WWGM GNE Myopathy Conversations: "Using a stick forced me to accept my condition"

Joanne, who lives with GNE Myopathy talks about how GNE has changed her life, how she deals with progression and what she did to move on with her life after her diagnosis including taking a solo trip across the globe with 'Steve' the stick!
About WWGM: World Without GNE Myopathy (WWGM) is an organization dedicated to finding
therapies for GNE Myopathy and other rare diseases in general. Founded in 2015 and headquartered in New Delhi, India, WWGM has a global outreach and is committed to spreading awareness of GNE Myopathy across the world.
#GNEMyopathyConversations are a series of interviews with people from the GNE Myopathy community.
For more information visit us at www.gne-myopathy.org or write to us at [e-mail]
To donate to life-saving research into GNE Myopathy please make a payment to:
ONLINE TRANSFER
Account name: World Without GNE-Myopathy (India)
Bank: SBI, Jawaharlal Nehru University, Godavari Hostel Branch No. 10441, New Delhi-110067
Account No. 35340458102
IFSC Code: SBIN0010441
MICR Code: 110002428
SWIFT Code: SBININBB548

[@sachinjain9048]

Hello Ma'am myself Sachin Jain. I was recently diagnosed with Nonaka Myopathy as per the Genetic testing report. I also went through MRI, EMV studies and CPK test. My symptoms started in mid 2020 which I noticed when people began asking why I am walking like this. Sooner I also realised I was feeling weakness in the lower legs and foot drop. Please suggest me what to do know. I am currently able to walk on my own, no issue in climbing stairs but Little bit of foot drop is there . I am currently 23 years old.

[@watching2346]

Hello Sachin, please send me your phone number

[@sachinjain9048]

8271161604