I haven't seen the neurologist yet, at the end of August. Haven't had an infusion yet, this was very helpful. My symptoms started in November 2021 as well, I was admitted because my MRI showed lesions as well and everything happened very fast but these type of videos give me immense hope for the future 🎉
hi there! so sorry this took me so long to get back to. it was held for review for some reason, but here we are! i hope your neuro appt later this month goes well. YOU GOT THIS GIRL!!
Hey Alex! so glad your treatments are going well...never worry about how you look, you are such a cutie..enjoyed the vlog and look forward to the next one...Have a great week!
Yaaaay to less reactions this time round 👏🏻👏🏻 it’s crazy because I just had my infusion on Monday and it’s the same number of infusions you’ve had aaaaand this round was way easier for me too! So interesting.
Heat triggers my symptoms. The drug your on ive been on for almost three years and i have had no attacks. The drug i was on before was so bad for me. Yes it lowers our immune system.
Also a Dr Boster fan. In discussions with the disability company as I am off work moving from STD to LTD and they wanted to know what was being done to resolve my condition. They saw I was on drugs for MS and were wondering when I could return to work- the main issue is cognitive issues and per my neuro psych eval I shouldn't return to that stressful and intense role. It is in accounting and/or ERP system deployments (SAP). So- until I test better- and I'm not convinced I ever will! after 18 years with MS that time may be over- I was about to retire so I am ok with that. I dress like you- but put on a sassy MS shirt. I don't do the benadryl anymore- I changed to Zyrtec and with the sol medrol combo it is bad- edgy and dopey. I changed to 1/2 the sol medrol and Zyrtec instead. I always fiddle on my computer but bring a book. I bring clean snacks (hand fruit and nuts), dress as you do and hot pack my fore arm on the drive in to pop my veins for the IV stick. I had a reaction the first 1/2 and never did again except when they tried the fast infusion- then itchy ear again. Now as I am approaching 60 and stable MRIs for 7 years my concern switches to brain volume so I can switch to Aubagio in Jan vs another round of Ocrevus (Dr Boster recommendation on "deescalate treatment during global pandemic") made sense to me- I can get vaccinations whenever I need to and, etc. B cells should come back within a few years as my natural immune system will be depressed just due to age. While we do qualify to be considered compromised they found we had no greater chance of catching something like Covid and most did just as well if they caught it. We still have our T cells is how my Neuro explained it
pardon my late reply! i take some supplements that target inflammation and nerve support (high dose turmeric extract, vit d, r-ala, fish oil, vit c... im probably forgetting something lol), and i don't eat meat or eggs. cutting out dairy makes my symptoms nearly nonexistent but i've been on the cheese train lately! egh. but i've found that the turmeric makes a big impact and i can tell when i havent been taking it consistently. and then other things like getting enough deep sleep, learning how to manage stress and anxiety better, etc. otherwise, i just try to push through!
![Дон ДОН, Алаудинов и СБЕЖАВШИЕ из под Курска ахматовцы 😁 [Пародия]](http://i.ytimg.com/vi/dEfCf5IK26Q/mqdefault.jpg)
I haven't seen the neurologist yet, at the end of August. Haven't had an infusion yet, this was very helpful. My symptoms started in November 2021 as well, I was admitted because my MRI showed lesions as well and everything happened very fast but these type of videos give me immense hope for the future 🎉
hi there! so sorry this took me so long to get back to. it was held for review for some reason, but here we are! i hope your neuro appt later this month goes well. YOU GOT THIS GIRL!!
Hey Alex! so glad your treatments are going well...never worry about how you look, you are such a cutie..enjoyed the vlog and look forward to the next one...Have a great week!
thanks mary! youre the sweetest!!
I want her or read the bending of the leg is in Ms sign.
Yaaaay to less reactions this time round 👏🏻👏🏻 it’s crazy because I just had my infusion on Monday and it’s the same number of infusions you’ve had aaaaand this round was way easier for me too! So interesting.
ahh look at us go!! i'm so glad yours went well!
So what do you use to treat the symptoms? Am I going to have the tingles for the rest of my life? 😢
Heat triggers my symptoms. The drug your on ive been on for almost three years and i have had no attacks. The drug i was on before was so bad for me. Yes it lowers our immune system.
wow, three years and no attacks. that's wonderful!!! so happy for you!!
Also a Dr Boster fan. In discussions with the disability company as I am off work moving from STD to LTD and they wanted to know what was being done to resolve my condition. They saw I was on drugs for MS and were wondering when I could return to work- the main issue is cognitive issues and per my neuro psych eval I shouldn't return to that stressful and intense role. It is in accounting and/or ERP system deployments (SAP). So- until I test better- and I'm not convinced I ever will! after 18 years with MS that time may be over- I was about to retire so I am ok with that.
I dress like you- but put on a sassy MS shirt. I don't do the benadryl anymore- I changed to Zyrtec and with the sol medrol combo it is bad- edgy and dopey. I changed to 1/2 the sol medrol and Zyrtec instead. I always fiddle on my computer but bring a book. I bring clean snacks (hand fruit and nuts), dress as you do and hot pack my fore arm on the drive in to pop my veins for the IV stick. I had a reaction the first 1/2 and never did again except when they tried the fast infusion- then itchy ear again.
Now as I am approaching 60 and stable MRIs for 7 years my concern switches to brain volume so I can switch to Aubagio in Jan vs another round of Ocrevus (Dr Boster recommendation on "deescalate treatment during global pandemic") made sense to me- I can get vaccinations whenever I need to and, etc. B cells should come back within a few years as my natural immune system will be depressed just due to age.
While we do qualify to be considered compromised they found we had no greater chance of catching something like Covid and most did just as well if they caught it. We still have our T cells is how my Neuro explained it
What do you do for numbness and tingling in the hands and feet?
pardon my late reply! i take some supplements that target inflammation and nerve support (high dose turmeric extract, vit d, r-ala, fish oil, vit c... im probably forgetting something lol), and i don't eat meat or eggs. cutting out dairy makes my symptoms nearly nonexistent but i've been on the cheese train lately! egh. but i've found that the turmeric makes a big impact and i can tell when i havent been taking it consistently. and then other things like getting enough deep sleep, learning how to manage stress and anxiety better, etc. otherwise, i just try to push through!
@_alexandraraye thank you for the reply. I will try this. Thanks