Rare Barometer Webinar on the results of the NBS survey

Webinar on the results of the survey about the opinion of people living with a rare disease on newborn screening
The Rare Barometer Team is joined by Gulcin Gumus (Research & Policy Senior Manager at EURORDIS- Rare Diseases Europe) to share the latest results of the survey on the opinion of people living with a rare disease on newborn screening.
You can access and download the slide deck at: download2.eurordis.org/rareba...
Other important information sources:
- Find the results of this survey at: www.eurordis.org/publications...
- Learn more about Rare Barometer at: www.eurordis.org/rare-baromet...
- Get more detailed information about EURORDIS - Rare Diseases Europe newborn screening work: www.eurordis.org/our-prioriti...
- Get to know more about the research project Screen4Care: screen4care.eu/