Babes with Mobility Aids ft Annika Victoria
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- Опубліковано 11 бер 2020
- Mobility Aids are here to help, they shouldn’t bring us down.
Last summer our friend Annika came to visit Japan and we had a long chat about the stigmas that come with being disabled, the anger that some people have at you for “not looking disabled enough” and - on a less heavy note - we both give some fashion tips and things you should consider with your mobility aids, be they wheelchairs, canes, or braces.
Check out Annika's channel for her part 2 of the video, right here!
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FIRST!!!! 💁♀️
Hahha you absolutely cheated!!!
DAMN! you really are ! haha
It's so cool to see you two making a video together!
LOL 😆
Why don’t you launch your designed wheelchair brand on kickstarter?
WOW!? First of all: The car comparison blew me away. In the very rural area I live in, a car is empowering to people in the way they can get employment, groceries, and social interactions in places they just couldn't get to without a car, the car gives them zhe chance to get to places they couldn't get to before. Thinking of a mobility aid in the exact same way is AMAZING! It gets people places they would have trouble reaching without it. The end. No weird, misplaced misconceptions or judgments needed. 💕
OOPS, I forgot the second of all: You are rocking those outfits!!! SUCH BEAUTY! 💕😍
That’s how my family always treated mobility aids. It doesn’t have a stigma unless you let it.
"gives them zhe chance"
Ok so now I'm reading the rest of the comment in a French accent lol!
@@totowashere ha, sorry, I didn't notice the mistake. The accent would be a funny thing coming from me, especially because I am German and my French is terrible, so the result would be even weirder. :D
I wish I thought of the analogy.
In the US, most cities aren't really accessible without a car. Public transportation has had many cutbacks. So no car, few employment prospects, difficulties getting groceries and medications, etc.
Last year when I was outside with my parents in my wheelchair I overheard a child saying “Look a wheelchair “ the moms answered “ Yes, some people need it when their legs don’t want to cooperate” a good answer and not saying that they can’t walk at all if someone has a wheelchair. Just explaining that people with different problems may need it.
That was a good explanation. Sometimes is hard to explain to kids. My niece is at the age where she's curious and she's asked me why I walk the way I do and even for me is hard to explain. I told her my back hurts. I also told her I'm "weak" so I can't carry her but I'm not sure she fully understood.
That's a good way of putting it, it covers so many different health issues and ability levels. Might have to use that in the future.
I've had one experience like that too and it made my day haha. Why can't more people be like this with their kids?? Normally they just make the kid be quiet and so it makes them think they've done something wrong and people using wheelchairs should be feared :(
Annika Victoria exactly it’s better that you explain to a child that people may need some mobility aids too do things. I have gotten complements about me using a walker and not seeing it as something to be ashamed of. I have always answered questions about my aids that it gives me more freedom and not being a hindering too me in my daily life. At the end of March I am going to get the new PushTracker to my Smart Drive. The smart drive is a power assist motor to my wheelchair. You lightly have your hands on the push rings when you drive, it’s easy to manoeuvre.
This is from reddit.
When you were posing with your cane I thought "wow, it's like a magical girl wand" and I was waiting for the dramatic and sparkly effects of transformation to appear 😆 Sailor Martina! ✨
Hahah! Wow! Thank you :) I can see that in my head~
@@eatyourkimchi You should definitely do a Sailor Martina "transformation" effect as a transition in videos! 💖
And a sticker
My 3 year old nephew when he came over the other day.
Him: "Where are your covers?" While pointing at my knees. "They hurt. Where are your covers?"
Took me a moment to realise he was asking where my knee braces were because he is so used to me wearing them. ♥️
this brought a tear to my eye. such sweetness.
Kids can be sweet.🙂
Awwww
THIS IS THE CROSSOVER I DIDNT KNOW I NEEDED
The wheelchair thing is so hypocritical. My mother is paralyzed and can't walk and when we travel people always ALWAYS ask if she can walk for a little bit and are annoyed or surprised when she can't. (Not always we have met some lovely people who are willing to go above and beyond in assistance) honestly you just can't win with mobility aids and perception of how disabled you should and shouldn't be.
imrebeccap 50% of people think you’re lying if you can walk and 50% think you can just get up and do whatever and your wheelchair is just an accessory. It makes no sense.
I work in a supermarket and at least 30% of the people using the store's mobility scooters are doing it to shoplift. I've had customers walk all the way to the deli, turn around walk across the store and get a scooter. Meanwhile, my little old ladies are forced to wait or risk falling by pushing a buggy.
There are so many different aspects of life like this where you can never make everyone happy at once. So obnoxious
@@jasminemarseilles5070 it's abuses like that shoplifting "trick" that screw with public perception too. There are some places they pull you aside and fully frisk you as you leave if you use a chair. I always think a little extra behavior observance training would be more effective all around, rather than harassing a specific group. I bet the older ladies are some of your most profitable return customers too. Just sucks all around.
2 reasons that I've declined to usue them repeatedly when I probably should be (like when staff have seen me struggling and offered to help by going and getting it for me!). I don't need it as much as a whole bunch of elderly that I see in the shop at the same time. That and I'm kinda stubborn and "I got this"...
THE 2 bad ass ladies collaborating and dominating UA-cam and bringing knowledge to the public! ❤️💙
Oh yeah Master Apple gets it! *no high five coronavirus rules but here is a mid-range elbow bump*
*foot-high five*!
“Tittle almost fell out!” 😂🤣 Oh Simon, never change.
there is nothing more beautiful than a human that is so individually and unapologetically themselves despite their obstacles. love and admire y’all. 🐝❤️
I can’t imagine people going up to a person in a wheel chair and saying you’re faking it...
This is an awesome video to educated people.
Ive got fibromyalgia and i use a seated walking aid. I get remarks off people constantly saying i should give my walking aid to someone who acually needs it or im too young to use it and i shouldnt use it. People think im on disability when im not and i bought my walker myself. I have a three year old daughter who i can not carry when she is tired so i will sit her on my walker and push her when needed. My body is in constant pain . My legs go heavy and i get extremely tired where i need to rest quite often my walker helps me to do things that overwise i couldnt do and just because i might look ok on the outside i am facing a battle on the inside. I wish people would keep their comments to themselves!!!
@@emilybrabon5376 I share your pain... of course not literally, I can’t imagine what fibromyalgia must feel like but I’ve got hEDS and it’s becoming harder and harder to do things and I also have a 2 year old. Keeping up with her and carrying her is a serious struggle and I always get the “you’re so young you should be stronger and more fit” or “oh stop pretending, just carry her, you’re her mom”. You know, as if mom guilt isn’t bad enough, they have to shame me for something I can’t control. It’s horrible... and I don’t understand why people would do this..
You guys are amazing!
I rock a cane to my classes that I teach at a university in Japan. My condition with my hips is very invisible, so my students look at me as I'm faking the pain. I always tell them there are many people with invisible disabilities. Keep spreading a positive message!
I get that too using my blind cane, especially when I look at my phone. I guess it makes sense - unless it affects them directly, people don't realize how many types of illness and disability there are, or the huge spectrum for sufferers of a particular one. You're awesome, keep rocking the cane!
Education is important. I never knew EDS existed until this channel. Ignorance causes people to do and say stupid things.
@@noeinroad7294 it's all good! I had a very dear friend with it back in like 2005 or so or I wouldn't have known until Martina either. (My friend is fine, btw, we just don't talk much anymore. Just realized that could sound concerning xD) Education is super important, but we can't beat ourselves up for things we have no way to know!
I know what you mean about judgemental people though. My husband has to walk with a cane; he’s had surgeries, but both of his knees are still really bad. He’s in his 40’s and young looking, so even though we have a handicapped placard hanging from a mirror, people (especially seniors) have actually stopped and watched us when we get out of our car to see if we really need the handicapped parking spot. It is very insulting.
I'm 27, I could probably use a cane on some really bad days but walk fairly normal on most days and I'm also currently in a school for disabled adults who need to learn a new trait because they can't work in their old job anymore. Even at that school where everyone has some kind of issue I had to defend myself because I look so normal. Like dude, sorry you don't have xray vision and can see my weird ass hip joints that cause me some amount of pain every single day. Just let me take that damn elevator instead of the stairs because it hurts more that day than it did just yesterday or even just 2 hours ago. My age doesn't mean I'm 100% healthy, disabilities don't care how old you are. A lot of people are born with them so please just leave people alone. I've also had some really bad comments regarding the adjustments that were made to my desk so I'm not in too much pain while sitting down. It's just a little thing under my table where I can put my feet down and stretch my legs better and a special cushion so I don't sit on the same spot of my butt and joints all day long. Nobody makes fun of my glasses but fully grown adults who aren't exactly healthy themselves can't comprehend how someone a bit younger than them can still have similar issues.
Hope people learn to mind their own business so people like your husband and me and so many other people can just live their life without being bothered by well meaning but super uneducated assholes.
I was born with my physical disability, so the whole “too young” thing makes 0 sense to me. I’m 43 now.....I was a lot younger when I was a disabled baby. 👶🦽
I became disabled when I was 32, I’m 45 now and even though I walk with 2 walking sticks you can’t actually see my disability and when I first started walking with my sticks I felt like I should put on a limp or something. When I walk along a path to me it’s like walking across a swaying wooden bridge because I have no equilibrium with what balance I have left. Just because you can’t see it doesn’t mean it’s not there.
“YOU’RE ONLY SUBSCRIBED FOR MEEMERS ADMIT IT”
*Meemers pillow moves fully into frame*
Immediately after his name was mentioned I felt his eyes boring into my soul
With my daughter (age 8 now, but addressed this when she was younger) I've explained it similar to that added in that "If you have questions ask, but be polite don't stare or ogle." I think how I explained canes/wheelchairs was "Sometimes people's bodies don't work properly or were hurt and stop working so they need extra help. No different than me holding your hand to help you get up onto something." I know this seems like I'm tooting my own horn, but a lot of times parents have problems explaining disabilities to their kids and this might help. Kids aren't dumb and they will understand if you just talk openly about any given thing.
It helps I've got some minor mobility issues with my wrist and lower back/hip problems that sometimes cause me extreme pain and issues moving. She's had to help me move and walk before... So she gets it.
Yes I'm lucky and yes my daughter is amazing.
I was in a walmart about a month ago and a young woman walked in and used one of the scooters available, I witnessed a manager come up to her and tell her to get out and that since she walked in she didn't need it and to let people who need it use it. She said she had difficulty walking and the manager basically said too bad, she looked fine.
I wanted to step in and try to help this poor girl out but I wasn't sure if it was my place to do so. When I got home I sent in a complaint to the store and they asked me for names (which I didn't have because I was just there, so I doubt that anything was done). I still think of it and how awful this girl was treated and was wondering if there was more that I could do.
I think it's really great you guys are talking about things like this. I didn't know much about invisible illnesses before and you have made me more aware of everyone around me.
I decorated my cane with cute washi tape! And I took my wrist braces and knee braces and I got rainbow thread and I sewed zigzag lines all over them. I really want to bedazzled them next!!!
Love the washi tape idea! I have so much left over from a scrapbook 🤔
NOTIFICATION SQUAD! How are you all doing this fine evening?
Always living for these vlogs. It's the positive motivation I need in my life. Stay healthy out there!
Studying at uni to get my degree ✌🏻
Not too bad but feeling crazy! It’s midterms and I’m super tired!! Ahhhhhh!!! I’m loving this video!!! ❤️❤️❤️
Eating breakfast
Just making breakfast so that I can go to work 😊
No lie, I literally had to explain to my boss’ boss today why I was sitting down at work today. (I work retail in the US. Sitting is a no no because retail is a step above institutional torture on a body). I also have EDS, and due to unforeseen circumstances I ended up having to work a 12.5 hour shift yesterday. Then I had to open again today. I was in hella pain when I got home yesterday, slept poorly because of the pain, and then had to be up early again to open. Pretty sure I’m still going to get written up for sitting though because they don’t CARE about shit like that.
The cane with heels thing gets to me too... I used to live in heels but now since I'm ill and need a cane I feel like I shouldn't wear them. People think I'm using my cane because I can't walk in the shoes
Becca I can relate. Winter time knee high boots with a chunky heel, with a toddler and parking in a disable parking spot, shock horror. My legs maybe sore from the cold or fatigued and walking into the supermarket without a pram to put my daughter in the trolley is so much easier than using a cane and it’s not like I’m going bush walking
my husband has severe feet pain & sometimes when we go to the store, I ask him if he wants to use an electric cart so he doesn't have to walk. he always responds with "but people will think I'm just being lazy or faking needing it..." because he's only 31 & doesn't "look disabled" to others.
I'm 32 and same... I'd really like to see some male rep on this issue!
The first time I used one I became a convert. It really changed the game & while was on guard for dirty looks, no one was unfriendly to me and some were even helpful. (I’m 38.)
I was 38 when I could no longer walk. I so get the feelings around this. I finally had to get to the point that this is what it takes to be out in the world and screw what others think. To that end I've had some people actually question me and when I rattle off my condition then tell them to google it they are shocked. It will either put them in their place or show their true ignorance.
I have to wear finger splints because two of my fingers overextend, and after years of wearing these pricy plastic ones that broke after less than a year and getting annoyed with people asking what they were; I invested in a pair in sterling silver! They look like funky rings and they make me so so so happy. I of course have a patterned fold-up cane that looks nice with most outfits, a wooden cane that fits perfectly when I wear heels and a carved wooden one that has the handle carved like a dragon. Not super comfy to use but dang I look cool with it.
thank you for this video; it's SO important to learn you can look amazing with mobility aids and it actually opens up a world of new accessories.
Martina's little photoshoot moments are just the most adorable happy moments and I strive for that kind of confidence
I’m 19 and I was recently diagnosed with hypermobile EDS as well as Fibromyalgia, the EDS has made me develop POTS as well. I work a full time job and I’m on my feet for 13 hour shifts and it RACKS my body, I’m constantly dislocating joints, pulling muscles, and it’s horrendous. I recently went through such a really rough patch and got super down on myself and couldn’t help but think why is this all happening to me, especially at my age, but watching you and Simon’s channel has truly gotten me through so much. Seeing your positivity through your struggle with EDS let’s me know that I can do it too. So thank you for everything Martina. ❤️
I definitely needed this! As someone who has hEDS, I don’t tend to dress cute bc I’m always so conscious of how I look with my supports on and with my walking stick
The way I look at using aids and dressing cute, people are probably going to look and stare, so I might as well give them something worth looking at
When I had to get a cane because of my POTS and hEDS looked high and low on amazon for a cute one, and ended up finding a really cute floral one.
Xanna Renae I do have a rather snazzy purple floral one, I must admit
@@kayleeandrews6896 purple floral? I need to get my hands on that one.
Xanna Renae I got it from amazon! It comes in a pack of 3, I also have a red one and a black one and they’re foldable and adjustable
When I broke my foot I had to use a cane for almost a month and the judgement in people's eyes was intimidating, like "why is she even using that when she's so young" so I sometimes opted to not go out. This video is important because for me it was temporary, but there's thousand of people that live this in a daily basis and all that judgement should stop
I am so grateful for this....in tears. I am a very youthful 50 yr old with a degenerative ligament disorder.. I get looks often because one day the brace is on the right leg, the next week its on the left..wierd I know. But this is how it is. When I need support or adjustments to do things some peoe are obdoxiously rude that I don't work within their system and treat me as if I'm faking..it makes it emotionally difficult to leave the house or be involved in things...I know I have to buck up and step forward however that works for me and seeing this video super charged me to not be afraid to be uniquely me.
I'm an OT student and literally just learnt about assisted/mobility aids today and doing a tutorial on them next week! Super cool to see the perspective of someone who actually use them!
The health professionals I have had who are best informed about, and most supportive of me using my aids are my ots and physios! :) I'm glad to have had a little help in your education here 😁
7:57 Wait that was a romper?? Mindblown 😮
My wife sent me this to help me come to terms with the fact that I have mobility issues at times. I’m kind of amazed by how much I’ve internalized the ableism so prevalent in the world. I really appreciated this video as I’ve been considering a cane to help me get around on bad pain days.
As someone with joint problems and a follower of both of you I really appreciate this.
All of the time being told “you’re so young to have all of this going on...” yeah I know but autoimmune diseases don’t discriminate
Martina you are loved and special and appreciated 💖 Thank you for being so bright 💖
I find it funny that Martina said they have different audiences, because I've been subscribed to both of these channels for years. Both have an underlying message of positivity and embracing being yourself, and that's why I keep coming back. I know these channels will always bring a smile to my face.
I love and super appreciate the visibility with this! I used to use a cane and now I'm in a wheelchair due to not being able to put weight on my left leg. The thing about people around judging you when they realise you're not paralysed is so real, it sucks
This helped me to make the decision to start using mobility aids. Thank you for being strong and inspirational. I don't feel broken anymore
Thank you for making this! Most days I have to use a walker to walk and I’m horribly self conscious about it sometimes. I’m getting over it and this definitely helps. 💙😸
David I think you’re clever enough to decorate your walker in an outstanding way that will make your personality shine through... and then you’ll have a new problem of having way too many people happily chatting your ear off 😂
Simon and Martina thanks. I really do need to decorate it. I do have a handy bag attached to it, which I love, but could use some bling. 😻
Thanks so much for making this! I’m a uni student who used to use a cane and now use a wheelchair, and all of this is just so relatable, from not feeling fashionable and broken, to intrusive strangers...I hope lots of abled people watch this and understand how many wheelchair users can stand and walk. Thank you for always making amazing content. The fact that I can really relate to this video is just a wonderful bonus.
Martina’s positive attitude really shines in this video, not only is it a terrific method of education (I guess those skills apply very well in UA-cam vids), but she serves as an inspiration to my family members with serious mobility issues. It also makes me realize how different, from the outside, positivity looks, particularly in the face of challenges!
I’m about to go wheelchair shopping so this was very comforting and confident boosting 🚶🏼♀️👩🏼🦽
Yay!!! Good luck!
Hey, this might not be exactly what you're looking for, but Jessica Kellgren-Fozard is a really awesome UA-camr and she made a video series about her journey of choosing a new mobility aid, so even if you're not looking for the same type, maybe some of her tips will help you
Ty so much for making this. I have multiple diseases and a cane would help me so much! I get worn out when I’m out too long. Martina you’re a huge inspiration to me. Love you tons!!💖💛💖
Thank you girls. Helped my wife not feel alone in her struggles. keep it up the good work.
Already subscribed to Martina and Annika for years. Much love to you both!!
"awww a tiddy almost fell out. thats quite the reveal" Simon cracks me up
The black dress look is so amazing 😍 ❤️
@TheRealSala yes! And the charms dangling from the cane handle with that look also are awesome
Thank you for informing and educating some of us who don’t know much about this topic. The car comparison was such a great example to put in perspective how your mobility aids help you out.
This was a great video and great message! I personally don’t know anyone that uses mobility aids but videos like this and whenever Martina tells us about her experiences, it really helps me become more and more aware. I hope that if I ever bump into someone that uses a mobility aid and is stereotyped as someone that ‘doesn’t or shouldn’t need it’ that I can be aware and help if needed.
Omg this is revolutionary for me. I use mobility aids and usually feel like an old woman who has to act like one because people are judging me. Which is so wrong. Off to pimp up mah walking steeeek!
Right?! “Ive been fighting something, and winning...while looking dope, look at me go~”
Yaaaaaaaas!!!!!!! You're beautiful and empowered Kristy, never forget it!!!!
Guys I love how you been posting a little bit more frequently I know it takes a lot of time and a lot of hard work to do that so I just want to say I appreciate it and I love watching your videos 🥰
Thank you for sharing this. I think I have never thought about these issues before (I am blessed to have good health -for now) it really opens up my mind and eyes to everything people with mobility aids goes through, being the "being judged by others" if not the worst, a very difficult one. Now, I know how to react, how to think, and how to educate other people around me about normal people that just happen to use mobility aids. Thank you Martina and Annika!
thank you for making for an informational video 🥺💖 so so much love and respect for the both of you 💕
Wow I really never thought about people using a wheelchair to simply conserve energy or for any reason other than they can't walk, this was so eye opening! Thank you Martina!!!
Screaming, this is the most relatable thing *ever*. G O D thank you for this video
Thanks so much to you all for sharing this with the world! I’m 40 and my joint issues are exponentially worse than they were ten years ago, so now I’m frequently using more mobility aids like braces and my cane. This is so awesome to share your tips.
You both are amazing, and I can honestly say you both are inspirations. I have mobility problems with a degenerative spinal disorder, I've come to see mobility aids as good things despite people looking down on me for my disability not being "visible" enough for them to see. Thank you both for being awesome. ♥️
Thank you for making this video, this is the educational content people need to be more civilized ❤️ i don't use a mobility aid but i find this kind of videos teach me a lot about how to be more considerate and respectful towards people who do. Keep being beautiful souls and have a great day ❤️
EEEPPP!! I WAS JUST THINKING ABOUT IF Y’ALL MADE A VIDEO TOGETHER. Dream come true!! Love all three of you ( Simon, Martina, and Annika). Sending all my love. Xx 🤗🤗💛💛
A great big thanks to both of you. Martina, I have been subscribed for many years and have never been so compelled to comment. I'm 29 and recently diagnosed with several disorders and had to use a cane for the first time in my life. I can relate so well to everything, from feeling worried that I'm being a faker to feeling old and scared of how my life is changing. This video was timed so perfectly and made me feel a lot better as I will most likely progress. Lots of love!
This is so nice to see you talk openly about mobility aids and help make people more comfortable with their own
OMG THE COLLAB I AM LIVING FOR!!! I love both of your channels I’m so excited to watch this!!!
So cool.
As someone who uses either a walker for short distances or a wheelchair to get around.
Sadly a lot of the time I feel broken still. It's been years since Degenerative Joint Disease took away my ability to walk normally.
A warning about pinchy knee braces. Make sure they are not constricting your circulation in your legs. (vascular and lymphatic) My braces caused my leg to swell and get a staph infection. 10 months of meds. Not fun.
This video is really inspiring. Never thought of all these things...you make me think a lot more and make me feel a lot more confident. I don’t have a “physical disability”, but watching your videos sure make me feel a lot stronger and positive. I am sure there is a lot of people out there that are now struggling but able to feel included in a community that is not always “heard of in real life”. To all of you watching this video, I wish all the best! Have a good day 🥰!
Yay!! I needed this today! It's my second day of work at a new job, a completely different career for me. Thanks for making my morning ❤❤❤
I love this so much I can't even express it. Thank you both so much, this helped me so much today. As you can see from my profile picture I use a blind cane, and it's with me constantly. My newest one has a bright green handle and bottom reflector, and I love it. I had some space themed washi tape on it for awhile, but I need to find a way to secure it better because it got gross and fell off after awhile xD I adore your cane, Martina! Mine folds too and it's awesome.
I'm nowhere near girly and basically live in sweats, so being fashionable isn't too important to me, but seeing this was so empowering and I just love it. Thank you both
Duck Tape and Darice Crafts both make really pretty galaxy-themed duct tape, if that would be a possibility for you & your cane.
Wait WHO IS THIS CUTE IRISH COUPLE?! I must know!
I was in a sling for a while and I had an Uber driver tell me he thought I had a gun because I was trying to hide it in public...oops
It might be "Way out west blog"! They live in Ireland and take care of a bunch of farm animals 😂
@@solarbear3621 I thought way out west too! But they're not in Northern Ireland.
Celeste Whitlow I was wondering the exact same thing! I wanna see a cute Irish couple take care of sheep...
I immediately wanted to know too! If anyone finds out can they comment the channel name please!
cruising the comments to find out who it is as well. lol
This is great! I really found that customizing my mobility aids helped me take ownership of the situation I was in.
I definitely felt like people were looking at me weird when I'd use a motorized cart while shopping since I'm young and there isn't an obvious injury. But I can tell you I definitely needed it after breaking my femur in half!
Thank you for putting out videos like this, its definitely made me feel better!
I have really bad hypermobility that causes me bad joint pain and swelling if I'm up and around for too long - I feel bad even just taking a priority seat on a train despite the fact I'm in pain, so I really appreciate you guys discussing invisible illnesses ❤️
I had to use crutches 6 weeks while my ankle was broken, then had to use a brace for about 2 weeks after. We lived on the third floor. I had no idea til then just how much I took for granted in my life.
Thank you both for sharing this and being so positive. I love it!
I don't use a mobility aid but this was still very informative and I'll definitely be sharing this! Thanks for sharing!
That's great to hear! I was so worried how this video would be received
@@eatyourkimchi I enjoy all of your videos so I received it very well! Those that don't, missed an opportunity to learn something new. 🤷♀️
Awe I’ve watched both of you for so long! Thank you for sharing your experiences and solutions!
You guys are so amazing I sometimes feel really self conscious of my chronic illness and you guys are my inspiration!
"But you don't look sick." I struggle with multiple auto inflammatory dieases that can really drain me. But I don't look sick. Thats because I learned to hide the signs of me being sick. This last year thanks in part to #buildaladder and your eds posts, I decided to own my illnesses as what they are- just another struggle. If someone asks why I'm bandaged, or can't go ouy one day, or sometimes just can't walk very far- I dont have to hide it anymore to feel like myself. Depression is still a real issue with these illnesses, but now I have a community I can go to for support. Thank you for helping to normalize hidden illnesses.
God, the part about wearing heals and not using my cane ... I felt that 😭 I always feel like I can’t wear nice shoes with a cute outfit and also have a cane. Some days I start off feeling good and I wanna wear something cute but I know that if I wear heels I’m gonna end up feeling like crap over time to a point where I’ll need it. But like walking in heels with a cane!? Wow what a fake!! But you guys are right, in the nicest way I can say frig the nay sayers!! I’ll wear what I want 😄😄
Thank you for educating the world. Let's raise the awareness!
It’s amazing to see you two saying the things I’ve been thinking about my own life
Think you're on an episode of RuPaul's Drag Race.
Yas, Queen, make that cane/chair/sling WORK for you!
YOU BETTER WERK!
"You are all here for meemers, admit it!"
*moves pillow so meemers face is more visible*
Ly ♥️
i was looking for this comment!!
Honestly, this video helped me a lot, I've needed a knee brace on and off for a few years now, but I constantly try to go without it because I'm worried about seeming "broken". But hearing it put in this way made me realize its not bad thing, still kind of annoying to wear, but at least I can go out and enjoy my day while getting around easier and in less pain. Thank you for being so open about this topic
So glad that you too are doing a video together. Everyone should show all cool sense of style and how they rock it!
I remember my knee was bad I had to use a wheelchair at Walmart my husband forced me but I hated it he was like you NEED this. I was like no I will hobble he said no and made me use it!! I felt like everyone was staring
I understand! When I broke my ankle we'd already planned a trip to the zoo. I wanted to go and was determined to use crutches but my husband and the zoo staff were like "NO!" and we used a wheelchair.
A lot of people looked at me with a frown and in the baby reptile area a family scolded us because I couldn't quite edge out of the frame of their photo.
Enlightened me to how privileged I am to not have to deal with that type of behavior eternally.
This comment reminds me of when I got food poisoning in middle school from eating at a restaurant with my mom. It wasn't so bad that it had to come out, but I couldn't move it hurt so much. We had to go to Walmart so my mom put me in a wheelchair and a family stared at me. I pretended to sleep but opened my eyes and stared back for a while before closing them again just to freak them out a little. *sigh* Interesting times in Walmart.
JUDGEMENT : Instant Judgement from the outside, always. when people look at me they see a Very Big Scary Man with a Big Beard and Bigger Belly, the think I'm some kind of Bigg Giant Strong person that can handle every situation. not true. turns out I'm a delicate flower with a lot of medical problems, I understand the judgement thing.
being judged on you appearance is such a nuisance... I have a friendly, expressive, and mischievous baby face with apparently a touch of what passes for arrogance, so people never take me seriously. I only complain when, like, my cousin is killed at war or I'm suffering from demyelinization of my spine and can't feel my limbs. But the bias is so strong that somehow people don't take it seriously even when I talk about those things. In their minds I look like I've never gone through anything rough in my life and they think I'm either BSing or being whiny, so kinda the opposite to your situation but with similar results. My hurt is very seldom acknowledged. I'm glad I found friends who were able to get over that bias but even then it's taken some work.
much love hope you have people who treat you like you deserve to be
You are precious!! 🙏🥰🤗
Thank you so much for bringing this to the forefront because people made me feel awful when my cancer took away my ability to walk for long periods of time. They looked at me with my bucket hat and young face and got angry that I had the audacity to use a wheelchair when someone might actually need it. I'm finally taking steps for my mobility aids now, so again thank you for taking the time to give such detailed advice, suggestions and especially relatable stories. You're making a difference with each of these personal videos you share with us. Sending you both lots of love from Ottawa, IL. ❤
So proud and grateful to have media influencers like you guys in my life! You ladies are so strong and kind, thank you for all you do 💗
I HAVE BEEN WAITING FOR THIS SINCE I SAW Y'ALL IN EACH OTHER'S INSTA STORIES.
My faves.
I watch both your and Annika's channels for a while now and I was so excited to see this collab video with you guys talking about fashion and mobility aids!
This is the kinda wholesome content that will make me stick around for even more long years to come, man.
Thank you both so much for making this! I'll never understand people's love of trying to "prove" that someone is faking a disability. Even if someone IS faking it, what are you gaining by trying to "prove" it? You're not helping disabled people when you act like a dick to a stranger in a wheelchair. Same goes for people who have a handicap parking pass, but aren't in a wheelchair. If they have a pass, leave it alone, even if they "seem fine". I'd love to know what ego button this is pushing for those who scrutinize the people around them using mobility aides! Maybe you both should make a video about comebacks for the ridiculous things strangers say to you about your disability, because I never think of anything good to say until well after the encounter.
„my favorite irish couple who live in ireland and have sheep and stuff“ MARTINA ARE YOU TALKING ABOUT ’WAY-OUT WEST BLOW-IN BLOG‘ ?!! YOU BETTER BE! 😍
YES WE ARE!!!!!
Thank you! Thank you! Thank you! I have to walk with a cane sometimes and I feel less when it happens. I tended to wear baggy, invisible clothes at these times because I never felt I good enough to look pretty.
Your channel and this video helps so much.
Much love to you.
How exciting!!! I’ve been following Anikka for a while and seeing you guys together just made my day. Make one more with fashion tips!!! 💖
Martina! I really hope you reply to this but I saw in Annikas video you filmed with her how you get really bad scalp psoriasis and I have it too. It started when I was 16 and I’m now 26. It would flare up then go away but now I’ve had it non stop for 3 years. Nothing works. No steroids or creams make a dent in it and my hair has become thin and the areas that it flares up on, noticeably more thinner. What do you use to help ? Thank you so much !
When I was a kid I had this awful tar shampoo and eventually I stopped bc the smell was killing me haha
Basically I started to notice patterns like, hats = huge flair... BUT it also depends on if I sweat or not, or what type of hat 🧶 or 🧢 🤔 I use a simple psoriasis shampoo from Iherb but only once or twice a month, I always put cream my scalp with psoriasis cream, currently using a kids one! I have flairs and ups and downs, just try to keep up with moisturizing. Hope this helps!
Please tell me where Annika's leaf backpack is from- it is adorable! 😍
Fern Buttling-Smith I think I saw one like it on Etsy?? I would search leaf backpack on etsy!!!
Hiya! I saw another comment and she said it was from an Etsy shop called Leafling :)
That was me on the other video :)
i LOVE this! as a young girl with multiple chronic illnesses myself, it’s so nice to see two of my favorite youtube’s shedding light on such an important topic!
Thank you for this educational video, I too once was really surprised by someone standing up who was in a wheelchair, guess I never reflected on the things that I saw on TV. The sentence „don‘t ruin someones day who already has a hard life“ is something we all should live by. Lots of love ♥️🎈
Oh you watch irish couples with sheep too? Though I watch this older couple who live in the west or Ireland, haha. Way Out West Blow-in blog, their voices and accents always make me want to write a children's book so I can ask them to narrate it. Very simple charming stuff with lots of mud and sheep that keep getting themselves trapped in the brambles eating the leaves and then they just wait until the humans show up to free them, only to do it all over again the next day. haha
THATS WHO WE WATCH!!! :) we love them
@@eatyourkimchi Haha, right? Those types of vlogs show all that is right with the world. They should be way more famous.
Wow here i go, non native english speaker. Took me like 3/4 of the video to realise its not about AIDS the immune disease.
Lobster oh man! Well if you don’t laugh, you’ll cry
This is so empowering, I love the confidence and the honesty. I can't imagine how frustrating it is to deal with the ignorance, but i'm so happy that that doesn't stop y'all from being your wonderful beautiful selves!!!
This is an AWESOME video! I am blessed in that I don't have to use a mobility aid at this time but as a nurse I know how important this topic is! Great job ladies!
In the future I’m pretty sure I’m going to need some kind of aid, I get body pains everyday ranging from my jaw to my knees. I’m always told at doctors that it’s “growing pains” but I don’t believe it, then again their isn’t much I can do. I just have to wait until I’m older and see if I’m still experiencing these pains 😔
Same! Really sucks how skeptical and unhelpful doctors can be.
pavotrouge one side of my family has arthritis, especially knowing this from my dad. He has hip problems, but I get pains in almost all of my body, in my legs, back (mainly lower), hips, jaw, knee, neck, shoulders and sometimes even my ankles and wrists. Thank you for your comment, I’m most likely going to tell my mum :)
Dawn CL Yeah! Sometimes you just really want to be diagnosed with something since you’re always told that it’s body pains. Martina was actually told (when she was younger) that her EDS was “body pains”, it’s ridiculous haha
@@kkiriot Exactly how i feel! Because of Martina's story i decided to try new doctors. I haven't had much luck yet but I'm hopeful. Wish you the best of luck finding the right doctor as well.