Goog luck with Henry! :) I was diagnosed with Type 1 when I was 13 months old, back in the 1980's when we had no strips, or fast acting insulin. I have managed by diabetes for over 35 years, with no complications so far (thank God). It's not easy but you can do it, I"m sure! Good luck! :))
My three year old son Levi was just diagnosed with Type 1 on Thursday. He LOVED watching Henry get his sugar tested! Levi said, "He's just like me!" He also wants a pump now :-) Thank you, Henry and family, for letting us see what you do everyday. You helped Levi a lot!
Our boy is nine and recently diagnosed (Oct. 2013). Sorry about your little guy, he is so little to go through this. I feel your stress, live, breathe it 24/7. I have given up explaining it to people because they have no clue what we go through each day. We have a similar scale as you use. It's a time saver. God bless and yes, hope, pray, believe there will be a cure. Someday.
you're a wonderful mother...my 33 year old boyfriend has type 1 and he was diagnosed when he was 3. this made me cry. I wish his family had the knowledge you have. great video.
I was diagnosed at 9 years old right after I came back from Disney land😒and my dad thought I was just sick so I was home for like half a week before I was getting really skinny and sick then he took me to the doctor they said my bloodsugar was the highest they ever seen in a kid.I had to ride in an ambulance to the Mary's Bridge Hospital on Tacoma.I wish the best of luck to you guys take care oh and I'm 14 now ❤️✨👑
I love you sharing all of this. Thanks for taking the time to do. I think it's so important for people to realize how much truly goes into it all and how serious it is. You are such a sweet mom and I am so glad Henry has someone like you and Andy who are supportive! I hope a cure can be found in his lifetime!
Thank you for posting these video's. I am a single mom of two kids and my youngest (3 years old) was just diagnosed with type 1 diabetes on January 9 2013. This is such a life changing event and I thank you for sharing and helping me get through this struggle (not alone). I pray for a cure! I pray for our children!
@@muhalmi3372, now I have two kids with type 1. A year after my 3 year old was dx, my 8 year old was dx. Now 13 and 16. I can try my best and answer any questions you have. You're not alone!
I was diagnosed with T1D when I was 3 years old. I'm now 35. I had my share with ups and downs lots of difficulties through these years, but I can say now that I have mastered it and I'm thriving. It's a difficult road to walk but once you get to the right path you can do anything. Stay strong and healthy. Lot's of love from Greece.
Thank you so much for this video! My 13 year old brother was just diagnosed yesterday! It's so crazy how your whole life can change in just a couple of minutes! Good luck with your family! You seem like an amazing mom :)
I was diagnosed at 18. I am now almost 21. This breaks my heart and it goes out to him. My first A1C was 14.2.... The next A1C after diagnosis was almost 6. All I can say is WATER WATER WATER. It helps so much, avoid drinks that dehydrate! Prayers for your family! God bless.
+Karina Ramirez Type 1 here, I was diagnosed with diabetes when I was three years old, I'm 27 and guess how long I've had it. This boy is brave doing a finger blood test, I didn't do it till I was 8, my mum had to do it.
My son is two and was just diagnosed right after having my second son and this video makes me cry. Its the first time I truly feel like somebody else knows how I'm feeling
Great video! I have diabetes myself since I was four years old. I am now 18 and I have learned to live with it so wel. Thanks to this video I realised everything my parents did for me. May God bless you and your amazing son! :) and family ofcourse
Exact same story of my family. ...my son was diagnosed at the age of 2 when I just had my 2nd son...so we are living with diabetes for almost 11 months. Wish you and your family all the best
Same case here my son diagnose diabetes age 3 year 10 june 2022. So my question with you is how to look after the child. Diet, BSR check. So how you treat them..
I watched this with my 3 year old, and tried explaining it to her. I think it's important that she is exposed to different situations other than what she is used to. She is going to have her finger poked today to check her iron. And Henry is a great example of a brave little boy to show her. I told her that she only has to have it done once in a while, and Henry has it done multiple times every single day and look how amazing he is. Thank you for sharing Amy.
God bless you. I was diagnosed as a 4yr and you are doing a great job. You have it so much better now then 1985 and I am so happy that the times have come to help parents manage and be more aware of Type 1 with technology. Keep up the good work and never let the disease overtake you.
Hey mum I.am.also a father to a daughter I am really sorry for young man,but he is brave kid I wept to.see him May Allah bless him with health and long long long life Ameen
I'm an FNP student in a pharm class and learning about DM. I really appreciated this. It's so helpful for me to put such a cute face to the whole process, and to be able to see how much work it is for patients and their families. God bless you guys. I'm praying for you and hope Henry continues to do well. He's such a trooper and you are such a good mother. Thanks again
My 10 yo son also has type 1 he was diagnosed 3.5 months ago. Some days are better than others at the moment but all you can do is tackle this condition the best you can. This little boy is so lucky to have devoted parents .. Best of luck with everything.
was diagnosed type 2 diabetes 3 years ago at age 34. it's been a learning experience what to eat and what not to eat. I used to love bandanas but even one will spike my sugars to 300+. vegetables, salad's, beans, cheeses, nuts, Greek light & fit yogurt, sugar free oatmeal, any meats etc all good stuff. My average BS is 85-115.
I'm really touched by seeing how mother provides for their family.Also type one here.diagnosed after my 20th birthday and i can hardly control my blood sugars.Never mention how much efforts would it take for taking care of a little baby.NICE WORK!
Not supposed to use alcohol swaps as it causes false lows when not dried properly. Correct way is poking finger. Wiping a dab off then testing. Clean hands with no visible dirt is all you need. I'm type 1 16 years now and work in healthcare
My 7 yr old son was diagnosed last week and its hard getting to grip with the injections and carb counting. I really feel for every parent and child in this situation
Hello, I was searching insulin pumps and came across this video. I was diagnosed with type 1 diabetes at the age of 11, with little no help or support from my parents. I am now 26 and am just starting to properly manage. Kudos to you for being so involved. Hoping to get the approval for a pump by the end of the year. Definitely going to check into this one. Hope the little one is doing well
such wonderful parents!! We found out our son was diagnosed with a severe peanut allergy almost 2 years ago, I know it is not the same but I struggle with this every day. you guys are awesome. keep up the good work!
Thanks for posting. My daughter was dx'd 4 months ago. She's 12, so our experience is a little different, but the challenges are the same. Your intro to this video could have come out of my mouth. The constant adjusting... just when you think you've got it... nope! It is relentless--I truly understand sister!!
you are very strong mom, Henry is very lucky to have you as his mom. i get worried for everything, and get stressed if baby do not eat, or fall or cry.
dreamflight6000 do you have to test his blood sugar levels 3 times/day? my little niece just got diagnosed with diabetes and I am trying to learn as much as I can to help my sister in law get through this and pretty much to be supportive with her.
You are doing an awesome job as a mom! I teach diabetes education and I plan on showing this to my students so they can get an appreciation of "a day in the life". One thing I typically teach is to only subtract fiber grams if there is 5 grams or more in a serving and then you subtract 1/2 of those fiber grams.
Just found your video and I appreciate you for sharing your journey. My son has a glycogen storage disease where he gets dangerously low multiple times a day. I definitely understand what goes on in your mind as to every minute of my day also goes by thinking about my sons numbers. He is also only 18 months so I resonate with you. Prayers for a cure for all these horrible diseases.
I have been bombarded with comments like this since I posted videos about this a year ago. Yes, I do know that fruit is high in sugar but I think people forget that he is three years old. We don't restrict his diet. We were told that we don't need to. We feed him a well balanced diet. His numbers change all the time. Last week we dealt with constant lows and his diet didn't change. Carbs are important for a growing child too. He can be 85 when he goes to bed and 400 at 3am due to growth hormome
I have been diabetic for 10 years or so and my girlfriend has been diabetic since she was two( now 25 y/o) the life is not easy and is a constant struggle. You seem to be doing a very good job with your little one.
My doc said no alcohol. We dont even wash before checking. W/ dex only check 2 to 3 times a day and avoid lows and highs. We also check toes, rarely fingers.
When he gets older he’ll know how to calculate insulin and things like soda and pizza etc. plus him being skinny will be good as well. I don’t really count my carbs but my blood sugars are usually 90 to 130 although when his sugar is high it’s best to give him insulin and wait about an hour and then let him eat so he’s had time to come down
Just finding this now. My one and a half year-old just got diagnosed yesterday and in a bit of a shock 🤦🏻♂️ I couldnt imagine a baby having diabetes until it happened to us. Hope you guys are doing amazing.
Thanks you so much for posting these videos and updates. I found out yesterday my baby cousin has type 1 diabetes and your videos are only adding support.
I'm a home care Nurse. Family has a 6 year old with SMA Xlknk and a daughter 3 just diagnosed with juvenile Diabetes.. So I understand. I came across this looking for information for them. They also have a child named Henry.. Your doing Great..
Consider this. Your doctors told you to measure and weigh and be so exact, because that makes their job so much easier. I'm a type 1, and seriously I would never count carbs like this. You are entitled to have a life, and your son will learn to cope with it better than you, and your scales ever could. He'll know when his blood sugar is getting low, he'll know how hungry he feels and what he thinks he should take, eat, drink. You said yourself, this is the rest of his life, and if the rest of his life is measuring before every meal, plus 4 injections per day, plus a math exam, well it'll get depressing. I can see a pump in his future, and that's not a bad thing - every type 1 I know with a pump is in better control compared to 2 and 4 daily injections. No offense, but your being a typical parent of a Diabetic. It's horrible that your child has to put up with all this and I hope that damn soon we'll have better options. As you said, this is the rest of his life... you need to dial back the number of tests you do, and you need to ask your son how he's feeling, and he needs to understand the signs so he can tell you. Humans are not computers - you can't put such fine control onto a kids diet, and you shouldn't. What if he doesn't eat his lunch, what if he vomits, what if he gets into the emergency candy? Consider that maybe his diet should change to suit the results you want. Like, rather than trying to mathematically calculate exactly how much insulin etc, average each meal over a week, and try to get the insulin injections into a routine. It makes no sense to treat weekends as weekdays with this, weekends are more like holidays. If your son has high blood sugar, he can excercise or play to bring it down, that's far healthier than increasing insulin doses. If his blood sugar goes too low, then give him some fruit. You and your son will develop a language for how he's feeling, it will get easier and he'll be managing his own blood sugar before you know it. Make it more fun, try and guess levels... if his blood sugar is good then celebrate, have fun with it - otherwise it can be very depressing. This is gonna sound harsh I know, but it comes from a good place. You have all the hard stuff tackled, now you have to make that work for your son.
You are right for most of the points, but for one statement you are wrong. You can't exercise if your sugar is 17, because if it is high and you exercise, it will get even higher. Different people have different limits of when they sugars are rising when exercising. However, I agree that children are more confident when they are getting bigger (and having more experience at controlling diabetes) and they can live more flexible. For example I don't count my carbs (I am 27 and got it when I was 10), I just know it by heart and know how much insulin I need to inject. But if you don't count at the beginning, you will not know it by heart. So that is why I think that counting your carbs at the beginning (of having diabetes) is a really useful thing.
Tech House Progressive I think it's easy to forget how much of it is instinct and experience - it's difficult to imagine how it is for such a young kid to deal with let alone understand. I'm not sure why, but when my glucose is high I feel like I have to work it off rather than taking more insulin, I'm always concerned that I take more insulin then my glucose drops back down too far. I completely agree of course - you have to start out counting carbs so you can better understand Diabetes and your metabolism, but moving onto a healthy routine that doesn't require so much counting is always a good idea.
39 and 1/2 years now with type 1 - been through it - a lot of people say a lot of things, a lot of doctors too. Tools, techniques, and devices are all necessary and useful, to a point. Much is overrated, to put it mildly. Some of the advice out there, including from doctors, is just plain bad. Been there, death bed and back, many times, lucky to have made it, fortunate to have learned. One must keep an open mind for new options, to learn, to paying attention, rather than closing oneself off from gaining new insight. Boiling all down becomes simple; less is more.. good luck to all of you out there!
stunthumb I completely agree with you. But we have to cut her some slack. Yes if you don’t take insulin it could be a life or death situation. But yes I think she’s being a bit of a helicopter parent. When her son was 7 he still couldn’t figure out when he felt low. Honestly I think she needs to give him a lot more of the responsibility now that he’s older and still watch and be close enough in case he encounters a problem but far enough away so he knows how to take care of himself.
awww..I was just reading about Diabetes ( medical student ) and came to this video, I wish all the best luck to this great little guy, sending a lot of blessings to him and wish the best in life. He seems so happy and he should stay like that all the life
You seem like your doing a great job with him, and to say he's so young he is taking everything so well. I was diagnosed at 1 years old and I am now 16. Everything gets easier as you get older.
My son is diagnosed at 15 month...he is holding up great...we are trying the meditranian diet which consists of mainly sea foods, lean meat, some eggs and a lots of vegs....plus some root starches like Enset(endemicto Ethiopia ....his blood sugar never went above 250...he is almost always below 180, often below 130...
Great video. My 3 year old son was just diagnosed with type 1 diabetes two weeks ago. Every thing in your video looks very familiar even thought it has only been two weeks for my wife and me. I like your scale and how it helps you count the carbs that is the hardest part for us especially in fruits and veggies. Good luck Henery
Amy, I don't know how you do it. Well, I mean obviously you just have to do it, but man, hats off to you! You are amazing!!! Henry is so lucky to have such an awesome momma!
Great video, you out in a lot of effort to keep him safe. I was diagnosed with T1 two weeks ago and I was told I don't have to measure anything I eat but to just play around with my insulin doses. It's working so far but my sugars can definitely improve. I noticed you have a carb reference sheet on your fridge, did you make that yourself or did you find it on a website? I'd definitely like to have one!
We also use freestyle meter. Uses smallest sample. Only a miniscule tiny drop of blood needed. Less pain. We do not prebolus all the time. Our highest a1c was eight. Usually in 6 or 7s. Life quality is more important than anything.
Hello, my lil bro was diagnosed 16 years ago, type1, at age 1. There is a 9 yr gap between us. You guys probably already know this, but your doing an awesome job!!!! You seem to have the theory and practice down pat, however the behaviors are harder to anticipate and deal with. If you have any question on how we dealt with anything please ask im happy to share. Also my mother is a nurse and i have been present to every class and nearly every doc visit
I'm 14 years old and I'm also a Diabetic. I've been diagnosed for 6 years since 2008. Life with Diabetes is a daily battle for me, and I hate having it, but it is nice to see, there are alot of other people WHO has it in the same way. I hope they'll one day find a cure. Thank you for sharing :)
I don't know if this will be helpful to you or not but, I've been a diabetic for about 9 years. I have an animas ping (and by the way it looks in the video he does too) :) but talk to your endo doctor and ask him/her about the Dexcom g4. This could be so helpful to y'all. Your insurance should cover most of it, but I'm not promising that. Just look it up here, on youtube, its awesome and you need have to worry if your little boy has a low will sleeping again. It's lifesaving! I hope this will help y'all.
from a T1 mom to another to another I was a little confused about the correction scale that had recently put into place with my daughter. Watching you explain it.. Visually now it makes complete sense!! THANK YOU SO MUCH!!
Thanks for this video! :) I do the same thing everyday with Charlie! I'd love to make a video similar to this once I get my channel up and running! I think about you guys often! You have helped make our journey with T1D a little easier. Your videos keep me going! Thank you and God bless! -CharliesMom (aka fordtmck)
My teacher has seven kids and one of them, named Caleb, has type 1. He's 10 years old I think. She is my homeroom teacher, Bible teacher, and history teacher. She always shares with us about what's going on all the time with him. She shows us videos of type one diabetes and I take a lot of interest in it. Caleb does so well with it! The other day he was at 39!!! He was rushed to the E.R and it was very scary!
It's crazy how much things have changed in just 5 years. Having the updated Omni pods & dex coms must make such a huge difference in children now. Technology is amazing!!
I can only imagine how much you all appreciate the wireless insulin, that would add so much more work and struggle if you had to inject it. You guys are awesome parents, Henry's lucky to have you.
This was very interesting to watch. I went to HS with a girl who had a pump and would have to check hers throughout the day and make adjustments or have a snack/juice but I didn't understand it all. I had no idea about having to weigh everything. Praying for a cure! You are amazing parents and he is an amazing patient
Does he ever eat meat, fish, eggs, cheese? At least in this video I've mostly seen pretty carb-heavy foods, which I myself would only eat very sparingly (for different reasons though). Lots of fruit, bread, pasta, rice...
What a trooper for sure and you guys are wonderful, educated parents that obviously work as a team so well. What kinds of s/s did Henry have before he was diagnosed?
Amazing mom I know its vary hard to have a child with an illness. My son has celiac and has change his personality from outgoing to vary none sociable. I know its hard and wish we could just take out kids pain you know anything from them. Your doing a great job and praying for a cure for our little ones.
Great Video- Henry is such a good little man and you and your husband seem to work very well together that is a great accomplishment too- Been there- done that- it will be 12 years for us on the 29th. We actually now eyeball most of what our daughter eats and so that makes it a bit easier but your video and your daily carb counts reminds me of how it used to be- too long ago... I wish you all the best - and keep praying for a cure.
Wow the routine seems grouling to get use to, my friends 6yr old daughter was diagnosed last week & she's having a hard time. I wish you all the best!!
I was diagnosed at the age of 2 years old I'm turning 16 in a few days. Not saying what your doing is wrong everyone has their own methods.I never weighed my food though just counted the carbohydrates & used a ratio a divided that by the carbs to figure of how much insulin to take.
may I ask why did you subtract dietary fiber from the carbs? I have had type 1 diabetes for 2 years and never done that.... not judging you or saying its wrong... just wondering why?
That's just how the diabetes educators taught us when Henry was diagnosed. We actually recently switched clinics and they also teach to subtract fiber. My good friend from a England doesn't do it either. Must just be who's teaching? Not sure. 😊
I have a t1 diabetic that was diagnosed when he was 4. He enjoyed watching Henry. His name is John. I have been on an endless search for best diet for our little guy.It is a myth that they need carbs (I didn't even know what a carb was when he was diagnosed). Our body can manufacture carbs from fats and protein. We have recently read primal body/primal mind and Dr. Bernstein. Healthesolutions is also helpful. Good luck-it's a life changer like you said!
Omg I'm exhausted from watching you guys measure and test and calculate just in a video. Even when the day has been tough I should come back to this video and appreciate what I have. This is so challenging and Mind occupying regardless of how routine it is for your family. May god bless u n keep you guys strong as you have been. Good job Amy
What type of insulin pump does he use? I am a type 1 diabetic and have been since I was 12. I use the Omnipod which is also wireless. It uses freestyle test strips that is built into the pdm (personal diabetes manager). I would recommend this pump to anyone. Good luck to you and your family.
Goog luck with Henry! :) I was diagnosed with Type 1 when I was 13 months old, back in the 1980's when we had no strips, or fast acting insulin. I have managed by diabetes for over 35 years, with no complications so far (thank God). It's not easy but you can do it, I"m sure! Good luck! :))
Antigoni Spiliadi that’s fantastic that long with good management
Antigoni Spiliadi
I was doing research about diabetes my son got recently diagnosed with type 1
Thats wonderful @Antigoni Spiliadi :)
That's great God bless you.. But please can u tell how did u managed it.. And what has been Ur diet for so many years
You are so lucky you got diagnosed. 💔💔💔
Sometimes not all the time diseases are missed.
My three year old son Levi was just diagnosed with Type 1 on Thursday. He LOVED watching Henry get his sugar tested! Levi said, "He's just like me!" He also wants a pump now :-) Thank you, Henry and family, for letting us see what you do everyday. You helped Levi a lot!
Our boy is nine and recently diagnosed (Oct. 2013). Sorry about your little guy, he is so little to go through this. I feel your stress, live, breathe it 24/7. I have given up explaining it to people because they have no clue what we go through each day. We have a similar scale as you use. It's a time saver. God bless and yes, hope, pray, believe there will be a cure. Someday.
I'm type 1 and I was diagnosed a week ago. yesterday was my first day out the hospital with diabetes and I did good.
you're a wonderful mother...my 33 year old boyfriend has type 1 and he was diagnosed when he was 3. this made me cry. I wish his family had the knowledge you have. great video.
I was diagnosed at 9 years old right after I came back from Disney land😒and my dad thought I was just sick so I was home for like half a week before I was getting really skinny and sick then he took me to the doctor they said my bloodsugar was the highest they ever seen in a kid.I had to ride in an ambulance to the Mary's Bridge Hospital on Tacoma.I wish the best of luck to you guys take care oh and I'm 14 now ❤️✨👑
I was diagnosed at the age of one year
BabyGirl 0926 Hello, Do You Remember That Blood Sugar Reading? If You Don’t Mind Sharing?
I love you sharing all of this. Thanks for taking the time to do. I think it's so important for people to realize how much truly goes into it all and how serious it is. You are such a sweet mom and I am so glad Henry has someone like you and Andy who are supportive! I hope a cure can be found in his lifetime!
Thank you for posting these video's. I am a single mom of two kids and my youngest (3 years old) was just diagnosed with type 1 diabetes on January 9 2013. This is such a life changing event and I thank you for sharing and helping me get through this struggle (not alone). I pray for a cure! I pray for our children!
Now ur kids turn to 13 year. I need ur help, my kid age is 3 year and type 1 diabetes diagnosed. So how you treat your kids.
@@muhalmi3372, now I have two kids with type 1. A year after my 3 year old was dx, my 8 year old was dx. Now 13 and 16. I can try my best and answer any questions you have. You're not alone!
Just want to know treatment, look after the kids, how to maintain...
I was diagnosed with T1D when I was 3 years old. I'm now 35. I had my share with ups and downs lots of difficulties through these years, but I can say now that I have mastered it and I'm thriving. It's a difficult road to walk but once you get to the right path you can do anything. Stay strong and healthy. Lot's of love from Greece.
Thank you. ♥️
Thank you so much for this video! My 13 year old brother was just diagnosed yesterday! It's so crazy how your whole life can change in just a couple of minutes! Good luck with your family! You seem like an amazing mom :)
I was diagnosed at 18. I am now almost 21. This breaks my heart and it goes out to him. My first A1C was 14.2.... The next A1C after diagnosis was almost 6. All I can say is WATER WATER WATER. It helps so much, avoid drinks that dehydrate! Prayers for your family! God bless.
I just want to say I'm A diabetic and when it comes to picking my finger I hate it. He's such A Trooper and a tough little man. God Bless.
I'm the same way, I absolutely hate pricking my finger! He's an inspiration to be a bit more brave:)
[have type 2]
+Karina Ramirez Type 1 here, I was diagnosed with diabetes when I was three years old, I'm 27 and guess how long I've had it. This boy is brave doing a finger blood test, I didn't do it till I was 8, my mum had to do it.
Karina Ramirez ive got a scanner its really good it lasts 2 weeks before you have to change it and it scans my bg
BigD Jr to you havt to have a shot everyday?
AveryandBryleeShow yes I do.
My son is two and was just diagnosed right after having my second son and this video makes me cry. Its the first time I truly feel like somebody else knows how I'm feeling
Great video! I have diabetes myself since I was four years old. I am now 18 and I have learned to live with it so wel. Thanks to this video I realised everything my parents did for me. May God bless you and your amazing son! :) and family ofcourse
Exact same story of my family. ...my son was diagnosed at the age of 2 when I just had my 2nd son...so we are living with diabetes for almost 11 months. Wish you and your family all the best
Same case here my son diagnose diabetes age 3 year 10 june 2022.
So my question with you is how to look after the child. Diet, BSR check. So how you treat them..
I watched this with my 3 year old, and tried explaining it to her. I think it's important that she is exposed to different situations other than what she is used to. She is going to have her finger poked today to check her iron. And Henry is a great example of a brave little boy to show her. I told her that she only has to have it done once in a while, and Henry has it done multiple times every single day and look how amazing he is. Thank you for sharing Amy.
God bless you. I was diagnosed as a 4yr and you are doing a great job. You have it so much better now then 1985 and I am so happy that the times have come to help parents manage and be more aware of Type 1 with technology. Keep up the good work and never let the disease overtake you.
How are you coping with T1D now..my 4 year old was recently diagnosed and It's really a full time job
God bless Henry with good health in future...he is tough guy...May his all problems gets sought out in future..
Hey mum
I.am.also a father to a daughter
I am really sorry for young man,but he is brave kid
I wept to.see him
May Allah bless him with health and long long long life
Ameen
I'm an FNP student in a pharm class and learning about DM. I really appreciated this. It's so helpful for me to put such a cute face to the whole process, and to be able to see how much work it is for patients and their families. God bless you guys. I'm praying for you and hope Henry continues to do well. He's such a trooper and you are such a good mother. Thanks again
Thank you so so much!
Stay strong I promise things will get better, your such a great mom!
You are a super mom and Henry is such a gr8 kid. Hats off to you..
My 10 yo son also has type 1 he was diagnosed 3.5 months ago. Some days are better than others at the moment but all you can do is tackle this condition the best you can. This little boy is so lucky to have devoted parents .. Best of luck with everything.
was diagnosed type 2 diabetes 3 years ago at age 34. it's been a learning experience what to eat and what not to eat. I used to love bandanas but even one will spike my sugars to 300+. vegetables, salad's, beans, cheeses, nuts, Greek light & fit yogurt, sugar free oatmeal, any meats etc all good stuff. My average BS is 85-115.
I was same to you and know my Blood sugar is 108 to 140 but I am of insulin
Amazing parents. Hes one tough lil guy.
My little brother who is 13 was diagnosed a about 2 weeks ago. I'm trying to learn as much as I can about this illness. God bless these children.
I'm really touched by seeing how mother provides for their family.Also type one here.diagnosed after my 20th birthday and i can hardly control my blood sugars.Never mention how much efforts would it take for taking care of a little baby.NICE WORK!
Not supposed to use alcohol swaps as it causes false lows when not dried properly. Correct way is poking finger. Wiping a dab off then testing. Clean hands with no visible dirt is all you need. I'm type 1 16 years now and work in healthcare
It never ends! I had to learn and give half that stress to God because boy it is OVERWHELMING! Keep up the good work!!
My 7 yr old son was diagnosed last week and its hard getting to grip with the injections and carb counting. I really feel for every parent and child in this situation
Hello, I was searching insulin pumps and came across this video. I was diagnosed with type 1 diabetes at the age of 11, with little no help or support from my parents. I am now 26 and am just starting to properly manage. Kudos to you for being so involved. Hoping to get the approval for a pump by the end of the year. Definitely going to check into this one. Hope the little one is doing well
Henry has awesome parents...he's a trooper thanks to you both...prayers are with you all.
such wonderful parents!! We found out our son was diagnosed with a severe peanut allergy almost 2 years ago, I know it is not the same but I struggle with this every day. you guys are awesome. keep up the good work!
Thanks for posting. My daughter was dx'd 4 months ago. She's 12, so our experience is a little different, but the challenges are the same. Your intro to this video could have come out of my mouth. The constant adjusting... just when you think you've got it... nope! It is relentless--I truly understand sister!!
Your such a great mom hun! Praying for a cure!
So glad a found you , my two your old son was diagnosed Monday. It's been a whirlwind and so over whelming. Subscribed ❤️
you are very strong mom, Henry is very lucky to have you as his mom. i get worried for everything, and get stressed if baby do not eat, or fall or cry.
u re a great mom👼
+Adienda Permana ❤thank you.
dreamflight6000
do you have to test his blood sugar levels 3 times/day? my little niece just got diagnosed with diabetes and I am trying to learn as much as I can to help my sister in law get through this and pretty much to be supportive with her.
You are doing an awesome job as a mom! I teach diabetes education and I plan on showing this to my students so they can get an appreciation of "a day in the life". One thing I typically teach is to only subtract fiber grams if there is 5 grams or more in a serving and then you subtract 1/2 of those fiber grams.
Just found your video and I appreciate you for sharing your journey. My son has a glycogen storage disease where he gets dangerously low multiple times a day. I definitely understand what goes on in your mind as to every minute of my day also goes by thinking about my sons numbers. He is also only 18 months so I resonate with you. Prayers for a cure for all these horrible diseases.
I have been bombarded with comments like this since I posted videos about this a year ago. Yes, I do know that fruit is high in sugar but I think people forget that he is three years old. We don't restrict his diet. We were told that we don't need to. We feed him a well balanced diet. His numbers change all the time. Last week we dealt with constant lows and his diet didn't change. Carbs are important for a growing child too. He can be 85 when he goes to bed and 400 at 3am due to growth hormome
Very impressed. My son (just tuned 9) has T1 for 6 months now... This is all so familiar!!
I have been diabetic for 10 years or so and my girlfriend has been diabetic since she was two( now 25 y/o) the life is not easy and is a constant struggle. You seem to be doing a very good job with your little one.
he is so strong omg !!! Your a great mother !
My doc said no alcohol. We dont even wash before checking. W/ dex only check 2 to 3 times a day and avoid lows and highs. We also check toes, rarely fingers.
When he gets older he’ll know how to calculate insulin and things like soda and pizza etc. plus him being skinny will be good as well. I don’t really count my carbs but my blood sugars are usually 90 to 130 although when his sugar is high it’s best to give him insulin and wait about an hour and then let him eat so he’s had time to come down
Maybe it's because I don't eat breakfast, but that looks like a lot for breakfast plus a bowl of cereal? Your son has a great appetite!
Yeah, he's a big eater even now at 6. We don't snack at all so our meals are bigger.
Just finding this now. My one and a half year-old just got diagnosed yesterday and in a bit of a shock 🤦🏻♂️ I couldnt imagine a baby having diabetes until it happened to us. Hope you guys are doing amazing.
Aww, I'm so sorry. Same with us but not we are 10 years into this. ♥️
Thanks you so much for posting these videos and updates. I found out yesterday my baby cousin has type 1 diabetes and your videos are only adding support.
u are a Great mum to Henry! god bless you. xx
I'm a home care Nurse. Family has a 6 year old with SMA Xlknk and a daughter 3 just diagnosed with juvenile Diabetes..
So I understand.
I came across this looking for information for them. They also have a child named Henry..
Your doing Great..
You are the best parents ever! So amazed! Henry is so lucky to have you guys as his parents!!
Consider this.
Your doctors told you to measure and weigh and be so exact, because that makes their job so much easier. I'm a type 1, and seriously I would never count carbs like this. You are entitled to have a life, and your son will learn to cope with it better than you, and your scales ever could. He'll know when his blood sugar is getting low, he'll know how hungry he feels and what he thinks he should take, eat, drink.
You said yourself, this is the rest of his life, and if the rest of his life is measuring before every meal, plus 4 injections per day, plus a math exam, well it'll get depressing. I can see a pump in his future, and that's not a bad thing - every type 1 I know with a pump is in better control compared to 2 and 4 daily injections.
No offense, but your being a typical parent of a Diabetic. It's horrible that your child has to put up with all this and I hope that damn soon we'll have better options. As you said, this is the rest of his life... you need to dial back the number of tests you do, and you need to ask your son how he's feeling, and he needs to understand the signs so he can tell you. Humans are not computers - you can't put such fine control onto a kids diet, and you shouldn't. What if he doesn't eat his lunch, what if he vomits, what if he gets into the emergency candy?
Consider that maybe his diet should change to suit the results you want. Like, rather than trying to mathematically calculate exactly how much insulin etc, average each meal over a week, and try to get the insulin injections into a routine. It makes no sense to treat weekends as weekdays with this, weekends are more like holidays. If your son has high blood sugar, he can excercise or play to bring it down, that's far healthier than increasing insulin doses. If his blood sugar goes too low, then give him some fruit.
You and your son will develop a language for how he's feeling, it will get easier and he'll be managing his own blood sugar before you know it. Make it more fun, try and guess levels... if his blood sugar is good then celebrate, have fun with it - otherwise it can be very depressing.
This is gonna sound harsh I know, but it comes from a good place. You have all the hard stuff tackled, now you have to make that work for your son.
You are right for most of the points, but for one statement you are wrong. You can't exercise if your sugar is 17, because if it is high and you exercise, it will get even higher. Different people have different limits of when they sugars are rising when exercising. However, I agree that children are more confident when they are getting bigger (and having more experience at controlling diabetes) and they can live more flexible. For example I don't count my carbs (I am 27 and got it when I was 10), I just know it by heart and know how much insulin I need to inject. But if you don't count at the beginning, you will not know it by heart. So that is why I think that counting your carbs at the beginning (of having diabetes) is a really useful thing.
Tech House Progressive
I think it's easy to forget how much of it is instinct and experience - it's difficult to imagine how it is for such a young kid to deal with let alone understand. I'm not sure why, but when my glucose is high I feel like I have to work it off rather than taking more insulin, I'm always concerned that I take more insulin then my glucose drops back down too far.
I completely agree of course - you have to start out counting carbs so you can better understand Diabetes and your metabolism, but moving onto a healthy routine that doesn't require so much counting is always a good idea.
39 and 1/2 years now with type 1 - been through it - a lot of people say a lot of things, a lot of doctors too. Tools, techniques, and devices are all necessary and useful, to a point. Much is overrated, to put it mildly. Some of the advice out there, including from doctors, is just plain bad. Been there, death bed and back, many times, lucky to have made it, fortunate to have learned. One must keep an open mind for new options, to learn, to paying attention, rather than closing oneself off from gaining new insight. Boiling all down becomes simple; less is more.. good luck to all of you out there!
stunthumb I completely agree with you. But we have to cut her some slack. Yes if you don’t take insulin it could be a life or death situation. But yes I think she’s being a bit of a helicopter parent. When her son was 7 he still couldn’t figure out when he felt low. Honestly I think she needs to give him a lot more of the responsibility now that he’s older and still watch and be close enough in case he encounters a problem but far enough away so he knows how to take care of himself.
You are such a strong woman, I am sorry he has to go through this battle :( But he is lucky to have such a great mom like you!
I have type 2 diabetes since 2022, in my mid teens I was diagnosed with diabetes , Henry’s such a trooper to be honest
awww..I was just reading about Diabetes ( medical student ) and came to this video, I wish all the best luck to this great little guy, sending a lot of blessings to him and wish the best in life. He seems so happy and he should stay like that all the life
You seem like your doing a great job with him, and to say he's so young he is taking everything so well. I was diagnosed at 1 years old and I am now 16. Everything gets easier as you get older.
Henry is such a good little boy, and you guys are wonderful parents.
My son is diagnosed at 15 month...he is holding up great...we are trying the meditranian diet which consists of mainly sea foods, lean meat, some eggs and a lots of vegs....plus some root starches like Enset(endemicto Ethiopia ....his blood sugar never went above 250...he is almost always below 180, often below 130...
Great video. My 3 year old son was just diagnosed with type 1 diabetes two weeks ago. Every thing in your video looks very familiar even thought it has only been two weeks for my wife and me. I like your scale and how it helps you count the carbs that is the hardest part for us especially in fruits and veggies. Good luck Henery
Ohhh my goodness. I am about to say my prayers and a big one is going up for you guys. You are such amazing parents. Bless you all.
My goodness. I thought I knew about diabetes, but I really had no clue how involved it is. God bless you all, hope your family is doing well!
Amy, I don't know how you do it. Well, I mean obviously you just have to do it, but man, hats off to you! You are amazing!!! Henry is so lucky to have such an awesome momma!
Bless that little Angel...WOW, he is braver than me.
Great video, you out in a lot of effort to keep him safe. I was diagnosed with T1 two weeks ago and I was told I don't have to measure anything I eat but to just play around with my insulin doses. It's working so far but my sugars can definitely improve. I noticed you have a carb reference sheet on your fridge, did you make that yourself or did you find it on a website? I'd definitely like to have one!
We also use freestyle meter. Uses smallest sample. Only a miniscule tiny drop of blood needed. Less pain. We do not prebolus all the time. Our highest a1c was eight. Usually in 6 or 7s. Life quality is more important than anything.
Hello, my lil bro was diagnosed 16 years ago, type1, at age 1. There is a 9 yr gap between us. You guys probably already know this, but your doing an awesome job!!!! You seem to have the theory and practice down pat, however the behaviors are harder to anticipate and deal with. If you have any question on how we dealt with anything please ask im happy to share. Also my mother is a nurse and i have been present to every class and nearly every doc visit
I'm 14 years old and I'm also a Diabetic. I've been diagnosed for 6 years since 2008. Life with Diabetes is a daily battle for me, and I hate having it, but it is nice to see, there are alot of other people WHO has it in the same way. I hope they'll one day find a cure. Thank you for sharing :)
It is a battle each and everyday that is for sure! It is hard hard work!
I don't know if this will be helpful to you or not but, I've been a diabetic for about 9 years. I have an animas ping (and by the way it looks in the video he does too) :) but talk to your endo doctor and ask him/her about the Dexcom g4. This could be so helpful to y'all. Your insurance should cover most of it, but I'm not promising that. Just look it up here, on youtube, its awesome and you need have to worry if your little boy has a low will sleeping again. It's lifesaving! I hope this will help y'all.
from a T1 mom to another to another I was a little confused about the correction scale that had recently put into place with my daughter. Watching you explain it.. Visually now it makes complete sense!! THANK YOU SO MUCH!!
I wish him all best
What an awesome mom you are. I know it's tough but you're making it work...Good Job. God Bless...Praying for you all
I am 13 years old and have had type 1 diabetes since Halloween 2011. My current A1C is 6.7. Well done to you!
Thanks for this video! :) I do the same thing everyday with Charlie! I'd love to make a video similar to this once I get my channel up and running! I think about you guys often! You have helped make our journey with T1D a little easier. Your videos keep me going! Thank you and God bless! -CharliesMom (aka fordtmck)
My teacher has seven kids and one of them, named Caleb, has type 1. He's 10 years old I think. She is my homeroom teacher, Bible teacher, and history teacher. She always shares with us about what's going on all the time with him. She shows us videos of type one diabetes and I take a lot of interest in it. Caleb does so well with it! The other day he was at 39!!! He was rushed to the E.R and it was very scary!
How wonderful for your teacher to share to you guys about her son!! That is great! Yes, very scary.
It's crazy how much things have changed in just 5 years. Having the updated Omni pods & dex coms must make such a huge difference in children now. Technology is amazing!!
You are so amazing with Henry. I hope to someday be as good of a mom as you are.
Cute and strong boy.. And amazing parents.. God bless you..
Your such a good mom. That seems like allot of work, worry, and stress!
I can only imagine how much you all appreciate the wireless insulin, that would add so much more work and struggle if you had to inject it. You guys are awesome parents, Henry's lucky to have you.
WOW ! Good thing you are organized. This is a lot to keep up with. You are such a great mom.
This was very interesting to watch. I went to HS with a girl who had a pump and would have to check hers throughout the day and make adjustments or have a snack/juice but I didn't understand it all. I had no idea about having to weigh everything. Praying for a cure! You are amazing parents and he is an amazing patient
Thank you so much for sharing with your daughter! THAT means a lot to me!
Does he ever eat meat, fish, eggs, cheese? At least in this video I've mostly seen pretty carb-heavy foods, which I myself would only eat very sparingly (for different reasons though). Lots of fruit, bread, pasta, rice...
What a trooper for sure and you guys are wonderful, educated parents that obviously work as a team so well.
What kinds of s/s did Henry have before he was diagnosed?
Henry was so tiny. you look at him now and it’s like where did that little boy go. how did he grow up that fast.
Amazing mom I know its vary hard to have a child with an illness. My son has celiac and has change his personality from outgoing to vary none sociable. I know its hard and wish we could just take out kids pain you know anything from them. Your doing a great job and praying for a cure for our little ones.
Great Video- Henry is such a good little man and you and your husband seem to work very well together that is a great accomplishment too- Been there- done that- it will be 12 years for us on the 29th. We actually now eyeball most of what our daughter eats and so that makes it a bit easier but your video and your daily carb counts reminds me of how it used to be- too long ago... I wish you all the best - and keep praying for a cure.
Wow the routine seems grouling to get use to, my friends 6yr old daughter was diagnosed last week & she's having a hard time. I wish you all the best!!
I was diagnosed at the age of 2 years old I'm turning 16 in a few days. Not saying what your doing is wrong everyone has their own methods.I never weighed my food though just counted the carbohydrates & used a ratio a divided that by the carbs to figure of how much insulin to take.
may I ask why did you subtract dietary fiber from the carbs? I have had type 1 diabetes for 2 years and never done that.... not judging you or saying its wrong... just wondering why?
That's just how the diabetes educators taught us when Henry was diagnosed. We actually recently switched clinics and they also teach to subtract fiber. My good friend from a England doesn't do it either. Must just be who's teaching? Not sure. 😊
My endo doctor told me that I'm supposed to idk but I think it's to critical if you don't :) Take care👋🏽
+Nahja Urquieta oops what I meant to say was I don't think it's to critical
+Dannynoonan I got it when I was 1 1/4 I'm 13 now and it sucks
I have a t1 diabetic that was diagnosed when he was 4. He enjoyed watching Henry. His name is John. I have been on an endless search for best diet for our little guy.It is a myth that they need carbs (I didn't even know what a carb was when he was diagnosed). Our body can manufacture carbs from fats and protein. We have recently read primal body/primal mind and Dr. Bernstein. Healthesolutions is also helpful. Good luck-it's a life changer like you said!
Omg I'm exhausted from watching you guys measure and test and calculate just in a video. Even when the day has been tough I should come back to this video and appreciate what I have. This is so challenging and Mind occupying regardless of how routine it is for your family. May god bless u n keep you guys strong as you have been. Good job Amy
He was (& still is!!) such a trooper!!
What type of insulin pump does he use? I am a type 1 diabetic and have been since I was 12. I use the Omnipod which is also wireless. It uses freestyle test strips that is built into the pdm (personal diabetes manager). I would recommend this pump to anyone. Good luck to you and your family.
He was on the Animas Ping but has been back to shots now for about 6 months. The pump just did not work out for us at this age for him. Thank you!
It breaks my heart to think that a child so young has to go through all of this :( I feel for him!
Omg!!! Henry is soooo brave... Wow u guys r such a wondeful parents
I’m type 1 and I’m 11 and have had it since I was 5 he is such a brave boy
Your story has taken me back 20 years. My daughter was diagnosed at 26 months of age. Would love to chat with you.
u r talking about me & my son 🌼2017 my worst year ever i hate it ...same feelings oh my god ...u made me cry