When I watched your latest video, I could clearly hear improvements in your voice. That is not cool. Anyways great video, keep looking forward & have faith. Love you both & be safe ❤️🙏
So sorry to hear this! Appeal Appeal Appeal! And definitely get a lawyer if the appeal process doesn't get you anywhere. When you were initially approved for this did they give you a time frame of how long they would approve it for until your next recertification would be due?
No they didn’t, and they gave me no heads up, either! But, I’m so thankful I got back on it this past Saturday after being off of it for 15 days. So grateful to be back on, and it gave a perfect little energy boost 😊. Hope you’re doing well!
@@nellee6924 so happy you were able to get back on it! What state do you live in? I'm in Jersey. When I got the approval for mine it said it was good for one year and then I would have to submit for recertification next year. That's why I'm surprised your insurance didn't give you a timeframe. And that also is really terrible that they didn't even notify you either that they were going to stop paying. But luckily you were able to get it straightened out and I'm so glad!
@@tammy_99x93 oh okay! Yes, we live in CT. I think mine was for 6 months, however, they never notified me which wasn’t cool, nor did they notify my doctor. But, I’m so thankful I’m back on it now 😊. How have you been doing on it?
So frustrating! I'm so sorry, if they don't get it to you soon I'd get a lawyer. They can be held responsible for damages (emotional and physical) and force them to cover it. They are just trying to discourage you to save money. Shame on them.
Sending love and strength!!! I am on week three of it. I am the same as you were, questioning whether or not what I'm experiencing is the medication or I'm just crazy. LOL. I'm glad that through this experience, you can see the positives which are that you're actually noticing a change without it. I hope it arrives soon! I look forward to your updates, it's nice to know there are others out there going through similar experiences as me.
When I watched your latest video, I could clearly hear improvements in your voice. That is not cool. Anyways great video, keep looking forward & have faith. Love you both & be safe ❤️🙏
Thank you!!! That’s means a lot, your words of encouragement! We will continue to keep the faith! 😊♥️. We love you, too!!
So I was off it for 3 days because of a shipping error - definitely noticed very similar differences. Good luck with getting this sorted out!
I’m so sorry you had to experience this as well. It’s been 13 days now, I’m very disheartened. Hopefully they straighten this out very soon.
So sorry to hear this! Appeal Appeal Appeal! And definitely get a lawyer if the appeal process doesn't get you anywhere. When you were initially approved for this did they give you a time frame of how long they would approve it for until your next recertification would be due?
No they didn’t, and they gave me no heads up, either! But, I’m so thankful I got back on it this past Saturday after being off of it for 15 days. So grateful to be back on, and it gave a perfect little energy boost 😊. Hope you’re doing well!
@@nellee6924 so happy you were able to get back on it! What state do you live in? I'm in Jersey. When I got the approval for mine it said it was good for one year and then I would have to submit for recertification next year. That's why I'm surprised your insurance didn't give you a timeframe. And that also is really terrible that they didn't even notify you either that they were going to stop paying. But luckily you were able to get it straightened out and I'm so glad!
@@tammy_99x93 oh okay! Yes, we live in CT. I think mine was for 6 months, however, they never notified me which wasn’t cool, nor did they notify my doctor. But, I’m so thankful I’m back on it now 😊. How have you been doing on it?
@@nellee6924 doing okay on it. Haven't noticed any major improvements though. At least not that I can notice
I’m just now seeing this video. Did you get your Evrysdi Lee? I’m praying that you have favor with the insurance company and pharmacy.
Yes! We just posted a new video on me taking my Evrysdi again 😊 thank you so much for your prayers!
So frustrating! I'm so sorry, if they don't get it to you soon I'd get a lawyer. They can be held responsible for damages (emotional and physical) and force them to cover it. They are just trying to discourage you to save money. Shame on them.
😥 right?! Hopefully I will be hearing very soon! I’m praying so.
Which insurance is this? If you don’t mind me asking. And stay strong.
I don’t mind at all 😊. I have state insurance, Husky D. And, thank you! 💕
Sending love and strength!!! I am on week three of it. I am the same as you were, questioning whether or not what I'm experiencing is the medication or I'm just crazy. LOL. I'm glad that through this experience, you can see the positives which are that you're actually noticing a change without it. I hope it arrives soon! I look forward to your updates, it's nice to know there are others out there going through similar experiences as me.
Aww thank you ❤️. Yes, I pray you never have to experience this! I hope you have wonderful success with the medicine.(: