How lucky am I scrolling through fb, saw your post about your scan etc and then jumped on here. I'm so glad your getting answers and who would have thought RLS was connected to your investigations, I hope there's future help like this for other sufferers. I have had a week that has affected me terribly, just off the phone from my GP who has been a rather bad lady! I suffer with C PTSD and 5 years ago I was diagnosed with FND, Fibromyalgia and CFS linked to my years of suffering from C PTSD. I was eventually given my very first opiod for the pain 2 years ago after trying lots of different types of help. 1 week ago I was told to stop that opiod due to rising liver enzymes, so I stopped it, just like I was told and have been in opiod withdrawal since with the worst RLS pain along with all the other withdrawal symptoms. My GP is very apologetic and has prescribed short term use of Ropinirole starting tonight for the RLS with the hope my withdrawal will get better. The sleep deprivation is awful and I can only but sympathise with you as I have only had this for 4 nights. So glad you have a good working plan going ahead. We'll done for being proactive in your own path for better health. ❤
Gosh I have suffered with severe restless leg syndrome for a long time. Mine was made worse by having dialysis. Pamiprexole, the side effects for me were awful. It didn’t completely take it away for me anyways. I wish they put more research into finding the actual cause of it as so many suffer. X
Praying you get answers. I have Lupus and get anxiety and RLS. So I can empathize ❤
Thank you lovely xx
How lucky am I scrolling through fb, saw your post about your scan etc and then jumped on here. I'm so glad your getting answers and who would have thought RLS was connected to your investigations, I hope there's future help like this for other sufferers. I have had a week that has affected me terribly, just off the phone from my GP who has been a rather bad lady! I suffer with C PTSD and 5 years ago I was diagnosed with FND, Fibromyalgia and CFS linked to my years of suffering from C PTSD. I was eventually given my very first opiod for the pain 2 years ago after trying lots of different types of help. 1 week ago I was told to stop that opiod due to rising liver enzymes, so I stopped it, just like I was told and have been in opiod withdrawal since with the worst RLS pain along with all the other withdrawal symptoms. My GP is very apologetic and has prescribed short term use of Ropinirole starting tonight for the RLS with the hope my withdrawal will get better. The sleep deprivation is awful and I can only but sympathise with you as I have only had this for 4 nights. So glad you have a good working plan going ahead. We'll done for being proactive in your own path for better health. ❤
I get restless legs it’s terrible be interested to see your results sending hugs xxx
Great video xx
Gosh I have suffered with severe restless leg syndrome for a long time. Mine was made worse by having dialysis. Pamiprexole, the side effects for me were awful. It didn’t completely take it away for me anyways. I wish they put more research into finding the actual cause of it as so many suffer. X
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