My Shifting Multiple Sclerosis Symptoms -

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  • Опубліковано 12 вер 2024

КОМЕНТАРІ • 66

  • @NicoleRAINMusic
    @NicoleRAINMusic Рік тому +20

    I was confirmed to have MS less than a week ago. I showed this video to my loved ones to help them understand what is happening to me and I find it to be really comprehensive and helpful, thank you for this! I am I am wishing everyone all the best 🙏🏾💛🙏🏾

  • @shawnmcanthony5724
    @shawnmcanthony5724 2 роки тому +36

    They say there are worst diseases than ms and its not fatal but waking up constantly with pins and needless in feet makes you want to SCREAM.🙄

    • @jancross9226
      @jancross9226 Рік тому

      I’m sure there are worse things. But MS is everyday and every night. It goes on day after day, week after week, year after year. There are better days and worse days, but it doesn’t stop. For those who have only invisible symptoms there is no understanding. “You look great!” Is not a compliment sometimes. They mean, “Are you faking? Do you just want attention? Get over it!” People don’t understand that just showing up took more effort than they will exert in a whole week! Everyday we have to talk ourselves through daily tasks, struggling to stay focused, sleeping way too much, being chronically behind in EVERYTHING! But I wake up, praise God and keep on! My husband also has Alzheimer’s, and I’m the primary caretaker. I praise God he can do his own Activities of Daily Living. Shower, dress, brush teeth. He even does dishes and mows the lawn!
      It can get interesting but he does pretty good!

    • @shawnmcanthony5724
      @shawnmcanthony5724 Рік тому +1

      @@jancross9226 Jan these words are so inspiring . I thank Jehovah god i can still work an 8 hr job after 20 plus years of having ms. My wife of 20 yrs who is a registered nurse motivates me also. But knowing that one day no one will say i am sick Isiah 33:24 in jehovah gods new world right here on earth like in the garden of eden motivates me even more. It was Jehovah gods original purpose but adam an eve sinned

    • @candaceskog3645
      @candaceskog3645 Рік тому

      I feel ur pain Literally lol. Shit sucks

  • @t.s1048
    @t.s1048 4 місяці тому +3

    Yes it is the disease of the unknown. We never know what we have in store for tomorrow. I was diagnosed back in 2005 because of optic neurotic in my left eye, which I still have. Thank God I still have to remind family that I still have it even though I work out every day and am in the best shape of my life, I still have my symptoms and I still take Ocrevus every 6 months. I know I am very blessed and highly favored,! Stay blessed and stay healthy 😇🤗

  • @vladc.8852
    @vladc.8852 2 роки тому +9

    I hope for more research and investing in autoimmune diseases, knowing how it works and finding a cure will be a huge step in medicine.

  • @NicoleRAINMusic
    @NicoleRAINMusic Рік тому +2

    Marti's Story really hits home with me, because I feel this every since day. It brings tears to my eyes, not just the sad reality but the hope that she shares is absolutely inspirational and it motivates me to push past this. Thank you for this video and thank you for being an inspiration Marti, I appreciate you. 🙏🏾💛🙏🏾 I am wishing everyone the best!

    • @candaceskog3645
      @candaceskog3645 Рік тому +1

      Recently found this video ur words capture my emotions when I viewed it. Wish u strength in ur fight.

  • @Jules.AM242
    @Jules.AM242 2 роки тому +5

    Thank you for this my warrior sister ❤

  • @NativeTexan77
    @NativeTexan77 2 роки тому +2

    So glad this video was made. I'm a MonSter Fighter too. Dx: 21-Oct-2008 🧡

  • @ricrussell4413
    @ricrussell4413 Рік тому +7

    I’ve been dealing with these issues forever..started when I was 13..problems urinating.. placed on water pills, been on them ever since, going on 69..now I’m suppose to have an inter stem placed in to kind of move the nerve in my bladder so I can fully empty..I do take muscle relaxers for my whole body has spasms..especially my bladder it drops me to my knees ..I usually sit on my heating pad all night….I can barely walk due to surgery’s and my now drop foot..I have three hemangiomas in my spine.. no surgery will touch me as my medical conditions are lengthy…this disease is horrific.. I stay on prednisone almost constantly….get massive dosages when in flare because at 63 I was diagnosed with RA..just for extra fun…NOT, hang in there honey I’m still kicking all these years, maybe with only one functional leg…sorry bad joke..

    • @candaceskog3645
      @candaceskog3645 Рік тому +2

      I love that u kept ur humor! I think for me Love laughter and music is key fighting this ugly disease . But I'm only 2 1/2 yrs in , so who knows lol

  • @nicolerain3127
    @nicolerain3127 9 місяців тому

    This is exactly how I feel. I absolutely loooove this video. Thank you!!!! ❤

  • @rickyoceans2943
    @rickyoceans2943 2 роки тому +1

    My God you're so beautiful. I pray you have rrms, still watching.. I love you and I feel your pain baby!

  • @patrickjordan5055
    @patrickjordan5055 2 роки тому +2

    Excellent job 👏 👍very informative...blessings

  • @AJHR77
    @AJHR77 2 роки тому +2

    Great video,she is accurate. I found out when I presented with O.N.

  • @EuclidAveCog1
    @EuclidAveCog1 2 роки тому +2

    That was an excellent job Marti. I’m proud of you?

  • @alrightwithms845
    @alrightwithms845 Рік тому

    Great visuals. Thanks for sharing 😊

  • @naturallydope6971
    @naturallydope6971 Рік тому +2

    I was diagnosed with multiple sclerosis last week
    I am currently in the hospital 😢

    • @barraqaalim7459
      @barraqaalim7459 Рік тому

      I recommend you to Dr okolo herbal medicine formula it can help you get well

  • @user-qi2bi2wg6d
    @user-qi2bi2wg6d 6 місяців тому

    ❤ praying for you

  • @LovinTC
    @LovinTC 2 роки тому

    Stay Strong 🙏🏽

  • @luzacevedo1794
    @luzacevedo1794 5 місяців тому

    God bles you hunnym this lady in the video tho and every MS fighter.

  • @grantswanson2120
    @grantswanson2120 3 місяці тому

    be blessed

  • @tcfmarch17
    @tcfmarch17 Рік тому +1

    You're so beautiful.

  • @thomafuad6523
    @thomafuad6523 2 роки тому +2

    We are worries!! 💪💪💪💪💪

    • @ottotater2787
      @ottotater2787 2 роки тому +2

      We are warriors and worriers & will never give up.
      (cute typo)

    • @thomafuad6523
      @thomafuad6523 2 роки тому +1

      @@ottotater2787 lol that's wasn't intentional but it's kinda true!! 😂😂😂 English is my 2nd language and I suck at spelling 🌚

    • @ottotater2787
      @ottotater2787 2 роки тому +1

      @@thomafuad6523 English is my first language and I suck at spelling.
      I appreciate you sharing your stories in my language.

    • @someone-xr4zr
      @someone-xr4zr Рік тому

      @@ottotater2787 i have ms too
      Where are u from

  • @glynnisthomas9165
    @glynnisthomas9165 6 місяців тому

    I was diagnosed with fibromyalgia 25 years ago but my symptoms have become so severe and painful I thought it has got to be much worse than fibromyalgia. Sadly, after checking out all the symptoms, I have come to the conclusion that I just have the worst fibromyalgia of any human ever. I can't walk, my body hurts so bad and feels so weak and there is nothing I can take because nothing stops the pain. Sorry to bother you all but if you want to know what I think it's this: Aaaaaaaack!

  • @stephaniehicks4884
    @stephaniehicks4884 2 роки тому

    Love it

  • @finnajane
    @finnajane 3 місяці тому

  • @lmundiclan
    @lmundiclan Рік тому

    I am 78 and just got diagnosed. I guess I had a lot of dumb doctors. I had 34 surgeries, no MS, I had pneumonia 10 times, once with Meningitis but no MS, I had pseudo tumors in my, I forget what the bones around my eyes are called

    • @patriciaforbes8880
      @patriciaforbes8880 2 місяці тому

      I was diagnosed when I was 75.. like you it took 4 years to diagnos.i can't remember how many "illness es " they came up with.

  • @boostmobile5326
    @boostmobile5326 Рік тому

    What causes MS? And is acupuncture therapy good for MS treatment?

    • @samritiprashar9759
      @samritiprashar9759 Рік тому

      Um its a disease of Central nervous system which includes brain and spinal cord.
      In simple words our immune system starts eating covering of nerves around our brain and spinal cord, which disrupts communication between brain and body.
      For treatment corticosteroid and muscle relaxants are given.

  • @dianefresca6896
    @dianefresca6896 Рік тому

    💪💪💪

  • @MP-po6fj
    @MP-po6fj 2 роки тому

    Does anyone know IF a basic MRI of brain will diagnose and show MS or does it have to be a specific type of MRI
    My bloods came back clear but know i have symptoms of a neurogenic disorder.
    GP going to keep me waiting for months for an MRI brain scan
    Going to pay private now at this stage to rule out A B and C
    Any advice would be great people
    blurred vision/ tight chest hug / pins and needles now and again/ chronic anxiety / brain fog / fatigue/ very little sleep.
    All came on from chronic stress and trauma 6 months ago where i had a serious car accident and had severe chronic back nerve pain for months ...couldnt walk.
    I feel the human body autoimmune system has definitely took a hit now
    I suppose an brain MRI will rule this out

    • @laradorren9648
      @laradorren9648 2 роки тому +6

      The MRI will not show MS. The MRI (with or without contrast) will show demyelination/lesions on brain and spinal cord. I believe neurologists use the McDonald criteria to assess and diagnose MS. Hope this info helps. All the best!

    • @taliatompkina3680
      @taliatompkina3680 Рік тому +2

      I had symptoms before my lesions appeared I was misdiagnosed so many times until 3 years ago I finally started having lesions show up on my brain it took another 2 years of MRIs, and different neurologists until finally my neurologist referred me to an MS specialist who diagnosed me this year. So yes an MRI might show lesions, but that can mean different things( for example: when my lesions weren’t bad they said my lesions were probably from headaches). So it could be something else causing the lesions. from what my doctor told me there’s typically a certain pattern of lesions that are common with MS which helps diagnose it but really there is no exact criteria with MS bc it affects everyone so differently . Anyways I would 100% get those MRI’s asap. And even if they don’t show lesions I wouldn’t rule it out. All the symptoms you’ve described I’ve had at one time or another. I hope this helps and your doctors find the cause, I understand your pain and hope you get relief soon 💗

    • @MP-po6fj
      @MP-po6fj Рік тому +1

      @@taliatompkina3680 Hi Talia Thank you so so much for taking the time and effort to give me such a detailed response with accurate leads and advice where to go forward and also personal information on how you where diagnosed yourself.
      I definitely know my own body and know their is something neurogenically working on me but will go through the the protocol now to get tested with MRI scan as quickly as possible.

    • @harmansinghdhillon4589
      @harmansinghdhillon4589 Рік тому

      @@laradorren9648 Lumbar puncture + for oligoclonal bands. But you are spot on pal.

    • @ricrussell4413
      @ricrussell4413 Рік тому

      Hi my name is Kat.. my mri show demyelation .. meaning the sheath that protects the nerve is missing ..that’s why everyone has different responses..only a neurologist can confirm MS..MY THERAPIST ACTUALLY TOLD ME I HAD FOOT DROP..SO I STARTED THE JOURNEY..caught earlier I may not have have all my issues..they do have neurologist that specialize in ms….search for them..

  • @jennmoraze4442
    @jennmoraze4442 Рік тому

    Thumbs down because of this illness. Sorry you go through this. I have fibromyalgia but I think it's more. ❤

  • @omegasupremez2832
    @omegasupremez2832 Рік тому

    🙏🏾💪🏾😘💕👑

  • @robertogura9890
    @robertogura9890 6 місяців тому

    I feel bad for actual MS patients that have to deal with this loser DEI heavy company.
    Kelly Kumor is the clown that made sure all donations from our family are pulled.

  • @louisdahlia
    @louisdahlia 6 місяців тому

    National MS Society can go to hell for what you did to 90 year old Fran Itkoff. You discriminate and are not inclusive.

  • @precisiont5188
    @precisiont5188 2 роки тому +1

    MS could be caused by va+cci+nes