.
I know you want out so you won’t believe this I want in . Yes I want Togo to hospital till they find out what’s wrong with me. They’ve run test and on paper I look good. But I’m nauseous,no vomiting, achey and too tired to get up. I feel like my body has me jailed. Hey maybe we both could break out “The second great escape “ I do pray you can go home soon,sorry about the rant . 🚓 👮🏼♀️ Don’t tell Judd about the escape he’s bound by law to stop it .
rae1957tn I know you said they ran tests & it looked good but have they done an ANA test? You should ask your primary care doctor for an Ana (anti nuclear antibody). Fatigue is a real thing so I feel you! 😩😭
The same for me, I have symptoms that a few doctors have tried to pin down a diagnosis, but of course you have to rule everything out first. I've taken a ton of blood tests, had xrays, MRIs, a heart monitor, and nothing (besides my other already known problems) has been found. My doctor just recently considered that I have POTS but I'm not sure. It's exhausting, especially when you're already fatigued and everyone is saying "you're just lazy". I hope you get answers soon, rae!
Oh Jac..I'm so sorry about your feeding tube :( Prayers tonight the infection goes away asap!! Can you do a pickline to run some nutrition in your body? When I was hospitalized in October, by the 3rd week without food, I was feeling it big time. They did that for me. Actually, had it again on my 5th surgery in December. I so feel for you..can't wait till your back to feeling yourself. Your loved, and hang in there. xo
Harlow is my service dog, ADA law gives me the right to have Harlow with me. Service dogs are always focused on their job. For example, Har is constantly in tune to whether or not she needs to alert to a fainting spell. She helps me with mobility. She also provides deep pressure therapy to help with my leg pain. So even though she is not constantly tasking 24/7, she still has to be with me in order to perform her duties when they are required. That is why she accompanies me mostly everywhere I go, and also why she visits in the hospital.
There should be a job at hospitals where all you have to do is go on walks with peoples service dogs if they can't do kt themself😂 it's probably not efficient for the hospital, but personally I would LOVE to have that as a job😂 allthough I've been to poorly to actually go on walks lately.. but that's not the point😂
I think your hair in a ponytail is a first for us! Can you do short term TPN? You need to get nutrition or your going to be feeling worse. This probably isn't good for your POTS either. I know you and your doctors know best. Just saying... Worried about you. Continued prayers for you!
Your body will heal best if it has proper nutrition, yet your stoma and pouch need a rest. Since you have a port, why don’t they put you on TPN for a few days?
I hope God yake his hand and herald your feed tube so you can start your feed. Jaquie i started a chronic illness vlogs. Please y'all church it out and give me ideal.and tips. Anyone with advice would be great. Hugs. Thank you.
you inspire. You always, always, always find something good in eVery daY ! ..☘🐕.. ...may you have a more resTful & peaceful goodnight, & a better tomorrow. 《MeeMaw Judy 》~~~☘
Could you say you're an impatient inpatient?
haha! thats what i was thinking!!
Nicole D'Angelo 😂🤣 Good one!
I am working a vet nurse, so sometimes I compare human medicine to veterinary medicine. It is really alike. I just had a question about the feeding tube infection, just for curiosity, I imagine that your doctors have talked about it too. Isn’t it possible to take the tube out to clean the stoma and drain the fluid? I saw the tube change and it seemed really easy to take in and out, so maybe doing a surgical cleaning to the infection site every so often can speed up the process of healing. When we have dogs and cats with tubes that get infected we clean the place inside and out every 6 hours, plus antibiotics picked by the culture and almost every patient is clear of infection between 2-3 days. I mean, of course it is human medicine and you are also a special case, just wondering why you haven’t talked about it.
Good luck, keep strong, it will get better soon!
Gabriela Guardia
I wonder about what they do for people ... To heal us. You are so right about the cleaning. Good of you to bring it to Jacki's attention... We need to be praying too. Blessings to all...
Haha my husband looks at me evertytime if your pump is beeping and ask me is that your pump or jackies 😂 stay strong girl, you can do this! ❤️
You look adorable with your hair up! Got sidetracked, back to the video Lol.
I agree, she does. You should wear it up more often. It’s funny, though. You say you can’t stand it being up...I can’t stand my hair being down. It’s always up...well, except when I’m washing it. Lol
You feeling impatient & frustrated is totally valid, hospital stays can be incredibly draining both mentally & physically. Although it's difficult, it's where you must be to improve. Sending lots of healing love & strength to you.. be gentle with yourself ❤️
Harlow was so interested in what Judd was doing with the feeding tube formula 😂💗
You’re such an inspiration Jaquie! For people with chronic illness and without - all alike. Hang in there and sending you lots of hugs and love xx ❤️❤️
I know it's hard, but, I have found that the trick is to accept what happens when it happens rather than be willfull and fight it. Willfullness always makes things harder than they already are.
If you are able to shower while in the hospital but don’t have the energy to wash your hair, run some warm or hot water over your hair and scrub your scalp with your fingers a little. It’ll help loosen up some of the oils. Then I’ll put some conditioner at the end of my hair.
Hey Jacquie, I am sorry you in the hospital again. I hope you feel better soon. But I am praying for you and May the Lord bless you with healing, patience, strength, peace and couragment. Feel better hunny.
Love the ponytail and bet your hair would look good braided also.. Hope you feel better quickly.
I hope you feel better soon and fast :) I just finished giving my daughter her meds and noticed if I don’t clean her glasses she won’t or take her meds unless I give them to her. But I love her and love to take care of her
When is your final for your online class going to be? Have you gotten extra time for assignments since you’ve been in the hospital?
One step closer to recovery. You got this girl
And can we all just take a moment to acknowledge how incredibly sweet and cute Judd is. ❤️
Jaquie, seeing you continue to fight is what inspires me to do the same. I wish you the best and I am here rooting for you :) say hello and thank you from me to Harlow and Judd!
Have they checked your tube is in the right place? I’m wondering if the formula is coming back out the stoma because it’s not in the right place anymore due to the infection
Yes we took imaging and it is in the right spot thankfully
That’s great then. So hopefully it will settle soon. I wish you well
Hi Jaquie, I like the way you say "frustrated", it sounds so nice! Hope you are getting better
You can adjust the volume on the infinity pump
Stay strong out there,hugs* love watching your vlogs hope you feel better soon that you can leave the hospital
Lol Judd called it Sorry in the car I’m sitting here like omg jaquie wants to play something other than trouble lol
I hope that you will feel better soon. Love you and you family especially Harlow.
Harlow was giving you some love! She's beautiful!
Hurray for a room overlooking the helipad. During one of my hospital stays my room looked out over the helipad and that was the only thing that made it tolerable. I was in a Level 1 trauma center (highest level, for people who need the highest emergency care) so it landed at least once a day and if it was during daylight hours, the arrival was announced over the PA and if I felt able enough, I’d go to the window to watch it land or take off. My next time in the same hospital, the trauma center had finished its remodel and the helipad had been moved to the roof. I was bummed.
I hate that your still in the hospital. God will be with you and I'll be praying for you. Love yall♥️♥️
You looked cute with the hair up :) mine is always up cuz I can’t stand the feeling of it in my face .
I’m having a GP day and not feeling good but I’m not on a feeding tube or anything :/ I hate this disease
Yep! I know all the beeps and memorized the buttons on the feeding pump!
Jacquie have you ever taken a Floroquionolone class of antibiotic such as Cipro or Levequin?
J you have to relax like you said let your body do its thing. Go home early you end up back in hospital! Forget your timeline it's very hard for you except change(Autism trait) I get that as the saying goes if you can't beat them then join them! You will recover and go home at some stage but for now you need all the medical support you get. As when your home it's a different medical support you have. So chill ok big hugs to you 😘
Does the hospital let you use MMJ while there? I know you can’t use outside meds while in the hospital so I’m confused
I LOVE LOVE LOVE your hair in a ponytail. You look so cute
Get well soon!!!
Harlow is the best. 🐕
It may take some extra time for yoh to be able to restart feeds. Because of the infection the "seal" that your stoma usually has will be weakened and may not *hold(?)* everything in. GTube stomas or GJ tubes give a little bit more flexibility when they do get infected be the stoma is into your stomach. The stomach is made to hold volume whereas the Jtube stoma is in your intestine and made to move volume.
Think if the infection as a wound healing. If you fall and scrape your knee you end up with a super fun abrasion. This abrasion takes time to return to normal. Even after the scabs are gone the skin there is weakened (like how its healed, but still red). Which will heal much slower if gets infected.
Thus... even when the infection itself is clearing or cleared up... the skin and stoma site can still be weakened and super sensitive. I know you have EDS so in general this can take longer than any doctor can accurately assume as healing will be prolonged do to EDS dilemmas. I have viscereal hypersensitivity so sometimes pain receptors can go wonky and pain last longer or differently than others. So I cannot say by my own experience aside from the healing aspect.
Try not to get too frustrated (I know that's hard and I myself suck at it 🤣). Our bodies sometumes know just what we need. Even when we or our doctors disagree. 😉👍
Waterless shampoo! It's not the same as dry shampoo and gets the job done after dry shampoo stops working.
Every hospital I've been to has aloe vesta. It works as a no rinse shampoo. Some hospitals have what looks like a shower cap with some sort of liquid in them. You put it on like a shower cap, massage your head from the outside, and remove it when your done. Whala!It works like a charm everytime!
Glad to see that hippo is there with u. U got this jaqjaq!! Hippo is cheering u on.
ITS hard ,but hope you can go home soon ,we love you guys💛💚💙💜❤️
Mah cows are rooting for you.
I relate somewhat to your struggle with chronic illness and pain only different causes. NEVER seems to end, newest ailment is vertigo which is debilitating. Prayers. for you every day
Waiting now for approval for my service dog as I can see what Harlow means to you in your recovery efforts
So happy your feeling and getting there jak you are a very strong woman stay positive ignore the pain be happy love ya 😍😍😍😍😍😍🌸🌸🌸🌸🌸🌸
I got to excited about that helicopter lol
You're r in our prayers, jax. Love you
If love and healing thoughts were a cure we would have you all better ❤️ love healing and strength to you little lady 😘
Sending prayers for you both
Hey jaquie im on my neices phone because my phone has to get fixed this week witch sucks and im doing ok im having stoamch problems but im a warrior with gastroparesis and im fighting
When Judd said Fixer Upper is like pinterest had thrown up on the TV I laughed so much I jerked my hand and spread tomato sauce over my cooker 😂 Really hope that you can get out soon, and hold on until then ❤️
JAQUIE I USE THE SAME DRY SHAMPOO ESPECIALLY WHEN I HAVE A BAD DAY OR DAYS PRAYING FOR YOU TO GET BETTER REALLY SOON HOPE EVERYTHING GOES WELL GOD BLESS YOU ME & DENISE(TWIN)ARE PRAYING FOR YOU & JUDD TOO KEEP ON👊👊KEEPING ON YOU GOT THIS
Hey Jacquie sorry things are rough for you sweetheart hoping things get better for you soon your an amazing inspirational person love you
I think it looks good when your hair is up :)
Love you jaquie you angel stay strong you will be on feeds soon just wait my love you will feel so much better when your back in feeds. Xxxx
We have a mission bbq here in Kentucky too and it is so amazing
Love you’re wearing your new sweatshirt ☺️ such a pretty color
Is it possible it’s mrsa?
Ive never seen them in person (tho if anyone has one they want me to have id love to heehee)... there is apparently a "shower cap" that you put on like..
Well like a shower cap lol. And massage it in to your hair it lathers up like real shampoo. And the second cap somehow "rinses" it.
My gram had one when she was in hospital in Vegas. We always ask my nurses in my hospital if theyve gotten them yet haha. Maybe your hosp is bigger and has seen them. 👍
Also, will the CA or any of the nursing assistants wash your hair for you? I know at my hosp they come and ask just about every shift about sponge baths or if I am able to or need help to shower. (Usually im okay showering long as I have a chair, but hair can be a bit much)
Judd's got his moustache back 😁
Hope you are able to run your feeds again! ❤
Jaquie, just be patient with your body. God is teaching you patience here, and He will let things happen but in His time. Things are happening like this because it’s meant to be.
Ya know... I'm not even gonna comment because THAT IS SOO TRUE and I would probably make no sense anyway! lol
As I always say, look towards your goal and keep a timeline, but be flexible and accept when you have setbacks.
Your cute with your cute ponytail.💕
You look adorable with a ponytail. I use top buns of scarves to disguise my oily hair lol
Quick question- do you still vomit in the mornings at the hospital? I know they can offer meds there, but is It still as bad as it is at home?
Not really because the MMJ is working wonders but I am still having some vomiting and nausea. They are doing their best to keep it under control because vomiting and dry heaving obvious causes more pain to my tube. :/
Chronically Jaquie I'm so sorry you're still in pain. Fingers crossed this issue will be solved quickly and you can get closer to feeling better!
Hope you get feel better
I've cone in by one of those helicopters five times, transported on life support. I only remember it ones Lol.
Keep your head up ❤️❤️
It SUCKS so bad to be in pain! And something that some people don't know is pain medication doesn't help gastroparesis! Pain meds can cause GP. and it can be like a never ending cycle. Idk if you take pain meds and if so what kind of pain meds but I hope the marijuana helps. I don't understand why mj isn't allowed everywhere seeing it has minimum side effects but most prescribed pain meds can mess a person up!?!
JUST take one day at are time just remember i know it is hard for you but you getting stressed out it just going to make things worse for you take it slow and may god bless you i have been praying for you
You got this!!
Big hugs beautiful girl 😘❤❤💚💛
Hang in there sweetie! It sucks, but you've got THIS! (As I grab my own heating pad and snug it into my pjs to help my own gut pain) 💟💪 #zebrastrong
Love Fixer Upper!!
How did you get the infection?
Your hair would be so much fuller if you trimmed a couple inches off n put in a couple layers . Just a little groom would do wonders! Love your channel.
I have recently read that all of the symptoms you have can be caused by an underlying eating disorder. Bulimia and anorexia can cause the gastroparesis and dehydration can cause the pots. Was an eating disorder an issue for you in the past or currently? Thank you!
I have never struggled with any type of eating disorder. My GP is directly impacted by my genetic mutations and EDS. Sadly, many people with GP are wrongfully accused of having an eating disorder (a huge stigma I am working to break). Of course, eating disorders are a very serious problem as well. But they are different to what I struggle with. It is interesting you bring this up because I have spoken to people who battled eating disorders in the past and then developed GP. Some of them believe there is a correlation.
I'm sorry , but please if your first instinct is to be accusatory, or let's be blunt come to a chronic illnesss warriors youtube to be a know it all Maybe you should get a new hobby!
First. I HATE the stigma that connects GP to eating disorders. YES I to have talked to people whose GP (seemingly) was caused by an eating disorder. And have known a few who developed mild GP and end up in am active eating disorder. But I know many many many more in which no connection is made.
Also, YES dehydration can cause the SYMPTOMS of POTS. It however does NOT CAUSE POTS.
Lastly, I do NOT think she was trying to be accusatory. As much as I (and basically all GP'ers I know) get super frusterated with the comparison, questions, accusations, etc... I would 100% prefer to be asked directly if someone is wondering this. THIS is only ONE reason that awareness is so important. And if someone is UN-aware.... surely being able to make them aware is only possible if we address and discuss the conversation. 😍
Just Call Me Jess I'm overweight and I suffer from GP. I never have suffered from an eating disorder. I just have to rake it easy eating.
ALL of the symptoms Jaquie has are related to mast cell activation syndrome, including the eds, pots, and gp. This publication by Dr. Afrin is the most comprehensive one I've seen. www.jillcarnahan.com/downloads/MCAS-Afrin.pdf
I had the same issues you are having with the low profile tube. Our intestines are not as elastic as our stomachs, which often leads to complications. It is one of the reasons a G-tube is preferred over J-tube. However, when you have GP you can't be fed by a G-tube. Your stomach expands to accommodate the balloon on a G-tube. You're intestines can't, so your skin stretches and gets tiny tears in it when you have balloon of the low profile tube inflated at the end of the tract. Your intestines are not very acidic like your stomach, so when the bacteria from your intestines gets into the tears, you get painful nasty infections, which causes the cellulitis. J-tubes are notorious for constant leaking. The best way to clear up the infection without getting a new stoma, is to put in the smallest longest regular g-tube needed( I had a 6fr) to get your crushed pills through. Only inflate the balloon half way and do not use the bumper to secure the ballon at the end of the tract. You want the tube to be able to move freely inside. That actually relieves quite a bit of pain. Like you, I couldn't leave it dangling or it would stretch the opening too much. Place the tube securement a few inches above the tube instead of next to it. This really helps keep the stoma from stretching. When you are not using it for feedings, connect a small urinary catheter bag to the end of your j-tube and leave it open to drain. This will help immensely to decrease your nausea, abdominal pain, and leakage on the outside. With the ballon moving freely, you will notice less pain and formula backups during feedings. Using the longer tube that has a small diameter, will allow the stoma to shrink some around the tube which also decreases pain and infection. I'm sending happy healing thoughts your way! I love watching you guys, but don't worry about vlogging if you are not up to it. Let me know if you need any more ideas or have questions.
You are Awesome. Get well soon
Mission BBQ is our favorite also, love that mac n cheese!!!!
Hi I love your channel and hope you feel better and hopefully you’ll go home soon
I know you want out so you won’t believe this I want in . Yes I want Togo to hospital till they find out what’s wrong with me. They’ve run test and on paper I look good. But I’m nauseous,no vomiting, achey and too tired to get up. I feel like my body has me jailed. Hey maybe we both could break out “The second great escape “ I do pray you can go home soon,sorry about the rant . 🚓 👮🏼♀️ Don’t tell Judd about the escape he’s bound by law to stop it .
rae1957tn I know you said they ran tests & it looked good but have they done an ANA test? You should ask your primary care doctor for an Ana (anti nuclear antibody). Fatigue is a real thing so I feel you! 😩😭
The same for me, I have symptoms that a few doctors have tried to pin down a diagnosis, but of course you have to rule everything out first. I've taken a ton of blood tests, had xrays, MRIs, a heart monitor, and nothing (besides my other already known problems) has been found. My doctor just recently considered that I have POTS but I'm not sure. It's exhausting, especially when you're already fatigued and everyone is saying "you're just lazy". I hope you get answers soon, rae!
rae1957tn ....hope you get the answers you need soon! best wishes💕
A P yes and it was positive a few years ago but then it was high normal.
Oh Jac..I'm so sorry about your feeding tube :( Prayers tonight the infection goes away asap!! Can you do a pickline to run some nutrition in your body? When I was hospitalized in October, by the 3rd week without food, I was feeling it big time. They did that for me. Actually, had it again on my 5th surgery in December. I so feel for you..can't wait till your back to feeling yourself. Your loved, and hang in there. xo
Hi xx be kind to yourself xx
Jud you are a good man , God bless both of you.
Hope you feel better so you can go home and catch up on your schedule
😍 hgtv is a wondrous thing
So sorry your down & out, however just give a we bit of time & you should be good as new in a few days...
you can see how much Harlow missed Jaquie and vice versa
Why does Harlow come to the hospital when Judd comes? If she isn't tasking is she even allowed to be there?
Harlow is my service dog, ADA law gives me the right to have Harlow with me. Service dogs are always focused on their job. For example, Har is constantly in tune to whether or not she needs to alert to a fainting spell. She helps me with mobility. She also provides deep pressure therapy to help with my leg pain. So even though she is not constantly tasking 24/7, she still has to be with me in order to perform her duties when they are required. That is why she accompanies me mostly everywhere I go, and also why she visits in the hospital.
Omg Judd’s mustache!! Just noticed now.. looks great😂👍🏻❤️
I love fixer upper
Jacquie I’m so sorry you’re struggling. Still praying for you every day.
I'm so sorry you are having so many issues! I'm praying for you Jaquie. Love and prayers from Gainesville Florida.
There should be a job at hospitals where all you have to do is go on walks with peoples service dogs if they can't do kt themself😂 it's probably not efficient for the hospital, but personally I would LOVE to have that as a job😂 allthough I've been to poorly to actually go on walks lately.. but that's not the point😂
If you need a break from camera please take it. The stress of doing UA-cam cannot be good for health. I want you to get feeling better soon.
That pesky caterpillar has crawled back onto Judd's upper lip!
Hi young lady, you're so pretty
I think your hair in a ponytail is a first for us! Can you do short term TPN? You need to get nutrition or your going to be feeling worse. This probably isn't good for your POTS either. I know you and your doctors know best. Just saying... Worried about you. Continued prayers for you!
Your fighting spirit inspired me.God bless both of you.
Your body will heal best if it has proper nutrition, yet your stoma and pouch need a rest. Since you have a port, why don’t they put you on TPN for a few days?
Soon🚪🛏️📷🎥
Get Judd to shower u
Stay stong
Ahhh jud has a moustache!😂
Dang...too bad u couldn’t get a shower before being hooked up. 😿
I hope God yake his hand and herald your feed tube so you can start your feed. Jaquie i started a chronic illness vlogs. Please y'all church it out and give me ideal.and tips. Anyone with advice would be great. Hugs. Thank you.
you inspire.
You always, always,
always find something
good in eVery daY ! ..☘🐕..
...may you have a more resTful
& peaceful goodnight, & a
better tomorrow.
《MeeMaw Judy 》~~~☘