After 10 years disease, on both eyes, I am since 2 years fluid-free. What did I do? I focused on homocysteine, which is correlated to CSR. Then I added all the molecules with low side effects and hints of efficacy. So I did this: 1) You need to stop worrying. Avoid stress, which is anything that makes your heart rush when you are scared of something. Scary movies and thrillers, video games are not good. 2) Avoid alcohol and caffeine. Tea is ok. 3) Avoid corticosteroids and antihistamines products (nose decongestants). 4) Avoid strenuous exercise, prefer lighter, more frequent activities. 5) Do not fast. Low calories diets are ok, bust fasting increases cortisol. 6) Do mediation, regularly. 7) Get plenty of sleep. No alarm, natural wake up. 8) Monitor your homocysteine, and if high, lower it. 9) When fluid is there, avoid strong light. Light can stress the retina, and if fluid is there the retina is weaker You can patch your eye, it might help. 10) Fluid in the center, as in your case, might start to cause irreversible damage already after 2 months. If you are over 1 month into symptoms, you might want to find a retinologist able to do PDT or micropulse. In expert hands, they are also good for leaks over the center. Now, a “cocktail” which is scientifically based, with some potential efficacy and no or little side effects could be: -low dose aspirin 1x day -Melatonin up to 3mg, twice a day. -Phosphatidylserine 150mg twice per day. Several studies showes it prevents cortisol peaks, it will protect you from acute stress. -Vitamin B6 (25-50mg), B9 (600-800micrograms), B12 (50-400micrograms) once per day to lower homocysteine. (See iubmb.onlinelibrary.wiley.com/doi/10.1002/iub.2507 ) -Omega 3 2000mg twice a day. -vitamin A and vitamin E (RDA). You might also add acetylcisteine (to further lower homocysteine) and L-theanin (200mg) to further lower cortisol peaks. Try to discuss with you doctor, and if there isn’t any problem, you might give all this a try. It will not take the disease away, you are still vulnerable, you still need to take care. For me it worked, but the disease is quite different from person to person, so it might not work for you, but give to this at least 3-6 months.
@@ttx688 yes, I do not see any difference. But be aware that I had fluid on the center in 10 years only twice and never more than 3 months. Still this led to slight light decrease and slight horizontal micropsia (I see things slightly thinner). My brain compensate very well. But I do not know what would have happened with longer presence of fluid in the center.
@@andreiak4753 please read carefully, as all is the result of precise research in medical literature. Strenuous exercise shall be avoided. Probably because it is too stressful for the body and leads to cortisol peaks and cardiovascular stress. Moderate exercise, on the contrary, is beneficial.
Hello brother, how are you doing now? I have had this disease for two years. It disappeared and came back again. I went to the doctor and he said to me, “We cannot do anything for you unless it continues for more than four months.” I cut off bread, sugar, and rice more than two months ago, but the same thing appeared again after recovery. Fifteen days. Can you advise me whether taking these vitamins is good for you? Thank you, please. If you can answer
I've had all.of that, cold laser you speak of. I've had this in my left eye since I was 25. I'm now 55 and it has never gone away in my left, and sometimes the right eye has bouts of it too. Horrifying, terrible disease.
My doctor gave a prescription for Spironolactone for inactive CSR (no fluid). You might ask your Dr about that. Since you're a female, it shouldn't affect you. Its used as a "sex change" drug that reduces testosterone in men, in addition to treating high blood pressure and heart disease. It does a lot of different things.
I am actually getting my procedure done on Monday morning. My vision in my right eye has improved little by little but certain colors are still a little crazy for me to look at when I do a self vision test. Im just glad that the worst part of it is finally over which is the initial pain I had in my right eye after it happened. It wasn't like a stabbing pain but more of a pressure pain and it was maddening to live like that. Its been a little over a month now and I wouldn't wish this on my worst enemy.
I hope your procedure went well? Was it cold laser? Are you in the US? I'm in the UK and they are telling me there's a global shortage of visudyne. They said the US had pre-ordered the first two years worth of supply, so I guess the US must have access to it now. Which hopefully means they can treat me in a few years time.
@@didibergman2306 I’m assuming it was cold laser. I didn’t need to get the IV prep they just numbed my eye really good and dilated my pupil. It was about a 15-20 minute process and I don’t have any restrictions. I was able to drive one the dilation drops wore off.
@@didibergman2306 oh me too! I wouldn’t wish this on my worst enemy. It’s a long road to recovery now but I’ll be glad when I’m back to 100% clear vision again
I got this disease 20 years ago. I am a female. At the time I was about 48 years old and in perfect health. I got the disease in both eyes. In my left eye I see a large gray circle right in my central vision. In my right eye the gray area is off to the side. If you have this disease, once the fluid stops leaking, it leaves a permanent scar messing up your vision. Because the scar in my left eye is in my central vision, I see darker with that eye. I was told there was nothing that could be done about it. I have never had anything for it. I just live with the scars.
I had a laser threapy 5 years ago , the blured vision and abnormal shapes still there .the laser therapy was done a year after its occurance . Are there any hopes that it can go away and I can get my vision back normal again ?
Hello , because of this disease I lost my left eye vision %70 percent. Is there any new treatment to recovery to my left eye for example steam cell therapy can be helpful ?
I have it. It doesn't affect my vision profoundly, but I do see squiggly lines and size distortions from time to time. There is a laser that is supposed to be wonderful and easy/safe called MicroPulse - I think it's yellow laser. BUT IT'S DIFFICULT TO FIND! I have had some success with 25 mg twice a day of eplerenone with no side effects and some docs prescribe spirolactone. Will likely add melatonin 3 mg twice a day soon too
Can anyone explain why there is a global shortage of Visudyne? My CSR can't be treated because of the shortage and my distortion is getting bad. Internet says if left untreated it WILL lead to permanent vision loss. They gave me anti-vegf injections for 4 years and they always helped with the metamorphopsia, (they thought I had wet MD) now they say it's CSR (after an angiogram) they say the injections won't work, but I understand that the injections ARE used to reduce the fluid in CSR so I feel like I'm being gaslit. They always asked if I thought the injections were working and I always said yes. If I didn't think they were working I wouldn't have subjected myself to them!
I had CSR and I went to the gym all the time and exercised with weights. What helped my CSR is to completely remove caffeine and energy drinks and no cortisol - stop any cortisol products. Additionally start drink a lot of eye vitamins, vitamin c, omega 3, and ashwagandha.
If you have CSR but don’t have any fluid in your eyes. What is treatment? Is it still the same? PDT? CSR causes distorted vision but if there is no fluid in the eye does the distortion go away or do you need eye injections? Forgive me for the 20/20 just want info on treatment for CSR without fluid In the eyes. Just wondering if treatment would be the same if you did have fluid. Thanks
Ive got "inactive" CSR on both eyes. No fluid, YET. But I see purple/whitish spots off to the side of my central vision. The visibility of these spots depends on inside or outside, lighting, all kinds of factors. My doctor gave me Spironolactone. Its a pill that has many uses, one being for this in the eyes. Its also used in the beginning stages for men who want to be women. It reduces testosterone production and can possibly cause moobs to grow. Im being serious, not trying to be funny. You might ask your retina doctor about it. Im only on day 2 of this drug and he said it takes a month or 2 to work and show results.
@@mrskristenannis I have an appt next month on the 10th. I’ll let you know what doc says. Last appt. was good, just frustrating that things look good. But no signs of fluid. Doc mentioned loss of visual field. Which make things look distorted.
Sir, I m 44 now its been there for last 6 years in my right eye , doctor told me its fluid in retina and it will disappear , but its not so . now its really affecting my vision. I see a white/ grey circle in right eye I am confused what to do next. Thank u
I think it depends on the duration and the health of the blood supply to the RPE. Mine is likely to lead to permanent loss annoyingly. I’ve had it for nearly 2 years
If the CSR created vision damage it most likely will stay forever sadly...There are cases where it heal of course, but if it doent improve within 2-3 months after the fluid is gone, it will most likely stay. The nerves have been damaged and this cant really heal.
Just checking, is there anyone here who plays video games especially shooting games on mobile screens for long time. I am suspecting this to be one of the reason because it has stress and also concentrating on a small screen. Update: The CSR had gone by itself last week, that is maybe 3 months from the approx onset.
i was diagnosed with csr last week, and i played a lot of shooting games on my iphone, i have now stopped playing those kinds of eye strenuous games, will try to modify to a healthier eye lifestyle
After 10 years disease, on both eyes, I am since 2 years fluid-free. What did I do? I focused on homocysteine, which is correlated to CSR. Then I added all the molecules with low side effects and hints of efficacy. So I did this:
1) You need to stop worrying. Avoid stress, which is anything that makes your heart rush when you are scared of something. Scary movies and thrillers, video games are not good.
2) Avoid alcohol and caffeine. Tea is ok.
3) Avoid corticosteroids and antihistamines products (nose decongestants).
4) Avoid strenuous exercise, prefer lighter, more frequent activities.
5) Do not fast. Low calories diets are ok, bust fasting increases cortisol.
6) Do mediation, regularly.
7) Get plenty of sleep. No alarm, natural wake up.
8) Monitor your homocysteine, and if high, lower it.
9) When fluid is there, avoid strong light. Light can stress the retina, and if fluid is there the retina is weaker You can patch your eye, it might help.
10) Fluid in the center, as in your case, might start to cause irreversible damage already after 2 months. If you are over 1 month into symptoms, you might want to find a retinologist able to do PDT or micropulse. In expert hands, they are also good for leaks over the center.
Now, a “cocktail” which is scientifically based, with some potential efficacy and no or little side effects could be:
-low dose aspirin 1x day
-Melatonin up to 3mg, twice a day.
-Phosphatidylserine 150mg twice per day. Several studies showes it prevents cortisol peaks, it will protect you from acute stress.
-Vitamin B6 (25-50mg), B9 (600-800micrograms), B12 (50-400micrograms) once per day to lower homocysteine. (See iubmb.onlinelibrary.wiley.com/doi/10.1002/iub.2507 )
-Omega 3 2000mg twice a day.
-vitamin A and vitamin E (RDA).
You might also add acetylcisteine (to further lower homocysteine) and L-theanin (200mg) to further lower cortisol peaks.
Try to discuss with you doctor, and if there isn’t any problem, you might give all this a try.
It will not take the disease away, you are still vulnerable, you still need to take care. For me it worked, but the disease is quite different from person to person, so it might not work for you, but give to this at least 3-6 months.
is your vision back to normal again
@@ttx688 yes, I do not see any difference. But be aware that I had fluid on the center in 10 years only twice and never more than 3 months. Still this led to slight light decrease and slight horizontal micropsia (I see things slightly thinner). My brain compensate very well. But I do not know what would have happened with longer presence of fluid in the center.
no exercise really?
@@andreiak4753 please read carefully, as all is the result of precise research in medical literature. Strenuous exercise shall be avoided. Probably because it is too stressful for the body and leads to cortisol peaks and cardiovascular stress. Moderate exercise, on the contrary, is beneficial.
Hello brother, how are you doing now? I have had this disease for two years. It disappeared and came back again. I went to the doctor and he said to me, “We cannot do anything for you unless it continues for more than four months.” I cut off bread, sugar, and rice more than two months ago, but the same thing appeared again after recovery. Fifteen days. Can you advise me whether taking these vitamins is good for you? Thank you, please. If you can answer
I've had all.of that, cold laser you speak of. I've had this in my left eye since I was 25. I'm now 55 and it has never gone away in my left, and sometimes the right eye has bouts of it too. Horrifying, terrible disease.
My doctor gave a prescription for Spironolactone for inactive CSR (no fluid). You might ask your Dr about that. Since you're a female, it shouldn't affect you. Its used as a "sex change" drug that reduces testosterone in men, in addition to treating high blood pressure and heart disease. It does a lot of different things.
Plz reply🙏 I'll be grateful. Does one of the eye have darker vision than the other. Like- sky blue looks nevi blue? In case of cscr retina
Where did you make an operation.
I must take a cold laser operation. But I could not find Visudyne medicine. Where can I find?
@@crickethighlightssmasher2209 mine is yellowish on the affected eye
@@andreiak4753is your eye cured?
I am actually getting my procedure done on Monday morning. My vision in my right eye has improved little by little but certain colors are still a little crazy for me to look at when I do a self vision test. Im just glad that the worst part of it is finally over which is the initial pain I had in my right eye after it happened. It wasn't like a stabbing pain but more of a pressure pain and it was maddening to live like that. Its been a little over a month now and I wouldn't wish this on my worst enemy.
I hope your procedure went well? Was it cold laser? Are you in the US? I'm in the UK and they are telling me there's a global shortage of visudyne. They said the US had pre-ordered the first two years worth of supply, so I guess the US must have access to it now. Which hopefully means they can treat me in a few years time.
@@didibergman2306 I’m assuming it was cold laser. I didn’t need to get the IV prep they just numbed my eye really good and dilated my pupil. It was about a 15-20 minute process and I don’t have any restrictions. I was able to drive one the dilation drops wore off.
@@dolphingirl2009 That's wonderful, hope your eye stays CSR free and pain free!
@@didibergman2306 oh me too! I wouldn’t wish this on my worst enemy. It’s a long road to recovery now but I’ll be glad when I’m back to 100% clear vision again
I got this disease 20 years ago. I am a female. At the time I was about 48 years old and in perfect health. I got the disease in both eyes. In my left eye I see a large gray circle right in my central vision. In my right eye the gray area is off to the side. If you have this disease, once the fluid stops leaking, it leaves a permanent scar messing up your vision. Because the scar in my left eye is in my central vision, I see darker with that eye. I was told there was nothing that could be done about it. I have never had anything for it. I just live with the scars.
I have this disease, but it has left scars in my ratina. How can we treat it.
Any substitute for Flonase??
I had a laser threapy 5 years ago , the blured vision and abnormal shapes still there .the laser therapy was done a year after its occurance . Are there any hopes that it can go away and I can get my vision back normal again ?
What happens if you need to lazer surgeries deos that cause eye damage thank you
I been having this about 2 years now .. every 6 months my eye dr tells me it’s gonna go away on its own .. but it never does
Hello , because of this disease I lost my left eye vision %70 percent. Is there any new treatment to recovery to my left eye for example steam cell therapy can be helpful ?
I have it. It doesn't affect my vision profoundly, but I do see squiggly lines and size distortions from time to time. There is a laser that is supposed to be wonderful and easy/safe called MicroPulse - I think it's yellow laser. BUT IT'S DIFFICULT TO FIND!
I have had some success with 25 mg twice a day of eplerenone with no side effects and some docs prescribe spirolactone. Will likely add melatonin 3 mg twice a day soon too
WUT ABOUT FOCAL LASER IS WUT THEY WANT TO DO TO ME INSTEAD OF PDT?
Can anyone explain why there is a global shortage of Visudyne? My CSR can't be treated because of the shortage and my distortion is getting bad. Internet says if left untreated it WILL lead to permanent vision loss.
They gave me anti-vegf injections for 4 years and they always helped with the metamorphopsia, (they thought I had wet MD) now they say it's CSR (after an angiogram) they say the injections won't work, but I understand that the injections ARE used to reduce the fluid in CSR so I feel like I'm being gaslit. They always asked if I thought the injections were working and I always said yes. If I didn't think they were working I wouldn't have subjected myself to them!
Can a CSR patient go lifting? I want to go back working out in the gym. Please answer. Thank you so much.
I had CSR and I went to the gym all the time and exercised with weights. What helped my CSR is to completely remove caffeine and energy drinks and no cortisol - stop any cortisol products. Additionally start drink a lot of eye vitamins, vitamin c, omega 3, and ashwagandha.
Yes this is great advice!!
Can we use vitamins, omega-3, ashwagandha without doctor's prescription?
I had CSR LAZER yesterday can i drink alcohol or consume non veg after 6 to 1 year
No
Which kind of leaser and what is your vision now
If you have CSR but don’t have any fluid in your eyes. What is treatment? Is it still the same? PDT? CSR causes distorted vision but if there is no fluid in the eye does the distortion go away or do you need eye injections? Forgive me for the 20/20 just want info on treatment for CSR without fluid In the eyes. Just wondering if treatment would be the same if you did have fluid.
Thanks
if no flued no treatment just vitamins and avoid steroids ewriting wat with steroids crem geal. oral. I'm hawe. same
Ive got "inactive" CSR on both eyes. No fluid, YET. But I see purple/whitish spots off to the side of my central vision. The visibility of these spots depends on inside or outside, lighting, all kinds of factors. My doctor gave me Spironolactone. Its a pill that has many uses, one being for this in the eyes. Its also used in the beginning stages for men who want to be women. It reduces testosterone production and can possibly cause moobs to grow. Im being serious, not trying to be funny. You might ask your retina doctor about it. Im only on day 2 of this drug and he said it takes a month or 2 to work and show results.
Any update on this? No fluid but distortion
@@mrskristenannis I have an appt next month on the 10th. I’ll let you know what doc says. Last appt. was good, just frustrating that things look good. But no signs of fluid. Doc mentioned loss of visual field. Which make things look distorted.
Sir, I m 44 now its been there for last 6 years in my right eye , doctor told me its fluid in retina and it will disappear , but its not so . now its really affecting my vision. I see a white/ grey circle in right eye I am confused what to do next. Thank u
Plz reply🙏 I'll be grateful. Does one of the eye have darker vision than the other. Like- sky blue looks nevi blue? In case of cscr retina
@@crickethighlightssmasher2209 it can happen yes - the CSR messes up the colors and some colors seem darker. But go to the eye doctor and check it up.
after the fluid is gone.. is there time for restoration of vision?
I think it depends on the duration and the health of the blood supply to the RPE. Mine is likely to lead to permanent loss annoyingly. I’ve had it for nearly 2 years
If the CSR created vision damage it most likely will stay forever sadly...There are cases where it heal of course, but if it doent improve within 2-3 months after the fluid is gone, it will most likely stay. The nerves have been damaged and this cant really heal.
Just checking, is there anyone here who plays video games especially shooting games on mobile screens for long time. I am suspecting this to be one of the reason because it has stress and also concentrating on a small screen.
Update: The CSR had gone by itself last week, that is maybe 3 months from the approx onset.
i was diagnosed with csr last week, and i played a lot of shooting games on my iphone, i have now stopped playing those kinds of eye strenuous games, will try to modify to a healthier eye lifestyle