😭 SO UPSET: Problems with Pain Management 😤
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- Опубліковано 18 вер 2024
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Since you started using medical marijuana, you look so much healthier! I can tell that you're gaining weight and overall you look so good!
I have noticed the same thing. I believe I told her this in the last video about switching dispensaries.
I have noticed that too. It’s been a while since I’ve watched her vids, but just scrolling through and watching, she looks so much healthier.
I'm so glad you ditched that doctor! I hope you find something that works for you soon. Much love
Disco! at the Panic thank goodness she ditched that doctor.
Unfortunately though, switching doctors too often sends up red flags that a patient is "difficult" or doctor shopping and then no doctor wants to treat. It's a Catch 22...stick with a doctor you don't really like and at least have a doctor or leave to find a better doctor and take the chance of not finding one 🤷♀️ It definitely sucks for those of us with chronic illness :/
Thank you for this eye opening video. I hope you find a new doctor who cares. Wishing you the best! 💕
I honestly think it's selfish of your old doctor to refuse to prescribe you medicine you clearly NEED just because they have a bias; it's not like you're smoking it and getting high, it's drops that stop the puking and nausea. You can so clearly see how much you have improved on it, and to refuse you treatment and care because you're looking for alternatives to man-made medicines (which there is nothing wrong with, but they haven't worked as well as this does for you) is really judgemental and selfish, and goes against the "do no harm" aspect of the Hippocratic oath.
I've had to fire doctors who refused to listen to me. I live with chronic conditions too and I've encountered doctors who try to treat me like a child, which I don't tolerate.
How do you avoid the "doctor shopping" label? I am going through leaving a doctor now, and the replacement was worse. I was told that I could see as many replacement doctors that I need to, to find one that works for me, but a doctor told me to be aware that this can cause me to be considered to be "doctor shopping". I was actually told to stop researching on my own and to "trust" the doctor's advice.
@@SweetPea112 the legal definition of doctor shopping involves intent to commit fraud. You are purposely going from doc to doc just to get meds with no intension of staying put. He's just trying to scare you into sharing. I went through 3 neurologists b4 I found the right doc. Hang in their.
@@SweetPea112 Honey it's unavoidable. I'm a nurse that's now sick with many chronic illnesses and I tried really hard not to doc hop because I don't have insurance and am still waiting for my disability (it's been over three years) and my 72 year old father is stuck paying for everything! So, I try to keep costs to a minimum. But, I've had to doc hop trying to find a good PCP of all things! My specialists are great but, these GPs want to change my specialists' plans and medications, I've had several that don't believe I have Lyme disease without looking at a single lab or doing any kind of exam they just know I don't have it! I do not tolerate that kind of f*ckery. And you shouldn't either. Sometimes I think they want to change things just so they seem relevant. Because anymore, all they really are needed for is to write referrals. So, I think it's an ego thing. You should research for yourself. But, don't freak yourself out with it. Doctors don't know everything and, if one is telling you to just blindly listen to what they're recommending, it's because they can't stand that a patient might be right and they might be wrong. And us women get it a lot more than men do. Everything is in our heads according to them and that is not an exaggeration. I've heard how they talk about female patients. And they do it to me too! So, keep that in mind, stand up for yourself and fire as many doctors as you want until you find the right one.
I don't know what you think about it, but to me it almost feels like a lot of these pain managment doctors are "owned" by the pharmaceutic lobbies... Obviously cannabis has so many beneficial effects that it can be substituted to quite a few different types of medecine, ultimately making pharmaceutical companies less money, so they're quite unlikely to be pro cannabis. And we all know how these companies find different ways to "push" their drugs through doctors so that they get prescribed over other drug options.
I feel you on this, it's unfair for a doctor to somehow decide that you don't get to have your medical cannabis anymore if you want her to treat you. It's not like you're forcing her to take the stuff in the first place, and she's not the one having to deal with all the effects if you go off your treatment just to suit her point of view.
I'm sending you all of my thoughts and love, and crossing my fingers that you'll be able to find a treatment that suits you and your body, and that lets you get the relief you definitely deserve!
Love to you, Judd, and of course Hippo :)
MultinationalFreak yes.
MultinationalFreak BINGO! All very valid points. Thx
True, sadly..
You are 100% correct. Pain management doctors, in particular, thrive (and quite literally make all of their money) off prescribing patients heavy narcotics. They realize Cannabis is a huge threat, not only to pharmaceutical companies but also to them. They know Medical Cannabis can almost completely replace pharmaceuticals, and they're petrified.
It's so selfish of them to push their own financial agenda on sick patients. Patients have no choice but to trust their doctors; they're taking full advantage of that fact.
Cannabis is the future, but they're too scared to change with the times... because they'll be out of a job.
Thank the government for this.
That sucks that a blatant policy has been implemented by the practice without thinking about the implications on the patients
Agreed, especially in her case where it is proven to help her and eating and feeling better in general
I understand how you feel because I suffer from chronic pain but I'm not as ill as you are. I take Percocet and Baclofen for my back and leg pains and I also suffer from migraines and I have Bell's palsy so my face hurts especially my right cheek because I have neuralgia. I got a bunch of stuff but you certainly worthy of my admiration 🙏👼👩God bless you Jackie and may He provide the relief and possibly the cure for you. You are such a lovely lady and you have so much to live for not just that but you also have a wonderful husband. LOL I'm 67 years old and I am divorced been divorced for 18 years and I'm alone but I still persevere because of my Lord Jesus Christ 👼🙏😇
Medical marijuana is a game changer and I fully support your desicion. I have 2 chronic pain doctors and am on narcotics plus cannabis. On Tramadol as needed and Butrans always.
I also have EDS and have broken my neck, amoungest other stuff...
Hope you are doing well and I hope you just overall feel better :)
Sam LeBlanc buttons gave me my life back!!! Great stuff!
BottleBabies Reborns - me too!!
I to am on butrans I have arthrogryposis a congenital birth defect all my joints have contractiors at birth I've had over 40 surgeries I'm on 20mcg an hour but pharmacies around here have issues keeping it in stock
@@kassandraahuero7962 Try dealing with the new CDC restrictions on narcotics!! Those are even worse!!! I just had to switch pain mgmt docs after TEN YEARS (due to insurance) and I am finding out that while the CDC's "guidance" use to be 130 morphine equivalent units (don't ask me how you even calculate that bc morphine affects me totally differently than my regular meds!!) has been DROPPED TO 90 Equivalent units!! This means that in order to keep even 1/2 of my original dose of Fentanyl I have to drop my as needed Oxy down 5mg!! If you ask me the CDC needs to STAY OUT OF THE DOCTORS OFFICE!!! The same issue that Jackie is now having is EXACTLY why I have never tried MMJ (that and living in Texas where the stuff is HIGHLY HIGHLY REGULATED!!!)
Thank goodness you Dropped that pain management doctor girl! You deserve a doctor that puts you first. I’m so angry for you. Sending my love.
I feel your pain.... literally and figuratively. My state just added a bunch of new laws where pain meds are even more controlled and regulated. I want a life, and I want a life with less pain. When the new laws started in January I also had a pity party myself. Thanks for the inspiration and your ability to voice our concerns. We will somehow get through this! Best of luck!
Time to find a new pain management doctor! That doctor does NOT live inside your skin!
Pat McCoy. It is not easy!! I will bet 99% of pain management or GPs will not a Rx for opioid if you are using cannabis or CBD. I want to use carbon is(not legal in Wi) We seem off I use CBD they will kick me off my PM program... I have to drop every time I have an appt. I know the plight because i live daily.... please keep going Jacquie
I will add you to my prayers. I’m sorry for the trouble you have gone though. Watching you battle a lot of the things you have has enabled me to continue looking for help with my pain. So thank you and I hope you find something that works :)
I’m fed up of the moral judgement that comes with chronic pain. Apparently random members of the public have ‘high pain thresholds’, the implication that those with chronic pain are weak. In fact it has been shown that those with chronic pain actually have a greater ability to cope and with pain. Took me years before I was prescribed adequate pain relief.
Wishing you well
India McMillan-Dickman - I’m one of those random members of the public with a high pain threshold, and I also suffer from chronic pain (I have EDS, as well as a bunch of other stuff).
Having a high pain threshold means I can cope with more pain than the average person, before needing intervention. It does NOT mean that I can bear an infinite level of pain! Doctors seem to think anyone seeking help with pain is just a wuss. I’m like, “My pain threshold is high, but I still HAVE a threshold - there’s still a line where pain becomes too much to bear!”
I've been following your story since you feeding tube chronicles started. There was one vlog that always stuck out to me, when you had an infection (I think) in your feeding tube and the doctor ripped it out without warning or consent. You said how you wished you had been more of a voice for yourself and had stopped him. Now look how far you've come. You were a voice for yourself, and were not going to be 'bullied' into a situation you didn't agree with. You should be so incredibly proud of yourself Jaquie! I know I am! YOU GOT THIS GIRL!
You've got this! I am in a lot of pain today as well. I'm sending you my best! ♥️
so glad you're sticking with the cannabis! really hope that you can find some relief from your pain with cannabis and that this new doctor is willing to advocate for you in every way!
You’ll find a better pain management doctor soon! Cannabis is so helpful for those of us with chronic pain. Stay with taking it! Love you!! 🥰
She’s paid by pharmaceutical companies to push those meds. She knows you eventually will find a strain that works for you.
Dear Jaquie, thank you SO much for sharing your journey here on UA-cam. I was diagnosed this summer with the EDS/POTS/MCAS trifecta. I have gained more support, guidance, and solidarity from your UA-cam channel than from any other source. I am also on the autism spectrum like you. My husband and I live in Michigan, but we are travelling to Orlando in 2021 for a vacation. Maybe we could meet up with you and your husband when we're down there!
You are doing the right thing! It is incredible that the doctor is trying to make you decide this way. As if your illnesses are not enough...
Your frustration is completly understandable.
Hang in, Jaquie! I will definitely be praying! I owe you a lot. You have taught me so much. Because of you I now sleep in a bed (saw the video on the adjustable bases you got) instead of a recliner like I did for so many years due to my chronic neck pain. What happened isn't fair! I too live in Florida. It took too long to get the new medical marijuana laws passed and, unfortunately, too many in our society as well as the medical community have been slow to come around and educate themselves. You will be able to look back one day, pain under control, and proudly know you led the charge in this fight to help so many people.
I'm newly diagnosed with a chronic illness, i am pregnant and diabetic. What you described i have gone through the last couple of months. Its horrible. I cried during your video. I have been fighting for proper care with my insurance and doctors since my illness started. I have cried, and still do, over this. My biggest worry is how this illness will affect me raising my child. I pray a lot too and ask God to help my child be born healthy and give me the strength and health to raise her. Thank you for sharing your life and experiences, it really is helping me come to terms with my illness.
I'm a Chronic Pain Patient, I'll be watching closely as you (and all Chronic Pain Patients watching) I want to know everything!!! Thank you so much for sharing your story! My prayers are with!!🙏
You have absolutely got this Jaquie!! You know what's right for YOUR body and YOUR health, and I'm keeping you in my thoughts
I wanted to thank you big time. I am a chronic pain sufferer and I watched your heating pad video. Well I said I was going to buy one and I found one that would work for my neck. Same type you have but for the neck. Anyway it arrived today and it is amazing. I know it will help ease some of the pain I deal with so thank you so much. I am sorry your having to deal with the BS you are having to. I have pain every day so I understand what you are saying. Thanks again.
SO glad you stood up for yourself! You know what is good and right for your body
You are my role model and you are just so amazing don’t stop fighting
I have a pain and nausea (and other symptoms) every day and the doctors I have don’t know what I have which is really frustrating but watching you gives me strength to keep fighting
i can finally say i fully understand what you are going through my aunt just go diagnosed with GP after 7 years of struggling to keep food down and doctors not knowing what is wrong thank you for all the info you give about GP
You go girl! You are totally heading in the right direction, and totally love your open minded-ness. Love you!! Hope you the best jaquie
WE ARE SO PROUD OF YOU. Don’t forget that. I am so proud that you chose to walk away! Do not worry. God will bless you with the pain management you need!! He was able to realize that you two were not meant for each other and to work together and make it perfectly clear and you handled it perfectly!! I am confident that after this you will be on a better path. God bless!!
My sister has juvenile polyarticular rheumatoid positive arthritis and she was on never ending narcotics that were just being increased in dose. But not giving much relief. One night she cried because she couldn’t get up her 5 steps into her home. Our neighbor carried her in. She didn’t like that hopeless feeling. She’s a teacher at a college. One day she decided to have a open discussion with her students on struggles with academics. She was ready for the work, not understanding material struggles, but many of her students shared their mental health and chronic illness struggles. Anyways in that conversation one of her students shared how her passion was to become a nurse. But that she had started experiencing extreme pain which wasn’t good with the long hours she had to stand. She was on a pill after pill regimen. Then one of her fellow nursing classmates shared that she had done biomagnetism for her pain relief and gave my sisters student her doctors information. Her student shared that after 2 sessions she was able to get relief with just over the counter medication. And after 2 months hasn’t needed any more pain meds. My sister has had 3 sessions and is able to handle small workouts which help to tone and make her stronger long term. It was a definite game changer. Sometimes with uncommon pain you have to find uncommon treatments. Who cares if people think your doing something wrong, they aren’t experiencing the pain.
Hi, I have been watching you for almost two years now - I’ve always had chronic pain and other medical conditions, and because of you I figured out what EDS is and I may actually have it.
You can get through this. You’ll find a good doctor, I know it. Love you.
Many prayers and thoughts for you about this situation. Hoping it will all work out smoothly, and for the very best. 💖💕
Thank you for this video. I'm currently trying to find a diagnosis for my pain and have suspected EDS for about a year- it's nice to be reminded that I'm not alone and there're many rooting for me. Praying you find cannabis that works for you, Jacquie!!!
Positive vibes to you Jaquie sending good energies to you while you work on getting the right connections.
Sending you so much love and hugs and so many spoons!! Marijuana isn't legal in my state but smoking has kept me off narcotics. Addiction runs heavily in my family so it's choosing between taking two horrible risks. This journey is so hard and you sharing your journey is so uplifting and inspiring to other warriors. Remember you are not alone!
The new laws are ridiculous!! I want u to kno I am an advocate and there are manyyyy like me!! We are fighting for you!!! Don’t give up!❤️❤️❤️
“We got this!” Thank you so much. As a fellow pain warrior and Christian; I needed to hear this today. I am in almost the exact same situation you are. I live in central FL, am in constant, severe pain, and have to continually remind my doctors that QUALITY of life is very important. My current pain doc recommends cannabis, and I have been trying it a bit longer than you. Like you, it has greatly helped my eating (My docs were greatly concerned with my malnourishment/ inability to keep most food down, etc.), but as of yet I have not been able to get pain control (but I have faith that with the right guidance and experimentation I will also be able to find pain control as well). I just recently, just weeks ago, found a good/ knowledgeable cannabis doctor, and I will start on his recommendations soon. However, due to Florida’s new pain guidelines, my pain doctor has no choice but to lower my pain meds to a level that barely keeps me able to sit in a recliner. I am going to have to find a new one soon, at his encouragement, as he wants me to get the help I need, but his hands are tied by the government. I have been scared, terrified, depressed, discouraged, etc... My parents (and they are also my caregivers), have helped me to remain faithful to God, trusting that He will guide me to where I need to go. I know He will do the same for you. I hope we can find a way to help each other; as we are so close to each other and have the same ‘rules’ affecting us. I felt so alone in my predicament, and though I am really sorry that you have to go through this as well, and would love to keep you from having to deal with the stress, it helps to know ‘we’ (including others in your comments) are not alone. We can trust and lean on God and each other. Thank you again for sharing with us. I lift you up in prayer, and ask God that He guide you, give you strength, cure your pain, and bring you joy. May you and your family have a blessed weekend.
I am sorry Jackir. I admire your strength towards daily pain. Hope you find a suitable solution for your pain. Good vibes and best of wishes.
Aw Jaquie! Thank you for always sharing your feelings with us, even if they're not always positive. I hope this doctor has some new ideas to help you with your pain, and good for you for knowing when it's time to find a new doctor. You got this!
I wish you luck with your pain. You look so much better now than in your earlier videos and I’m glad you found something that works.
U got this Chronically Jackie there is something out there that will help u with ur pain an i have faith u will find it just keep ur head up an keep moving forward
This is one of the most down to earth videos you have published in a long time.
We got this! Prayers for y'all.
Hallo Jaquie, I am from Germany and in this country they are still thinking about leaglizingmedical marajuana. Well, no cannabis for me until now.
But when you mentioned you could get Tramadol, liquid, I listened closer. You never had Tramadol before?
Well, I am using Tramadol for m peak pain to get better instantly. My primary care doctor prescribes me a bottle with 100ml of 100mg Tramadol. When I am in so much unbearable pain (neuropathic pain in multiple sclerosis) I am taking40 drops of Tramadol and about half an hour later I am much better.
But Tramadol is a very addictive drug. I know that my body is addicted to Tramadol. MY mind says : well I can do without! BUT my body says: give me that dug right now!
But you always have to die one death....
hope your new pain management doctor can help you combine both, the medical cannabis and the "normal" pain meds.
Crossing my fingers for you, as you could cross your fingers for the pain warriors in Germany to get cannabis released legally soon!
Thanks
Britta
Even in Germany Cannabis is legalized for people who need it for medical reasons. Did you already tried to get it described for you?
I’m so sorry you have to deal with this. I’ve been in similar situations and I know it can be so scary and frustrating to feel out of control of your own treatment. I’ll be praying for you. ❤️
I’m so sorry you are going through this. I pray the new medical marijuana doctor will find the right product to help you. Take comfort in knowing that God will lead and guide you! 🙏🏻❤️🙏🏻❤️
I am praying you find a marijuana pain alternative Jaquie! It is great your standing up and continuing to advocate for yourself! Stay strong🙏
Sending big hugs. Our daily life is hard enough, without having to fight so hard for our basic needs. It just sucks. Will be praying for you ❤️
Prayers that this new Dr helps!!!
This is so frustrating, I’m a chronic illness warrior and treatment can be very frustrating! I hope you eat through it!
Welcome to my world....I have been fighting this for years. It is humiliating and frustrating. You are not alone
Girrrrrl find a new pain Med dr. Mine lets me do both. Hang in there. We love you!!!!
I don't understand why she is condemning marijuana if it gives you so many benefits and no actual repercussions in combination with narcotics when truly needed.
My guess is that it's either a liability issue or governmental pressures.
Don't worry. I'm with you in struggling. It'll get better. Just have to keep fighting the hard fight.
Oh, how I know this struggle. Its ABSOLUTELY crazy how chronic pain patients are treated. Thankfully here in Mi my GP handles my pain meds right now. I have been sent to several pain clinics and they ALWAYS treat me like an addict and it is horrible!!! I FREAK out thinking about losing my pain meds, and most people really don't understand. I can ONLY go to work and take care of my house because of the pain meds(which never take the pain away, just dulls it to manageable). I hope you find a solution with the new Dr. Being in chronic pain everyday, every moment is hard enough to deal with without the added stressors 😤😤
I feel so sad and frustrated for you. You are so strong, and you have come so far since this journey started. Thanks for always taking us along. I hope so whole heartily that you find what works for you.
Well done for keeping so strong despite all the things getting in the way. I have chronic pain but 18m in I am yet to get a diagnosis and only hand on Dr guess at a treatment that's made it worse not better. This video has encouraged me not to give up but to keep searching because I don't know what's round the corner. There might be a solution or something that can at least ease things.
I believe in you jaquie. Don't give up. YOU CAN DO IT. TEAM JAQUIE
100% support you. stay strong. There are providers who will prescribe CBC.
i too am a chronic pain warrior,good for you jaquie, i hope you find a pain doctor that cares.
i have degenerative disk disease in my upper spine,sacroilliac joint disease,bone spurs in my neck aka cervical spine,migraine headaches,restless leg syndrome.i,m having digestive issues,abdominal pain and bloating,i was tested for gastroparesis and turned up negative,but still have some of the same symptoms.my pain management doctors have thankgoodness stuck with me and my general practitioner have been giving me pain meds for my chronic pain,i walk with a cane and sometimes use my walker at night.get yourself a new pain management doctor that is compassionate and caring.i,m also having respiratory issues.please also pray for me and i will pray for you,we chronic pain warriors must stick together.
Hello Jacquie ! I am no chronic pain or chronic illness warrior, but I am a student in podiatry, and I'm trying to be as open minded and educated about all of this as possible in my future practice. Thank you for putting out so much informations about you and your life ! Love from Paris
Please have a look at the dontpunishpainrally.com and you will see the truth about all that is going on with the lack of proper treatment for pain patients!
Did the doctor give a reason for the policy? A scientific or medical one? It seems a cruel and foolhardy policy to me. Keep going! I hope you will get a pain management treatment that works and allows you to eat orally
I understood how you feel sending healing hugs your way and you are definitely in my prayers✝️
Good luck This must be so frustrating for you. One day at a time. We know you have this. Prayers are going out to you!
Prayers prayers prayers! Pity parties are ok, they help relieve the frustrations. You are so strong and that is why I watch you everyday. Keep fighting.❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
I'm chronically in pain,also, and understand how upsetting and frustrating this is for you! Praying for God to guide you is the best thing you have done! Keep pushing forward but never let go of God's Hand. Love you in Christ and will be praying for you and all who are fellow sufferers.
Thats so extremely unfair, I wonder how many more Drs are doing this to their patients.
The state I live in just passed a medical marijuana bill last year. It specifically states that if a patient has a medical canabis card and a doctor prescribes opiates the doctor who wrote that prescription is disciplined. The other catch is there isn't a state database of medical marijuana patients yet.
Sorry for your struggles. I too suffer from chronic pain ... pain Dr told me to take Tylenol (can’t take anything stronger in the otc/nsaid category due to other meds) and set up appt to have my spinal nerves blocked then possibly ablated. But due to recent surgery complication I am deathly afraid of more invasive procedures and don’t trust them anymore. No less invasive suggestions & no narcotic pain meds given. Other drs will not even consider narcotic pain meds anymore due to opioid crisis. I cry all the time and have no real quality of life. I’d completely give up if it weren’t for my sweet daughter who I just couldn’t do that to. But it’s torture. I hope and pray you and I & others suffering will find relief somehow.
B. Personal experience on the nerve oblation! Be prepared the testing faze of the procedure done twice isn’t too bad however the actual oblation is a different story! The first day isn’t bad but the next few days that follow can be hell as the nerve dies off! For me the procedure I had done on my neck lasted about a year with full pain control then over the next 6 months I could tell that the nerves were regenerating and my pain returned.
I’m not trying to scare you off from the procedure but just wish I had someone warn me of the impending major ouch that was coming!
Hell I took the side ejection option while pole bending (horse+ 6 poles+ at speed normally = fun) but add in my own stubbornness and a nasty 2 week long vertigo attack and I went down hard! Popped every vertebrae from S-1 to about T-10 and stretched every muscle in my right side! That actually hurt less than the oblation procedure on my neck. So be ready with lots of ice packs they do help some but a burn is still a burn!
B, I have had the spinal blocks & ablations multiple times. THEY WORK!! The ablations will last much longer than the blocks but both work. As long as you have a COMPETENT PAIN DR. who does these types of procedures on a REGULAR BASIS you really don't need to be scared bc they are really no more invasive than a deep injection and its all guided by xray flourscopy
Sending prayers your way!🙏❤
That’s so frustrating, Jaquie! I’ve been there too. I’ve had my pity parties, tears, and telling doctors, if you won’t help me, I’ll find one who will. My former pain doc had chronic pain so she was all for whatever you find that worked. She even told a family friend she totally understood why she took a shot of whisky on bad pain days when nothing else worked!
Stay strong even though it's tough always having to fight for what you need. I'm going to a pain dr this week. My journey is just beginning. Having many feelings.
Praying that a answer will be revealed, stay strong x
Absolutely loving your hair. Such a nice wave since you’ve cut it. That’s an absurd policy. You keep rallying for yourself with your chronic illness. You’re an inspiration for not only chronically ill patients but people who are caretakers and everyone else. Sending positive vibes with your health
I am so sorry. I have a pain pump due to a spinal cord injury. I have had so many Dr's refuse to treat me due to the complexity of my case. In fact I was in the hospital and it took them 3 weeks to find a Dr willing to touch my case. There is nothing more horrible then to be in this position. It makes one feel like u have the plague. It makes me scared for my future. Wish I could reach thru your screen to provide you with a hug and let u know u are not alone. Something has to be done to protect those of us who truly need pain mgmt. We did not ask for daily pain.
It's happened to me several times too but, I have to say, I "respect" those doctors for saying no rather than taking the case when they have no clue what to do. I've had that happen too and that's way worse because they can cause permanent damage like they have done to me. I actually got better for about a month but, a dumbass doctor that didn't understand my case prescribed a medication that made me bed bound again. My specialist said I never should have been given that drug in the first place. So, it's better than a situation like that or wasting time and money with a doctor who is scared and clueless and just guessing.
We just saw a pain mgmt doc (new to us), not even considering pain pumps anymore, because opioids are supposedly evil even at the small doses in a pump, so pushing spinal cord stimulators (can cause arachnoiditis as well as scarring of already misfiring spinal nerves)! WTF!?!!
I can't imagine a doctor who is against something that is proven to work and does no harm!!!
Hey Jaquie! I just wanted to say that first off I LOVE your haircut and also glasses! Secondly I love that your ring matches your outfit how cute!! And thirdly I’m very sorry you have to go through this type of stuff with your doctors. I understand how doctors can be with no answers and only wanting things to be how they want it. Which is absolutely NOT FAIR. But I also really appreciate the fact you can still find positivity in it all and just look ahead. No you do not want to go backwards that would be ridiculous. Look out for yourself and your benefit and don’t let them try to control you. They make all the money and they couldn’t really be bothered with your problems. You’ll find someone who cares and can be amazingly helpful for sure!! Prayers to you! Also I just want to say that it really is wonderful seeing you much happier and also gaining that healthy good weight where you have the ability to do more and be more comfortable in day to day life and not depend on feeds so much. Really great! I believe in you thank you for sharing your journey with us!!
You look sooo healthy in this video!!! I’m so proud of your progress.
Praying for you Jaquie! 🙏🙏🙏🙏🙏🙏
That's a common practice where I live in Pennsylvania. Doctor won't give pain meds if you're on cannabis.
Wish you the best with the new doctor!! I hope she gives you some good treatments ❤️
Finding good doctors are far and few between. I live in Florida and have MS, I have dealt with pain management doctors and I feel like I was treated as not-trusted, always having to prove as was not taking “street drugs” as they call them. I can feel your pain emotionally, I have developed depression lately, as I feel frustrated with the medical community. My health insurance does not cover the medication I take and I don’t know if I will be able to afford it, I don’t qualify for any help because I still work and “make too much money”. I realize I need to be treated for the depression as well, as I am seeing myself fall apart. Thank you for your encouraging words, I am a fighter, but some days I just need some help and a little break.
Please join the fight for proper medical treatment for pain @ dontpunishpainrally.com
LOVE and PRAYERS ALWAYS from Gainesville Florida.
Hmmm... she wasn’t getting any money from your cannabis meds. I totally get where you are coming from. Ive had a liver transplant. I can’t take anti inflammatory drugs. I have RA and arthritis and number of other things. It was only a small dose of oxycodone that helps. Finding a doctor to help me with this was a nightmare.
Don’t lose heart.
Living in chronic pain, I was told that pain management could not help me, because the non-cancerous tumor on my spine "does not cause pain" although the doctor admits that the tumor is exactly where my pain is. I take Gabapentin (600 mg at bed and 300 mg in the afternoon) and get some relief, but I could barely get out of bed today. Unfortunately I cannot afford CBT and anything with THC makes me vomit (has the reverse affect on me that it has on most people..something in our genetics as I am not the only one in my family who cannot take it). I was told pain management "would not touch" my case, when I BEGGED for spinal injections.
Although this situation sucks, when one door closes another one opens. 🙏🏼
Sorry jaq! People who don't have chronic pain don't understand how difficult it is to find someone to manage pain. I've been through 3 pain management docs because they don't understand EDS and treat me like an addict. Prayers for you girly!
I am in a similar situation kinda pain doctors in Arizona won't allow you to take cannabis at all.. I have been on pain meds for almost two years I went from completely hospital/bed bound but with the pain meds able to care for my daughter again (server autism 6yr old) now they are telling me they are taking me off all my meds.. just 1 dose down 6 days in back to being bed bound 😭 and having to rely on others to help with the care of my child 😭 💔 thanks to the new law that was signed it's literally killing people and this is a worse crisis then the one they thought they were fighting.. locally a news story was put out talking about the rate of suicide and the huge increase in sick patients all saying they can't live in pain and doctors won't listen! Mine won't either they refuse to help. I haven't eaten any food in 2 years only on tpn and iv hydration GI and surgeons said no cure hunker down take your pain meds and wait for a cure.. now what?!
Thank you for sharing your life with us. It also,spreads awareness !
OMG Jaquie, this is so incredibly unfair. This is exactly why the federal laws need to change. It shouldn't be that a doctor can force you to chose between eating or managing pain. I agree on the vaping. Effects are immediate (within minutes), and most likely you will only need a few pulls to feel relief. There has to be a strain out there that will help you. There are hundreds if not thousands of different types. I'm praying you find one that works for you and you won't even need a pain management doctor anymore. I'm so sorry you're going through this. You have all my love and support and my fingers and toes are crossed for you! hugs
I'm dealing with something very similar, except it relates to dealing with anxiety. Our state has implemented some new laws that basically treat innocent people like criminals. I've been extremely frustrated with the situation. I hope you find a good solution. You definitely look healthier lately. So don't stop the cannibis.
Oh Jaquie! I wish I could give you a hug right now. I'm so sorry that your previous PM doctor's office went that direction with their policies. I also see a PM physician and sometimes I feel like she is more paranoid about medicine policies than the rest of my medical team. All of these new rules are not fair to those of us dealing with pain and need help. Yes, I understand that there are folks out there that have abused the system and the meds so the government is trying to prevent that. However, in my case and it sounds like in your case, the only thing these policies do is make it next to impossible for us to get the help we need to lead a normal life. You and I are responsible with our health and our medications. We do not deserve to be punished and not receive proper medical care because someone else messed it up abusing the system. I'm so glad that the rest of your team believes in the care you have been getting and referred you to the new physician. I hope this new doctor can help you get a new plan started and will be as supportive as the rest of your team. A couple of years ago I had a similar situation where my PM doc could no longer prescribe one of my meds. She totally supported me taking the med she just couldn't prescribe it. So my PCP and PM doc had a discussion and my PCP was allowed to prescribe the medication the PM doc couldn't. By chance, could another team member be willing to prescribe the narcotic medication and your new physician prescribe the cannabis? Just a thought of something you could discuss with them. I really hope you and your team can come up with a new plan quickly. You are not alone and you're in my prayers. We are pain warriors and we got this!
I deal with very different issues but I can totally relate to how you feel. I have several chronic mental health issues like anxiety, depression and insomnia, as well as chronic migraines, and I recently moved to a different country where I have to deal with an entirely different healthcare system and doctors. I've been waiting for months to get an appointment with a psychiatrist just to find out that the department of psychiatry said that based on my medical records they thought I didn't need to see one and refused to give me an appointment. They simply suggested that my GP take me off all of my meds except for one. that without even seeing me or talking to me. So it has been really frustrating, and I really get how you feel when you say it's so exhausting to have to fight to get the care you need.
Ugh I wish I didn't relate to this so hard but I do. It's taken YEARS for me to find a pain doctor that was okay with my medical cannabis use and would also prescribe the pain medications I needed to function on really bad days. I'm in a different stand still with him right now, he doesn't want to continue giving me medication until I get steroid injections - which my specialist has advised me not to get bc they're contraindicated for my condition. I too haven't found a cannabis product that has helped with my pain and I feel like I've tried everything. I hope we both find the relief we need!
I know exactly what you mean. I am currently fight with my pain management doctor because she wants me off my sleep meds! I can not function without my sleep meds. It's difficult when a doctor doesn't listen or understand. We can get through this ❤
My husband also deals with chronic pain. Pain management in Florida sucks. They try to curb the illegal use of narcotic pain meds and in doing so they hurt those who rely on them. I know the frustration. Would love to meet her in person one day.
In my personal opinion, the pain management Drs that refuse to work with medical cannabis are slaves to big pharma $ and therefore care more about $ than accepting an all natural alternative to narcotics. As a chronic pain warrior, I've dealt with this myself. There IS an medical cannabis alternative that will be beneficial to both your nausea & pain. Kudos to you for pushing through! ❤️
You are so strong Jaquie!