Endometriosis Feels Like Being Punched Up The Vagina With Sharp Knives | Body Language

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  • Опубліковано 27 чер 2018
  • At least one in 10 women suffer with endometriosis, a disorder where the tissue that usually lines the inside of the uterus instead grows outside of it. Despite how common the condition is, it still takes an average of seven and a half years to be diagnosed. Here, one woman talks about what it’s like to live with endometriosis and the “constant trauma” of pain she feels.
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КОМЕНТАРІ • 235

  • @kirbyhatesincels917
    @kirbyhatesincels917 6 років тому +578

    It's terrible that doctors always misdiagnose this as something minor, and then prescribe you paracetamol. Ugh.

    • @rumblefish9
      @rumblefish9 6 років тому +11

      Endo is very difficult to diagnose. The nodules don't show up on ultrasound or any imaging test. I had this for years and all my vaginal ultrasounds looked normal. It wasn't until I had an endometrioma (7cm) that I went and had laparoscopy to remove then I was finally diagnosed. The only definite way to diagnose it is via laparoscopy. Majority of the women who have pain don't have endometriomas or cysts which is why it can be very hard.

    • @kirbyhatesincels917
      @kirbyhatesincels917 6 років тому +6

      Rotten Apple.
      Trust me, I know all of that, and that it certainly is a challenging ailment to unearth. I was just saying that it’s a pity that this is a fact. I’m very happy you were finally treated though. I hope you’re not suffering as much now.

    • @TheYokiMoki
      @TheYokiMoki 6 років тому

      I have to double up on paracetamol and nuerofin, I often take to much trying to keep the pain tamed. Luckly my painful phase of my period only lasts about 12 hours. After that its pretty tame, just high flow.

    • @Her3tic15
      @Her3tic15 4 роки тому

      Me too

    • @Blue-or3oj
      @Blue-or3oj 3 роки тому

      If they made a full body MRI Scan when a woman complains about pain in her body like back pain or strong belly pain during her periods for a long time (excluding schizophrenia...) maybe they'll find quicker ...but i didn't find doc House...

  • @ripleydale-gulston8762
    @ripleydale-gulston8762 6 років тому +338

    I so glad more women are talking about this because I felt like i was the only one

    • @leslybautista7097
      @leslybautista7097 6 років тому +3

      Ripley Dale-Gulston trust me you are not the only one I got a full hysterectomy when I was 24 due to endometriosis stage 4 connected to my intestines😔

    • @sarahmaurice3930
      @sarahmaurice3930 5 років тому

      @@leslybautista7097 Did your hyst help at all? If don't mind me asking x

    • @latazialane3383
      @latazialane3383 4 роки тому

      Saaaammmme!!!!!!

    • @kisumirri3266
      @kisumirri3266 4 роки тому

      do fingers hurt too?

  • @coconutzcrazy8185
    @coconutzcrazy8185 6 років тому +275

    It's like going threw labor every month.

    • @lukewilliams4333
      @lukewilliams4333 6 років тому

      It does sound bad

    • @thomasnelson3470
      @thomasnelson3470 6 років тому +11

      (From my boyfriend's UA-cam account) for real! I've had pain with it worse than when I gave natural childbirth!

    • @DemonCat
      @DemonCat 4 роки тому +5

      Every month birthing massive clots, nearly fainting on the bathroom floor to the point of losing all feeling in my body and just uncontrollably sweating but nope, all 100% normal even when I have to overdose on my prescription pain medication. Yep...100% normal

    • @flolo8036
      @flolo8036 3 роки тому

      Kema Xo is that how labour feels like??? 😮 cause I’ve never gave birth and all

    • @raqeebkahuta2559
      @raqeebkahuta2559 3 роки тому

      @@thomasnelson3470 c,""xxxC
      \"\
      x
      Xx*x*

  • @drmila
    @drmila 6 років тому +266

    I'm a medstudent and videos like this always help me try to understand these diseases and, more importantly, people with theses diseases. Thank you for this video, and also the visuals are very beautifully chosen.
    My love goes to everybody out there who has endometriosis, stay strong x

    • @ghoultooth
      @ghoultooth 5 років тому +5

      mila Thankyou for deciding to research in your own time. I personally don’t have this, but people who do need people like you.

    • @adamsdiana4588
      @adamsdiana4588 3 роки тому

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  • @sj-os8js
    @sj-os8js 6 років тому +58

    When you try to come forward with this problem people just think you can't handle the same period pain every other woman gets.

  • @mymanson77
    @mymanson77 6 років тому +78

    I had posted this on another related video. I had severe pelvic and period pain for 28 years...then upon finally hearing a celebrity talk about endometriosis, I was like 'this is what I have', then decided to ask the next doctor. Dismissed again. I was only taken seriously when I lied about not being able to get pregnant. ONLY then did the ball start rolling, and I was finally diagnosed. I did not want kids, I was too sick to ever want kids, and I had to lie in order to be heard....what does that say about our society and medical world?

  • @lizzieellen2833
    @lizzieellen2833 6 років тому +80

    I’ve not been diagnosed, every time I approach someone to ask for their opinion they say it’s normal to bite my lip and get through it. The pain is unbearable. I literally faint, vomit and curl up in a ball clutching my stomach for 2-3 days until it passes with painkillers. Sometimes painkillers don’t even touch it. I DREAD the end of each month and I feel soft complaining about it because it’s ‘natural and normal’ but I have a feeling somethings not quite right. Ugh, it’s nice to see somebody else explaining how you feel

    • @MadeleineSwannSurreal
      @MadeleineSwannSurreal 6 років тому +4

      Lizzie Ellen that sounds so much like me in the beginning and I was told the same thing. IT'S NOT NORMAL! They need to help you and take you seriously

    • @thomasnelson3470
      @thomasnelson3470 6 років тому +6

      (From my boyfriend's UA-cam) that also sounds like me in the beginning and that is what everyone told Me! It is not normal for your period to interfere with your daily activities! People told me I was being a baby but I had a 5cm mass on my ovary and endometriosis!

    • @ZaharaGamez
      @ZaharaGamez 6 років тому +1

      I went to 4 or 5 doctors before getting the surgery to be diagnoses

    • @jennymck7320
      @jennymck7320 5 років тому

      Go seek help, and don’t let doctors tell you no. That level of pain is not normal. I was told for years it was all in my head. I am now in pain every single day, not just during my period.

    • @angeliquesoul6719
      @angeliquesoul6719 4 роки тому

      You have to kerp complaining about it until the doctors finally do surgery to look for endometriosis. That's what I did. I didn't get diagnosed until I was 29yrs old. They couldn't resolve the endometriosis because it's everywhere. But at least I have a diagnosis. I hope they diagnose you and help you.

  • @TheLilyMustang
    @TheLilyMustang 6 років тому +136

    It is constant trauma. I want a hysterectomy so bad but no one will do it. They don’t understand that I am barely holding on.

    • @milkfartss
      @milkfartss 6 років тому +9

      They probably won't do it because it won't help. I also have this, and the Dr. told me that even if my uterus is removed, I will still get bits of lining in different parts of my body every month. The hormones that cause you to menstruate still create the lining. Just else where. Sucks to be us.

    • @TheLilyMustang
      @TheLilyMustang 6 років тому +13

      ja H It has helped a lot with all the women on my mother side. We don’t have a women in the past couple generations on her side who hasn’t had it as well as cancer if they didn’t have a hysterectomy. I also bleed for at least 20 days and need routine blood transfusions

    • @arshisot6306
      @arshisot6306 6 років тому +15

      Keep looking for a doctor that will listen to you and find one! Many OB/GYNs are so against hysterectomies for women of childbearing age, but they aren't empathetic to your situation. Idk if you know Lena Dunham from the HBO Show Girls but she legit walked into a hospital demanding a hysterectomy and stayed in the waiting room for a week until she got what she came for.

    • @TheLilyMustang
      @TheLilyMustang 6 років тому +9

      Arshi Sot I have seen every doctor in within 4 hours of Dallas. My parents even go in with me to appointment to help plead my case. My dad who was very uncomfortable with the topic has now become so informed and if he hears about a lead for it will as stranger or any doctor he meets for help. They have even started discussing going to another country.

    • @arshisot6306
      @arshisot6306 6 років тому +2

      Lily Mustang exhaust all your options in the US first. if you can honestly afford to travel outside the country, maybe look up those famous ob/gyns inside our country first- I think Halsey’s ob/gyn was very attentive to her needs. Many doctors are taught in medical school to not take a women’s reproductive functions away if she is of childbearing age unless absolutely necessary- i would honestly get on reddit and ask if any ob/gyn would be willing to do it before jumping on a plane

  • @megmcgrady1721
    @megmcgrady1721 6 років тому +24

    My sister was diagnosed recently with this and she’s been suffering from symptoms for 14 years. I’m so glad that awareness for Endo is increasing 💛

  • @rachelanderson4932
    @rachelanderson4932 3 роки тому +5

    Everything she said about feeling overdramatic and constantly doubting yourself is every bit true to what i have felt for the last 7 years

  • @day6atemywallet78
    @day6atemywallet78 4 роки тому +10

    OMG! This seems so scary and painful, my heart goes out to all the sisters out there going through this 😭😭

  • @LetsBeClear87
    @LetsBeClear87 6 років тому +21

    This explains chronic pain so well

  • @jakewillson1873
    @jakewillson1873 6 років тому +259

    it feels like your lungs and uterus is being sliced up by knives , I’ve had endometriosis since I started my period, I started at 9 once I was 11 something still didn’t seem right but I didn’t talk to my doctor about it until I was 16 and I was diagnosed with endometriosis when I was 13 I was diagnosed with fibromyalgia and at 19 I was diagnosed with mast cell activation syndrome

    • @Marjol
      @Marjol 6 років тому +16

      Stella SW Chalue Wow, you are one strong human being. I can't imagine being in your shoes. I hope they find a cause and cure for they pain you experience on daily basis.

    • @christophharriso653
      @christophharriso653 6 років тому

      Fibromyalgia is not a real condition

    • @bleach0708
      @bleach0708 6 років тому +13

      Florida Bear Please elaborate. You are wrong, but I wish to know why you think such a illogical thing.

    • @christophharriso653
      @christophharriso653 6 років тому

      Jamie Metcalfe it's a broad spectrum diagnosis of pain that eliviates physicians from having to further explore potential ailments for chronic discomfort and pain patients.

    • @grapefives7762
      @grapefives7762 6 років тому

      I am so sorry

  • @xoxyoshi111
    @xoxyoshi111 6 років тому +6

    Being told that "It's normal", "Just get over it already", "'There's nothing wrong with you - it's all in your head"..... When you're going through a pain flare and can't do anything, being told "Stop being so lazy and making excuses"....
    I don't understand why it's not raised awareness of when it's more common than diabetes... The unnecessary traumatic years of pain and debilitation - the amount of damage that causes in so many different ways!
    Kudos to BBC3 doing this video! Just wish it wasn't such a rare thing to happen.

  • @xxkillerklownxx3462
    @xxkillerklownxx3462 6 років тому +41

    Holy shit. This is the scariest thing I’ve ever seen

  • @rohlicek9407
    @rohlicek9407 5 років тому +11

    Well I'm not diagnosed with it but I think it's my case... I didn't even know that this existed. Once I was on school trip and it started really hurt like this. I had to go like 2 kilometres in pain while I was crying my eyes out. I asked my teacher if I can go to my grandparents house because it was nearby and she literally smile at me and said no. She said I'm just pretending and that it can't hurt that much. She also said every woman must go through this but I really didn't think so. That day I came home in tears cuz basically all the kids and teachers saw me crying and sobbing like a newborn and it was the worst day of my life.

  • @giuliamarmeggi1450
    @giuliamarmeggi1450 6 років тому +10

    I was one of the 1 out of 10 women to have endometriosis. About a year after started my period... every month was a horror story for me... I’d take loads of pain pills, sometimes wouldn’t help so had to go to the med24 for a shot to relieve the pain. Eventually at 21 years old I went to my first gynaecologist appointment... she was left shock because hadn’t seen this intensity in ages. I was between stage 3 to 4, which if left untreated, later on in life would of turned into cancer. Soon after had a laparoscopy... So glad the pain is all over

  • @deegskye
    @deegskye 6 років тому +8

    It took me 5 years to get diagnosed with endometriosis. My GP always said it was normal to feel pain, but with every period i had so much pain that i was vomiting and trembling and crying cause I couldn’t handle it. I will always thank my Gyn, she literally saved me.

    • @Honeybear0488
      @Honeybear0488 2 роки тому

      Did you ever pass out ? The hot flash that came made me pass out. I strained my vagus nerve 😫

  • @sarahchamberlain4575
    @sarahchamberlain4575 Рік тому +1

    This video you created just hit home! How you explained it was so easy to understand and heart felt. Thank you.

  • @mamaj1166
    @mamaj1166 Рік тому

    I loved how well you put that together! I’m 41 and been dealing with this for five years. You explained exactly what is so hard for me to explain! Your imagery behind the explanation is right on point! Thank you so much for sharing!

  • @SA-nt9kl
    @SA-nt9kl 6 років тому +12

    I think I have it too. But the doctors say it comes with having periods. It’s sooo painful, I vomit, my legs are paralyzed I have stomach pain etc. I’m nauseous:(

  • @randombox8142
    @randombox8142 6 років тому

    I love this series so much. This info is very useful to taka into account

  • @ntvgma773
    @ntvgma773 6 років тому +4

    I had a hysterectomy when I was 28 because of endometriosis..and I got severely addicted to narcotics. Thank God today I'm ok and I have not missed having a period in years

  • @heikika6078
    @heikika6078 5 років тому +1

    Beautiful Video!

  • @CryptofCambriasCorpse
    @CryptofCambriasCorpse 6 років тому

    Seriously, the first sentence of this is video is the PERFECT description of what this disease feels like in my life and body.

  • @mollyprior5288
    @mollyprior5288 5 років тому

    Absolutely amazing. Completely spot on

  • @mgnruth
    @mgnruth 6 років тому +13

    Yep im going through this atm does suck bad but with community of people and good docs I'm getting through it and yay for finally doing a video of it huge points from me huuuuuge!! And yes it took me 7 years for a diagnosis till I switched to a doc I knew that finally found it don't take your ok it's normal for an answer you know your body is not normal say something!!

  • @jescaffurtado6491
    @jescaffurtado6491 6 років тому +1

    Really brave to talk about this! I feel severe pain too, but as everyone keeps saying it is normal, I use to feel kind of ridiculous. But there are days where I can't even stand up properly.

  • @hikari482
    @hikari482 6 років тому +5

    I haven't been diagnosed but this description sounds exactly how I feel episodes usually occur a week before and it lasts several hours to several days of just extreme pain and vomiting and even when I take pain medication it doesn't work. I was even given prescribed painkillers and anti nausea and it still didn't work. I'd been trying to get a diagnoses but all anyone ever tells me is that its "normal" or that its something I ate. It isn't something I ate and it isn't normal to feel like someone is tearing up your insides with a knife

  • @maryahaque9563
    @maryahaque9563 5 років тому +2

    My bio teacher self diagnosed herself with endometriosis, when she was in college she did her own ELISA test and saw abnormal cell growth so she decided to get one done at another hospital and that's how she knew for sure that she had endometriosis, luckily she got good doctors, got a surgery done early, and also has a kid now.

  • @aprajitasingh3759
    @aprajitasingh3759 5 років тому +2

    Initially, I felt mentally sick as I was told that this pain is normal and everyone goes through it. I have been often questioned on my "pain retention capacity". I was aghast. Nobody would understand and I wouldn't want to explain because it was tormenting. I am so thankful to the internet for letting me connect to other women who face the same and it makes me feel so much better that I am not alone in this and for letting me understand that mental strength is any day more important than physical strength. So much respect and love to all those wonderful beauties who are out there and battling through this everyday!

  • @shaniawilkinson7620
    @shaniawilkinson7620 6 років тому +10

    I have endometriosis and I always describe it as someone shoving a hand blender up there and turning it on high.

  • @chelseacarter3374
    @chelseacarter3374 6 років тому +33

    Going through Super+ tampons every 10-15 minutes for me, and pain so bad that I've wanted to end my life, just to make it all stop, is NOT normal!!!😥😥😑

    • @ZaharaGamez
      @ZaharaGamez 6 років тому

      Episode Interactive that made my period so much worse

    • @ghoultooth
      @ghoultooth 5 років тому

      Chelsea Carter Keep going to the doctor, show them any research you can find

    • @sheikaamor4489
      @sheikaamor4489 4 роки тому

      This VERY same thing happ to me 2 wks ago for the 1st time ever... I will NOT survive another episode 😔

  • @uottawaanimalrightsassocia7582
    @uottawaanimalrightsassocia7582 5 років тому +1

    Thank you so much for making me feel less alone

  • @anaisprofessionalversatile5541
    @anaisprofessionalversatile5541 5 років тому +1

    Thank you all so much for your comments and support x It is inspiring to see that my words resonate with lots of women x x

  • @skull7384
    @skull7384 5 років тому +1

    I was prescribed really strong pain killers for adults with major pain when I was 13 for my periods and they never helped at all. The best thing I ever did was to go see a gynaecologist and have her tell me it’s probably endometriosis ( after people convincing me I was crazy for thinking it for months ) and getting her to prescribe me the pill to stop the pain. I haven’t had any vomit inducing pain in a year now and it is the thing I am most grateful for in my life

  • @psychedelicfeline6164
    @psychedelicfeline6164 6 років тому +10

    I have endometriosis. 4 laparoscopic surgeries from age 19-31(current), and the intro 100% describes my pain.

    • @Marciusha
      @Marciusha 4 роки тому

      Did it help, the operation?

  • @samanthathompson4821
    @samanthathompson4821 5 років тому +3

    I started my period when I was 10 and have always been told I had "bad periods." Another favorite is "you probably had cysts and they ruptured." It made me feel crazy and like I was overreacting. I would seriously miss 1-2 days a month from the pain, and it started impacting my school attendance negatively. I dealt with that for 11 years and just got diagnosed this year with endo. It all makes sense now. The extreme fatigue (always told I had mono), the bloating, the pain after sex, the abnormal bleeding, the back pain, all of it. If you have any of the symptoms, go see a good doctor and find out what treatment options work for you!

    • @jordynandre6391
      @jordynandre6391 5 років тому

      One of the nurse's at my gynecologist's office told me the whole cyst rupture thing too! But I found out later that those shouldnt have been forming in the first place because I was on birth control, which stops ovulation! About a year and 2 months after that, I got diagnosed with stage 3 borderline 4 endometriosis. Took me about 7.5 years to get diagnosed.

  • @abirmef9510
    @abirmef9510 3 роки тому

    Thank u 🙌🙌

  • @ZaharaGamez
    @ZaharaGamez 6 років тому +2

    I got my diagnosis at 16 due to me pushing the doctors. Went to as many doctors as it took and was determined to get the surgery. Finally found a doctor willing and I was correct. I have endo. It's so much nicer having a diagnosis

  • @MadeleineSwannSurreal
    @MadeleineSwannSurreal 6 років тому +2

    It took around ten years to diagnose me too. One specialist told me periods were just painful after I hobbled into A&E

  • @cassiafernandesstevenson7307
    @cassiafernandesstevenson7307 3 роки тому +1

    When someone asking me describes your pain, always wolverine come to my mind, exactly like you saying in the beginning of this video. Is terribly.

  • @camilaagustina4953
    @camilaagustina4953 4 роки тому

    I really love this video🥺 especially the tittle

  • @catbyte0679
    @catbyte0679 6 років тому +1

    That's about the size of it. I suffered for 20 years until I couldn't stand it anymore and had a complete hysterectomy at age 45, Best decision I ever made.

  • @crazy4nails123
    @crazy4nails123 6 років тому +6

    Please make one of these on PCOS!

  • @simmylindconradsen9437
    @simmylindconradsen9437 4 роки тому

    I was misdiagnosed with IBS in 2016.
    But I had pain since 2011.
    I got my laparoscopy Friday the 7th February 2020, where the endometriosis specialist found endometriosis behind my uterus and near my bladder. She removed it with laser (ablation)

  • @noni909able
    @noni909able 6 років тому +15

    Don’t let doctors minimize your pain! Get a second opinion if you’re not being heard. This condition has destroyed my life. Surgery did not help me. Hormones treatments caused weight gain and other long term side effects. Early diagnosis is key. I got diagnosed at 28, but had suffered since teens. There needs to be more awareness and resources for young girls and women.

  • @theresistance3818
    @theresistance3818 4 роки тому

    ...yeah....you described my life, PERFECTLY... I'm trying everything, right now, not to throw up because the nausea is so intense, that laying on the couch feels like being on choppy waters at sea.

  • @agrammarnazi41
    @agrammarnazi41 6 років тому +1

    I'm 13 now, but I've had this since I was 8. It's really difficult to deal with. I feel awful for all the girls who have it worse than me.

  • @tarotfire
    @tarotfire 4 роки тому

    Can you please make a video about adenomyosis?

  • @jordynandre6391
    @jordynandre6391 5 років тому +1

    I was put on birth control when I was 14 because of extremely irregular and painful periods. It helped up until March 2017. I felt a poping sensation and it went downhill from there. My periods became so bad that for the duration of them I couldn't get out of bed because I had pain shooting down my legs and up my spine. A week before mt 21st birthday (may 2018), I was finally diagnosed by laparoscopy with a KT laser with severe (borderline stage 4) endometriosis. They found tissue plastered over my right ovary, my uterus, and behind my appendix. I have scar tissue between my back and uterus that they couldn't remove. So even though I'm in a lot less pain, I will never be pain free. My periods are still debilitating at times, so I've chosen to go through a year long treatment with lupron, which causes severe problems if taken too long. However, it shuts everything down, so for at least a year, I shouldnt have to worry about missing out because I can't get out of bed. I actually recently got fired from my job because of missing work too much and having to leave 3 hours into my shift due to the pain getting too bad.

    • @Divya-cc8qs
      @Divya-cc8qs 5 років тому

      Please try ginger, tumeric and wheatgrass...take twice a day.
      And avoid sugar (in all its forms - a gluten-free diet if you can)
      It changed my life!
      I also had laparoscopy but they pain came back less than a year after.
      I take Visanne too but the diet helps A LOT!

  • @GrechSuby
    @GrechSuby 5 років тому +1

    God I feel the same. I've had my period since I was 13 and now I'm 18 and finally went to the doctor about my terrible cramps and ended up getting an ultrasound to see if I had any cysts on my ovaries. Turns out I didn't have any but my doctor believes I have endometriosis. My cramps are so bad to where my legs numb up, I have to take 9 ibuprofen to settle it, I get cramps when I to poop and sometimes even pee when I'm not even on my period and it just feels like I'm going to pass out if I dont do anything. I wish this horrid thing was easier to get rid of or easier to diagnose because I believe a lot of women go through this but never get help

  • @evieatkin6204
    @evieatkin6204 4 роки тому +1

    I'm 13, I am having diagnostic surgery for endo tomorow I'm terrified but this has made me feel loads better about it

  • @damnitson7181
    @damnitson7181 4 роки тому

    True.

  • @pooface9536
    @pooface9536 3 роки тому

    So im almost 15, ive been living with this pretty much since i got my period when i was twelve but its progressively gotten worse, much worse. I asked around quiet a lot to almost allt he girls i know if they feel the same feeling and all of them have said they dont feel that, can someone please explain to me if i should be concerned

  • @tariii3
    @tariii3 6 років тому +1

    I know exactly what you mean by the pain I haved it for 20 years until Thanks God I went to a doctor who understood and I have a life again. My advice is if you have to go to 4 o 5 doctor until you feel better do it.

  • @ameliakinnersley888
    @ameliakinnersley888 3 роки тому

    Diagnosed when I was 13 and it was everywhere. They haven’t told me much. I went through a lot of trauma when I was younger in hospital because how could a child feel like this. It’s extremely difficult for me. I got incontenance when I was 12. It’s been 2 years and it’s still going on because of this illness

  • @Ashley-go9wm
    @Ashley-go9wm 5 років тому +2

    I don't know if I have this but my period is weird. One time my period is barely anything but I still get bloating and a little cramping. Then the next period its hell. Like glass being shoved up. I get sick and tired. I cant even move. I have a lot of blood which got me sh00k because the last one was barely anything!!! Idk anymore. I the pain is so bad sometimes I cry but it feels okay for a while then ZOOM IT HAPPENS AGAIN. Its an off and on thingy. Also it hurts to pee like a urinary and passgas. Gross I know srry. Its kind of sad im only 14. I dontplan on having any kids tho at least not mine cause i have alopecia which is a loss of hair everywhere. I dont have hair lashes or eyebrows. Barely on my body. Soooo i dont want to pass it on to another child since it sucks and is bad.

  • @mariah5258
    @mariah5258 3 роки тому +1

    im 14 and the pain started in my first period and everyone month it gets worse. i thought it was 'normal' cramps. then for 3 years the doctors thought i had a yeast infection. i would do anything to get rid of the pain and when i say anything i would be so happy to be paralyzed so i don't have to feel it no more.

  • @hotmessmissy
    @hotmessmissy 5 років тому +2

    I dont cry often but this is me now .. Again. In my 30s. Painful as hell. i thought i was ok for 3yrs now...coz i took meds and now its come back. This is not living. I have suffered with this debilitating pain for 15yrs now. And its soo fruatrating when doctors or people u know say its ok or think were lying and over acting.. Its torture

  • @xMissxJ
    @xMissxJ 5 років тому

    The accuracy..

  • @beehungry6190
    @beehungry6190 Рік тому

    I had spasms between my perineal and vaginal wall when I would ovulate and have discharge build up during my cycle from endometriosis flare ups. I had it removed ten years after it started and a year later I am pregnant and no more spasms.

  • @juliannehesketh6478
    @juliannehesketh6478 5 років тому

    I was told it was 'normal' for 20 years! It got to the point where my pain had become 24/7. The amount of times I collapsed and sent home from work is crazy! Eventually, they decided after 20 years to investigate. 6 specialists later and they thought 'Oh, let's send you to gynae' only for them to tell me it was IBS and I should take fybogel! My mum who was so fed up with seeing me in constant pain decided to prod them to investigate. Eventually, I got a laparoscopy. After it was over and I was back on the ward, the same consultant came to see me. He sat on the bed, held my hand and said 'I'm so sorry but you have endometriosis'. What a huge turnaround in his opinion! 5 surgeries later and I had had a total hysterectomy as there was nothing else they could try for me and I couldn't take the pain any longer. It is a horrendous condition!

  • @KrishnaMk9
    @KrishnaMk9 4 роки тому

    I suffered for 16 yrs but now started taking medroxy progesterone soon after my ovulation for a week to 10 days & my periods came back to normal painless ones..I never thought I would live normally before But this changed my life..I owe it to my doc

  • @madeleinegerlach4854
    @madeleinegerlach4854 6 років тому

    Yep, that's how I feel. Sometimes the pain is so intense that I feel high/woozy from the pain alone and my eyes feel puffy like I've been crying for hours when I haven't been. I've had 3 surgeries for Endo and none of them have eased any of the pain even after excising all of the growths each time and confirming they were Endometriosis, so now even if there's more in there, which I'm sure there is, no surgeon will open me up because what's the point?

  • @veronicae2291
    @veronicae2291 4 роки тому

    My sister has been prescribed oxycodone for over a year because her menstrual cramps kept her from work to the point where she even lost one job, and even on oxycodone she will sometimes be in so much pain she is unable to stand up... still, the doctors are hesitant to do a laparoscopy and look for endometrium that might be outside of the uterus.

  • @mra5247
    @mra5247 5 років тому

    Is this pain everyday or only during pms? Should I ignore it if it’s only during my pms and just keep treating with pain killers? I’m confused

  • @melladaunicorn8813
    @melladaunicorn8813 3 роки тому

    I was told it was growing pains for the first year even though my mum has endo and ik she didn't want to believe that i also have it but then ine day i threw up and had the worst imaginable pain for me but the next time it was worse and I'm lucky to have my mum and her good gp because im been given understanding and facts then i find newer facts myself. I haven't been diagnosed though even though i have a mum, gp and three gynaecologists that believe i have endo but im still young and so they don't want to check until it is deemed necessary. Idk when it is necessary lol but all the hormone ways of suppressing only work at the beginning. I've always had no cycle so yeah. I want people to get more understanding because ik that 1 in 10 woman fact has changed to become more common and that's due to knowledge which is good but still need more. I give digital support hug to anyone out there with endo

  • @specialladyawareness4178
    @specialladyawareness4178 5 років тому

    Gyneacological conditions can cause emotional, physical distress. I am diagnosed with double uterus, double cervix and double vagina, fibroids and ovarian cysts. Living with chronic fatigue and pain, irregular menstrual periods, insomnia and uncertainty on a daily basis. All i seek is adequate medical interventionand support that can help menage the symptoms however its seems most of these conditions are ignored. After 3 key hole surgeries, 2 hysteroscopy and evacuation of the womb following a missed miscarriage hmmmm am still stuck with the pain.

  • @HannahMarriott
    @HannahMarriott 4 роки тому

    Im just looking through the comments for people who experience bowel, bladder and pelvic pain symptoms outside of their actual period as well. Does anyone else get symptoms leading up to their period? Does anyone here take mefenamic acid for the pain? Is anyone here (like me) patiently waiting for their gynecology appointment?
    Stay strong ladies

  • @inprogress5210
    @inprogress5210 5 років тому

    It hurts a lot.

  • @emersxn420
    @emersxn420 4 роки тому

    I was in 7th grade in class and my period started nothing abnormal but the next day I felt like I was going through labor I was crying and screaming in class and getting heat flashes I went to the nurse and she said "just take some pain killers" but nothing worked but today went to gynecologist and I got diagnosed with endometriosis and it all made sense

  • @Sum1sMom
    @Sum1sMom 6 років тому

    Accurate as hell

  • @leahpookie7237
    @leahpookie7237 4 роки тому +1

    i explained to my friend how it feels and she scoffed and said "wait till you go threw labor girl". I explained to her that a lot of women with Endo who have given birth say it can be as extreme of pain or even worse. I nor my friend have had a child so I was really taken back

  • @christiandaugherty1267
    @christiandaugherty1267 6 років тому

    I've had this for 15yrs or so. I have my third operation august 1st.

  • @memyaify
    @memyaify 9 місяців тому

    I have severe stage 4 Endometriosis and my pain is nothing like this!

  • @LoveJadeyAlwayz
    @LoveJadeyAlwayz 6 років тому

    What is the cure? Or how do you alleviate the symptoms?

    • @mizfeng1442
      @mizfeng1442 5 років тому

      There is no cure. The only way to alleviate symptoms is by using hormonal birth control, which for many women doesn't work or they cannot take it. They do surgery every few years to cut it out but it always grows back.

  • @lotus8203
    @lotus8203 Рік тому

    Only thing that worked for me was a low fat high carb diet, fruits mainly + fasting...
    Worse EVER pain I've ever experienced every month.

  • @jacarahupp5805
    @jacarahupp5805 6 років тому

    when I was 12 doctors guessed I had this then when I had just turned fourteen I had the surgery and it turns out I didn't but the two years we thought i had it was awful because I felt like no one understand i still do but it felt worse because nobody knew about this condition I told one classmate "I have this disease" and before i could go on to explain it she scooted away from me in her chair and I wanted to run out of the room crying. I wrote a paper to inform more people about it but only the class heard it. to this day I am still undiagnosed because I only had Medicaid so test or medicines we wanted to try I couldn't get. I am sorry to anyone who does go through this though.

  • @daejas8683
    @daejas8683 6 років тому +2

    I think I may have this, does this pain occur anytime of the month? During periods? Or both?

    • @hilaryturner3333
      @hilaryturner3333 6 років тому +4

      For some people the pain occurs at any time during the month, for others only during their period, some people with endo don't have much pain at all. For example, I had endo and had/have painful periods, my best friend also had endo and had not had painful periods since her teens -we know we both definitely had it as we both had the laparoscopic surgery to diagnose and remove it. For myself, I generally only have pain during my period and mid-cycle when I ovulate (mittelschmerz)

    • @MadeleineSwannSurreal
      @MadeleineSwannSurreal 6 років тому +1

      Yashi * this single thread has made me so weirdly happy because my doctor looks at me like I'm mad when I say it's not just during my period. She actually told me "but why? It's endometriosis." I don't know lady, you're the doctor!

  • @BlueMiaou
    @BlueMiaou 6 років тому

    my legs are having spasms just thinking how painful it must be. i do that every time i imagine some kind of wild pain, the part of the body that i think of being in pain just spasms out
    and i look like a total jerk

  • @eilisminchin1
    @eilisminchin1 6 років тому +2

    Correction for the description of endometriosis it is not the same tissue as what is in the uterus it is similar tissue...

    • @anaisprofessionalversatile5541
      @anaisprofessionalversatile5541 6 років тому

      eye-lish95 who has said this? X

    • @eilisminchin1
      @eilisminchin1 6 років тому

      Anais Professional Versatile Vocalist if you click into the description of the video they have the incorrect definition simple mistake but important to correct 😊

    • @anaisprofessionalversatile5541
      @anaisprofessionalversatile5541 6 років тому +1

      oh no! i will see if they can change it :) thanks for pointing out . x

  • @genie121
    @genie121 5 років тому

    I had moderate pain during day 1 and 2 of period and that was it. No further symptoms! Only during a scan they found an endometrioma and 7cm in size! Went for laparoscopy and they discovered I had stage 4 endo!!!!!!! And that’s without symptoms!!!!!!

  • @temickab
    @temickab 6 років тому +1

    It hurts like hell and i bleed to nearly.death for months

  • @vaespor
    @vaespor 6 років тому

    i really did not neeed to read that title

  • @hrishitapatel8190
    @hrishitapatel8190 3 роки тому

    ☹️

  • @flolo8036
    @flolo8036 3 роки тому +1

    I want to cut everything out every month when I go through that pain, every organ I’ve got

  • @TwitchyMoth
    @TwitchyMoth 6 років тому

    My mom had this and it took 24 years for someone to notice

  • @emeliachambers4433
    @emeliachambers4433 6 років тому +7

    My doctor told me that I could possibly have endemetriosis and honestly I'm so goddamn scared, and I know I shouldn't skip my period when taking the contraceptive pill but I always do because the pain is too much for me to handle.. I have dealt with ovarian cysts in the past and went for an ultrasound recently to see if the problem was cysts, but I haven't been back to the doctors to discuss my results because I'm so scared of what it could be... if no cysts came up then I'll have to get checked for endemetriosis, if there is cysts then I might need surgery to get them out... it just sucks having problems with your body 😫

    • @lukewilliams4333
      @lukewilliams4333 6 років тому

      Emelia Chambers good luck I wish you the best.

    • @niamhb811
      @niamhb811 6 років тому +1

      Although it's really scary to go to the doctor and discuss your issues, you definitely shouldn't put it off!! Can totally relate with the skipping periods though, having the ability to skip your period is so tempting even if you've already skipped it the past few months

    • @SachaRommane
      @SachaRommane 5 років тому

      My gynae told me that taking the pill continuously is absolutely fine! I've been doing it for the past 6 months to avoid the awful pain of my periods. No health risk to taking it continuously so don't worry! Wish you all the best x

  • @lewis1717
    @lewis1717 6 років тому +60

    My girlfriend has this can this affect her getting pregnant ?

    • @Barbey.
      @Barbey. 6 років тому +43

      The Tinman YES! I’m a Gynecology nurse.. and we usually recommend not to get pregnant .. and unfortunately recommend having a hysterectomy to rid endometriosis.

    • @mgnruth
      @mgnruth 6 років тому +9

      The Tinman it just all depends some people it does best thing for her is to go get an obgtn appt asap! Lay on the details.

    • @jakewillson1873
      @jakewillson1873 6 років тому

      The Tinman yes

    • @lewis1717
      @lewis1717 6 років тому +20

      Thank you very much for your information everyone, does this mean I have a 0% chance of having any children then ? If this is the case then it’s very sad. What’s an obgtn appointment by the way? Sorry to sound silly.

    • @shirleypilger1705
      @shirleypilger1705 6 років тому +28

      You don't sound silly at all! Bless you for wanting to understand what is happening. I must tell you however, I did get pregnant. It was terribly painful. My placenta tore and I had to be delivered early. My son was fine, thankfully. I did have to have a hysterectomy because of heavy, prolonged bleeding afterward.

  • @dillavedderx5959
    @dillavedderx5959 6 років тому

    Man this is so fucked up! My heart goes out to any woman who suffers from this.... my heart goes out to all women who suffer from anything!

  • @shinx2873
    @shinx2873 6 років тому +2

    1 in 10?

    • @YourMoonJoy
      @YourMoonJoy 6 років тому

      Skrillanosaurus W-Rex yeah its really common just varying degrees of pain and discomfort.

  • @jennymck7320
    @jennymck7320 5 років тому

    I get pain every, single, day. For me, it feels like Freddy Kruger is living inside of me just tearing me up, as well as there is a blowtorch that goes off with every movement I make. 😔

  • @janea2136
    @janea2136 3 роки тому

    :((

  • @angeliquesoul6719
    @angeliquesoul6719 4 роки тому

    I describe it like Freddy Krueger is inside me every month. Sounds horrible but that's what it feels like. I have a sense of humor about it descrbing it in such a way but it is whst it is.

  • @charlieadams2084
    @charlieadams2084 6 років тому

    Bethan???????????????

  • @SunBunz
    @SunBunz 6 років тому

    For me, it feels like knives slowly stabbing the crotch, knives slowly stabbing the anus, and icepicks prodding my ovaries. Then there’s pain in the legs, tension and tightness all over and a massive headache from all the crying and cringing in agony. Just had surgery...and it can’t be cured apparently. Only periodically treated. It’s a miserable, helpless disease and I wouldn’t wish it on anyone.

  • @shantellwilson9628
    @shantellwilson9628 Рік тому

    She’s describing it to the T…

  • @debf8299
    @debf8299 4 роки тому

    It genuinely feels like someone took a extended meat fork and JAMMED it up me for a span of 30-40 seconds, took a break for 10 seconds then JAMMED it again and scrambled ..... and this cycle continues for the next 3 days or until the multiple pills I took hopefully kicks in... 😗

    • @debf8299
      @debf8299 4 роки тому

      I once threw up so much I almost passed out 😖 even received prescribed pain medication and it made it even worse. As of recent it’s been better because of my depo shot but it’s still extremely traumatic....

  • @bob.3400
    @bob.3400 5 років тому

    I'm only 16.. I think I have it